I work in Hospice. I work with amazing professionals who work themselves to the bone to help monitor and treat symptoms, respect wishes, support families, and make the process as smooth as possible. And let me tell you, most of us wish our patients had this option. If you are terminal, ready to go, and not having a quality of life, you should have the choice.
Hospice failed to treat my father's pain and only gave him very low dose morphine that did nothing. Be a vocal advocate and make sure your nurse is competent!!
Having just watched my husband who had dementia die inhumanely in palliative care suffering slowly in tremendous pain at times for over a week -- Everyone should have the choice to die and relatives should be able to make that decision for their loved ones who cannot make the decsion themselves . I knew my husbands wishes and yet I could help my dog more at the end of his life than I could my husband of 30 years. Thank you to the family and filmmakers.
I’m deeply sorry that not only have you lost your soulmate of thirty years, but that his death was needlessly painful and filled with suffering. I know you might feel responsible for your husbands suffering but it is a sin that neither of you need atone for. The last thing that your beloved husband would want would be for you to end his life and spend the remainder of yours in prison, maligned by the justice system. If it’s something that you want, and have the healing in your heart to be able to pursue, you could look at getting involved with your national dying with dignity organisations and doing what you can to have the laws changed so that there may be options for others of voluntary assisted death in the future. May your husbands memory hold you tightly in the cold winds of grief.
All my love to you, Mrs. Sanders! Thank you for sharing. Its stories like yours that mean so much to this movement. I hope you are doing ok and have love surrounding you. Hugs!❤😊
If we leave a animal to suffer we would be charged with cruelty. Yet we allow people to suffer and be treated with out dignity. We need to sort this out asap.
I’m very passionate about this very subject and just said this very thing to someone last week! I don’t understand! If it’s not for you then don’t do it but most of us want to DECIDE for ourselves I think.
my 8 years old granddaughter has a life span of 10 been living with pain since she was 3 weeks old because of meningitis, she had 2 hip replacement surgeries by the time she was 4, she cannot walk or talk or see she suffers but lots of times she shows joy too, I also live every waking moment in pain due to nerve damages more than once a day the pain if I move the wrong way is unbearable to the point it cuts off my oxygen still I fight to see one more tomorrow to enjoy so much that life has to give
From someone young who lives with chronic pain and still living life every day, respect people’s choice to pass, pain free and with dignity. No one else should judge what goes into those choices.
YES. I am feeling infuriated at the condescension of one male person who has a sense of his fatal future & then the guilt trips he (& whomever that blonde lady is) lays on someone who knows what she needs & wants & then he claims to (fake) know what she is feeling because he 'knows' what his destiny is & he's been oh so philosophically grounded. How dare you! NO buddy. You have an APPROXIMATION, at best, of what she is feeling & experiencing! As far as I'm concerned, she is far to empathetic with all of these others who are guilting her to live. NOT COOL. Not acceptable!
@@helenlogan6481 I am very sorry to hear that. I understand, but only from my particular perspective & experience. Emotional pain is not that different perhaps. Best wished to you & yours.
Thank you to Jan and her family for allowing us to witness her last moments. What is shameful is the fact that she had to travel to another country to end her suffering. I too hope that when my time is near that I have the choice to die with dignity in the country of my choosing. Thank you once again for this amazing documentary.
I was my mother’s caregiver when she died from cancer earlier this year. It was a horrible, painful, and scary death for her. She didn’t deserve that kind of death after all the pain she had already struggled through. I wouldn’t wish that way of dying on anyone.
When I was 29 I lost my mom aged 58, she was suffocating and in so much pain. I believe she should have had a choice , although I know for a fact she would have wanted it to go the same way and fought until the very end... my stepbrother also passed away of cancer at the age of 35 very quickly he was wasting away .. I wish my family would have had that choice.. Sorry about the loss of your mom, those are always the hardest 😢
If I had a terminal disease, I would do the same thing. Thank you for sharing. This documentary was one of the best documentaries I have seen. She went peacefully. I mentioned to my daughter that I would like to die like this if I had to suffer in my old age of a debilitating disease. She was absolutely against it. I have a degenerative bone disease and have had multiple joint replacements that allowed me to be able to take care of myself. If I had to live in the pain that I had without the joint replacements, I would rather have died. Eventually you cannot move your arms, legs etc due to excruciating pain as it degenerates. I wouldn't wish that on my worst enemy. I worked in nursing homes and I vowed that I would not ever be place into one.
Death is Drastically Under Rated for those who suffer from Major Depressive Disorder. Nobody should have to experience a lifetime of relentless suffering.
There is a movie about a woman who was approved for VAD for lifelong depression. When she was finally approved, the knowledge that she could then do it at any time helped her continue for longer than she expected. Just knowing that it is not endless and you can stop anytime you want is invaluable.
@@debbibowen that can be done by thirst as well not just hunger by mere directive. The problem is when thirst kills WITHOUT informed OR ANY sometimes consent.
I am a firm believer of death with dignity. I have intractable pain and hope some day that I can do the same as her. We all know how much suffering we can take. Although I am 55 years old, if I could choose this today.....I would. We all deserve to have this choice.....not to suffer. God bless you in your journey! Rip
Hi Lisa, you’re not alone. I’m 58 yo. with chronic pain for 25 years. I’m relieved to know that, as societies progress, more and more countries are legalising Euthanasia and Assisted Suicide. Unbearable chronic physical pain, with time, becomes unbearable emotional pain. Best wishes to you.
I cared for my mum for 12 years through her dementia journey .She accepted her diagnosis and slipped slowly into another form of reality .She enjoyed her picture books ,her relaxing music and stroking her numerous Teddy bears .Although each year meant less mobility and cognition she was never frightened or angry just drifted further into her own world.In the last 6 years I supported her f/t with all her care needs .It was a journey which in a strange way made our relationship closer .It made me realise the true value of love and friendship..She passed,away peacefully in her own bed at home .Everyones experience is different but I just wanted to put out there our experience .Total respect to those who go on different paths
My view on this topic is that we are able to make the choice of death by agreeing to take someone off of life support, and even our pets because they are unable to speak for themselves…..so why do they ignore the direct words and wishes of those who are suffering and in pain. Allow someone to take control of their disease and make the final decision of THEIR life.
Fantastic documentary, I too wouldn't want to suffer and the strength it must have taken for her to plan this herself is amazing, she can rest in peace now and hopefully her son can help make a difference in fighting this horrible decease .thanks for sharing. Hopefully all countries will offer assisted dying soon. From Melbourne Australia 🇦🇺
So sorry she has left for the next world .. ..hut I'm happy for her. I absolutely adore her garden of EDEN .. ..its stunning .. theres nothing more adorable and enriched than an over grown.. ..old fashioned , established garden like hers .. I would die happy in a garden like this. Looks so peaceful and overwhelmed by wildlife, trees, bushes, shrubs , ivy...... I hope the people who take over Jan's house , love the garden as it is. I'm about to house hunt in the countryside ... ..and this is exactly what I would seek. Rest in peace Jan . 💚💚💚💚💚💚
I thought at the end how sad it is that she had to travel so far to be able to do what she wanted and couldn't have passed away in the comfort and familiarity of the house and surroundings that she loved.
@@angelfirelite What are you talking about, fool?! People are discussing an important issue here and you go saying coping dime bags and OD like the rest of the dope-feins. Don't be either a fool or a jerk here!
It really is unbelievable how selfish and narcissistic some people are. It’s Your life, it’s your choice period. You don’t need to explain or justify anything to anybody. What right does any individual or gov’t have to tell you what you can and can’t do with your body. Wether it’s assisted suicide or what you want to eat or drink for dinner or what substances you decide to ingest, all your decision. It’s amazing to me that some adults feel they have the right & moral high ground to tell you what you can & can’t do. Clean your own house before you start picking mine apart
No one has the right to say how someone else dies. But to live with pain , and knowing it will get worse to the point of nothing more than torture, everyone should have a choice. Their bodies their right. And death is not the end, it’s part of an another journey we all must take. RIP in the garden of the universe 💫💕
Oh my goodness! This was heart-wrenching to watch - especially the end. I have looked at the possibility of this end, for myself; as a Stage IV Cancer patient. After watching this, I honestly do not think I could do it. I don't think I could do it if my children were not 100% behind me, at least. I respect Janette's decision. Bless her heart! Bless her children! This was an eye-opener for me. I thank her children for allowing their mother's passing days and moments and the decisions, to be shared with those who watched.
@@flowinfield8556 it is horrific that you would expect a fellow human to choose intense suffering at the end of her life for such idiotic idealism. Do it yourself. Have several seats, ma’am.
