You two are too cute! Thanks for taking the time to do this. I have a lumbar puncture scheduled and you have helped to lessen the anxiety associated with it. I wish you the very best of health.
Hello Bob, I'm super happy to hear this from you.. that our video has helped somewhat with your anxiety. If ever you want to ask me any questions before you go in for your procedure please just fire away. Otherwise, I wish you well .. and I'm sure the procedure will go smoothly for you. All the best.
I’m so nervous about my LP coming up next week. This helped me a bit. Nervous about the LP, the possible diagnosis etc Funny, I’m usually very good with medical stuff but the older I get, the more nervous I am lol
Hi there, and thank you for your message. I completely understand how nervous you must be as your LP looms. It was the same for me. When I arrived at the hospital and met with the person who was performing the procedure, I ask him how often he did this. His response was something like twice a day for six months. This made me think that even though he looked so young, he was very experienced in this particular procedure. This went a long way in putting my mind at rest. Perhaps you could think about doing the same. Another thing, they told me the most painful bit is usually the local anaesthetic injection around the site, but honestly I didn't really feel it as it's not really a very sensitive area. I appreciate everybody is different, but for me there was very little pain during the whole procedure. One last thing, I was offered a Diazepam to help calm my nerves and relax me. This was after I told them I was feeling nervous, so please don't worry about telling them how you are feeling. If you are offered this also and you are feeling nervous I urge you to take advantage of it. The tablet just makes you feeling a bit warm and slightly sleepy (relaxed), it really worked for me. I hope these bits of information are helpful to you. I'm sure you will be fine. Best regards - Neil.
I’m so glad you had a good experience. When I had it I was on like a X-ray table so it was very uncomfortable. I actually felt the needle so he had to add more anesthetic. I was not made to lay down for 30 minutes. They got me straight up. Luckily I didn’t have a headache but later in the day my back was very sore. I love watching Theresa’s expressions and her positivity as yours also. I’m starting a Flare and have not been able to work for 2 days. I needed the laughs and positive talk. Thank you. Great singing Theresa.
Hey Patty, to make you get up straight away after an LP I actually think is borderline irresponsible. You're experience sounded just horrible, and I'm sorry you had to go through that. Oh no.. that's not good to hear that you're starting with a flare, I'm guessing you must be feeling pretty rough to take time off work. I hope it doesn't last too long.
Thank you Neil! I am waiting to hear back from my doctor. I also asked if he would take me out of work for a while on short term disability. But enough about me. How long will it be before you have the results
Ahh ok Patty, I like to hear how you’re getting on with things. I hope all goes ok and the flare isn’t too bad. The results will probably be about three weeks.
Thanks Dean,I felt really proud of myself going through with this. I’d be panicking about it for weeks. I did have somebody really experienced do mine though, so I was lucky. So many people have said their LP’s have been a sheer nightmare. Oh yeah, you’ve now met my big Bro, he really is a star, I’m so lucky to have such a great reliable brother. Regards.
Excellent news, my friend! I’m so happy that things went smoothly for you. Just be careful with coughing and sneezing for a day or two and hopefully you’ll be out of the woods of spinal headache concern. Isn’t it such a relief to have it behind you? I’m also happy that you have your beloved wife to support you through this experience and the rest... good and bad. Our greatest and most obvious blessing and gift from God is our beloved spouse. Have a great night, friends!
Thanks Kenny :) Relief? Oh goodness me yes, SUCH a big relief, in fact I actually felt like celebrating lol. I've still managed to avoid the headache, occasionally I got a bit of a fuzzy head and I though uh-oh but it was nothing. Teresa is definitely true blessing. I hope all is well with you.
Wonderful news!! I am so glad that it was a good experience for you. I remember my father was on a low dose of valium for most of his life due to a bout of St Vitus dance when he was a child. He carried a tremor and the valium was very helpful to him. I hope your doctor explores the option with you. Teresa , you have a beautiful voice!! Keep on singing!! Also, it was so nice to meet your brother. He looks a lot like you. Could be your twin!
Hi Tamara, my Dr is pretty good and I'm confident he'll listen carefully.. I have to admit I wasn't expecting the Valium to have such a positive effect on the spasticity in my legs. Good to hear this drug was helpful to your Father. Teresa is constantly singing around the house, so I've been recording her a few times when she's not looking lol.. I thought it would make a few people smile to add the footage to the end. :) Yep, my brother and I look and sounds a like. I hope all is well with you.
Our code phrase from the doctors in the us when we get poked with an anesthetic is always you're going to feel a pinch. Slight pinch coming. I'm glad that it went well. It looks like you didn't develop the dreaded headache. It was probably because you started with coffee right away. I didn't really drink too many fluids before leaving. I was fine leaving the hospital and on the way home, but come evening oh, I wasn't able to sit with the family and eat and I actually had to go lay down in the back bedroom and have someone try to feed me while I'm somewhat elevated in bed. So I got the headache for about a couple of days. Now we're all anxiously awaiting your results. even though that's personal information, we appreciate you sharing your life with us. I think this disease brings us all together in some way because we understand even though our symptoms may be different. Loved the end with Teresa singing. You guys bring such a smile to our faces
Hey there, I will definitely be sharing the results with everybody.. I've almost got a feeling I'm going to be un-diagnosed.. but if that's the case I wonder what happens next because clearly there is something very wrong with me. We shall have to see. I was very lucky not to get the headache, unlike yourself. When I got home I got a bit of a fuzzy head and got a bit worried, but it went away. You might be right about drinking the coffee straight after, yes.
Ahh yes, Teresa is always singing around the house.. every single day. I love to hear her because to me it means she's happy now in her life. Prior to us getting to together in 2007 (we've known each other as best friends since 1990) she had a very difficult and stressful life. All changed now, I'm pleased to say.
Such sweet people. I'm to have a lumbar puncture in just over a week from now. I was very nervous. Feeling better since watching your video. Thank you for the encouragement. Hope you are doing well.
Dear Martha, thank you so much for your message. I'm super happy that my video has left you feeling much better and hopefully not so worried about the LP procedure. I too was really worried and scared, but soon settled into it. I was offered a Diazepam tablet which is used to calm you down a little bit if nervous, I would definitely accept if you're offered something like this. I really hope it goes well for you Martha, which I'm sure it will. Very best to you - Neil.
