Dear Crystal, I wanted to take a moment to express my heartfelt gratitude for your incredibly helpful Gastroparesis channel. Recently, I received a diagnosis of Gastroparesis, and it has been an overwhelming and emotionally draining experience. I have found myself engulfed in feelings of depression, fear, and sheer helplessness, especially when it comes to navigating my dietary choices. The struggle of feeling like I can eat nothing without symptoms has been incredibly disheartening, considering that I was also diagnosed with GERD several years ago and already have a VERY limited diet. 😥
Because with gastroparesis it has become part of your beingAnd that is why you still talk about It there are so many people who have no idea what gastroparesis is how it affects people physically emotionally and spiritually or what they can do to ease their symptoms to make it through each day I have someone very close to me who has had It for 21 years
My wife was diagnosed about two years ago. She was so sick and miserable and no doctor could find anything. She lost 100 pounds. Bloating until not being able to breathe. Every test, every bloodwork. Finally one did. Changing diet, especially elimination of gluten, helped a lot but reglan is really helping her. Thank you for your videos. Thank you for caring. ❤️
Greg, "bloating until not able to breathe" is such a relatable description! 🥴 I'm sorry to hear that your wife had to go through all of that before she was able to get a diagnosis and find some relief. I'm glad she's found something that's working well for her. I'll be sending lots of good wishes her way!
Hubby was finally diagnosed after months of terrible pain and drastic weight loss. After downloading a diet and seeing what he couldn't eat, he has gotten pretty depressed. We were already on a restrictive diabetic diet so this was a real whammy. I found your site and ordered your book from Amazon. There is so little out there dealing with this that you are really doing a necessary job and we thank you.
Your new perception of living well has been a ‘God-send’ for me. I totally understand where you’re coming from, as I’m already ‘living well’ with fibromyalgia. Now Gastroparesis is a piece of my life, but becoming a smaller part as I learn the basics. Because of you’re new outlook, I’m on my way to Hawaii next month. Yes, a bit more planning is entailed, but I now feel that my life isn’t as drastically limited as I thought it might be. Do keep on encouraging the Gastroparesis community… your thoughts are appreciated!
CJ, this comments means the world to me. I hope you have an absolute blast in Hawaii (we're going for the first time next year and I can't wait!) and that you'll continue to share what you're up to. I think it's not just my videos but comments like this that will encourage others to get out and live life, despite the diagnoses and extra planning required. I'm so glad you're here and I'm sending lots of good wishes your way!
I'm so glad you're back. I'm looking forward to what you have in store for us. I began having symptoms 30 years ago, but didn't get diagnosed for 15 years. I've been through many different emotional and physical stages since then. It's good to hear from someone who also has gastroparesis. I don't know anyone that has it and sometimes I just need to be understood. Rori
Please 8:218:21 Don’t quit talking about how to manage gastroparesis. When I got the diagnosis l8 months ago you were instrumental in convincing me that I could figure a way to eat without constant tummy issues. Thank you helping us all
Thank you SO Much for continuing to post content! You are the only person that has given me hope that I won't be slowly worsening my entire life and eventually passing early from this disease that I was diagnosed with 4+ years ago. I'm a young(ish) mom of five boys, and currently in somewhat remission due to giving birth 2 years ago and still breastfeeding, but I am still SUPER careful to avoid things on the list in your book and am always worried about it coming back full force! You give me hope life can be lived "normally" and that there is possibility for a brighter future!
Alicia, I'm so glad you're here! And you're the living, breathing hope right now... you're doing well💖 If you haven't watched this video, I think it would be helpful when it comes to that worry about things worsening again: ua-cam.com/video/2_2eAQ4SyDg/v-deo.html I'll be sending you good wishes!
I initially found you when I was desperate because all I was eating was crackers and applesauce. My weight was safe so my doctors weren’t helping. Thanks to you my diet expanded and I did really well until my symptoms began to ease 5 years ago. They seem to be returning now but I still have the skills I learned from you. I still have a chronic illness but I’m far more than that. I bake. I knit. I care for others. Yes, please more on disordered eating. I feel like my GP really added to my food issues. I’ve been working on intuitive eating and I want to continue that despite worsening symptoms.