@@flowinfield8556 the fact that you have survived cancer and suffered further validates my point. That said, I will not gloss over your survival of cancer. And to that, I say congratulations. I am happy you beat it! I truly pray you never relapse.
I know that the film is obviously based on the emotional story of Janette, but that Swiss doctor does raise some really interesting points - this is really just such a brilliant documentary.
My personal feeling on this matter of choosing one's death should be allowed if the person has a horrible disease or their bodies are no longer functioning in a productive manner. There should be a program in place to help these people to die with dignity on their own accord. Also, it should be pain-free if possible. Presently, I'm 60 years old and death could come at any moment at this age. I don't have any major illnesses or diseases but, if I were to get a life-ending condition, I would want a choice. To me, it is the compassionate thing to do. Never judge anyone, because you may be the next person to need this. Bless all these people.
I turned 66 yesterday & never thought about getting to that age, to the age that death could creep up on me. Maybe in 10 years but not yet, not now. My 2 best friends & my dog died in the past year & now I have no one to go & do with. I still want to go kayaking & camping, but cant find others to share the experience with. Oh well, just going to go alone.
You don't understand, the process of dying in the United States is BIG money. Hospitals and Hospice are all CORPORATIONS now, so they need you alive to die so they can extract as much money as possible to their shareholders and board members happy.
I’ve never understood this way of dying. We all have a date to leave this earth and be with our Heavenly Father. But even severe depression can make you feel this way…….
People don't understand how difficult it is to be stuck in a broken body. To watch life pass you by day after day. This November will be 30 yrs of suffering. 30 yrs of existing but not living. I can no longer drive, cook, clean and shop. Showering in extremely difficult. I average 2 showers a month. I made a promise to myself that when I became a burden I would end my life. I'm well beyond being a burden but I'm to much of a coward to stick to my promise.
@Allie G I just wanted to say hello, just wanted to reach out to you. I hope you're comfortable and warm. I hope you have company, somebody to hear you. Sending my love 💓
@@annetnabuyondo7607 I know that you will probably never see this but I hope that you're ok and you didn't harm yourself. Just know one person cares and you matter in this world.
This was beautifully made. Although Janette has left and was suffering quite a bit, it’s safe to say we need more people with such grace in this world. This is why it seems unfair to those who loved her and didn’t want her to go. The world loses out on such an example of a woman- but then again, maybe her shared story via this film will be a positive influence in many more lives. It’s hard to say. Whew. This got me. My condolences to her family, friends and loved ones who knew her on deeper level. May you all be reunited once again in another place, catch up and share an embrace.
Thank you. What a privilege to witness such strength, kindness, compassion. My heart is both uplifted and sad, but so honoured to have witnessed her decision, her strength to have it carried out and the strength of her children to support, respect n honour her. Bless you so much, all of you. ❤️
This was a beautiful documentary, very calming and peaceful.......many options are given to the person before the end to change their mind, why let someone suffer needlessly, there is just no need for it.......i hope her son finds an answer to the mystery of this illness........thank you or being so gracious....................Donna Nancekivell
I wish I could do this, however, I had to promise my mother that she would never have to worry about me ending my life. She’s already suffered enough watching me go through this, so I couldn’t do that to her or my family. But, how I’ve wished for an end to my suffering. I was 5 when the true horror began - I am 36 now and my organs aren’t doing well, I can barely move, i feel like I’m suffocating all the time and in agony. To me, assisted death is the rational option, were it not for my family. Thank you so much for making this, it’s the best ive ever seen on the subject and greatly needed in the world.
How To Die in Oregon is also another lovely documentary. The woman in that one was also very incredible. I wish peace for you on whatever you decide. To know is to love and to love is to let go. ❤
@@TheRisskee Thank you so much for your words and empathy, you are such a kind soul. We need more people like you in this world! Praying for you and yours, and sending gentle hugs ❤️
This is a brilliant film. It's not preachy yet it illustrates its point quite well. I am wholly in favor of assisted dying. It should be legalized in every state of this country (USA). Every individual living with a non-curable illness and whom are suffering with the attendant physical and emotional pain, should be legally allowed to choose this option for themselves, provided they are in their right mind. Why should a person have to journey to Dignitas in Switzerland?; away from everything they're familiar with; home, family, friends. That is wrong and is morally unacceptable. The physician, Erika, has an amazing, enlightened attitude. She is literally an angel and may God continue to bless and keep her. I've followed her career for a while now, and this is the first time I've heard her talk about her emotional struggles with regard to euthanasia. I understand both sides of the argument but I can only pray that it will be legalized in the States very soon. Thank you for sharing this film with us.
This is so profound. When I worked for an elderly lady she tried to go home for an assisted death and was deemed too ill to fly. She decided to no longer treat her illness and after a full year of intense suffering she passed away. It was excruciating to be a part of such a horrific and prolonged death.
A 'good death' is a matter of great interest to the elderly, including myself. I hope that there will be a lot of discussion about the good death and that a legally acceptable system will be urgently prepared.
Fantastic documentary. I wonder if the strain in the relationship between Simon and his mother would have been resolved, could have helped prolong her life a little longer? I feel she had a lot of regrets in life. I hope Janette is finally at peace 🙏
Wow ! Thank you. I didn't realise that the film had been released to you tube ! Only just found it here today. Jan was quite a remarkable woman, highly intelligent, and highly self aware. Razor sharp all the way. The film didn't show it, but Jan had champagne for breakfast that day.....
@@simonconvey9645 I just wish the documentary would've answered a few questions the were left open & hanging imo. For instance, was that a nursing home her current husband was in & what was his diagnosis? Was that Jan's final visit w/him & did she say goodbye to him? Also, her son, was that a girlfriend, wife, or friend that he was talking to? I just think some of those things could've been covered so that way it didn't give the feeling for the first 45min of what exactly is going on & who was who. Also, who was the lady that she called over to tell her & those 2 girl's faces were blocked out? Just things left open & dangling & would've been nice to have them clarified. Other than that, I found the message & the story of this woman's struggle to have a peaceful death of her choosing very informative.
Those little girls blurred faces are my daughters and I was the one Jan called to come round. Jan was our neighbour and we adored her and Don. We did not want to be any part of the filming and had to fight to have our faces blurred and our voices distorted. Jan was an amazing lady but the emotional damage she has left my family in has been horrendous.
@@charlotte-qn8co but- your still HERE🥺… let her have her dignity now more than ever .. i mean this respectfully , but ..that is somewhat selfish of you considering her lifeline has ended .. her soul force is gone … let her be at peace once and for all yea ?
Great but sad documentary! I came across your channel today & so glad. I watch about 20 or more documentaries a wk.Definitely subscribing.Brilliant work
The scenes with her husband were heart breaking. Reminds me of my dad at the window of his locked ward, then his care home. Life feels so futile sometimes with only hopelessness at the end of it.
She perhaps underestimated the children, who are capable of processing more than we give them credit for. However, her exit, her choices. I wish this method of departure was available to more people.
Oh my God!!! What were the chances of this?! This is a documentary about a rare condition that just happens to run in my family!! It is sometimes referred to as "Limb-Girdle Muscular Dystrophy". My father had an older brother who died from it at the age 0f 74. My father died late last year from the very same condition at the exact same age. My uncle's daughters have opted not to have any biological children as have I. It is tragic, but also a minor comfort knowing there are some other people out there who know what it is to deal with this disease.
Thank you, Sandra, for choosing not to pass this dreaded disease onto the children you might have. I have done the same (I'm 67, so it's a decision made long ago), and have never understood why so many people go ahead and pass on hereditary diseases. I do understand wanting kids, but there are so many kids needing homes, why not adopt? Again, thank you and your cousins who have chosen not to.
So sorry to hear of your losses, & that this disease / condition affects your family members & yourself, I hope this documentary helped you. Godbless.x
So sorry to hear of your losses, & that this disease / condition affects your family members & yourself, I hope this documentary helped you. Godbless.x
I am 74, had a hip replacement and 2 knee replacements. I have lumbar spinal stenosis. I am in chronic pain. Now my husband is dying. I definitely believe in Death with Dignity but don’t have a terminal illness. So I can’t choose to die. So I just suffer and waste resources that could be spent on my granddaughters. Life is not fair!
"I am going to die at a time and in a way that I chose. It is not going to be horrendous, it is not going to be painful. It´s not going to be stressful. That is a good death."