Glad to hear all went well!!. Waiting for the results is nervewracking, but you should be very proud of yourself:) I had a lumbar puncture about 12 years ago and ended up with the headache, which was awful:( Had to go back to hospital to get a "blood patch". That worked. I am a relatively new followers of yours. Very informative information. Appreciate it! God bless you and your wife! You two are soooo cute together💕 🤗
Hi Kelly, thank you so much for your message and for following me.. I really do appreciate it. When the doc had finished the LP I had to turn over on lie flat for 30 mins, as I did I actually said to my wife "I feel really proud of myself". It was such a relief. Ah so your LP didn't go so well in as much as the 'puncture' didn't heal hence the headache. Yes, I've read about the blood patch they do if the headache persists, glad that worked for you. Thanks Kelly for your kind words, great to have you on board. Take care - Neil & Teresa. x
You were so lucky and I am very happy for you this is now over with. Mine was extremely painful and it took Multiple times for them to get it , so will never do that again. But I am totally happy for you it went well. Hello to that lovely wife of yours.
That definitely doesn't sound good at all, and I'm sorry you had a bad experience. I'm convinced it boils down to the experience of the Dr doing the procedure. I was very lucky in this respect, as he'd been doing one or two a day for six months. Teresa has read your message, and she says "Hello" right back :) As do I.
My experience was similar...i was really scared before the procedure, but everything went smoothly! just had a pretty sore back afterwards. i didnt get the headache either (very gratfeful!). make sure to drink caffeine afterwards to avoid headaches for those who have a LP scheduled in the future. good luck to all!
That’s not good at all Adele, I’m really sorry to hear this. Know that you’re not alone, I’m currently having a really bad day pain and mobility wise. I’m currently sat at my pc and my legs are burning, my feet are so painful just bearing the weight of my legs on the floor. What are we to do eh? As you say quite rightly we just have to keep going don’t we. 🙏
Exactly, what else is there to do but keep going. I’m in a situation and have been for quite some time to give up my job, I’m 26, this shouldn’t be happening!! MS has effected my memory terribly, my legs are on and off weak, feel drunk, and the pain is just outta this world. It’s a constant crushing pain. I know I can’t carry on in this work situation any longer, it’s causing me so much problems mentally too. Then it’s the worry of no job no money, bills etc. I appreciate your channel Neil because it actually feels like I’m listening to someone who actually knows the struggles of the disease, I can really relate to you. I really hope for your sake you get closure regarding this ‘is it MS situation’ too. Whatever the outcome, were all here to talk too and for you :)
You're so young to have this horrible soul destroying condition, at 26 you have your whole life ahead of you!. My heart really does go out to you Adele, absolutely this definitely should not be happening. At 46 I've got twenty years on you but I often think to myself how much worse is it going to get. I also understand about the work situation, the bills etc. Hopefully if you do decide to give up your job due to your health, you can claim from your government to help you. Are you in the UK? I'm so pleased you can relate to me and my channel, I started it back in March 2016 and I started by doing videos about different topics of MS etc, but then it turned more into VLOG's more recently, in other words REAL LIFE stuff, how I'm coping, the pain, the disability etc. I've found that so many people can relate to this. In fact, there are so many MS'er channels out there, some of them doing quite well but I just cannot relate to them because they are so happy and smiley. Now I don't want to sound a miserable so and so but when you've got MS really BAD it certainly doesn't make you feel happy. MS makes me miserable because its so dam painful constantly 24/7, but its also robbed me of my quality of life - my mobility! I can't do the simplest of tasks now without almost collapsing with weakness. My videos are about keeping it real, what you see is what you get. I really appreciate you, and every one of my subscribers .. I like to do videos because in a way its reaching out and saying what other people are thinking and feeling. We're all in it together. Look after yourself - Neil.
Glory to God! I'm so happy for you both. Thanks for keeping us updated. I can only imagine the relief! :) Btw, as the video showed the car ride back to your home I said to myself, "Oh! That has to be Neil's brother..." just before it was mentioned. The resemblance is grand ;) PS Teresa, I'm glad Neil recorded your singing, it was quite nice. ♡
Neil Bradley :) The same with me and my sister (on the phone), once (in High School) she even pretended to be me . I had just entered the kitchen, and I saw she was on the phone. After what seemed like a lengthy conversation (yet I didn't pay any attention to it) she hung up, faced me and said..."Oh, the guy you like called" :0 I was shocked at first, but later I reasoned: "If he can't tell it wasn't me he was talking to, how interested in my individuality was he in the first place?" And well, I laughed, but never trusted her around the phone again, and told Mom on her, of course! Older sisters, what can I say? ;p
Well done Neil, a good thing to be over and done with and glad it had no side effects for you. Loved Teresa's singing at the end of the video, I love to hear people singing away whilst doing things :-)
So glad it was a breeze for you .I saw the needle before hand..like I said I was a young mum of four back then...old mum of five now .I had to have dye inserted .after they took the few drops of spinal fluid .then they moved the table this and this way to disperse the dye .i thought I'd pd 😂😂😂.i felt bruised for a few days. i didnt want to say that before .as all was different for me.they make you walk for a wee to show all's ok after. well done 👏💪
Thanks for that, oohhh I deliberately didn't look up the procedure before hand or look at any needless. In fact, they were kept well hidden from me during the procedure.
@@NeilBradleyMS i was in a wheelchair .parked right next to them looked down to make sure the porter put the brake on,and there they were ,it was the old brook hospital london.
Hi Neil & Teresa, so glad it all went well for you , I knew you’d be fine . At least it’s all done now and you can concentrate on getting some medical feedback and hopefully some ms medication . Take care & keep smiling 😊 Grace x
That was so cool to see your bro, thank you for including him. Well good for you and that all went well. Now you wait for the results. You two make a great Tony Orlando And Dawn : )
I really enjoyed this. Not just watching your experience of it, but I liked how as you were travelling to the Hospital, each new bar of music was a new frame on the video trip there (sorry not sure if I explained it well). I enjoy your videos they're very well thought out & put together!
Thank you so much Susannah, yes you explained it perfectly and that is exactly how I'd attempted to put the edit together. An awful lot of time and effort goes into the editing process, and it makes me so happy you recognised this. Thank you. I'm so pleased you're enjoying my videos. Best Regards.