Lisa, I'm so glad you've found the info helpful and that's you're doing well. What you said is so important. Knowing that we (and life) are more than any diagnosis or illness AND we are fully capable of dealing with whatever shows up. It changes the whole experience. We'll definitely be talking about disordered eating sometime soon. I think it's a significant issue for a lot of people navigating GP (it was for me for a long time). Looking forward to that conversation!
I had severe gastroparesis for 6 months and now thank god I can eat normally. It’s been 2 years. I’m just scared it will come back now seeing you mention “ remission”. Terrified it will start again. Does it always come back at some point?
Oh goodness, I'm so sorry that my use of "remission" has worried you. As I said in the video, I really don't like that term when it comes to gastroparesis because it does assume a "temporary" recovery and that is not AT ALL a given. Plenty of people recover and stay recovered. This video actually speaks to the worry you're having directly: ua-cam.com/video/2_2eAQ4SyDg/v-deo.html Hope it helps!
Thankyou so much .I've watched all your videos and got both your books.. I'm excited to see what else you have to teach us!! I was diagnosed after a auto accident in 2019 where i had vagus nerve damage . I have noticed when my stress is low and I eat correctly for my body. I feel better and have less issues.. I do follow the lowfodmap diet and a gastroparesis diet ... Still learning about both.. Thankyou for all you do and sharing your normal life activities is such an inspiration!!!
Hi, Crystal! I've been really reinvigorated lately and there's so much more I want to share here... so stay tuned! (One of those things is to do an updated FODMAPs video, so you might be interested in that when it comes out.) I've noticed the same as what you're describing, that my symptoms are a "signal" of sorts, showing me that I've gotten caught up in something (whether it's stress or eating in a way that doesn't work for me). It's taken me a while to get to a place where I don't feel any blame or guilt when those signals show up (I think we're all always doing the best we can at any given time) but simply to see it as an invitation to make some different choices and take notice of things I've been ruminating on or stressing about. You can't do it wrong! We're all learning all the time. I'm glad you're here!
can't deal with the sour taste in my mouth, the mental idea of it never going away... I thought it was dehydration at first, but it doesn't go away even when I have 8 glasses of water a day...
Thank you crystal for still being here. Your the one shining light out of a plethora of information out there that actually helps and we feel that you actually want to help. Just bought your books and going to read them. Just to ask. Do you know of anyone with chronic fibromyalgia that live well with a gastric stimulater. I feel everything on my body and wonder if it would actually cause me more body nerve pain ? Thank you again and big hugs 🤗 xxxxx
Teresa, I appreciate your kind words 💖 I hope you find the books helpful and empowering! I can't say specifically about the neurostimulator exacerbating nerve pain other than fibromyalgia was one of the things I was diagnosed with many years ago and I didn't have a problem with the device. But that's not a very large sample size! I would certainly discuss it with all of your docs and specialists if it's something you're considering. I actually want to bring on a fellow coach who specializes in chronic pain for a discussion soon... so hopefully that will be helpful to you, as well!!
@@csaltrelli Thank you and I’ll definitely do some more research. That certainly sounds a great idea and look forward to the upcoming episodes. Big hugs and stay well xxxx ❤
Why with severe gastroparesis am I overweight. I constantly have very lose Bms. I guess I need to buy your books and read them. Any advice would be appreciated.
I would be really into the body imagine and eating disorders with gastroparesis. Like I’m sure I’m not the only who has been told that when they’re super bloated they look pregnant or like they swallowed a whole watermelon. I recently got diagnosed with binge eating disorder. I always knew I was an emotional eater but I didn’t think it went so far as to be a disorder but it makes sense. Like we’re supposed to have these small frequent meals with a restricted diet to fight symptoms but in reality it tricks our brains into starvation and scarcity mindsets.
So true, Kara. Looking forward to bringing on some other coaches to talk through these things. I've worked with some clients around eating issues and it's funny in that the "inside out" stuff we've been talking about in regards to gastroparesis applies to all of that, too. Will be some great conversations coming!