Years ago, for those over 50, there was a man named Jack Kevorkian who assisted elderly people in choosing when to end their lives of suffering. Can't remember if he was tried and convicted, but I agree that when an individual has weighed all of their options and feel that death is practical, then they should make that personal choice themselves
Kevorkian is serving life sentence for murder. These people help others to leave an awful life peacefully behind them. Not just anyone would be accepted there.
I still feel guilty for having to put my pets down, one with cancer, and the other with kidney disease. I know they were suffering, but still it was such a difficult decision. She felt this was the right thing to do for herself. I cannot judge her. We watched our cousin for a year suffer from Lewy Body Dementia. It is a devastating disease. His wife had a very difficult time caring for him. He was only 67.
My grandmother was diagnosed with Lewy body dementia as well. Its a nasty thing and was so heartbreaking to watch her suffer with it. She passed in 2020. I'm so sorry your cousin had to suffer with it as well. ❤
The state of the family broke my heart. I found myself more worried that her friend and daughter would be pushed out of her beautiful home more so than how her children would be after her death. Great doc just sad on many different levels.
I agree. Her children's behavior was a little off-putting imo. Not typical to say the least. I wish some of her loving friends could have been there with her.
If u have your wits about u, and u r suffering, if u want an injection to go peacefully in,your sleep, u should be able to . When your quality of life is gone, y not?
This was done so beautifully 💜 I have to admit I went through a few emotions watching this. I felt Jan was a little selfish at first, not for her choice to end her life but just other aspects. I couldn't help but like her more as I went though. I think she was just misunderstood a little. My heart breaks for her and Simon. I hope she is resting now. 🕊️
Hi Sarah, I've only just noticed that the film is posted here ! So don't be sad for Bridget and me. I came around to Jan's wishes very quickly, Bridget much less so, but She did quickly realize that this was what she wanted. The fact is, we are sometimes powerless, and find it difficult to fight the inevitable. Whilst she was alive, Jan was a force of nature, and sometimes a political activist. This was her last provactive act against a system which tries to avoid and prolong death for the sake of avoiding hard choices.
@@simonconvey9645 Hi Simon, first of all I just wanted to thank your precious family for letting us in to your lives and helping to find a cure for this horrible disease. And I wanted to ask you, if you are still doing alright with what you are going through also. I'm really so hopeful for a breakthrough for this disease and I can only imagine how much this means to you. I know this is an older documentary but I'm hoping that you and your family are okay. I guess I also wonder how your mom's passing was with the end of life? Was it peaceful like she hoped and did it to you look like a good death that she so desperately wanted? I always wanted to know if it's as peaceful and painless like they say. Anyways I saw that you were replying to the comment section and I thought that was really neat. You are in my prayers and I'm sure you know we are all rooting for you. I'm just hoping you are doing okay ❤️
@@monicathomas3386 Her death was very peaceful, I wanted it included in the film, but the director wouldn't go it, too taboo. I'm fine, fine working and walking. There is a cure, in the lab, which works in mice and rhesus monkeys. The "cure" is easy and simple, delivering into a live human is the problem. There is only one to deliver the amount of viral DNA needed, and that's with modified viruses. Many other more common diseases which need the same type of delivery have tried this, with a little success, but tragically just recently, three babies just died because the of toxicity associated with the virial delivery. Think of a covid vaccine. Safe, exccpt could your liver survive a million fold dose. Maybe, maybe not. This disease is so rare that not drug company will work on it. Our knowledge of genetic engineering is far outpacing moore's law which dominated the growth in tech from the 1970's until now. So I'm hopeful......
I believe in this also when there is no hope of recovering on top of old age where you have no life whatsoever to die like she did was beautiful to watch. R.I.P Janette
I live everyday with a lot of pain. Between a back with so many issues they can't correct it. I've also got fybro. 3 years ago the government decided that people in incredible pain should not have access to any opioids for everyday use. Nucynta was like a miracle drug. It allowed me to enjoy life without the pain so bad I didn't want to move. There's been many times I've thought about this. I have grandchildren and don't want to do it for them. These people are not afraid of pain, most have been living with it awhile. It's a brave thing their doing.
Breathtaking in sublime simplicity. This is beyond brilliant and very brave with the Grace of God. The universe was showing off when this Family was made. Australia.
If a person is suffering from a disease that there is no cure for then it should be our right to die with dignity. Especially if you are a older person who has tried other ways to live in this world. I personally think it would be a great idea to have this option as a way out of this world.
How important is it to die as a human with dignity?????Its just not worth the pain or suffering for a person to go through such pain and families to witness. Compassion and understanding yes - But there is a threshold - Enough!!!We all end up in the same place and to watch a person suffer or animal is just cruel with modern science and the capabilities that aid people or animals suffering badly has No point
Not everyone can afford a ' good death ' thousands like my 31 yr old sister suffered in agony dying of breast cancer. This documentary is not just about the right to chose a painless death but also it's only available if a person can privately fund it. Sometimes phycological treatment can help , mental health is integral in this situation. I don't think this lady probably took the anti depressants.
It’s the persons choice, yet I have known so many terminally ill patients, that have lived their life out to the end and touched so many people before they passed naturally We never know what purpose someone has to carry on, it saddens me for the family left behind
I favor the right to die with dignity. I am a common man from India. My father passed away in an ICU on 27 Sept 2021. Before he lost his consciousness, he told me not to assist his with the ventilator. Five days before he left me, he told me to put some holy water of river Ganga. When doctors forced me to decide about the ventilator, I signed the consent of not to use ventilator. We kept praying our Gods for the whole day to take with ease. i and my cousin were chanting Gods names near his bed. In front of our eyes, he was gasp breathing. The heart beats, the number of breaths per minute and the blood pressure kept decreasing. Finally, he was taken, at 2:31 AM
Who are we as humankind to make such important decisions as to how much and how long a person should suffer physical pain. As long as the person has the mental capacity and fully understands, why should they not be in control of their dying as in life they chose their way. This lady was admirable but I'm afraid I don't fully agree with her. I think it took much courage to say her goodbyes to all who mattered to her before making that final move on this earth. People should not have to go to another country for this to happen. Not all could afford to do it which is also not fair. I for one would want the freedom of choice as to when and how I die instead of some of the slow miserable painful end of lives I have witnessed in my 30+ years of palliative and other care. God willing this will come to be one day soon. This documentary was very well presented and I thank all involved.
I completely support the choice to die with dignity. However, I hope cases like hers don’t cause people to think that disabled lives aren’t worth living. But certainly when there’s not much time left or too much pain, the choice is completely valid.
But it wasn’t as if she was at deaths door! She still had more time to spend with her children, she was mentally coherent, it especially hurt her daughter, very sad
I don't mean this in a nasty way, but couldn't God just not make us suffer if God didn't want us to suffer? Kind of what I would do if I was all powerful
@@kathyh4804 If she was at death's door she wouldn't be classed as legally able to make that decision, or to travel to the place where euthanasia is legal. This is the cruel part about physician assisted death - in a world which accepted that someone knows their own limits, we would allow the decision to be made on what stage becomes the point when one can go no further.
MS is such a cruel disease. If my husband would of had something that was painful & impossible to deal with I would of done ANYTHING to help ease his pain . Life is so cruel sometimes. Who are we to say no u can’t terminate your life? To truly love someone completely is to give them their wish at the end of a terminal disease.
Omg this is crazy. I just happened to choose this video because it was recommended to me in my feed. I am LITERALLY GOING TO THE HOSPITAL ON FRIDAY TO GET GENETIC TESTING DONE FOR MUSCULAR DYSTROPHY… MORE SPECIFICALLY LIMB GIRDLE MUSCULAR DYSTROPHY. I AM 39 and have developed progressive weakness with no known origin. I truly feel for anyone that has this. Not having the strength to move and speak with ease is incredibly difficult and upsetting.
Hi Jessica, It's Simon. I believe that Emory university has a test, or maybe now it's available as as standard test. I had to figure it out for myself with a genome sequence and google. Good luck. Your are looking for a mutated Myotilin gene. If you do have it, could we share notes regarding our ancestry ?
@@simonconvey9645 Hi Simon, sorry I’m getting back to you 2 weeks later but thank you for the info. I will look into this and I will gladly share any info that may be useful to others.
