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Samo73
United Kingdom
Приєднався 28 лис 2015
Am Samo 51y/o Born in Mid May & Taurus ♉️ . Am a Gay Asexual Transguy. I got diagnosed with NEAD in July 2017 afta havin a grand mal seizure in franky & bennys in Manchester. My seizures all started coz i was gettin bullyed constantly 4 7 yrs str8 & it started a chain reaction so now my life has changed forever coz of this bully. Am gona be talkin about my transition frm fem 2 male jurny evry chance i get as well as some vids abt my autistic traits, seizures, likes/dislikes etc. Vids of my seizure activity evry chance i get altho i have absent, myclonics, grand mals, twichs, jerks, head drops, drops 2 floor, seizures on a daily basis threw out the day. If i dont upload a vid 4 a wile its etha coz I’ve not been well due 2 my seizures, hedakes, migranes, asma, days out, etc or i have been bizy, so I apologise in advance. Dont 4get 2 like, subscribe & click te notification bell 2 get te latest updates. Thx so much love & hugz 2 uz all x
Myclonic & Painful Seizure over 18 minz
I had a long Myclonic & Painful Seizure that nerly made me Cry, I was goin in & out of Impaired Awareness, it lasted over 18 minz, ma Suport Worka Amaka was helpin Me threw it coz it was affectin ma Breathin.
#seizureawareness
#seizureawareness
Переглядів: 94
Відео
River of Lite Quiet Hour on Mon 4th Nov 24 in City Centa & Albert Dock wit Suport Worka Amaka 😃
Переглядів 112 місяці тому
Mon 4th Nov 24 I got 2 see te River of Lite wit Lites swiched on wen it was te Quiet Hour 4-5pm 4 Pple wit Autism that are Sensitive 2 Noise & that have Social Anxiety & dont like Large Crowds like Me, it was a Fun Aftanoon wit ma Suport Worka Amaka & am glad I got 2 see it wit te Lites turned on 😃
River of Lite Mon 28th Oct 24 wit Suport Worka Amaka Liverpool 🥰🤟
Переглядів 22 місяці тому
Mon 28th Oct 24 2day i went 2 Town in Liverpool 🇬🇧 wit ma Suport Worka Amaka 2 see te River of Lite💡even tho it wasnt swiched on, I tuk Pix of it all, did alot of Walkin🚶♂️➡️over 20,560 Steps, was excited 😊 wich sent ma Hart🫀Rate went up 2 abt 170bpm, we saw a small Ship 🚢 in te Docks so tuk Pix of that, I dint have many Seizures only Auras, Absent, Tremors & Mini Myclonic 1z. It was a very g...
Optonz 31st B'day Celebration Ball
Переглядів 183 місяці тому
Optonz 31st B'day Celebration Ball on Friday 11th Oct 24 at Thornton Hall Hotel & Spa. I went wit ma Suport Worka Karl, we saw Frendz & Colleagues. I tuk Pix so i vud luk bak on Memoryz. I had 2 wear ma Noise Cancellin Hedfones. I wore ma Autistic Card & Lanyard. Ther was a Magician who was doin Trix & Mind Readin. Sweetheart was te word our Table had picked out & it showed up on wifi. Ther was...
Absent, Myclonic, Tonic, Head Drops, Grand Mal, Shaky Breathin Difficultys
Переглядів 1,4 тис.3 місяці тому
I had a small Aura so I recorded it, I went in 2 an Absent Seizure 2 start with Shaky Breathin Difficultys, then it went 2 Myclonic Twichs with Head Drops, that went on 4 a wile, then it progressed in 2 a Grand Mal Seizure. That was te 1st of 3 Seizures y'day. It lasted 22 minz 40 secs. My Suport worka Amaka was helpin me threw it by remindin me 2 breathe.