I was diagnosed with gastroparesis about 3-4 months ago and I am currently having a flare up and feels Soo depressed. I feel like no one understand the pain and how miserable this can be on a person, and dunno what to do anymore
I was told recently that their is nothing they can do for my gastroparsis. It is heart wrenching. They placed a feeding tube and had to have it removed because of infection. I am not a obsorbing proteins any more. They won’t do tpn because I am still eating by mouth. It is so frustrating
Hi, Kristin. I'm so sorry you're going through this right now. I've been told the same thing and I know how frustrating and hopeless it can feel. I think the most important thing I can share with you is just how dynamic this condition truly is over time. I've seen it not only in my own experience in the past 18 years but also with hundreds of clients. "Nothing they can do" doesn't mean that you'll be having the same experience you're having now forever. It also doesn't mean there won't be something else to do at some point, either something the doctors will have to offer or something you'll come across that makes sense for you. If you haven't already, definitely check out the video I did with Samantha last year. She's is in a similar situation but her experience has opened up in a really interesting ways. You might hear something helpful in it. In the meantime, I'll be sending you lots of good wishes!
Crystal, hi. Botox injection and dialation of the pylorus didn't work. My consultant will not go down pacemaker route. Juggling between fodmap and gastritis diet is a juggle
Hi, Naveed. I'm sorry to hear that you're struggling right now. This article might be helpful with the multiple dietary restrictions: livingwithgastroparesis.com/faq-how-do-i-manage-multiple-dietary-requirements/
cc my symptoms keep getting worse. The doctors put in a gastro neurostimulator a year ago but it is not working. They want to put in another feeding tube but I refuse. I have so many symptoms it makes me feel so frustrated. I keep getting sick with other diseases from being rundown due to not getting enough nutrients. I am always so tired and hurt. I don't know what to do .
Hi, Sheila. I'm so sorry you're struggling right now. What you say about being run down and having subsequent diagnoses due to the malnutrition is something I experienced, too. I certainly remember how frustrating and overwhelming it felt. I wish I had something more to help eliminate those symptoms for you (if don't have my Quick Start Guide or if you haven't read my books, there might be something in there you'd find helpful). Other than that, I'd just invite you to stick with me in the conversation around the "inside out" approach to living well with GP (there's a playlist of those videos on my channel if you've missed them) because that's truly something that can bring relief from the frustration even there's nothing else to bring to relief from the symptoms. (And I've found sometimes when we're able to alleviate the frustration, etc. there's a physical benefit too.) Sending you lots of good wishes!
When you say that you were “in remission” do you mean that you were able to eat normal foods again? I got diagnosed with this a few months ago and it’s still so new to me. Thanks!
Hi, Ryan! Yes, my gastric emptying normalized (I had two normal gastric emptying studies after lots of delayed results over many years) and my symptoms resolved to the point where I was eating pretty much whatever I wanted to eat. I was able to turn off my gastric neurostimulator and discontinue all medication. This lasted for a while (almost two years, I think) and then I had several things happen -- a miscarriage, a stomach flu, and then a new medication for something unrelated -- that combined to put me pretty much back to where I started way back when I was diagnosed symptom-wise. Fortunately, between then and now, my experience has changed dramatically and I'm not afraid of having gastroparesis anymore. So it feels very different from a "coping" standpoint. I do the things that I know help me feel better and other than that, I don't think or worry much about it all. That's the stuff I'm really trying to share here because it's helpful no matter where you are with symptom management, etc. So all of that to say, yes, my symptoms did resolve and my emptying did normalize for a period of time. That's not uncommon. People get better -- sometimes permanently, sometimes intermittently -- but the idea that once you're diagnosed, you'll have this forever is a misconception that's common out there. And whether or not the condition resolves completely, there's certainly a lot we can do to feel better and it's totally possible to live WELL either way. Hope that helps!
@@csaltrelli it does. Thank you SO much! It gives me hope that there is a light at the end of the tunnel! I was diagnosed with idiopathic gastroparesis after having COVID 19 back in January. It got progressively worse until I finally knew something was wrong and went to the doctor about it.