As someone who has lost both parents to horrible diseases, one without any help at all in her dying at a nursing home at the young age of only 62 , after a lifetime full blown severe alcohol addiction which in the end severely damaged her brain, one with lung cancer dying in hospice after a morphine overdose I was twice asked whether I wanted the nurse to administer, I still have questions when it comes to assisted suicide. My mother had a horrid death, almost a year of suffering in and out of ICU because she had not prepared anything legally binding the treating doctors to not do cpr etc over and over again despite her life being nothing but agony. My Dad had his wishes put in writing as soon as he was told his terminal cancer diagnosis. I held my fathers hand when he took his last breath and he died peacefully. He was given an overdose that stopped his heart. Which I guess was a legal way of assisted suicide and may have shortened his life by a few days but also kept him from choking to death. I think that medicine has come a very long way and palliative care is a great tool in managing ones illness. But not all illness can be managed by it and aside from pain and trouble breathing there’s so many other things that mean suffering. I for my part am a very active person and I would most definitely ask for help to die if God forbid I was ever paralyzed from the neck down. For me that would mean hell on earth . In the end it should be up to the patient as long as it is the patients will they should be allowed to end their suffering. As far as this documentary goes , I admire Jan but her children’s reaction and the persistence with which they tried to change her mind instead of accepting her wish was awful. They have lost the chance to talk about much more important issues while arguing why she should not die. Accepting my Dad’s wishes was extremely hard but I loved him enough to not burden him with MY grief and my sorrow over his illness and dying.
The thing I wonder about is what Jan was actually going through right at the very end. We say it's peaceful bc it looks like it to us, on the outside. I'd like to believe it is but there's just no way to know. I suppose if I was that ill that sort of thing wouldn't bother me...I'd take a few moments of possible fear over living in misery.
You are beautiful inside and out, I can only imagine what your life has been like however your beautiful home and gardens give away your extraordinary life.
Very well thought out assisted suicide. Thank you for sharing this to the end, I believe this is so important to help take away the fear of death and dying how we choose when terminal. Her children look so much alike and like their mum.
This film was very sensitively done although I didn't know if I could watch it to the end, but then I did... alone and heartfully attentive. It brought back memories of my needing to make the decision of removing life support from my husband at the end. My belief is that he died long before he was pronounced dead and that I did as he would have wanted me to do, but it was a horrific decision to be sure. And for myself? I really don't know. I read many of the comments below, and I'm noticing that it's primarily women who have responded here. That's suprising to me and I wonder why it is so. Would anyone want to comment on why they think few men have responded? And perhaps few men watched as well? Interesting.
How awful that our government forces people to travel or commit suicide at home no doubt in an awful way. I am Catholic do the notion of suicide bothers me but I have a terminal illness & I have watched people die of cancer, eaten away in pain … my grandad died of MND & suffocated after being slowly paralysed & my other grandad diffracted from lung cancer & his death haunts me now it was harrowing . So as long as the checks & balances are in place & the person is of sound mind when making a living declaration & able to take the pills or drink or turn on the iV then people should be allowed DIGNITY in death & all these people saying palliative care is great in the U.K. & there’s no need to be in pain - that’s absolute BS. Let’s hope you don’t have to watch someone or you yourself die in pain crying out for help ! RIP you brave lady 🖤 x
I have many painfully bad illnesses, she has 1, I have been bed bound,In a wheelchair and the pain is so bad. Yes I am tired,Tired of the pain. But I have kid's and grandkids. I am going to stay right here. I think she could have waited a bit longer. She walked, did a few things. I cant do all she was doing. Idk I feel for her kids and grandkids.
@@pam164 If you remember when the kids where talking to her they said we will get you here, sign stuff now and let us take you home for 6 months. They were willing to drive her to go. They wanted 6 more months with her. And thank you. I dont think i could do. Especially if my kids asked me not to. I know many with it. Some cant walk at all. Need 24/7 care ,in pain,she was walking with help and driving, so for me I felt like she could have given the kids more time. Her son is working on finding a cure as well . That I thought was cool. Never know he just may find one.
@@ghents565 Yes but she was talking funny maybe she knew it was affecting her breathing and swallowing? That to me would terrify me! If it was just her walking then i think she could of maybe coped. My mother died at 46 and my dad 52 within year of each other i was 18 with no parents, her children were a good age so they will cope even though its sad. I hope her son finds a cure. You take care of yourself and hope you have many years of enjoying your family.
My mother died when I was a lot younger and if she had taken the choice to bow out before she suffered the way she did then that would be something I would have to accept. I'm now in a position where my sons know that if I get worse and want to end it then they have to understand that I could no longer carry on in pain. They accept that too. Of course they don't love the idea but they don't want to see me suffer worse than I already do. You can't live your life for other people , you're going to leave them anyway. If you truly love someone then why would you want then to continue suffering.
@Susan Ghent Do you realize she was absolutely TERRIFIED of being Institutionalized?! And also she has to Physically Be able to push the drip? She has to be well enough to Travel..on HER OWN resources… its not just a quick drive up the road… she had to Travel to ANOTHER County to STOP her own suffering! Oh…ps… its not YOUR Business how or when a person with a Terminal Illness or Debilitating Disease decides to End their OWN Living Hell!!
@@anitakinnear6735 All the money goes ( quite rightly ) to Duchenne Muscular dystrophy research, this is much more common, and affects children from birth. Life expectancy is late teens....
Everybody was, but Simon was a particularly remarkable man. I completely agree with his closing statement. I dont know if Im going to get through this process someday, but I'd like the option to be available in my country, the Philippines.
This room at 35.00 .. The screen of galaxy and swirling atmospheres .... Absolutely stunning.. ..I wonder what room this is .... Is it a cinema room hes mornin his own house ? It's a great place to meditate 💚💚💚
It was shot at the NASA goddard space center in Maryland. They have a huge projecting wall. I was sitting down because I can't stand up in dark rooms with nothing to hold on to.
I work in Hospice. I work with amazing professionals who work themselves to the bone to help monitor and treat symptoms, respect wishes, support families, and make the process as smooth as possible. And let me tell you, most of us wish our patients had this option. If you are terminal, ready to go, and not having a quality of life, you should have the choice.
Hospice failed to treat my father's pain and only gave him very low dose morphine that did nothing. Be a vocal advocate and make sure your nurse is competent!!
Having just watched my husband who had dementia die inhumanely in palliative care suffering slowly in tremendous pain at times for over a week -- Everyone should have the choice to die and relatives should be able to make that decision for their loved ones who cannot make the decsion themselves . I knew my husbands wishes and yet I could help my dog more at the end of his life than I could my husband of 30 years. Thank you to the family and filmmakers.
I’m deeply sorry that not only have you lost your soulmate of thirty years, but that his death was needlessly painful and filled with suffering.
I know you might feel responsible for your husbands suffering but it is a sin that neither of you need atone for. The last thing that your beloved husband would want would be for you to end his life and spend the remainder of yours in prison, maligned by the justice system.
If it’s something that you want, and have the healing in your heart to be able to pursue, you could look at getting involved with your national dying with dignity organisations and doing what you can to have the laws changed so that there may be options for others of voluntary assisted death in the future.
May your husbands memory hold you tightly in the cold winds of grief.
Dementia
My sincerest condolences.
All my love to you, Mrs. Sanders! Thank you for sharing. Its stories like yours that mean so much to this movement. I hope you are doing ok and have love surrounding you. Hugs!❤😊
@@ScoobyDoozy Thank you for your condolences and suggesting to seek others advocating for change. I will
If we leave a animal to suffer we would be charged with cruelty. Yet we allow people to suffer and be treated with out dignity. We need to sort this out asap.
We been saying it for years.
I’m very passionate about this very subject and just said this very thing to someone last week! I don’t understand! If it’s not for you then don’t do it but most of us want to DECIDE for ourselves I think.
Dee. I agree with you and the other comment. Peace
Dee, amen to that! So very true.
my 8 years old granddaughter has a life span of 10 been living with pain since she was 3 weeks old because of meningitis, she had 2 hip replacement surgeries by the time she was 4, she cannot walk or talk or see she suffers but lots of times she shows joy too, I also live every waking moment in pain due to nerve damages more than once a day the pain if I move the wrong way is unbearable to the point it cuts off my oxygen still I fight to see one more tomorrow to enjoy so much that life has to give
From someone young who lives with chronic pain and still living life every day, respect people’s choice to pass, pain free and with dignity. No one else should judge what goes into those choices.
YES. I am feeling infuriated at the condescension of one male person who has a sense of his fatal future & then the guilt trips he (& whomever that blonde lady is) lays on someone who knows what she needs & wants & then he claims to (fake) know what she is feeling because he 'knows' what his destiny is & he's been oh so philosophically grounded. How dare you! NO buddy. You have an APPROXIMATION, at best, of what she is feeling & experiencing! As far as I'm concerned, she is far to empathetic with all of these others who are guilting her to live. NOT COOL. Not acceptable!
I live with chronic pain 2 & I absolutely agree with u
@@helenlogan6481 I am very sorry to hear that. I understand, but only from my particular perspective & experience. Emotional pain is not that different perhaps. Best wished to you & yours.