Congratulations Neil I knew you could do this & well done Teresa for making you laugh through it & holding your hand & yes Neil Pandora Pandora lol 😁😁😁😁😁😁😁😘😘
Well done you, so glad it all went well. Like I said, do as you’re told and you should be ok. The apprehension before is worse than the procedure itself. I hope you get answers from the results......take care! x
Why do they tell you so much in advance? They informed me several weeks before! We’re not supposed to stress, but you can’t do anything but...... Any idea how long you have to wait for the results?
I found out I needed an LP just before Christmas. The appt didn’t come through until towards the end of Jan. I then had to wait another week until Feb 1st. I think the results take about 2 - 3 weeks. I’ve got s feeling the results will be clear. You take care too!
Neil Bradley thank you. I admire your fortitude and your willingness to help other people by sharing your experiences. Bless you. I will keep watching your progress with interest. Stay strong. Take care.
Love this video, you and Teresa are such a lovely couple!! I stumbled across your video because I was a bit curious on how the procedure goes... seeing how I will probably have to get one before long to test for MS. :S Gotta say, your video puts my mind at a bit of ease!
Hey there, ahh I’m thrilled my video has helped put your mind at rest a little. I can honestly say it was a nothing like I feared. I was worrying about it since before Christmas but there was no need. Good luck with your LP and I’d be interested to know how it goes.
Hi guys I've been wondering how you got on ..I'm so glad it's all over for you ..as I know how worried you was ..Teresa is one in a million ..so supportive...I've got fibromyalgia ...Im waiting to see my neurologist as I've been having problems with numbness down below ..I can't feel anything when I go to the loo ...I've also had numbness in my left arm but it went and left me with a odd sensation..things feel hot if something cold touches it ..Im also having awful dizziness...my gp mentioned ms ..I have to be honest I'm praying it's not ......
Hi Grace. I've had the exact same symptoms as you beginning April of last year. My left side from toes to the shoulder felt numb but anything cold that touched my skin would feel hot. I didn't have any dizziness but i was experiencing some lower back pain and some discomfort behind my right ear around the neck area. They did a lumbar puncture, MRI's of my spine and brain. Turned out i had some inflammation on my spinal cord. I was diagnosed with Acute transverse myelitis. They suspected MS but they are not sure. They are hoping this is a one time thing for me. Only time will tell. Anyways, they started the steroid treatment on me (4 days i believe). I went back a month after the steroid treatment for follow up MRI. The results were positive. The inflammation was reduced dramatically but not totally gone but my symptoms were gone. This was all abou 9 months ago. Today, I feel fine except I'm beginning to feel the discomfort around my right neck area again. I'm hoping it's not related. Keeping my figures crossed. I also wanted to mention Neil and his videos helped me a lot when i was in the hospital last year going through all this. I hope everything works out for you and it's just a one time thing. And thank you Neil for putting these videos out there!
Hi Grace, and thank you for your message.. yes I have to agree with you there Teresa certainly is one in a million. I'm sorry to hear you're having these terrible symptoms, they're very traumatic aren't they. It certainly sounds like your issues are nerve related, it's not necessarily MS though. Before my MS diagnosis I had strange sensations 'down below' which was very unsettling for me, like I'm sure it is for you. A bulging disc at L5 was responsible, and surgery fixed it. Lets hope your Neurologist can give you some answers soon. Good luck.
Now then Neil, didn't I tell you not to worry about it all! I'm glad that it went so well for you and I think you do look like a weight has been lifted off your shoulders. Now you said you read every comment and try and answer all the questions so here is one for you both. What is brown and sticky??? Answers on a postcard.😁
Aww, you guys are so adorable!!! Love the bit at the end, catching her singing! Glad your spinal tap went smoothly. Mine did as well, though I had requested it to be guided, which of course cost a bit more. :s
Hi there, love your UA-cam name👍 Thanks, yes the “tap” went well and I’m pleased to hear yours did too. Mine wasn’t guided which worried me beforehand, but I had a good Dr. Here in the UK we are so fortunate to have the NHS, so treatment doesn’t cost us anything.
@@NeilBradleyMS Thanks! And -- that's amazing! No cost at all, not even a little with each visit or for the meds? I'm in the middle of the United States. The cost of everything is astronomical. I had a Dr's visit Feb. 25th....he wants me to go on more aggressive therapy, but considering I've gotten the 'shock' of an MRI bill in the past, I started pre-planning in my head and realized if I did everything his way, I could be well on my way to financial ruin. On top of everything else, definitely not a good feeling in regards to mood! It's frustrating to say the least, especially dealing with the insurance companies. I'm glad to hear at least you don't have to worry about that stuff.
Hello again 😊 I sure do feel lucky with regard to medical care. I’ve spoken to so many people in the same predicament as you. Some have simply forgone treatment because they are unemployed and unable to afford it, and suffer in silence. It’s a terrible thing. I’m guessing you’ve not got insurance then if you’re having to pay for treatment and scans yourself. MS medication is hugely expensive, running into tens of thousands. Here in the UK we pay something called National Insurance, it is deducted from your salary at source (along with tax) before the money hits the bank. Everybody has to pay it if they are employed. But it’s a brilliant thing, because this funding runs our NHS. It enables anybody to walk into any Dr’s or hospital and get free treatment. Even if the person is unemployed and is not paying National Insurance. It also contributes to our state pension which we get at retirement.
Thanks for the reply! That's interesting. I think it is a good thing for everyone to have access to medical care. Even if someone does everything 'right' their whole life over here....it's crazy to me that they can lose everything due to an unexpected medical issue. And insurance being tied to employment has now made me feel stuck. I had thought I'd go back to college for something else...but, y'know....now with this long-term illness....and the fact that student costs have sky-rocketed...it doesn't seem like a good idea to me. Which seems really wrong, to feel this stuck, just because of a diagnosis! I actually do have insurance, through my workplace. It's just all the fees associated with it that trips me up. I pay a monthly fee...but then there's a deductible, co-insurance, and co-pays. (all of which I'm only now understanding due to having to get more medical care) There's a test I'm supposed to get that's not "in-network", so that won't even apply to my total amount. With no assistance whatsoever, I would end up paying up to $4,000 a year on my current plan (aside from what's taken out of my paychecks monthly). Although, with the patient assistance programs....it looks like I get some credit for the Copaxone, so that counts partially towards my fees. But things like MRIs...that generally is a cost eaten by me, which applies to the deductible. I don't know if I'm making any sense really.....it's super frustrating to try and figure it all out, It's complicated. And what really sucks....is trying to make sense of it all when one should be focused on just getting/feeling better! I've been told that at least with MS, the patient assistance programs through drug companies are quite helpful, and I may be able to get some assistance through the National Multiple Sclerosis Society...it's just a whole lot of looking around for help/discounted prices. I sometimes just have to take a break, as it feels so overwhelming! Oh well. Thanks for letting me vent, although you might not have wanted to know all that. lol...I do wish you all the best!!!