Myclonic Tonic Seizure wit Jerks Twichs & Hed Drops lastin 18 minz 37 secs. Monday 23rd Septemba 24
Переглядів 4664 місяці тому
I had a small Aura Seizure Warnin so i was able 2 Record it. It was a Myclonic Tonic Seizure wit Jerks Twichs & Hed Drops. It lasted 4 18 minz 37 secs. Ma Breathin was Shaky & it was difficult 2 breathe durin it. This Seizure was on Monday 23rd Septemba y'day. Ma Suport Worka Amaka was helpin me threw by remindin me 2 breathe & that it gona be ok. This was in Options Office. It was te 1st of 2 ...
Myclonic Seizure wit Breathin difficultys.
Переглядів 2614 місяці тому
This is 1 of ma Seizures i had 2day in a Shop at te Albert Dock. I managed 2 hit Record before it started wit a little warnin of Pre-Seizure Aura. Ma Suport Worka Amaka helpin me threw by tellin me 2 Breathe. As ya can hear ma Breathin is shaky & am strugglin 2 breathe proply. I got told it last abt 9 & 1/2 minz. I was still feelin dizy afta it so had 2 sit bak down 4 abit.
Liverpool Pride wit Optonz Sat 27th July 24
Переглядів 356 місяців тому
I went 2 Liverpool Pride wit Optonz & did te March. I had a Seizure Clusta before te March Blank Stare, Myclonic, Tonic, Gelastic, Drop, Stiffness, Jerks, Twichs & Breathin Probz. I tuk Pix & Vidz along te way 2 te Albert Dock/ Pierhead.i wore ma Pride Gear & got a new Bakpak 4 it. I got temporary Tattoos put on wich i was hapy abt since i alredy got a permanent 1 4 ma Seizure Disorder. I rely ...
Myclonic Clustaz wit Absent Seizures & Impaired Awareness on & off Mon 4th Dec 23
Переглядів 61Рік тому
Mon 4th Dec i went 2 Taskers in Walton 2 se all te Xmas stuff wit ma Suport Ange. I tuk lotz of Pix & was very excited. We went te Cafe 4 Cofy & Cake. I had Myclonic Clustaz & Absent Seizures wit Impaired Awareness on & off. It lasted over 6 & a half minz. Wen i came arond i was abit confused & in Post-Ictal State. Wen i was bak 2 norm we caryed on lukin arond.
Optonz 30th B'day Party Sat 14th Oct 23 1993 - 2023
Переглядів 15Рік тому
A Celebration of 30 yrs with Optonz & gettin Suported by them frm 1993-2023. Optonz has bin goin since 1993 wen i joined as a person who is Disabled & started gettin Suported by Optonz. I have met so many lovely pple along te way & i continue 2 met lotz of otha pple.
Myclonic Clusta Jerky Seizures with Absent Seizures
Переглядів 78Рік тому
I was at a Meetin at te Quaker Meetin House in Liverpool City Centa with ma Suport Liam on Fri 27th Oct 23. I was havin Moderate Auras all day. I managed 2 hit Record before it hit. I dont rememba much. I saw it was 1 min or few secs off 9 Mins long. I will have 2 take ma Ear Defenders or ma Noise Cancellin Hedfones frm now on. I also suffa frm Social Anxiety & have all 5 Sensory Issues wit ma ...
NEAD Status Epilepticus Myclonic Clusta Seizures (25:56) minz long
Переглядів 77Рік тому
NEAD Status Epilepticus Myclonic Clusta Seizures that went on 4 over 25 minz. I dont rememba pressin Record, drinkin ma Water or any of my Seizures y'day aftanoon wit ma Suport Liam at Quaker House - Autism Spectrum Collective. I felt Auras in te Mornin.
Liverpool Pride Sat 29th July 23, Grand Mal, Dead Crafty Beer Club/Pub.
Переглядів 79Рік тому
Liverpool Pride Sat 29th July 23, Grand Mal, Dead Crafty Beer Club/Pub.
Complex Partial Seizure wit Tremors, Shakes, Myclonic Twichs & Jerks in John Lewis.
Переглядів 33Рік тому
Complex Partial Seizure wit Tremors, Shakes, Myclonic Twichs & Jerks in John Lewis.
Optonz Vintage Tea Party at St Nicholas Church Friday 30th June 23.
