'Your Chance at a CURE is now GONE' | Stories with Willy 01
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- Опубліковано 7 жов 2024
- ''Your chance of a cure is gone''
Due to a long timeframe too see a certain neurosurgeon my small chance at a cure for my brain tumor.
Then DVA has the nerve to turn around and take zero responsibility or liability 'not service related or service has had snow exacerbating' when people get compensation for tinnea haha, good vibes and wishful thinking does a lot I hear.
The part that haunts me is my mum breaking down at the front of the hospital apologizing to me saying I should've got you up here too see him.
This new series will be telling stories of my life, this is number 01, more coming soon, Most are far lighter then this.
thankyou for watching as always,
Happiness
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Thanks Legends
It's stories like this that leave a man with no words to say. It must have been so frustrating at the time...
yeah mate, it was heart breaking bro! thanks man
Will is a good example of a human being. I had people destroy my mind for no reason. All they had to do was stop. No one could get their finger out of their ass, and make the call. I don't see how you live righteously after this kind of bitter injustice. You are a better man than I am Will.
Willy,
Old film, but it's the first time it showed up on my watch list. I'm the guy with Muscular Dystrophy. I know exactly what it feels like to be told "there is no cure". I don't know if I'll ever fully "accept" it. Because, it's slowly robbed me of everything. I grew up extremely athletic with a dream to be a SEAL or Special Forces at the least. It was my dream. I was the kid that had recruiters following him around high-school. I was told there was an elevated enzyme in my blood work that lead to me being removed from all athletic programs at school, and undeniably being told you are "unfit to serve".
Even though I was physically able at the time and I would have gladly given my life for my country. I chose to follow a girl to church. I then got a job as an electrician, thinking "I'll show these f***ers! I can do this." I was an electrician for twelve years for an amazing boss who bent over backwards to keep me working until one day, it began to progress out of nowhere. I started to stumble, trip, and fall. I was becoming too exhausted to finish work days. But, still he kept me. He began to take me fishing, hunting, and camping. He would intentionally find jobs at lakes, to work half a day, and fish the rest. What I didn't know was, he was spending all of his money along with me. He knew I wouldn't have a retirement and had studied up on my disease. So, he decided to retire with me. He told me, "I told you when we started working to never become friends with your employees, and I broke that rule. Working with you, and watching you bust your ass to be nobody, made me want to live, and you looked like you needed to live more than you needed to work. So, is it alright if I call you my friend?"
He died last fall. I think about him from time to time when I'm too weak to get out of bed, or when I fall down. He spent his retirement on me, or with me. But, he showed me that there's more to life than what most people think. Most of are dreams are really that, just dreams. Is it just chance that I stumbled across your channel, or is it divine intervention?
I can't beat Muscular Dystrophy, not with the most positive attitude in the world. It's a genetic mutation in my body. It would take a miracle. But, I can take this thing 10 rounds and not let it knock me out.
I'm not strong enough to do many things. I'm barely strong enough to dress myself and sometimes need help with that. But, God willing, I will pray for you. I will give you whatever strength I have left. Because in the end, it is about how we lived, not about how we died.
🇨🇦🙏💕
Nice jacket, Willy. I was watching Bald and Bankrupt and came across you. I’m in Payneham, about 4km east of Adelaide. Thanks mate. Max. 😁👍
Your a legend willy and the pride of this nation, I have no clue how your feeling mate or what your going through, so I’d just like you to know your an icon for myself as you are for many others, but also willy going forward I’d just want to leave you with this: 🇦🇺Legends Never Die🇦🇺
legend! thankyou so much brother!
I can't believe this has happened to you and others. I admire your strength and courage Matt
Hey mate, I know all about these kind of stuff ups, hope you can rise above the absurdness of it all. At the end of the day it's all a guessing game, people can live full lives and not even know they have a tumor.
yeah for sure mate
Your living more of a life than most people 🙌 and its down to your amazing outlook and attitude.. Your mam must be so proud ❤️
praying for you sir
thanks bud
I can’t begin to imagine how frustrating that must be or must have been to deal with, glad to see that you understand shit happens and each time it does there’s always a lesson to be learnt from it, always. Thank you for your service too, new sub, keen to hear about this project x type party!
for sure mate! Sucks!
I feel your pain brother.
I've also seen the follow up video from September 2021 and see that you are stable now. So in a way I have been timetraveling from a more positive place. Love from Sweden!
Hey mate I know it’s an old video. I was still serving as a Medic when I first started following your journey years ago. It fucking breaks my heart to hear this story. I took so much pride in my job and passion in helping and looking after my guys.
I ended up psyching out I couldn’t go to one more suicide. It’s hard as a medic as they’re not just patients they’re your fucking mates your cutting down off the rope.
I got tired of fighting against the system of joint health command. When I was posted to an operational unit I had so much more control of providing primary health care. It shames me as a Medic to watch this mate. I hope you know some us are professionals and have it everything until we burnt out.
sad to hear this willy, i hope in the near future more will be possible for you.
my mom was diagnosed with 7 tumors in her brain they are unable to get to, she was given 3 months of life left.
She is still with us 4 years later and is doing rather well considering the circumstances and it looks like she is gone be with us for a few more years.
i hope this gives you some hope.
We will see each other in the afterlife brother your 2 good of a soul to just dissappear like that dont you worry brother
Glad I had the pleasure of your company flying late last year!
hell yeah legend!