Not at all, I’m glad you’ve had a “vent” I had no idea the system was sooo bad where you live. So thank you for telling me this in such detail. It’s Unbelievable how expensive it is for you, as I said we pay National Insurance for our medical care, but its noting like the cost of your medical insurance. The cost of it is also a percentage of what you earn over here, so if you’re not on a very big salary you don’t pay as much but you get the same amount of care. You made a very good point, when you become poorly you just don’t want the hassle of sorting out insurance and what you and can a have, and then what you’ve got to pay for yourself. I can’t imagine having to sort this out for myself. I really do feel for you. Another thing, and I’d kind of picked up on this with other chats I’ve had, but you said you can only get insurance if your employed. Hopefully I understood this correctly, but what about all the poor people who are unemployed and get poorly with MS for example. Do they not get medical care?
Hi Neil I'm watching your videos But I don't understand why did you have to do the lumber puncture ? weren't you already diagnosed with MS and your spinal cord showed lessons ? so what's the point of the lumber puncture ?
Haha that's how I was too. "Wait, you need blood too?!" But as they explained I'm sure, it's to see if the obands are in the blood too or not. I didn't get headaches until a day later. I'm used to migraines so it coulda been worse. At least they go away as soon as you lay down. Glad you got a good doc! They put me on my stomach so I'm glad I had the diazapam too cos my back did better. I had a per break right before lol! Then I had to pee not long after but had to stay flat so that was annoying lol! Now the question.... would you rather go thru that again or 2am mri? 😊
Hi Lisa, Yep they needed blood as well, like you say they need both samples taken at the same time to test. Ahh, you also had the Diazapam, its good stuff isn't it! It not only calmed me down, but I noticed a few hours later it had an effect on my mobility in as much it seems to smooth out the spasticity in my legs. I'm going to speak to my Dr about it. As for your question, Hmm I'd probably opt for the MRI maybe, not at 2am though lol, I happen to think I was pretty lucky with this LP and subsequent ones probably won't go as smoothly. Well, actually I'm hoping never to have another LP certainly if I can get away with it.
@@NeilBradleyMS Yeah I think I got lucky too. But I say if I could have the same exact L.P. done I'd pick that. I didn't have trouble on my first mri without diazapam but use it now just in case cos I never know when my legs will wanna play up. I know I took 5mg and felt nothing but another 5 did the trick well! I think actually going to the doc makes my symptoms better cos my adrenaline kicks in and masks a lot of my problems. Basically I go to the doc for severe knee pain, get there and the pain vanishes. So I look like I'm faking! Then I leave and it comes back. Go figure! I know I'm super thirsty after an mri so I go straight to McDonald's after hehe!
When I got mine after insertion of spinal needle I started freaks bit and told dr I was to pop a cork! I started to lift up and the dr pushed me down and said don’t move while he removes the needle. The assistant wiped my face with a wet cloth and that helped a lot. Dr said if I wanted he would try again. I thought 🤔 it’s the only way to know so aggreed and he proceeds. It was done and I was right I have MS. I over thought the whole process to my own detriment. 😂 Onward through the fog! We made it we’re alive!!
Hi Sheridan, I can totally understand why you started to freak out .. I don't mind people sticking needless in my arms etc, but my spine! Errmm no thank you. At least you got some answers, I'm still waiting for my results.. probably another couple of weeks. Onwards!! :)
You two are too cute! Thanks for taking the time to do this. I have a lumbar puncture scheduled and you have helped to lessen the anxiety associated with it. I wish you the very best of health.
Hello Bob, I'm super happy to hear this from you.. that our video has helped somewhat with your anxiety. If ever you want to ask me any questions before you go in for your procedure please just fire away. Otherwise, I wish you well .. and I'm sure the procedure will go smoothly for you. All the best.
I’m so nervous about my LP coming up next week. This helped me a bit. Nervous about the LP, the possible diagnosis etc
Funny, I’m usually very good with medical stuff but the older I get, the more nervous I am lol
Hi there, and thank you for your message. I completely understand how nervous you must be as your LP looms. It was the same for me.
When I arrived at the hospital and met with the person who was performing the procedure, I ask him how often he did this. His response was something like twice a day for six months. This made me think that even though he looked so young, he was very experienced in this particular procedure. This went a long way in putting my mind at rest. Perhaps you could think about doing the same.
Another thing, they told me the most painful bit is usually the local anaesthetic injection around the site, but honestly I didn't really feel it as it's not really a very sensitive area.
I appreciate everybody is different, but for me there was very little pain during the whole procedure.
One last thing, I was offered a Diazepam to help calm my nerves and relax me. This was after I told them I was feeling nervous, so please don't worry about telling them how you are feeling. If you are offered this also and you are feeling nervous I urge you to take advantage of it. The tablet just makes you feeling a bit warm and slightly sleepy (relaxed), it really worked for me.
I hope these bits of information are helpful to you.
I'm sure you will be fine.
Best regards - Neil.
I’m so glad you had a good experience. When I had it I was on like a X-ray table so it was very uncomfortable. I actually felt the needle so he had to add more anesthetic. I was not made to lay down for 30 minutes. They got me straight up. Luckily I didn’t have a headache but later in the day my back was very sore. I love watching Theresa’s expressions and her positivity as yours also. I’m starting a Flare and have not been able to work for 2 days. I needed the laughs and positive talk. Thank you. Great singing Theresa.
Hey Patty, to make you get up straight away after an LP I actually think is borderline irresponsible. You're experience sounded just horrible, and I'm sorry you had to go through that. Oh no.. that's not good to hear that you're starting with a flare, I'm guessing you must be feeling pretty rough to take time off work. I hope it doesn't last too long.