Переглядів 14Рік тому
Optonz Vintage Tea Party at St Nicholas Church Friday 30th June 23.
Complex Partial Grand Mal in Legs in John Lewis 26th June 23
Переглядів 46Рік тому
Complex Partial Grand Mal in Legs in John Lewis 26th June 23
Te Closin of te Liverpool Epstein Theata.
Переглядів 1Рік тому
Te Closin of te Liverpool Epstein Theata.
Complex Partial, Aware/Impaired, Myclonic Seizure wit Tremors/Shakes, Twichs/Jerks, Hed Drops.
Переглядів 47Рік тому
Complex Partial, Aware/Impaired, Myclonic Seizure wit Tremors/Shakes, Twichs/Jerks, Hed Drops.
Ma Day in New Bryton & Lpool takin Pix & Vidz - Mon 1st May 2023.
Переглядів 32Рік тому
Ma Day in New Bryton & Lpool takin Pix & Vidz - Mon 1st May 2023.
Part of Ceilin caved in outside on Landin 11 Sept 2022
Переглядів 152 роки тому
Part of Ceilin caved in outside on Landin 11 Sept 2022
Partial Seizure mostly in Legs, Tremors, Shakes. Wed 1st June 2022.
Переглядів 1772 роки тому
Partial Seizure mostly in Legs, Tremors, Shakes. Wed 1st June 2022.
Mild-Mod Myclonic Jerks, Twichs, Tremors, Shakes & Hed Drops Tues 31st May.
Переглядів 592 роки тому
Mild-Mod Myclonic Jerks, Twichs, Tremors, Shakes & Hed Drops Tues 31st May.
Tie Dye Tshirt & Sox at te Tapestry in Town wit ma Suport Ange Mon 28th March 2022
Переглядів 32 роки тому
Tie Dye Tshirt & Sox at te Tapestry in Town wit ma Suport Ange Mon 28th March 2022
Purple 4 Seizure Awareness Day Sat 26th March 2022
Переглядів 342 роки тому
Purple 4 Seizure Awareness Day Sat 26th March 2022
Dyed hair Blond then Purple 4 Sat 26th March 2022 Seizure Awareness Day.
Переглядів 382 роки тому
Dyed hair Blond then Purple 4 Sat 26th March 2022 Seizure Awareness Day.
Optonz Ball Sat 19th March 2022 at Aintree RaceCorse wit ma Suport Jimy.
Переглядів 222 роки тому
Optonz Ball Sat 19th March 2022 at Aintree RaceCorse wit ma Suport Jimy.
Skiin at Chill Facta in Manchesta Mon 6th Dec 2021
Переглядів 43 роки тому
Skiin at Chill Facta in Manchesta Mon 6th Dec 2021
Blakpool Trip wit Optonz Mon 29th Nov 2021
Переглядів 123 роки тому
Blakpool Trip wit Optonz Mon 29th Nov 2021
Hope you’re feeling better Samo 💐
Devi fare la respirazione diaframmatica
@@francescagiughese9781 i have no control over ma breathin durin a seizure & i dont no wot that means & i dont undastand foren language only English. Plz stop commentin this on all ma Videos coz itz anoyin.
@@Samo-73 report it Samo - it’s spam
Devi fare la respirazione diaframmatica
Soz i have no control over ma breathin & wit havin Asma itz difficult.
What a nice lady
What language is on the cake? 🎉
You ok Samo?
@@MyMumHasEpilepsy am ok now thx. I did end up in Hozy last Thursday due 2 6 seizures that was a bad day. I was totally wiped out & it tuk 3 days 2 recover.
@@Samo-73. Glad you’re ok. Sorry to hear you ended up in the hospital - hope they looked after you ok 💐
hope you’re doing okay! pls post more vids of your grand mals for awareness
@@eiloahshadid7989 i dont have many Grand Mals now itz mostly Myclonic but thy somtymz proceed 2 a Grand Mal. I dont get 2 record many of ma Seizures. If i do i will post them. Thx 4 ur kind wordz much appreciated.
You ok Samo?