@@LibsRockU emotional pain is just as bad. Thank u 4 ur comment
Thank you to Jan and her family for allowing us to witness her last moments. What is shameful is the fact that she had to travel to another country to end her suffering. I too hope that when my time is near that I have the choice to die with dignity in the country of my choosing.
Thank you once again for this amazing documentary.
I was my mother’s caregiver when she died from cancer earlier this year. It was a horrible, painful, and scary death for her. She didn’t deserve that kind of death after all the pain she had already struggled through. I wouldn’t wish that way of dying on anyone.
When I was 29 I lost my mom aged 58, she was suffocating and in so much pain. I believe she should have had a choice , although I know for a fact she would have wanted it to go the same way and fought until the very end... my stepbrother also passed away of cancer at the age of 35 very quickly he was wasting away .. I wish my family would have had that choice..
Sorry about the loss of your mom, those are always the hardest 😢
I'm so sorry to hear about your mother's death. Blessings to you.💕
If I had a terminal disease, I would do the same thing. Thank you for sharing. This documentary was one of the best documentaries I have seen. She went peacefully. I mentioned to my daughter that I would like to die like this if I had to suffer in my old age of a debilitating disease. She was absolutely against it. I have a degenerative bone disease and have had multiple joint replacements that allowed me to be able to take care of myself. If I had to live in the pain that I had without the joint replacements, I would rather have died. Eventually you cannot move your arms, legs etc due to excruciating pain as it degenerates. I wouldn't wish that on my worst enemy. I worked in nursing homes and I vowed that I would not ever be place into one.
Death is Drastically Under Rated for those who suffer from Major Depressive Disorder. Nobody should have to experience a lifetime of relentless suffering.
Amen.
Nothing sacrilegious or joking in my comment.
@@louisasmith9388 yes we should take it from two lunatics. If you are depressed it's very likely curing you would be trivial.
There is a movie about a woman who was approved for VAD for lifelong depression. When she was finally approved, the knowledge that she could then do it at any time helped her continue for longer than she expected. Just knowing that it is not endless and you can stop anytime you want is invaluable.
@@debbibowen And what good is continuing on do if you have ZERO QUALITY of life?
@@debbibowen that can be done by thirst as well not just hunger by mere directive. The problem is when thirst kills WITHOUT informed OR ANY sometimes consent.
I am a firm believer of death with dignity. I have intractable pain and hope some day that I can do the same as her. We all know how much suffering we can take. Although I am 55 years old, if I could choose this today.....I would. We all deserve to have this choice.....not to suffer. God bless you in your journey! Rip
It's the first thing I'd discuss if I was given a terminal diagnosis.
@@loopylou6841 Same here
Hi Lisa, you’re not alone. I’m 58 yo. with chronic pain for 25 years. I’m relieved to know that, as societies progress, more and more countries are legalising Euthanasia and Assisted Suicide. Unbearable chronic physical pain, with time, becomes unbearable emotional pain. Best wishes to you.
I cared for my mum for 12 years through her dementia journey .She accepted her diagnosis and slipped slowly into another form of reality .She enjoyed her picture books ,her relaxing music and stroking her numerous Teddy bears .Although each year meant less mobility and cognition she was never frightened or angry just drifted further into her own world.In the last 6 years I supported her f/t with all her care needs .It was a journey which in a strange way made our relationship closer .It made me realise the true value of love and friendship..She passed,away peacefully in her own bed at home .Everyones experience is different but I just wanted to put out there our experience .Total respect to those who go on different paths
My view on this topic is that we are able to make the choice of death by agreeing to take someone off of life support, and even our pets because they are unable to speak for themselves…..so why do they ignore the direct words and wishes of those who are suffering and in pain. Allow someone to take control of their disease and make the final decision of THEIR life.
I don't çare
This should be available to everyone! If I needed this right now an exit bag would be my only option 😔
Fantastic documentary, I too wouldn't want to suffer and the strength it must have taken for her to plan this herself is amazing, she can rest in peace now and hopefully her son can help make a difference in fighting this horrible decease .thanks for sharing. Hopefully all countries will offer assisted dying soon. From Melbourne Australia 🇦🇺
Disease
So sorry she has left for the next world ..
..hut I'm happy for her.
I absolutely adore her garden of EDEN ..
..its stunning ..
theres nothing more adorable and enriched than an over grown..
..old fashioned , established garden like hers ..
I would die happy in a garden like this.
Looks so peaceful and overwhelmed by wildlife, trees, bushes, shrubs , ivy......
I hope the people who take over Jan's house , love the garden as it is.
I'm about to house hunt in the countryside ...
..and this is exactly what I would seek.
Rest in peace Jan . 💚💚💚💚💚💚
There’s something so very peaceful about a beautiful garden
@@JulieR73
Absolutely...
...its almost one of the best things in life that you could have .
💚💚💚💚💚
I Feel so acutely for the Daughter. I see a strong warrior. If you read this, please know that so many of us really see you.
I thought at the end how sad it is that she had to travel so far to be able to do what she wanted and couldn't have passed away in the comfort and familiarity of the house and surroundings that she loved.
The man sounds healthier than I do and here I am barely making it through the day maybe I don't get it
Yes, this should be available everywhere. People should have this choice.
@@tinacatharinaeden2711 ....In actuality it is....just buy dope from the streets and then, you can OD like the rest of them!
@@angelfirelite What are you talking about, fool?! People are discussing an important issue here and you go saying coping dime bags and OD like the rest of the dope-feins. Don't be either a fool or a jerk here!
@@angelfirelite I have always thought this myself if I would get cancer or something. No shame in it I dont think!
It really is unbelievable how selfish and narcissistic some people are. It’s Your life, it’s your choice period. You don’t need to explain or justify anything to anybody. What right does any individual or gov’t have to tell you what you can and can’t do with your body. Wether it’s assisted suicide or what you want to eat or drink for dinner or what substances you decide to ingest, all your decision. It’s amazing to me that some adults feel they have the right & moral high ground to tell you what you can & can’t do. Clean your own house before you start picking mine apart
Beautiful. Thank you for allowing us to go with you all on your journey. I wish you peace and hope.
No one has the right to say how someone else dies. But to live with pain , and knowing it will get worse to the point of nothing more than torture, everyone should have a choice. Their bodies their right. And death is not the end, it’s part of an another journey we all must take. RIP in the garden of the universe 💫💕
Oh my goodness! This was heart-wrenching to watch - especially the end. I have looked at the possibility of this end, for myself; as a Stage IV Cancer patient. After watching this, I honestly do not think I could do it. I don't think I could do it if my children were not 100% behind me, at least. I respect Janette's decision. Bless her heart! Bless her children! This was an eye-opener for me. I thank her children for allowing their mother's passing days and moments and the decisions, to be shared with those who watched.
This is not an option. There are.too many people that fight to live. You should live on for those that can't
@@flowinfield8556 So she should suffer for others??
@@flowinfield8556 it is horrific that you would expect a fellow human to choose intense suffering at the end of her life for such idiotic idealism. Do it yourself. Have several seats, ma’am.
@@Mirmir.0 I may have to. I am a.cancer survivor. And by the way I did suffer
@@flowinfield8556 the fact that you have survived cancer and suffered further validates my point. That said, I will not gloss over your survival of cancer. And to that, I say congratulations. I am happy you beat it! I truly pray you never relapse.
I know that the film is obviously based on the emotional story of Janette, but that Swiss doctor does raise some really interesting points - this is really just such a brilliant documentary.
Bless her heart..
It is her right to end her
pain that will only get worse and there is no cure..she is a very brave soul...
My personal feeling on this matter of choosing one's death should be allowed if the person has a horrible disease or their bodies are no longer functioning in a productive manner. There should be a program in place to help these people to die with dignity on their own accord. Also, it should be pain-free if possible. Presently, I'm 60 years old and death could come at any moment at this age. I don't have any major illnesses or diseases but, if I were to get a life-ending condition, I would want a choice. To me, it is the compassionate thing to do. Never judge anyone, because you may be the next person to need this. Bless all these people.
I turned 66 yesterday & never thought about getting to that age, to the age that death could creep up on me. Maybe in 10 years but not yet, not now. My 2 best friends & my dog died in the past year & now I have no one to go & do with. I still want to go kayaking & camping, but cant find others to share the experience with. Oh well, just going to go alone.
You don't understand, the process of dying in the United States is BIG money. Hospitals and Hospice are all CORPORATIONS now, so they need you alive to die so they can extract as much money as possible to their shareholders and board members happy.