Thank you Neil! I am waiting to hear back from my doctor. I also asked if he would take me out of work for a while on short term disability. But enough about me. How long will it be before you have the results
Ahh ok Patty, I like to hear how you’re getting on with things. I hope all goes ok and the flare isn’t too bad. The results will probably be about three weeks.
I'm so pleased the procedure was far less traumatic as you'd built it up to be. Hopefully you will get answers. Love to you both xx
Glad the Lumbar Puncture went well, Neil, and we met your Brother too. It's good to have family you can rely on. :)
Thanks Dean,I felt really proud of myself going through with this. I’d be panicking about it for weeks. I did have somebody really experienced do mine though, so I was lucky. So many people have said their LP’s have been a sheer nightmare. Oh yeah, you’ve now met my big Bro, he really is a star, I’m so lucky to have such a great reliable brother. Regards.
Excellent news, my friend! I’m so happy that things went smoothly for you. Just be careful with coughing and sneezing for a day or two and hopefully you’ll be out of the woods of spinal headache concern.
Isn’t it such a relief to have it behind you?
I’m also happy that you have your beloved wife to support you through this experience and the rest... good and bad. Our greatest and most obvious blessing and gift from God is our beloved spouse.
Have a great night, friends!
Thanks Kenny :) Relief? Oh goodness me yes, SUCH a big relief, in fact I actually felt like celebrating lol. I've still managed to avoid the headache, occasionally I got a bit of a fuzzy head and I though uh-oh but it was nothing. Teresa is definitely true blessing. I hope all is well with you.
Wonderful news!! I am so glad that it was a good experience for you. I remember my father was on a low dose of valium for most of his life due to a bout of St Vitus dance when he was a child. He carried a tremor and the valium was very helpful to him. I hope your doctor explores the option with you. Teresa , you have a beautiful voice!! Keep on singing!! Also, it was so nice to meet your brother. He looks a lot like you. Could be your twin!
Hi Tamara, my Dr is pretty good and I'm confident he'll listen carefully.. I have to admit I wasn't expecting the Valium to have such a positive effect on the spasticity in my legs. Good to hear this drug was helpful to your Father. Teresa is constantly singing around the house, so I've been recording her a few times when she's not looking lol.. I thought it would make a few people smile to add the footage to the end. :) Yep, my brother and I look and sounds a like. I hope all is well with you.
Oh My! a vial of spinal fluid!! Amazing! Glad it went well...Kev looks like you 😀
Our code phrase from the doctors in the us when we get poked with an anesthetic is always you're going to feel a pinch. Slight pinch coming. I'm glad that it went well. It looks like you didn't develop the dreaded headache. It was probably because you started with coffee right away. I didn't really drink too many fluids before leaving. I was fine leaving the hospital and on the way home, but come evening oh, I wasn't able to sit with the family and eat and I actually had to go lay down in the back bedroom and have someone try to feed me while I'm somewhat elevated in bed. So I got the headache for about a couple of days. Now we're all anxiously awaiting your results. even though that's personal information, we appreciate you sharing your life with us. I think this disease brings us all together in some way because we understand even though our symptoms may be different.
Loved the end with Teresa singing. You guys bring such a smile to our faces
Hey there, I will definitely be sharing the results with everybody.. I've almost got a feeling I'm going to be un-diagnosed.. but if that's the case I wonder what happens next because clearly there is something very wrong with me. We shall have to see. I was very lucky not to get the headache, unlike yourself. When I got home I got a bit of a fuzzy head and got a bit worried, but it went away. You might be right about drinking the coffee straight after, yes.
Ahh yes, Teresa is always singing around the house.. every single day. I love to hear her because to me it means she's happy now in her life. Prior to us getting to together in 2007 (we've known each other as best friends since 1990) she had a very difficult and stressful life. All changed now, I'm pleased to say.
Oh, I also meant to say "Sharp Scratch" :) ha ha Code for I'm going to hurt you now. Interesting to know what they call it in the States.
Teresa is a rock star. Loved ones are the best medicine.
Good for you Neil, glad it went so well Teresa pandora is well deserved.
If I have to go through one, you just made me less afraid of it. Thank you!!
That’s just the sort of comment I love to hear, means my video has helped at least one person. That makes me super pleased, thank you. 🙏
Such sweet people. I'm to have a lumbar puncture in just over a week from now. I was very nervous. Feeling better since watching your video. Thank you for the encouragement. Hope you are doing well.
Btw, new sub. :)
Dear Martha, thank you so much for your message. I'm super happy that my video has left you feeling much better and hopefully not so worried about the LP procedure. I too was really worried and scared, but soon settled into it. I was offered a Diazepam tablet which is used to calm you down a little bit if nervous, I would definitely accept if you're offered something like this. I really hope it goes well for you Martha, which I'm sure it will. Very best to you - Neil.
Neil Bradley MS sounds like sound advice. Thanks again!
Glad to hear all went well!!. Waiting for the results is nervewracking, but you should be very proud of yourself:) I had a lumbar puncture about 12 years ago and ended up with the headache, which was awful:( Had to go back to hospital to get a "blood patch". That worked. I am a relatively new followers of yours. Very informative information. Appreciate it! God bless you and your wife! You two are soooo cute together💕 🤗
Hi Kelly, thank you so much for your message and for following me.. I really do appreciate it. When the doc had finished the LP I had to turn over on lie flat for 30 mins, as I did I actually said to my wife "I feel really proud of myself". It was such a relief. Ah so your LP didn't go so well in as much as the 'puncture' didn't heal hence the headache. Yes, I've read about the blood patch they do if the headache persists, glad that worked for you. Thanks Kelly for your kind words, great to have you on board. Take care - Neil & Teresa. x
You were so lucky and I am very happy for you this is now over with. Mine was extremely painful and it took Multiple times for them to get it , so will never do that again. But I am totally happy for you it went well. Hello to that lovely wife of yours.
That definitely doesn't sound good at all, and I'm sorry you had a bad experience. I'm convinced it boils down to the experience of the Dr doing the procedure. I was very lucky in this respect, as he'd been doing one or two a day for six months. Teresa has read your message, and she says "Hello" right back :) As do I.
All the best Neil.