@@ryanpate4 Oh there is so much hope to be had! Truly. I know most of what you read on the internet having to do with gastroparesis is quite depressing but I always remind people that those who have gotten better or are simply living their lives with gastroparesis and doing fine aren't the ones posting in Facebook groups and creating instagram accounts about the condition. So we tend to see mostly the people who are struggling and it makes it looks like *everyone* is struggling in that same way. I think sometimes that itself creates negative effects and it's another part of the reason I keep getting out here to hopefully spread a little light and hope! I don't know much about post-COVID GP at this point but if it's similar to other post-viral GP cases, I would think the prognosis for resolution is good. Most post-viral cases resolve within a few months to a couple years. I'll be sending you good wishes!
Hi, Naveed. H. pylori can delay gastric emptying but as far as I know the mechanism isn't well understood. It's definitely something to discuss and with your doctors on!
@@csaltrelli my consultant says no. My issues started in 2017 with severe stomach pain during a trip to Pakistan. A year later, I was diagnosed with H. Pylori. In 2018, I started to get very full very quickly thinking it was gastritis. Over time, my symptoms have worsened. Tightness in the pylorus region. Gi map has showed h. Pylori has returned. Number is low but present. I now have SIBO, reactive gastropathy, severe bloating, constipation. I still believe it has been the cause and damage my vagus nerve.
Dear Crystal,
I wanted to take a moment to express my heartfelt gratitude for your incredibly helpful Gastroparesis channel.
Recently, I received a diagnosis of Gastroparesis, and it has been an overwhelming and emotionally draining experience. I have found myself engulfed in feelings of depression, fear, and sheer helplessness, especially when it comes to navigating my dietary choices. The struggle of feeling like I can eat nothing without symptoms has been incredibly disheartening, considering that I was also diagnosed with GERD several years ago and already have a VERY limited diet. 😥
Because with gastroparesis it has become part of your beingAnd that is why you still talk about It there are so many people who have no idea what gastroparesis is how it affects people physically emotionally and spiritually or what they can do to ease their symptoms to make it through each day I have someone very close to me who has had It for 21 years
My wife was diagnosed about two years ago. She was so sick and miserable and no doctor could find anything. She lost 100 pounds. Bloating until not being able to breathe. Every test, every bloodwork. Finally one did. Changing diet, especially elimination of gluten, helped a lot but reglan is really helping her. Thank you for your videos. Thank you for caring. ❤️
Greg, "bloating until not able to breathe" is such a relatable description! 🥴 I'm sorry to hear that your wife had to go through all of that before she was able to get a diagnosis and find some relief. I'm glad she's found something that's working well for her. I'll be sending lots of good wishes her way!
Hubby was finally diagnosed after months of terrible pain and drastic weight loss. After downloading a diet and seeing what he couldn't eat, he has gotten pretty depressed. We were already on a restrictive diabetic diet so this was a real whammy. I found your site and ordered your book from Amazon. There is so little out there dealing with this that you are really doing a necessary job and we thank you.
Nancy, I hope the book has been helpful for your husband. I know this can be so overwhelming when you're first diagnosed.
@@csaltrelli It has and I've read it cover to cover. Thank you again for bringing this little known condition to light.
Your new perception of living well has been a ‘God-send’ for me. I totally understand where you’re coming from, as I’m already ‘living well’ with fibromyalgia. Now Gastroparesis is a piece of my life, but becoming a smaller part as I learn the basics. Because of you’re new outlook, I’m on my way to Hawaii next month. Yes, a bit more planning is entailed, but I now feel that my life isn’t as drastically limited as I thought it might be. Do keep on encouraging the Gastroparesis community… your thoughts are appreciated!
CJ, this comments means the world to me. I hope you have an absolute blast in Hawaii (we're going for the first time next year and I can't wait!) and that you'll continue to share what you're up to. I think it's not just my videos but comments like this that will encourage others to get out and live life, despite the diagnoses and extra planning required. I'm so glad you're here and I'm sending lots of good wishes your way!
I’m so glad you are still here! I was diagnosed 2 years ago and can’t find any information on the internet.