I'm 73 and I know this, there are ways if you really want/need to die!
@@nunya2954 So sad and pitiful, but so true.
I’ve never understood this way of dying. We all have a date to leave this earth and be with our Heavenly Father. But even severe depression can make you feel this way…….
People don't understand how difficult it is to be stuck in a broken body. To watch life pass you by day after day. This November will be 30 yrs of suffering. 30 yrs of existing but not living. I can no longer drive, cook, clean and shop. Showering in extremely difficult. I average 2 showers a month. I made a promise to myself that when I became a burden I would end my life. I'm well beyond being a burden but I'm to much of a coward to stick to my promise.
@Allie G
I just wanted to say hello, just wanted to reach out to you. I hope you're comfortable and warm. I hope you have company, somebody to hear you. Sending my love 💓
I'm hanging tonight, good bye world, sick as well
@@annetnabuyondo7607 I know that you will probably never see this but I hope that you're ok and you didn't harm yourself. Just know one person cares and you matter in this world.
This was beautifully made. Although Janette has left and was suffering quite a bit, it’s safe to say we need more people with such grace in this world. This is why it seems unfair to those who loved her and didn’t want her to go. The world loses out on such an example of a woman- but then again, maybe her shared story via this film will be a positive influence in many more lives. It’s hard to say. Whew. This got me. My condolences to her family, friends and loved ones who knew her on deeper level. May you all be reunited once again in another place, catch up and share an embrace.
Thank you. What a privilege to witness such strength, kindness, compassion. My heart is both uplifted and sad, but so honoured to have witnessed her decision, her strength to have it carried out and the strength of her children to support, respect n honour her. Bless you so much, all of you. ❤️
This was a beautiful documentary, very calming and peaceful.......many options are given to the person before the end to change their mind, why let someone suffer needlessly, there is just no need for it.......i hope her son finds an answer to the mystery of this illness........thank you or being so gracious....................Donna Nancekivell
I wish I could do this, however, I had to promise my mother that she would never have to worry about me ending my life. She’s already suffered enough watching me go through this, so I couldn’t do that to her or my family. But, how I’ve wished for an end to my suffering. I was 5 when the true horror began - I am 36 now and my organs aren’t doing well, I can barely move, i feel like I’m suffocating all the time and in agony. To me, assisted death is the rational option, were it not for my family. Thank you so much for making this, it’s the best ive ever seen on the subject and greatly needed in the world.
How To Die in Oregon is also another lovely documentary. The woman in that one was also very incredible. I wish peace for you on whatever you decide. To know is to love and to love is to let go. ❤
⚘
@@TheRisskee Thank you so much for your words and empathy, you are such a kind soul. We need more people like you in this world! Praying for you and yours, and sending gentle hugs ❤️
It's you.in pain and misery .They should be helping u see your way out .
This is a really dopey vid .
Clumsy, boring and irritating .
She was in such pain and to sit and wait to die bad enough but to suffer like tht takes some guts to plan the day u die brave lady
This is a brilliant film. It's not preachy yet it illustrates its point quite well. I am wholly in favor of assisted dying. It should be legalized in every state of this country (USA). Every individual living with a non-curable illness and whom are suffering with the attendant physical and emotional pain, should be legally allowed to choose this option for themselves, provided they are in their right mind. Why should a person have to journey to Dignitas in Switzerland?; away from everything they're familiar with; home, family, friends. That is wrong and is morally unacceptable. The physician, Erika, has an amazing, enlightened attitude. She is literally an angel and may God continue to bless and keep her. I've followed her career for a while now, and this is the first time I've heard her talk about her emotional struggles with regard to euthanasia. I understand both sides of the argument but I can only pray that it will be legalized in the States very soon. Thank you for sharing this film with us.
This is so profound. When I worked for an elderly lady she tried to go home for an assisted death and was deemed too ill to fly. She decided to no longer treat her illness and after a full year of intense suffering she passed away. It was excruciating to be a part of such a horrific and prolonged death.
A 'good death' is a matter of great interest to the elderly, including myself. I hope that there will be a lot of discussion about the good death and that a legally acceptable system will be urgently prepared.
Sweet and beautiful Lady
May she Rest In Peace
Fantastic documentary. I wonder if the strain in the relationship between Simon and his mother would have been resolved, could have helped prolong her life a little longer? I feel she had a lot of regrets in life. I hope Janette is finally at peace 🙏
Very well done documentary. Peace to all of us. May Janet now rest in Peace. ⚘
Simon is amazing, they all were special people but Simon, I just wanted to hold him. He’s working so hard not for himself but for others.
Wow ! Thank you. I didn't realise that the film had been released to you tube ! Only just found it here today. Jan was quite a remarkable woman, highly intelligent, and highly self aware. Razor sharp all the way. The film didn't show it, but Jan had champagne for breakfast that day.....
@@simonconvey9645 I just wish the documentary would've answered a few questions the were left open & hanging imo. For instance, was that a nursing home her current husband was in & what was his diagnosis? Was that Jan's final visit w/him & did she say goodbye to him? Also, her son, was that a girlfriend, wife, or friend that he was talking to? I just think some of those things could've been covered so that way it didn't give the feeling for the first 45min of what exactly is going on & who was who. Also, who was the lady that she called over to tell her & those 2 girl's faces were blocked out? Just things left open & dangling & would've been nice to have them clarified. Other than that, I found the message & the story of this woman's struggle to have a peaceful death of her choosing very informative.
Those little girls blurred faces are my daughters and I was the one Jan called to come round. Jan was our neighbour and we adored her and Don. We did not want to be any part of the filming and had to fight to have our faces blurred and our voices distorted. Jan was an amazing lady but the emotional damage she has left my family in has been horrendous.
@@charlotte-qn8co I'm so sorry Charlotte. Praying for healing 🙏❤️
@@charlotte-qn8co but- your still HERE🥺… let her have her dignity now more than ever .. i mean this respectfully , but ..that is somewhat selfish of you considering her lifeline has ended .. her soul force is gone … let her be at peace once and for all yea ?
What a touching film. Janette was so courageous and she did it her way and in her own time. I so respect her. Blessed Peace dear lady.🌹
Great but sad documentary! I came across your channel today & so glad. I watch about 20 or more documentaries a wk.Definitely subscribing.Brilliant work
The scenes with her husband were heart breaking. Reminds me of my dad at the window of his locked ward, then his care home. Life feels so futile sometimes with only hopelessness at the end of it.
She perhaps underestimated the children, who are capable of processing more than we give them credit for. However, her exit, her choices. I wish this method of departure was available to more people.
Beautiful documentary with great dignity from Janette and her family. There for the grace of God go I.
Great doco. I enjoyed the filming technique. The shots around Janettes home and overgrown garden created a very peaceful and serene feel.
The true definition of grace.♥️
Beautiful documentary. Thank you.
This doctor is an awesome lady. She understands.
Oh my God!!! What were the chances of this?! This is a documentary about a rare condition that just happens to run in my family!! It is sometimes referred to as "Limb-Girdle Muscular Dystrophy". My father had an older brother who died from it at the age 0f 74. My father died late last year from the very same condition at the exact same age. My uncle's daughters have opted not to have any biological children as have I. It is tragic, but also a minor comfort knowing there are some other people out there who know what it is to deal with this disease.
What a horrifying disease. My heart goes out to you and your family.
Thank you, Sandra, for choosing not to pass this dreaded disease onto the children you might have. I have done the same (I'm 67, so it's a decision made long ago), and have never understood why so many people go ahead and pass on hereditary diseases. I do understand wanting kids, but there are so many kids needing homes, why not adopt? Again, thank you and your cousins who have chosen not to.
Greydoe, because people are selfish that’s why.
So sorry to hear of your losses, & that this disease / condition affects your family members & yourself, I hope this documentary helped you. Godbless.x
So sorry to hear of your losses, & that this disease / condition affects your family members & yourself, I hope this documentary helped you. Godbless.x
I am 74, had a hip replacement and 2 knee replacements. I have lumbar spinal stenosis. I am in chronic pain. Now my husband is dying. I definitely believe in Death with Dignity but don’t have a terminal illness. So I can’t choose to die. So I just suffer and waste resources that could be spent on my granddaughters. Life is not fair!
I’m so very sorry🙏🏽❤️🙏🏽 I was a Hospice nurse for over 10 years! I understand your pain. May God bless you!
"I am going to die at a time and in a way that I chose. It is not going to be horrendous, it is not going to be painful. It´s not going to be stressful. That is a good death."