Good job young man .., Your wife and brother are awesome For being there for you !! Mrs. Bradley = awesome!!
My experience was similar...i was really scared before the procedure, but everything went smoothly! just had a pretty sore back afterwards. i didnt get the headache either (very gratfeful!). make sure to drink caffeine afterwards to avoid headaches for those who have a LP scheduled in the future. good luck to all!
Thank you for sharing your experience. I’m glad it went ok for you also. 👍
Glad to hear it went well Neil! Knew you would be fine. Nice singing Teresa btw 😉
Thanks Adele :) I hope you're ok.
Not really Neil, this pain is relentless but gotta keep going. Keep strong Neil 💪
That’s not good at all Adele, I’m really sorry to hear this. Know that you’re not alone, I’m currently having a really bad day pain and mobility wise. I’m currently sat at my pc and my legs are burning, my feet are so painful just bearing the weight of my legs on the floor. What are we to do eh? As you say quite rightly we just have to keep going don’t we. 🙏
Exactly, what else is there to do but keep going. I’m in a situation and have been for quite some time to give up my job, I’m 26, this shouldn’t be happening!! MS has effected my memory terribly, my legs are on and off weak, feel drunk, and the pain is just outta this world. It’s a constant crushing pain. I know I can’t carry on in this work situation any longer, it’s causing me so much problems mentally too. Then it’s the worry of no job no money, bills etc.
I appreciate your channel Neil because it actually feels like I’m listening to someone who actually knows the struggles of the disease, I can really relate to you.
I really hope for your sake you get closure regarding this ‘is it MS situation’ too. Whatever the outcome, were all here to talk too and for you :)
You're so young to have this horrible soul destroying condition, at 26 you have your whole life ahead of you!. My heart really does go out to you Adele, absolutely this definitely should not be happening. At 46 I've got twenty years on you but I often think to myself how much worse is it going to get. I also understand about the work situation, the bills etc. Hopefully if you do decide to give up your job due to your health, you can claim from your government to help you. Are you in the UK?
I'm so pleased you can relate to me and my channel, I started it back in March 2016 and I started by doing videos about different topics of MS etc, but then it turned more into VLOG's more recently, in other words REAL LIFE stuff, how I'm coping, the pain, the disability etc. I've found that so many people can relate to this. In fact, there are so many MS'er channels out there, some of them doing quite well but I just cannot relate to them because they are so happy and smiley. Now I don't want to sound a miserable so and so but when you've got MS really BAD it certainly doesn't make you feel happy. MS makes me miserable because its so dam painful constantly 24/7, but its also robbed me of my quality of life - my mobility! I can't do the simplest of tasks now without almost collapsing with weakness. My videos are about keeping it real, what you see is what you get.
I really appreciate you, and every one of my subscribers .. I like to do videos because in a way its reaching out and saying what other people are thinking and feeling. We're all in it together.
Look after yourself - Neil.
Thanks for making this video. I’m due to get a lumbar puncture next week and im pretty scared. I feel a lot better about it now x
Good luck Tiffany, I’m pleased the video helped you. The procedure really wasn’t as bad as I thought it would be. Take care. x
Hey Tiffany, how did your Lumbar Puncture go?
Thank you for this video
You’re most welcome, glad it helped.
You all are so kind for sharing your story.Thank you
Im not so nervous now.
You’re so very welcome 🙏 I’m so pleased you’re not so nervous. Blessings to you, any questions I’m happy to answer if I can.
I am so glad it worked out for you. I only ended up with a small headache but I have heard of people getting extreme headaches.
Excellent!! I was not numbed,excited to hear all went well!! That is exactly the conclusion you want!! We were happy to see you update us!!
Thank you Avril, great to hear from you. That was rather mean of them, not giving you any anaesthetic. I hope you're keep well my friend.
Glory to God! I'm so happy for you both. Thanks for keeping us updated. I can only imagine the relief! :)
Btw, as the video showed the car ride back to your home I said to myself, "Oh! That has to be Neil's brother..." just before it was mentioned. The resemblance is grand ;)
PS
Teresa, I'm glad Neil recorded your singing, it was quite nice. ♡
Hi Jayleen, and thank you. My brother and I also sound very similar, quite often people can't tell us apart when on a phone call.
Neil Bradley :) The same with me and my sister (on the phone), once (in High School) she even pretended to be me . I had just entered the kitchen, and I saw she was on the phone. After what seemed like a lengthy conversation (yet I didn't pay any attention to it) she hung up, faced me and said..."Oh, the guy you like called" :0
I was shocked at first, but later I reasoned: "If he can't tell it wasn't me he was talking to, how interested in my individuality was he in the first place?" And well, I laughed, but never trusted her around the phone again, and told Mom on her, of course! Older sisters, what can I say? ;p
Glad that went well Neil , all of us are proud of you. Regards, Saeed from Saudi Arabia
Hey Saeed, thank you so much! That really means a lot. I hope you’re doing well.
Instantly knew that was your brother, like twins lol! Glad to hear the procedure went well
Cheers! 😊👍
Well done Neil, a good thing to be over and done with and glad it had no side effects for you. Loved Teresa's singing at the end of the video, I love to hear people singing away whilst doing things :-)
Thanks Dee😊
So glad it was a breeze for you .I saw the needle before hand..like I said I was a young mum of four back then...old mum of five now .I had to have dye inserted .after they took the few drops of spinal fluid .then they moved the table this and this way to disperse the dye .i thought I'd pd 😂😂😂.i felt bruised for a few days. i didnt want to say that before .as all was different for me.they make you walk for a wee to show all's ok after. well done 👏💪
Thanks for that, oohhh I deliberately didn't look up the procedure before hand or look at any needless. In fact, they were kept well hidden from me during the procedure.
@@NeilBradleyMS i was in a wheelchair .parked right next to them looked down to make sure the porter put the brake on,and there they were ,it was the old brook hospital london.
This is the best. I am so glad you had a positive experience. Way to go!
Hi Neil & Teresa, so glad it all went well for you , I knew you’d be fine . At least it’s all done now and you can concentrate on getting some medical feedback and hopefully some ms medication . Take care & keep smiling 😊 Grace x
That was so cool to see your bro, thank you for including him. Well good for you and that all went well. Now you wait for the results. You two make a great Tony Orlando And Dawn : )
Thanks Lee.
