5 Pros/Cons of Kesimpta for MS 1 YEAR REVIEW.
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- Опубліковано 11 січ 2025
- A patient's review of Kesimpta (Ofatumamab) after 1 year of usage.
Top 5 Pros and Cons from the experience.
What is the crap gap? Learn more here:
You can learn more about the MS Crap Gap here:
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What is Ocrevus? (Ocrelizumab)
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Why I switched from Ocrevus to Kesimpta?
• I switched from Ocrevu...
Learn more about Relapsing / Remitting Multiple Sclerosis
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This video is not medical advice, it's simply one patient's experience using a Disease modifying drug (Kesimpta) to help stop the progression of his relapsing / remitting (RRMS) multiple sclerosis.
#aimusic
I’m 28 years old and have been on Kesimpta for 9 months following my diagnosis. This is my first treatment, and my most recent MRI, done less than a month ago, shows stable results with no new lesions. In Italy, the cost of the medication is fully covered by the national health service, and I go to the hospital pharmacy once a month to pick it up. I could collect multiple doses at once, but I prefer to have them stored in their refrigerators.
My immunoglobulin levels are the same as they were before starting treatment, and I haven’t even caught a cold. I have almost no symptoms, except for the occasional mild facial paresthesia (symptom that led me to schedule the first MRI prior to the diagnosis, thankfully it has reduced a lot since then) . I do believe that Kesimpta works best for treatment-naive patients on their first therapy.
Thank you for your videos, which continue to encourage me on this long journey!
Thank you for the kind words and sharing your journey. It sounds like you are thriving, and that's awesome!! I just caught a mild cold for the first time in a year, I'm sure the fact that my kid was sick and literally coughed in my face for 3 days straight didn't help. Haha.. I think you are right about the treatment-naive first therapy. Have a great Sunday and thank you again
Catching up on your videos. It is interesting to hear about MS from someone recently diagnosed. I was Dx in 2005 and was in the RRMS stage for like the first 8 years. The shot looks similar to the Autojet that is used with Copaxone and Rebif. I took those prior to starting Ocrevus when it came available. The shots ended up breaking down my derma layer in the injection site areas and I got big welts after the shots and over time developed hard knots under the skin. I started to dread "injection night". I always did them at night as I'd feel a bit off afterwards- especially with Rebif. The dread was so bad that when Ocrevus came available with a twice a year infusion- sit in a comfy chair and mess around on my laptop for a few hours? no problem! I brought some snacks and fun or work to do. I'd get half the steroids once I settled into receiving it and went with oral Zyrtec as I don't like the dopey drugged feeling from Benadryl and I had to drive 45 minutes home. Appreciate your perspective- fellow nerd ;-)
That's an interesting thing I didn't think of (the welts). I could see it being an issue though. It sounds like you discovered what works for you during the infusion. That's awesome! Yay!! One more nerd to add to the nerdy happy family!! Have a great holiday!
Thanks for sharing!
My son has been taking Kesimpta since he was diagnosed 2years ago.
He is;
1:highly fatigued
2:Easy to pick up infection
(Kesimpta suppresses the immune system) he has to take vitamins to counteract that.
His last Neurologist appointment showed that one of the lesions on his brain was significantly smaller.
Also there were no new ones.
Hoping and praying for more positive news on his next appointment.
Sorry to hear about the fatigue but no noticeable progression is great!! The fatigue is sooo freaking hard. Thank you for the feedback. Happy almost ThxGivig!
I was hoping for an update on the pants puller upper machine🥺. Oh yeah, and I am also glad the Kesimpta is working for you overall.
I can confirm that the pants puller upper is still in the dining room 😂
Pantspullerupper2000 will make another appearance! Thank you Rosie! I hope you are enjoying your weekend! 💖
@@UpcyclewithAndrea ❤You guys are just so funny and amazing!
thx
Thank you!!
I've been on it since April of 2024. It makes me tired the week after I do my injection(didn't realize that the meds was also making me tired every day just thought it was base MS). I also have a needle phobia and I get way too many blood draws a year ..not to even mention the spinal tap. Ugh!!!!!!!
The spinal tap sounds brutal. Sorry that you had to go through that. Now you got me thinking about the fatigue. I wonder why the DMTs cause fatigue (if they actually do?) Maybe @AaronBosterMD can provide some insight?
@@NeuroNerdyX I was diagnosed in Feb so I dunno I'm just tired all the time, but really tired day 2 and 3 after the Kesimpta injection. For example ...I get up take care of my dogs make sure my chickens are up and then go to the couch to nap and watch stupid movies all day.
@@stephanies1474 That sounds like a good plan. My doggies like day the down days. They jump in my bed and offer moral support.. if that's what a snoring pile of fur is... :) Chickens are awesome! they are soo silly!