Hi Samo. Hope your ok
do post more of your grand mals, thanks for spreading awareness!
How you doing Samo? Not seen your videos in ages… Hope you’re ok 👍🏼
Promo_SM ✨
Hi Samo
Do the folk around you know what’s going on? Can they help you?
Interesting
i hope you're doing better now, please do post more for awareness
Oh god, the spelling, it's actively draining my iq
Oh dear thats not good. Bless u trying to focus on your jigsaw. I'm lucky my seizures are controlled. Binky Bunny's ones are much better too but he does still have them
Awesome!
Thx x ever since I started suffarin frm seizures I alwyz wanted 2 dye ma hair purple 2 raise awareness 4 Epilepsy, NEAD & any otha seizure disorders.
Looks like you had a great time!
Yeh i did but had a grand mal seizure ner te end so wanted 2 get off as was exasted. Otha than that yep it was gr8 thx.
Looks like you had a great time Samo 💝💐
Looks like a beautiful place! I hope you had a good time!
Not the best look
Ha ha!
Hope you had a good time!
I did despite avin a grand mal seizure b4 ma lunch. I had a gud day thx. Hope uz are ok? Sendin love & hugz x
@@Samo-73 we're doing well 😁
I had both my AZ jabs in Feb and May… I hate needles too, but the Nurse that did the first one, I didn’t feel it. The second one, really hurt!
Yeh 1st 1 i flinch abit & was ill 4 abt 3 days wit most of te symptoms wich noked me off ma feet but te 2nd was te worst 4 getin te jab as it stems frm last viz 2 hozy & now am more terifyd of needles than b4 & it resulted in panic attak b4 te 2nd jab & then 2 grand mals. I felt wobly & kept losin ma balance all day. I had a mega migrane all te as well it was horidle.
Your leg resting on a nerve idiot
A FOOT seizure???????
Epilepsy is not nice to see
Sorry to hear that
Even my little bunny has an inspiring story through his seizures even though he's still having them . He's having MRI very soon
Makes me feel lucky my epilepsy is controlled so sorry
Hope you feel better!
5?! No wonder you were tired. That many would knock me out for days...
Yeh i was so exasted afta them i had 2 rest te next day.
@@Samo-73 I’m not surprised. 😢.
I had a friend on You Tube some years ago, transgendered from a girl to a boy... I’ve lost touch, but the last I saw him, he was taking the hormone stuff to deepen his voice and grow facial hair n stuff, then have the first operation... I haven’t seen any updates for a few years since...
I have Autism, as well as Epilepsy...
Pretty good with the eyes but not great need more practice. Where are your lips?
Called pseudo seizures love
Ha ha ha puts phone on ...had seizure NOT
See how symptoms worsen when attention is given
So sad get this guy some help from a good psychiatrist
Just curious how you film if having seizures I knew someone with pseudo seizures that did this are you epileptic
Mouth frown sorry
You can get some wonderful filler for the mouth t vinicare would really help with the mouth grown did you loose your teeth during seizures? So sorry
Are you female or male not being rude
Very interesting story
Oh so sorry you go through this I'm very lucky my seizures are controlled however my bunny has bad ones
When my head starts turning like that, I fall over. I broke my wrist on one occasion, as I was going up the stairs when it started and I fell straight down backwards. I’m lucky I didn’t kill myself during it...
Omg! Hope ur ok now tho. Wen mine com i start shakin standin up then drop 2 te grond & go str8 in 2 grand mal. Som are mild, moderate or severe. I was taken 2 hozy on wed followin several grand mals. That 1 was in te mornin & was able 2 get it on vid. Te othas i was out & abt in park wen thy happend.
When you feel a seizure coming on, do you know if it will be a bad one or not?
Somtymz especially wen i get te maja tinglin like electricity feelin all over ma body bit it dont always happen & i still ave a bad 1 abt 50/50 % of te tym i get a short warnin like seizure aura before hand that how i no wen 1 is comin bit i dont always get a warnin & suddenly it just hits me like ave bin in a boxin mach.
Hi....
Hi