Thanks for sharing Neil. It is good of you to share and I am sure it will help others that may have some anxiety about the procedure.
Thanks Vicki.
Awesome, so glad you got it done and all was well!
I really enjoyed this. Not just watching your experience of it, but I liked how as you were travelling to the Hospital, each new bar of music was a new frame on the video trip there (sorry not sure if I explained it well). I enjoy your videos they're very well thought out & put together!
Thank you so much Susannah, yes you explained it perfectly and that is exactly how I'd attempted to put the edit together. An awful lot of time and effort goes into the editing process, and it makes me so happy you recognised this. Thank you. I'm so pleased you're enjoying my videos. Best Regards.
Congratulations Neil I knew you could do this & well done Teresa for making you laugh through it & holding your hand & yes Neil Pandora Pandora lol 😁😁😁😁😁😁😁😘😘
Thanks Sue. xxx
Ahah I see you picked up on the Pandaora Pandora 😂 xx
@@NeilBradleyMS
Oh yes I'm one charm away from a full up pandora bracelet lol
Teresa needs Pandora lol 😁👍👍👍👍👍👍👍😘😘
That’s nice Sue, go on treat yourself to that last charm. Xx🤔👍👍
Well done you, so glad it all went well. Like I said, do as you’re told and you should be ok. The apprehension before is worse than the procedure itself. I hope you get answers from the results......take care! x
Thanks Karen, oh yes you're right about the apprehension and anxiety before hand.. I was stewing for five weeks!!
Why do they tell you so much in advance? They informed me several weeks before! We’re not supposed to stress, but you can’t do anything but......
Any idea how long you have to wait for the results?
I found out I needed an LP just before Christmas. The appt didn’t come through until towards the end of Jan. I then had to wait another week until Feb 1st. I think the results take about 2 - 3 weeks. I’ve got s feeling the results will be clear. You take care too!
Thank you for sharing, I’ve got to have this procedure and I’m very anxious about it, so watching this has helped me immensely. Thank you.
Hello Carole, I’m so pleased this video was able to help you. If, you have any questions please don’t hesitate to ask. Take care.
Neil Bradley thank you. I admire your fortitude and your willingness to help other people by sharing your experiences. Bless you. I will keep watching your progress with interest. Stay strong. Take care.
So happy for you 😄😄😇
Thanks Carlie.
You both are so sweet. I'm so proud of you.
Your brother is very handsome as well. 🤗
Thanks :)
Love this video, you and Teresa are such a lovely couple!!
I stumbled across your video because I was a bit curious on how the procedure goes... seeing how I will probably have to get one before long to test for MS. :S
Gotta say, your video puts my mind at a bit of ease!
Hey there, ahh I’m thrilled my video has helped put your mind at rest a little. I can honestly say it was a nothing like I feared. I was worrying about it since before Christmas but there was no need. Good luck with your LP and I’d be interested to know how it goes.
Hi guys I've been wondering how you got on ..I'm so glad it's all over for you ..as I know how worried you was ..Teresa is one in a million ..so supportive...I've got fibromyalgia ...Im waiting to see my neurologist as I've been having problems with numbness down below ..I can't feel anything when I go to the loo ...I've also had numbness in my left arm but it went and left me with a odd sensation..things feel hot if something cold touches it ..Im also having awful dizziness...my gp mentioned ms ..I have to be honest I'm praying it's not ......
Hi Grace. I've had the exact same symptoms as you beginning April of last year. My left side from toes to the shoulder felt numb but anything cold that touched my skin would feel hot. I didn't have any dizziness but i was experiencing some lower back pain and some discomfort behind my right ear around the neck area. They did a lumbar puncture, MRI's of my spine and brain. Turned out i had some inflammation on my spinal cord. I was diagnosed with Acute transverse myelitis. They suspected MS but they are not sure. They are hoping this is a one time thing for me. Only time will tell. Anyways, they started the steroid treatment on me (4 days i believe). I went back a month after the steroid treatment for follow up MRI. The results were positive. The inflammation was reduced dramatically but not totally gone but my symptoms were gone. This was all abou 9 months ago. Today, I feel fine except I'm beginning to feel the discomfort around my right neck area again. I'm hoping it's not related. Keeping my figures crossed. I also wanted to mention Neil and his videos helped me a lot when i was in the hospital last year going through all this. I hope everything works out for you and it's just a one time thing. And thank you Neil for putting these videos out there!
Hi Grace, and thank you for your message.. yes I have to agree with you there Teresa certainly is one in a million. I'm sorry to hear you're having these terrible symptoms, they're very traumatic aren't they. It certainly sounds like your issues are nerve related, it's not necessarily MS though. Before my MS diagnosis I had strange sensations 'down below' which was very unsettling for me, like I'm sure it is for you. A bulging disc at L5 was responsible, and surgery fixed it. Lets hope your Neurologist can give you some answers soon. Good luck.
Good job!!
So glad all went well .. just love you guys... 😊
Thank you. :)
Now then Neil, didn't I tell you not to worry about it all!
I'm glad that it went so well for you and I think you do look like a weight has been lifted off your shoulders. Now you said you read every comment and try and answer all the questions so here is one for you both. What is brown and sticky??? Answers on a postcard.😁
Hi Ian, yeah you did tell me.. and thanks. Hmm brown and sticky.. hmm.. absolutely no idea lol🤔😉😆
@@NeilBradleyMS so what is brown and sticky???
A stick!!
😁
Of course! 🙈😆 I knew that!!🤔
Aww, you guys are so adorable!!! Love the bit at the end, catching her singing!
Glad your spinal tap went smoothly. Mine did as well, though I had requested it to be guided, which of course cost a bit more. :s
Hi there, love your UA-cam name👍 Thanks, yes the “tap” went well and I’m pleased to hear yours did too. Mine wasn’t guided which worried me beforehand, but I had a good Dr. Here in the UK we are so fortunate to have the NHS, so treatment doesn’t cost us anything.
@@NeilBradleyMS Thanks! And -- that's amazing! No cost at all, not even a little with each visit or for the meds?
I'm in the middle of the United States. The cost of everything is astronomical. I had a Dr's visit Feb. 25th....he wants me to go on more aggressive therapy, but considering I've gotten the 'shock' of an MRI bill in the past, I started pre-planning in my head and realized if I did everything his way, I could be well on my way to financial ruin. On top of everything else, definitely not a good feeling in regards to mood! It's frustrating to say the least, especially dealing with the insurance companies.