I'm so glad you're back. I'm looking forward to what you have in store for us. I began having symptoms 30 years ago, but didn't get diagnosed for 15 years. I've been through many different emotional and physical stages since then. It's good to hear from someone who also has gastroparesis. I don't know anyone that has it and sometimes I just need to be understood. Rori
Please 8:21 8:21 Don’t quit talking about how to manage gastroparesis. When I got the diagnosis l8 months ago you were instrumental in convincing me that I could figure a way to eat without constant tummy issues. Thank you helping us all
I'm so glad that my content was helpful for you! Sending good wishes ❤
Thank you SO Much for continuing to post content! You are the only person that has given me hope that I won't be slowly worsening my entire life and eventually passing early from this disease that I was diagnosed with 4+ years ago. I'm a young(ish) mom of five boys, and currently in somewhat remission due to giving birth 2 years ago and still breastfeeding, but I am still SUPER careful to avoid things on the list in your book and am always worried about it coming back full force! You give me hope life can be lived "normally" and that there is possibility for a brighter future!
Alicia, I'm so glad you're here! And you're the living, breathing hope right now... you're doing well💖 If you haven't watched this video, I think it would be helpful when it comes to that worry about things worsening again: ua-cam.com/video/2_2eAQ4SyDg/v-deo.html
I'll be sending you good wishes!
I initially found you when I was desperate because all I was eating was crackers and applesauce. My weight was safe so my doctors weren’t helping. Thanks to you my diet expanded and I did really well until my symptoms began to ease 5 years ago. They seem to be returning now but I still have the skills I learned from you. I still have a chronic illness but I’m far more than that. I bake. I knit. I care for others.
Yes, please more on disordered eating. I feel like my GP really added to my food issues. I’ve been working on intuitive eating and I want to continue that despite worsening symptoms.
Lisa, I'm so glad you've found the info helpful and that's you're doing well. What you said is so important. Knowing that we (and life) are more than any diagnosis or illness AND we are fully capable of dealing with whatever shows up. It changes the whole experience.
We'll definitely be talking about disordered eating sometime soon. I think it's a significant issue for a lot of people navigating GP (it was for me for a long time). Looking forward to that conversation!
I had severe gastroparesis for 6 months and now thank god I can eat normally. It’s been 2 years. I’m just scared it will come back now seeing you mention “ remission”. Terrified it will start again. Does it always come back at some point?
Oh goodness, I'm so sorry that my use of "remission" has worried you. As I said in the video, I really don't like that term when it comes to gastroparesis because it does assume a "temporary" recovery and that is not AT ALL a given. Plenty of people recover and stay recovered. This video actually speaks to the worry you're having directly: ua-cam.com/video/2_2eAQ4SyDg/v-deo.html Hope it helps!
Thank you for the link…. Your channel is really my favorite for all my gastroparesis worries and questions! 👍🏻
My experience has been eat what you can when you can. Gastroparesis does not define me, its just something i have.
I'm glad you are still around to help.
Thanks so much, Joan! I appreciate you being here.
Thankyou so much .I've watched all your videos and got both your books.. I'm excited to see what else you have to teach us!! I was diagnosed after a auto accident in 2019 where i had vagus nerve damage . I have noticed when my stress is low and I eat correctly for my body. I feel better and have less issues.. I do follow the lowfodmap diet and a gastroparesis diet ... Still learning about both.. Thankyou for all you do and sharing your normal life activities is such an inspiration!!!
Hi, Crystal! I've been really reinvigorated lately and there's so much more I want to share here... so stay tuned! (One of those things is to do an updated FODMAPs video, so you might be interested in that when it comes out.) I've noticed the same as what you're describing, that my symptoms are a "signal" of sorts, showing me that I've gotten caught up in something (whether it's stress or eating in a way that doesn't work for me). It's taken me a while to get to a place where I don't feel any blame or guilt when those signals show up (I think we're all always doing the best we can at any given time) but simply to see it as an invitation to make some different choices and take notice of things I've been ruminating on or stressing about. You can't do it wrong! We're all learning all the time. I'm glad you're here!
