Speech Problems in Autism: The Hidden Role of Cerebral Folate Deficiency Syndrome
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- Опубліковано 15 вер 2024
- Want to help your autistic child speak? Learn about the critical test every parent should know when it comes to speech issues and cerebral folate deficiency syndrome (CFDS).
- Explanation of CFDS and its effects on speech.
- Role and importance of folate in the brain.
- How serum folate receptor alpha autoantibodies hinder folate transport.
- The limitations of standard folate blood tests in detecting these issues.
- Importance and necessity of the test for detecting CFDS.
Find out how to better advocate for your child's health and speech development today.
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#autism #autismkids #autismfamily #CerebralFolateDeficiencySyndrome #CFDS #folate #folateautoantibodies #FRATtest
According to studies, the titers of autoantibodies tend to vacillate with time, as well as 5-MTHF concentration levels in the cerebrospinal fluid, so CSF concentrations would be a more reliable test, but even they might not reflect the long-term status properly. This is what I've gathered by reading all CFD papers I could find.
Great summary! Yes, a spinal tap would give more specific results however that is a very invasive test and not something to be done regularly especially as you note levels do fluctuate with time.
The trouble is 99% of Drs don't know about it and don't believe it's necessary. Bigger question about these functional medicine concepts is why is this knowledge so marginalized since the costs of significant impairment (for all parties) is so high?
This is exactly why I do these videos! The important information is not getting to most doctors and therefore not to the parents. Please share this video so that parents learn this vital info.
Forever thankful for doing a frat test. It took my child’s receptive language from 0 to 100. Very important information.
Yes!! Exactly. It's such an important test to do and not many parents have done it.
@@navigatingawetism could you please do a video about supplements that help with expressive speech?
@@merry4042 Most certainly! It's a large topic and I could probably make a 60 minute video but that's too long. Is there any specific supplement you want me to address?
@@navigatingawetism if you could please do DMG AND TMG. Thank you so much 😊
EXCELLENT knowledge about root cause of speech problem. Dr whenever I give high dosage (2.5 mg or 5 mg) of MethylFolate (Folinic Acid or Quatrefolic) my 5 yrs old autistic son becomes very irritated and meltdown happens. Is this a transient phase or I need to stop high dosage MethylFolate?
what folate should i use for my child with autism 3 years old?
What were the results of your test?
My child took folate(folinic acid)after 4 months of (15mg/day),he start twitching befaure deep sleep...have you an explication ?thanks
Hi. Sleep movements are common but it's always good to check in with the doctor who recommended the folate. In general, the cause of these jerky movements is unknown but is related to when the brain is shifting from being awake to being asleep. The folate taken is specifically to impact the brain so in many ways it is not shocking because you were giving a supplement to specifically target the brain but you want to make sure these are not related to any brain discharges or seizure activity. Stress, anxiety, exercise, and lack of sleep can all cause these kinds of jerky movements in sleep. It's not necessarily a bad thing but it would be important to understand and identify the reason.
What changes did you see with the folate? Did you start at 15 mg/day? Were/are you working up to a higher dose?
My next question would be “What do I do if my son does have the ‘trouble makers’ after getting the test done?”
I'll make a video on that because there are a few variables. It's important to have a good strategy based on the results.
@@navigatingawetism thank you. I’m trying to do everything for him. I’m grateful the you are putting all this information out.