I'm glad to hear at least you don't have to worry about that stuff.
Hello again 😊 I sure do feel lucky with regard to medical care. I’ve spoken to so many people in the same predicament as you. Some have simply forgone treatment because they are unemployed and unable to afford it, and suffer in silence. It’s a terrible thing. I’m guessing you’ve not got insurance then if you’re having to pay for treatment and scans yourself. MS medication is hugely expensive, running into tens of thousands.
Here in the UK we pay something called National Insurance, it is deducted from your salary at source (along with tax) before the money hits the bank. Everybody has to pay it if they are employed. But it’s a brilliant thing, because this funding runs our NHS. It enables anybody to walk into any Dr’s or hospital and get free treatment. Even if the person is unemployed and is not paying National Insurance. It also contributes to our state pension which we get at retirement.
Thanks for the reply! That's interesting. I think it is a good thing for everyone to have access to medical care. Even if someone does everything 'right' their whole life over here....it's crazy to me that they can lose everything due to an unexpected medical issue.
And insurance being tied to employment has now made me feel stuck. I had thought I'd go back to college for something else...but, y'know....now with this long-term illness....and the fact that student costs have sky-rocketed...it doesn't seem like a good idea to me. Which seems really wrong, to feel this stuck, just because of a diagnosis!
I actually do have insurance, through my workplace. It's just all the fees associated with it that trips me up. I pay a monthly fee...but then there's a deductible, co-insurance, and co-pays. (all of which I'm only now understanding due to having to get more medical care)
There's a test I'm supposed to get that's not "in-network", so that won't even apply to my total amount. With no assistance whatsoever, I would end up paying up to $4,000 a year on my current plan (aside from what's taken out of my paychecks monthly). Although, with the patient assistance programs....it looks like I get some credit for the Copaxone, so that counts partially towards my fees. But things like MRIs...that generally is a cost eaten by me, which applies to the deductible.
I don't know if I'm making any sense really.....it's super frustrating to try and figure it all out, It's complicated. And what really sucks....is trying to make sense of it all when one should be focused on just getting/feeling better!
I've been told that at least with MS, the patient assistance programs through drug companies are quite helpful, and I may be able to get some assistance through the National Multiple Sclerosis Society...it's just a whole lot of looking around for help/discounted prices. I sometimes just have to take a break, as it feels so overwhelming! Oh well. Thanks for letting me vent, although you might not have wanted to know all that. lol...I do wish you all the best!!!
Not at all, I’m glad you’ve had a “vent” I had no idea the system was sooo bad where you live. So thank you for telling me this in such detail.
It’s Unbelievable how expensive it is for you, as I said we pay National Insurance for our medical care, but its noting like the cost of your medical insurance. The cost of it is also a percentage of what you earn over here, so if you’re not on a very big salary you don’t pay as much but you get the same amount of care.
You made a very good point, when you become poorly you just don’t want the hassle of sorting out insurance and what you and can a have, and then what you’ve got to pay for yourself. I can’t imagine having to sort this out for myself. I really do feel for you.
Another thing, and I’d kind of picked up on this with other chats I’ve had, but you said you can only get insurance if your employed. Hopefully I understood this correctly, but what about all the poor people who are unemployed and get poorly with MS for example. Do they not get medical care?
Hey Nanar and grandad xx
Hi Emma xx
We have subscribed to you channel now. Xxx
Thank you cx
Hi Neil
I'm watching your videos
But I don't understand why did you have to do the lumber puncture ? weren't you already diagnosed with MS and your spinal cord showed lessons ? so what's the point of the lumber puncture ?
Haha that's how I was too. "Wait, you need blood too?!" But as they explained I'm sure, it's to see if the obands are in the blood too or not.
I didn't get headaches until a day later. I'm used to migraines so it coulda been worse. At least they go away as soon as you lay down.
Glad you got a good doc! They put me on my stomach so I'm glad I had the diazapam too cos my back did better. I had a per break right before lol! Then I had to pee not long after but had to stay flat so that was annoying lol!
Now the question.... would you rather go thru that again or 2am mri? 😊
Hi Lisa, Yep they needed blood as well, like you say they need both samples taken at the same time to test. Ahh, you also had the Diazapam, its good stuff isn't it! It not only calmed me down, but I noticed a few hours later it had an effect on my mobility in as much it seems to smooth out the spasticity in my legs. I'm going to speak to my Dr about it.
As for your question, Hmm I'd probably opt for the MRI maybe, not at 2am though lol, I happen to think I was pretty lucky with this LP and subsequent ones probably won't go as smoothly. Well, actually I'm hoping never to have another LP certainly if I can get away with it.
@@NeilBradleyMS Yeah I think I got lucky too. But I say if I could have the same exact L.P. done I'd pick that. I didn't have trouble on my first mri without diazapam but use it now just in case cos I never know when my legs will wanna play up. I know I took 5mg and felt nothing but another 5 did the trick well! I think actually going to the doc makes my symptoms better cos my adrenaline kicks in and masks a lot of my problems. Basically I go to the doc for severe knee pain, get there and the pain vanishes. So I look like I'm faking! Then I leave and it comes back. Go figure! I know I'm super thirsty after an mri so I go straight to McDonald's after hehe!
🙏❤️
Crazy.....❤️❤️
When I got mine after insertion of spinal needle I started freaks bit and told dr I was to pop a cork! I started to lift up and the dr pushed me down and said don’t move while he removes the needle. The assistant wiped my face with a wet cloth and that helped a lot. Dr said if I wanted he would try again. I thought 🤔 it’s the only way to know so aggreed and he proceeds. It was done and I was right I have MS. I over thought the whole process to my own detriment. 😂 Onward through the fog! We made it we’re alive!!
Hi Sheridan, I can totally understand why you started to freak out .. I don't mind people sticking needless in my arms etc, but my spine! Errmm no thank you. At least you got some answers, I'm still waiting for my results.. probably another couple of weeks. Onwards!! :)
Seems like they treated you very well....
Told you it was no big deal...
Aha Thanks Steve, you did indeed! :)
Pretty mellow guy. 😉
Aha thank you Linda :)
❤️❤️xx