Crystal your videos have helped me so much. Thank you!
I'm so glad you've found something helpful in the videos! Thanks for being here 💖
i did gpoem last year but does not work,i still uncomfortable when have food
I bought both your books and you inspired me to take care of myself and I am living quite nicely with GP. Thank you.
Marguerite, that's wonderful to hear! So glad you're here and that you're doing well.
أخي كيف التعايش مع خزل المعده اتعبني هل يوجد ادويه او نصائح الى هذا المرض ضيق نفس فضيع
can't deal with the sour taste in my mouth, the mental idea of it never going away... I thought it was dehydration at first, but it doesn't go away even when I have 8 glasses of water a day...
Thank you crystal for still being here. Your the one shining light out of a plethora of information out there that actually helps and we feel that you actually want to help. Just bought your books and going to read them. Just to ask. Do you know of anyone with chronic fibromyalgia that live well with a gastric stimulater. I feel everything on my body and wonder if it would actually cause me more body nerve pain ? Thank you again and big hugs 🤗 xxxxx
Teresa, I appreciate your kind words 💖 I hope you find the books helpful and empowering! I can't say specifically about the neurostimulator exacerbating nerve pain other than fibromyalgia was one of the things I was diagnosed with many years ago and I didn't have a problem with the device. But that's not a very large sample size! I would certainly discuss it with all of your docs and specialists if it's something you're considering. I actually want to bring on a fellow coach who specializes in chronic pain for a discussion soon... so hopefully that will be helpful to you, as well!!
@@csaltrelli Thank you and I’ll definitely do some more research. That certainly sounds a great idea and look forward to the upcoming episodes. Big hugs and stay well xxxx ❤
Thank you so much for this video.
Hi, Lana. Good to see you over here! I hope something in this feels helpful for you.
Why with severe gastroparesis am I overweight. I constantly have very lose Bms. I guess I need to buy your books and read them. Any advice would be appreciated.
I would be really into the body imagine and eating disorders with gastroparesis. Like I’m sure I’m not the only who has been told that when they’re super bloated they look pregnant or like they swallowed a whole watermelon. I recently got diagnosed with binge eating disorder. I always knew I was an emotional eater but I didn’t think it went so far as to be a disorder but it makes sense. Like we’re supposed to have these small frequent meals with a restricted diet to fight symptoms but in reality it tricks our brains into starvation and scarcity mindsets.
So true, Kara. Looking forward to bringing on some other coaches to talk through these things. I've worked with some clients around eating issues and it's funny in that the "inside out" stuff we've been talking about in regards to gastroparesis applies to all of that, too. Will be some great conversations coming!
I was diagnosed with gastroparesis about 3-4 months ago and I am currently having a flare up and feels Soo depressed. I feel like no one understand the pain and how miserable this can be on a person, and dunno what to do anymore
I was told recently that their is nothing they can do for my gastroparsis. It is heart wrenching. They placed a feeding tube and had to have it removed because of infection. I am not a obsorbing proteins any more. They won’t do tpn because I am still eating by mouth. It is so frustrating
Hi, Kristin. I'm so sorry you're going through this right now. I've been told the same thing and I know how frustrating and hopeless it can feel. I think the most important thing I can share with you is just how dynamic this condition truly is over time. I've seen it not only in my own experience in the past 18 years but also with hundreds of clients.
"Nothing they can do" doesn't mean that you'll be having the same experience you're having now forever. It also doesn't mean there won't be something else to do at some point, either something the doctors will have to offer or something you'll come across that makes sense for you.
If you haven't already, definitely check out the video I did with Samantha last year. She's is in a similar situation but her experience has opened up in a really interesting ways. You might hear something helpful in it.
In the meantime, I'll be sending you lots of good wishes!
My go has gotten worse. 😢
Crystal, hi. Botox injection and dialation of the pylorus didn't work. My consultant will not go down pacemaker route.