Years ago, for those over 50, there was a man named Jack Kevorkian who assisted elderly people in choosing when to end their lives of suffering. Can't remember if he was tried and convicted, but I agree that when an individual has weighed all of their options and feel that death is practical, then they should make that personal choice themselves
Kevorkian is serving life sentence for murder. These people help others to leave an awful life peacefully behind them. Not just anyone would be accepted there.
58 here and yes he was tried convicted but I'm not sure how long he got
@@junelynn63 He was sentenced to 25 years but only served 8 years because of health issues, he died in June of 2011.
Yes he WAS tried and convicted and served prison time. Not sure if he's still in jail or if he's even alive now.
@@lindajackson2382 he died in 2011
I loved all the nature and the birds and how brave this woman is, how lovely her home and garden was is fantastic x shame about Tony xxx
I still feel guilty for having to put my pets down, one with cancer, and the other with kidney disease. I know they were suffering, but still it was such a difficult decision. She felt this was the right thing to do for herself. I cannot judge her. We watched our cousin for a year suffer from Lewy Body Dementia. It is a devastating disease. His wife had a very difficult time caring for him. He was only 67.
My grandmother was diagnosed with Lewy body dementia as well. Its a nasty thing and was so heartbreaking to watch her suffer with it. She passed in 2020. I'm so sorry your cousin had to suffer with it as well. ❤
The state of the family broke my heart. I found myself more worried that her friend and daughter would be pushed out of her beautiful home more so than how her children would be after her death. Great doc just sad on many different levels.
I agree. Her children's behavior was a little off-putting imo. Not typical to say the least. I wish some of her loving friends could have been there with her.
If u have your wits about u, and u r suffering, if u want an injection to go peacefully in,your sleep,
u should be able to . When your quality of life is gone, y not?
This was done so beautifully 💜 I have to admit I went through a few emotions watching this. I felt Jan was a little selfish at first, not for her choice to end her life but just other aspects. I couldn't help but like her more as I went though. I think she was just misunderstood a little. My heart breaks for her and Simon. I hope she is resting now. 🕊️
Hi Sarah, I've only just noticed that the film is posted here ! So don't be sad for Bridget and me. I came around to Jan's wishes very quickly, Bridget much less so, but She did quickly realize that this was what she wanted. The fact is, we are sometimes powerless, and find it difficult to fight the inevitable. Whilst she was alive, Jan was a force of nature, and sometimes a political activist. This was her last provactive act against a system which tries to avoid and prolong death for the sake of avoiding hard choices.
@@simonconvey9645 Hi Simon,
first of all I just wanted to thank your precious family for letting us in to your lives and helping to find a cure for this horrible disease. And I wanted to ask you, if you are still doing alright with what you are going through also. I'm really so hopeful for a breakthrough for this disease and I can only imagine how much this means to you. I know this is an older documentary but I'm hoping that you and your family are okay. I guess I also wonder how your mom's passing was with the end of life? Was it peaceful like she hoped and did it to you look like a good death that she so desperately wanted? I always wanted to know if it's as peaceful and painless like they say. Anyways I saw that you were replying to the comment section and I thought that was really neat. You are in my prayers and I'm sure you know we are all rooting for you. I'm just hoping you are doing okay ❤️
@@monicathomas3386 Her death was very peaceful, I wanted it included in the film, but the director wouldn't go it, too taboo. I'm fine, fine working and walking. There is a cure, in the lab, which works in mice and rhesus monkeys. The "cure" is easy and simple, delivering into a live human is the problem. There is only one to deliver the amount of viral DNA needed, and that's with modified viruses. Many other more common diseases which need the same type of delivery have tried this, with a little success, but tragically just recently, three babies just died because the of toxicity associated with the virial delivery. Think of a covid vaccine. Safe, exccpt could your liver survive a million fold dose. Maybe, maybe not. This disease is so rare that not drug company will work on it. Our knowledge of genetic engineering is far outpacing moore's law which dominated the growth in tech from the 1970's until now. So I'm hopeful......
I believe in this also when there is no hope of recovering on top of old age where you have no life whatsoever to die like she did was beautiful to watch. R.I.P Janette
I live everyday with a lot of pain. Between a back with so many issues they can't correct it. I've also got fybro. 3 years ago the government decided that people in incredible pain should not have access to any opioids for everyday use. Nucynta was like a miracle drug. It allowed me to enjoy life without the pain so bad I didn't want to move. There's been many times I've thought about this. I have grandchildren and don't want to do it for them. These people are not afraid of pain, most have been living with it awhile. It's a brave thing their doing.
Janet I hope you are somewhere truly beautiful, rest peacefully….
I love how the doctor spoke about her belief in God. I don’t believe there are too many out there who believe in Jesus but rely on science .
It's very sad,.& Simon is extraordinary, I really hope & pray they find a cure, it appears that no one else is looking for one.
Thank you Sharon !
I pray she has peace now and I just hope she made provisions for her beloved pets.
I am watching this at 2:32 am and cannot sleep thinking of my police officer husband I lost and this certainly cheered me up.
sorry for your loss.
you are very brave.
I believe in euthanasia.
if you are suffering.
it should be allowed.
Oh hon, I’m so sorry for your loss. I will keep you in my prayers.
So sorry for the loss of your husband xxxxx
I’m sorry for your loss…
I only don’t understand why that this cheered you up?
Bless you Jan and fam thankyou for sharing your journey!
Breathtaking in sublime simplicity.
This is beyond brilliant and very brave with the Grace of God.
The universe was showing off when this Family was made.
Australia.
I believe without question that we should be allowed to decide when we want die and how.
What a brave Lady, God bless her 💕
brave ,but GOD does not bless those who take thier own lives its written.!
If a person is suffering from a disease that there is no cure for then it should be our right to die with dignity. Especially if you are a older person who has tried other ways to live in this world. I personally think it would be a great idea to have this option as a way out of this world.
Rest in peace dear lady.
I totally understand…
I just feel saddened because of her beauty of self, home & life.
All an echo upon the wind…. Gone
How important is it to die as a human with dignity?????Its just not worth the pain or suffering for a person to go through such pain and families to witness. Compassion and understanding yes - But there is a threshold - Enough!!!We all end up in the same place and to watch a person suffer or animal is just cruel with modern science and the capabilities that aid people or animals suffering badly has No point
Not everyone can afford a ' good death ' thousands like my 31 yr old sister suffered in agony dying of breast cancer.
This documentary is not just about the right to chose a painless death but also it's only available if a person can privately fund it.
Sometimes phycological treatment can help , mental health is integral in this situation. I don't think this lady probably took the anti depressants.
Antu depression tablets side effect is to make you suicide
This is clearly about her ill health.
What a beautiful story. RIP Janette
It’s the persons choice, yet I have known so many terminally ill patients, that have lived their life out to the end and touched so many people before they passed naturally
We never know what purpose someone has to carry on, it saddens me for the family left behind
She was beautiful...RIP
I thought so too, and her daughter is
I favor the right to die with dignity. I am a common man from India. My father passed away in an ICU on 27 Sept 2021. Before he lost his consciousness, he told me not to assist his with the ventilator. Five days before he left me, he told me to put some holy water of river Ganga. When doctors forced me to decide about the ventilator, I signed the consent of not to use ventilator. We kept praying our Gods for the whole day to take with ease. i and my cousin were chanting Gods names near his bed. In front of our eyes, he was gasp breathing. The heart beats, the number of breaths per minute and the blood pressure kept decreasing. Finally, he was taken, at 2:31 AM
Bless you and your dear father.
I love these dignity with dying documentaries. Every country should give its citizens the right to die like that lovely lady.
Who are we as humankind to make such important decisions as to how much and how long a person should suffer physical pain. As long as the person has the mental capacity and fully understands, why should they not be in control of their dying as in life they chose their way. This lady was admirable but I'm afraid I don't fully agree with her. I think it took much courage to say her goodbyes to all who mattered to her before making that final move on this earth.
People should not have to go to another country for this to happen. Not all could afford to do it which is also not fair. I for one would want the freedom of choice as to when and how I die instead of some of the slow miserable painful end of lives I have witnessed in my 30+ years of palliative and other care.
God willing this will come to be one day soon.
This documentary was very well presented and I thank all involved.
I completely support the choice to die with dignity. However, I hope cases like hers don’t cause people to think that disabled lives aren’t worth living. But certainly when there’s not much time left or too much pain, the choice is completely valid.
She has the right, I don't believe God wants us to suffer.