DVA can be a frustrating beauracratic nightmare. Chin up Digger! Fight through mate fight through!
for sure! Thankyou mate
Hey mate, unfortunately this is something i have experienced myself in the Australian public medical system. It's especially terrible in your situation where it unfortunately has costed your life, the beaucracy of the various departments involved and the incompetence is just disheartening and it makes me reckon where all the funding goes and why is stuff not being done about it. It's absoloutley gut wrenching to think that you had to go through this situation and that it resulted in this IDK how you continue to remain so positive throughout it.
Stay strong Will, always will have everyones support and help 🙏🙏🙏🙏
(Love the vids too)
thankyou mate
Sorry to hear this mate. Deeply saddens me and your tough to say the least. I had meningitis at Kapooka in my last week, 5 days in hospital and almost died, lost 11kg in those 5 days and was too weak to March out the day after I discharged from hospital but that didn’t stop them from sending me to the Infantry. I’m proud as punch I made it but looking back now the damage it caused not worth it. I had wished things had changed a little and they would start looking after their people but obviously nothing has changed. I subscribed and look forward to the stories.
good on ya mate! Cheers brother
My advocate started well, but has evaporated leaving me high and dry. He has my documents, for my ptsd, stuffed (half an elbow), stuffed ankle and knees, 27 years RAInf. I dip my hat to you mate, strongest bloke I have ever heard.
thats sucked mate! thanks bro
I hope someone feels great about the job they did. Knowing that they probably could have saved you had they done their part.
Man never met you but I got your back and you'll live on forever thru mates and social media man . We all love ya
legend! thankyou brother
So lost for words about how you can keep yourself in check while talking so open about what your going through. I would be a emotional mess.
Thankyou mate, I really appreciate it. All just about pushing on brother
Just stumbled across your channel purely by chance. F***ing awesome what you're doing, mate. Needles to say, I subscribed on the spot. My wife was diagnosed last year with a grade III Anaplastic Astrocytoma at age 32. Inoperable and incurable owing to where it is. I have a pretty good idea of the surgeon you are talking about. Regardless of what has transpired, keep fighting and live the life you have brother!
hey brother, VERY glad you did thankyou! Mate I hope you're both doing well! thankyou
I wish you the best brother
As much as it wouldn't have been hard for you and still is, no one can really comprehend what you went and are going through until they have been in your shoes. I agree the statement that your mum made is one that would be so heartfelt as a mums love is unconditional. :) Sounds like a good series.
thankyou Peter
On a lighter note....awesome chair Willy
thankyou legend
It is amazing they always wait till it is to late as they forget how many people it effects. Glad to you putting another video out. Keep it up.
yeah for surew! thankyou
No one seems to ever "do their job" or take responsibility. Honesty is almost unheard of! Doctors need to be honest with what is going on with a person and then let that person make/help make decisions about the medical care they want to go through! Why not!?? Also, I love your scenic videos...beautiful land and sea. I wish for you all the best.
yeah mate! For sure!
Always praying for you
thankyou Steph!
Glad you mentioned the undies, I felt way underdressed in my housecoat.
at least he was as honest as he could be, the neuro. bureaucracy kills. thr is not doubt about it. thx for sharing. i mean it should be fixable, but watching the pandemic response doesnt inspire much hope in systems. the fewer stamps and forms the better. gr8 vid.
for sure brother! thankyou mate, I really appreciate that
Junkies and wasters live forever good men with prospects always bite the bullet early my heart goes out to you brother
ahha legend! thanks mate
willy.beating cancer if your ever in Townsville North Queensland mate I’ll buy you a beer 👍 keep fighting the good fight
What's happened to you is so shite, I'm left at no words... but I'm real glad you're living each second to the fullest mate, and you've always got our support
yeah mate for sure! thankyou
Great video mate, any chance you'll be doing more of these sit down and chat videos?
yeah mate for sure i will be!
Praying for you mate !! 🙏
thankyou mate!
DVA did the same to a friend of mine who collapsed while setting up for Australia day parade whilst serving as a cook in the army. They pushed her aside with no cover at all. It's disgusting how DVA don't help when it comes to brain tumors
that sucks mate!
Sure does but like yourself she won't let it beat her down
Same thing with my dad the only time i ever talk to a doctor is to ask me how i want him to die he had a small cancer they let it get generalized because of all the covid issues. May you find peace where ever yo go
Love the threads and that chair is pimp’n mate! I saw your reply to someone else that DVA have nothing in their policy’s to cover what happened, it’s medical negligence, I hope your advocate can help you out in that respect.
thankyou legend! Really appreciate it
More of this !!
more coming mate!
hey mate, i just found out about your channel today, hope you're doing well bro. Stay strong
hey brother! thankyou mate!
My friend saw him, died on his table.. cost nearly $200,000
Go to Thailand get reassessed..honestly, Aussie neurosurgeons are very conservative.
DVA is a joke, what a disgrace.
Just theway it is sadly mate, To be fair, they've been good about it
awesome
thanks man
Never accept DVA's original decision, they will always deny responsibility. You need to take it to the veteran's review board. The only thing is DVA is notorious for drawing things out with needless medicolegal appointments and mind-numbing bureaucracy that defies common sense and decency for our veterans. Just never give up.
thankyou mate! Reallu appreciate it
"If only" will always be in the back of your mind (pardon the pun, wasn't intentional).
ahha for sure!
Tinnitus not tinea. I don’t think DVA cover athletes foot 😂
nope, They cover athletes foot.
Yes it does I know a few ex service who have a white card for it
This story might save someone else's life i guess...
Start a Class action against dva this is unacceptable
Look I don't know if i have it left in me to do that!
@@willyOAM i understand mate
So are you saying DVA aren’t helping you?
If not you need to get a really good advocate NOW mate
Hey, i have a great advocate, that said DVA have nothing in their policy to cover anything like this