Juggling between fodmap and gastritis diet is a juggle
Hi, Naveed. I'm sorry to hear that you're struggling right now. This article might be helpful with the multiple dietary restrictions: livingwithgastroparesis.com/faq-how-do-i-manage-multiple-dietary-requirements/
@@csaltrelli thank you. I've bought both your books.
cc my symptoms keep getting worse. The doctors put in a gastro neurostimulator a year ago but it is not working. They want to put in another feeding tube but I refuse. I have so many symptoms it makes me feel so frustrated. I keep getting sick with other diseases from being rundown due to not getting enough nutrients. I am always so tired and hurt. I don't know what to do .
Hi, Sheila. I'm so sorry you're struggling right now. What you say about being run down and having subsequent diagnoses due to the malnutrition is something I experienced, too. I certainly remember how frustrating and overwhelming it felt. I wish I had something more to help eliminate those symptoms for you (if don't have my Quick Start Guide or if you haven't read my books, there might be something in there you'd find helpful).
Other than that, I'd just invite you to stick with me in the conversation around the "inside out" approach to living well with GP (there's a playlist of those videos on my channel if you've missed them) because that's truly something that can bring relief from the frustration even there's nothing else to bring to relief from the symptoms. (And I've found sometimes when we're able to alleviate the frustration, etc. there's a physical benefit too.)
Sending you lots of good wishes!
When you say that you were “in remission” do you mean that you were able to eat normal foods again? I got diagnosed with this a few months ago and it’s still so new to me. Thanks!
Hi, Ryan! Yes, my gastric emptying normalized (I had two normal gastric emptying studies after lots of delayed results over many years) and my symptoms resolved to the point where I was eating pretty much whatever I wanted to eat. I was able to turn off my gastric neurostimulator and discontinue all medication.
This lasted for a while (almost two years, I think) and then I had several things happen -- a miscarriage, a stomach flu, and then a new medication for something unrelated -- that combined to put me pretty much back to where I started way back when I was diagnosed symptom-wise.
Fortunately, between then and now, my experience has changed dramatically and I'm not afraid of having gastroparesis anymore. So it feels very different from a "coping" standpoint. I do the things that I know help me feel better and other than that, I don't think or worry much about it all. That's the stuff I'm really trying to share here because it's helpful no matter where you are with symptom management, etc.
So all of that to say, yes, my symptoms did resolve and my emptying did normalize for a period of time. That's not uncommon. People get better -- sometimes permanently, sometimes intermittently -- but the idea that once you're diagnosed, you'll have this forever is a misconception that's common out there. And whether or not the condition resolves completely, there's certainly a lot we can do to feel better and it's totally possible to live WELL either way.
Hope that helps!
@@csaltrelli it does. Thank you SO much! It gives me hope that there is a light at the end of the tunnel! I was diagnosed with idiopathic gastroparesis after having COVID 19 back in January. It got progressively worse until I finally knew something was wrong and went to the doctor about it.
@@ryanpate4 Oh there is so much hope to be had! Truly. I know most of what you read on the internet having to do with gastroparesis is quite depressing but I always remind people that those who have gotten better or are simply living their lives with gastroparesis and doing fine aren't the ones posting in Facebook groups and creating instagram accounts about the condition. So we tend to see mostly the people who are struggling and it makes it looks like *everyone* is struggling in that same way. I think sometimes that itself creates negative effects and it's another part of the reason I keep getting out here to hopefully spread a little light and hope!
I don't know much about post-COVID GP at this point but if it's similar to other post-viral GP cases, I would think the prognosis for resolution is good. Most post-viral cases resolve within a few months to a couple years. I'll be sending you good wishes!
@@csaltrelli thank you!
Could h. Pylori caused my GP?
Hi, Naveed. H. pylori can delay gastric emptying but as far as I know the mechanism isn't well understood. It's definitely something to discuss and with your doctors on!
@@csaltrelli my consultant says no. My issues started in 2017 with severe stomach pain during a trip to Pakistan. A year later, I was diagnosed with H. Pylori. In 2018, I started to get very full very quickly thinking it was gastritis. Over time, my symptoms have worsened. Tightness in the pylorus region. Gi map has showed h. Pylori has returned. Number is low but present. I now have SIBO, reactive gastropathy, severe bloating, constipation.
I still believe it has been the cause and damage my vagus nerve.