But it wasn’t as if she was at deaths door! She still had more time to spend with her children, she was mentally coherent, it especially hurt her daughter, very sad
I don't mean this in a nasty way, but couldn't God just not make us suffer if God didn't want us to suffer? Kind of what I would do if I was all powerful
@@kathyh4804 If she was at death's door she wouldn't be classed as legally able to make that decision, or to travel to the place where euthanasia is legal. This is the cruel part about physician assisted death - in a world which accepted that someone knows their own limits, we would allow the decision to be made on what stage becomes the point when one can go no further.
MS is such a cruel disease. If my husband would of had something that was painful & impossible to deal with I would of done ANYTHING to help ease his pain . Life is so cruel sometimes. Who are we to say no u can’t terminate your life? To truly love someone completely is to give them their wish at the end of a terminal disease.
Omg this is crazy. I just happened to choose this video because it was recommended to me in my feed. I am LITERALLY GOING TO THE HOSPITAL ON FRIDAY TO GET GENETIC TESTING DONE FOR MUSCULAR DYSTROPHY… MORE SPECIFICALLY LIMB GIRDLE MUSCULAR DYSTROPHY. I AM 39 and have developed progressive weakness with no known origin. I truly feel for anyone that has this. Not having the strength to move and speak with ease is incredibly difficult and upsetting.
Blessings sent to you. I pray it isn't this illness. Peace ⚘🙏
One month later and I hope you’re okay. Did you ever get a diagnosis? I hope you have some answers!! Not knowing is often the hardest part. 💜💜💜
How’s it going?
Hi Jessica, It's Simon. I believe that Emory university has a test, or maybe now it's available as as standard test. I had to figure it out for myself with a genome sequence and google. Good luck. Your are looking for a mutated Myotilin gene. If you do have it, could we share notes regarding our ancestry ?
@@simonconvey9645 Hi Simon, sorry I’m getting back to you 2 weeks later but thank you for the info. I will look into this and I will gladly share any info that may be useful to others.
Life is cruel and confusing, I totally respect your wishes.
Rest in peace beautiful lady your pain is gone xxxxxx
As someone who has lost both parents to horrible diseases, one without any help at all in her dying at a nursing home at the young age of only 62 , after a lifetime full blown severe alcohol addiction which in the end severely damaged her brain, one with lung cancer dying in hospice after a morphine overdose I was twice asked whether I wanted the nurse to administer, I still have questions when it comes to assisted suicide.
My mother had a horrid death, almost a year of suffering in and out of ICU because she had not prepared anything legally binding the treating doctors to not do cpr etc over and over again despite her life being nothing but agony.
My Dad had his wishes put in writing as soon as he was told his terminal cancer diagnosis.
I held my fathers hand when he took his last breath and he died peacefully.
He was given an overdose that stopped his heart.
Which I guess was a legal way of assisted suicide and may have shortened his life by a few days but also kept him from choking to death.
I think that medicine has come a very long way and palliative care is a great tool in managing ones illness.
But not all illness can be managed by it and aside from pain and trouble breathing there’s so many other things that mean suffering.
I for my part am a very active person and I would most definitely ask for help to die if God forbid I was ever paralyzed from the neck down.
For me that would mean hell on earth .
In the end it should be up to the patient as long as it is the patients will they should be allowed to end their suffering.
As far as this documentary goes , I admire Jan but her children’s reaction and the persistence with which they tried to change her mind instead of accepting her wish was awful.
They have lost the chance to talk about much more important issues while arguing why she should not die.
Accepting my Dad’s wishes was extremely hard but I loved him enough to not burden him with MY grief and my sorrow over his illness and dying.
The daughter broke my heart when she was trying to tell her mom about her options and you could hear the desperation in her voice, she sounded so sad.
" There is more to life than just living " ..
Honest, painful, sensitive and tragic.
Lovely. Humane. Honest. Real. So hard to give a loved one what they want and not what we want to offer them.
The thing I wonder about is what Jan was actually going through right at the very end. We say it's peaceful bc it looks like it to us, on the outside. I'd like to believe it is but there's just no way to know. I suppose if I was that ill that sort of thing wouldn't bother me...I'd take a few moments of possible fear over living in misery.
What a wonderful house where she will live forever in the midst of the quiet peace of the plants and its colors!
You are beautiful inside and out, I can only imagine what your life has been like however your beautiful home and gardens give away your extraordinary life.
Bless you, Janette.
Very well thought out assisted suicide. Thank you for sharing this to the end, I believe this is so important to help take away the fear of death and dying how we choose when terminal. Her children look so much alike and like their mum.
This film was very sensitively done although I didn't know if I could watch it to the end, but then I did... alone and heartfully attentive. It brought back memories of my needing to make the decision of removing life support from my husband at the end. My belief is that he died long before he was pronounced dead and that I did as he would have wanted me to do, but it was a horrific decision to be sure. And for myself? I really don't know. I read many of the comments below, and I'm noticing that it's primarily women who have responded here. That's suprising to me and I wonder why it is so. Would anyone want to comment on why they think few men have responded? And perhaps few men watched as well? Interesting.
How awful that our government forces people to travel or commit suicide at home no doubt in an awful way. I am Catholic do the notion of suicide bothers me but I have a terminal illness & I have watched people die of cancer, eaten away in pain … my grandad died of MND & suffocated after being slowly paralysed & my other grandad diffracted from lung cancer & his death haunts me now it was harrowing . So as long as the checks & balances are in place & the person is of sound mind when making a living declaration & able to take the pills or drink or turn on the iV then people should be allowed DIGNITY in death & all these people saying palliative care is great in the U.K. & there’s no need to be in pain - that’s absolute BS. Let’s hope you don’t have to watch someone or you yourself die in pain crying out for help !
RIP you brave lady 🖤 x
I have many painfully bad illnesses, she has 1, I have been bed bound,In a wheelchair and the pain is so bad. Yes I am tired,Tired of the pain. But I have kid's and grandkids. I am going to stay right here.
I think she could have waited a bit longer. She walked, did a few things. I cant do all she was doing. Idk I feel for her kids and grandkids.
She had to be fit enough to travel so leaving it longer she prob would of not been able to go. Tragic but her choice. Sorry your in pain.
@@pam164 If you remember when the kids where talking to her they said we will get you here, sign stuff now and let us take you home for 6 months. They were willing to drive her to go. They wanted 6 more months with her. And thank you. I dont think i could do. Especially if my kids asked me not to.
I know many with it. Some cant walk at all. Need 24/7 care ,in pain,she was walking with help and driving, so for me I felt like she could have given the kids more time. Her son is working on finding a cure as well . That I thought was cool. Never know he just may find one.
@@ghents565 Yes but she was talking funny maybe she knew it was affecting her breathing and swallowing? That to me would terrify me! If it was just her walking then i think she could of maybe coped. My mother died at 46 and my dad 52 within year of each other i was 18 with no parents, her children were a good age so they will cope even though its sad. I hope her son finds a cure. You take care of yourself and hope you have many years of enjoying your family.
My mother died when I was a lot younger and if she had taken the choice to bow out before she suffered the way she did then that would be something I would have to accept.
I'm now in a position where my sons know that if I get worse and want to end it then they have to understand that I could no longer carry on in pain. They accept that too. Of course they don't love the idea but they don't want to see me suffer worse than I already do. You can't live your life for other people , you're going to leave them anyway.
If you truly love someone then why would you want then to continue suffering.
@Susan Ghent Do you realize she was absolutely TERRIFIED of being Institutionalized?! And also she has to Physically Be able to push the drip? She has to be well enough to Travel..on HER OWN resources… its not just a quick drive up the road… she had to Travel to ANOTHER County to STOP her own suffering! Oh…ps… its not YOUR Business how or when a person with a Terminal Illness or Debilitating Disease decides to End their OWN Living Hell!!
I’m so glad that the doctor opened the window at the end
I had no idea that muscular dystrophy had so little research done on it.
What about those Jerry Lewis telethons? Remember his money for research? What happened then?
@@anitakinnear6735 All the money goes ( quite rightly ) to Duchenne Muscular dystrophy research, this is much more common, and affects children from birth. Life expectancy is late teens....
Everybody was, but Simon was a particularly remarkable man. I completely agree with his closing statement. I dont know if Im going to get through this process someday, but I'd like the option to be available in my country, the Philippines.
This room at 35.00 ..
The screen of galaxy and swirling atmospheres ....
Absolutely stunning..
..I wonder what room this is ....
Is it a cinema room hes mornin his own house ?
It's a great place to meditate
💚💚💚
It was shot at the NASA goddard space center in Maryland. They have a huge projecting wall. I was sitting down because I can't stand up in dark rooms with nothing to hold on to.
Beautifully done. Now called in US Medical Aid in dying. Clearly not an easy choice. But should be a choice.