I was diagnosed with MS at the end of February 2024 and I just relate to your vlogs so much! I just had a three day steroid drip from an acute relapse. Still awaiting treatment and had no idea how I was going to get through it or if anyone around me would ever understand. You are just such a wonderful inspiration, you give me hope. And I hope that we can both fight together and agree to never give up on ourselves! We are not our diseases!! 💪💕✨
Thank you! This has helped me quite a bit. I go in for radioactive iodine in a couple of days and I've been stressing about it. Your video put me at ease a little bit. 💕
Your hair is always so pretty even throughout this process ❤️ I hope you are feeling better now and that everything worked really well. Can I ask how you style your hair? ☺️
@@sallyvonrohansome things are just too "difficult" to say on here (if you know what I mean?) so pay close attention and write down the capital letters in the order that you see, understand? Frogs Often Leap Lightly Over Water. WILLIAM has More Adventures by Keeping In Shape. Ostriches occasionally Need X-rays. Fish Often Rest Comfortably while Ants Navigate Complex Environments Rapidly. Cats Understand Rules Easily Sometimes. many blessings. 👍
I did RAI in August last year. Had good uptake and everything was going as expected. Just had a clear scan BUT there are still cancer markers present in my blood! I just found out today and I am so mad. My GP told me this and could not tell me what would happen next. I am waiting to see the endocrinologist in mid May. 2.5 weeks of agonising wait to see if this means I have to do RAI again. :( I really don’t want to deal with the thyroid cancer anymore. I have other suspicious tumours and enlarged lymph nodes throughout my body, which could mean a second cancer or some weird deadly autoimmune disease. I am very sick atm and I have a lot of surgeries lined up (e.g. hysterectomy, as I have adenomyosis and endometriosis and I am needing iron infusions now) but they don’t want to do surgery until I am in remission. I cannot wait any longer for these surgeries to improve my quality of life. The thyroid cancer has gotten in the way and still is, one year on. I hope it works out better for you though, but you will be fine either way!
This is a really big, nuanced question, but I'm really curious... If I were to be working and had health insurance through my place of work ( USA, of course, :/ ), and then were diagnosed with cancer and could no longer work for a certain period of time and therefore lost my health insurance, is there a good secondary healthcare plan that I could purchase now to help me during that time of unemployment? I realize there is a lot to that question, but any advice would be much appreciated. Either way, thank you so much for posting and I'm glad you are doing well and I hope that things continue to progress positively for you!
Sally: “I won't be able to hug anybody or kiss anybody or cuddle anybody” Rachel: “I'm gonna fuckin scream🤺🤺🤺” you two are so cuteee! and I love seeing your journey and how you are doing
Don’t know if you got your answer, but you suck on sour candy post RAI because it affects the salivary glands and can give you dry mouth.. hope that helps
Hello! M from India,31, Male. I had a total thyroidectomy last week and now Dr are suggesting me to take RAI. Let me know one thing can I live normal life after that? please reply..
i really hope the insurance issue will get fixed soon 🤞 i was kinda hoping for a sour candy taste test, but i hoped you liked most of them 😂 saw some sour cokes in there, i really love them 😄
The creator’s words “We will certainly test you with a touch of fear and famine and loss of property, life, and crops. Give good news to those who patiently endure- who say, when struck by a disaster, “Surely to Allah(God)we belong and to Him we will ˹all˺ return.” Via:Quran
thank you for sharing❤ I am having RAI in a few days (recurrent TC after 8 years, did not have RAI after my first surgery) wonder if you have any side effects from RAI that last a few months or still effect you today. What dose did you get 💪🏼🫶
I was diagnosed with MS at the end of February 2024 and I just relate to your vlogs so much! I just had a three day steroid drip from an acute relapse. Still awaiting treatment and had no idea how I was going to get through it or if anyone around me would ever understand. You are just such a wonderful inspiration, you give me hope. And I hope that we can both fight together and agree to never give up on ourselves! We are not our diseases!! 💪💕✨
Thank you! This has helped me quite a bit. I go in for radioactive iodine in a couple of days and I've been stressing about it. Your video put me at ease a little bit. 💕
How are you feeling now?
been waiting for this one!! so excited to see how well you’re doing!
Thank you ☺️
Hey, Sally! Good to see you doing good!❤ keep us updated! (btw I never understand this insurance company system in the U.S.😑)
Your hair is always so pretty even throughout this process ❤️ I hope you are feeling better now and that everything worked really well. Can I ask how you style your hair? ☺️
I love following these vlogs on your journey! Nice to see it's going in the right direction :))
thank you 🥹💕
@@sallyvonrohansome things are just too "difficult" to say on here (if you know what I mean?) so pay close attention and write down the capital letters in the order that you see, understand?
Frogs Often Leap Lightly Over Water. WILLIAM has More Adventures by Keeping In Shape. Ostriches occasionally Need X-rays. Fish Often Rest Comfortably while Ants Navigate Complex Environments Rapidly. Cats Understand Rules Easily Sometimes.
many blessings. 👍
I did RAI in August last year. Had good uptake and everything was going as expected. Just had a clear scan BUT there are still cancer markers present in my blood! I just found out today and I am so mad. My GP told me this and could not tell me what would happen next. I am waiting to see the endocrinologist in mid May. 2.5 weeks of agonising wait to see if this means I have to do RAI again. :( I really don’t want to deal with the thyroid cancer anymore. I have other suspicious tumours and enlarged lymph nodes throughout my body, which could mean a second cancer or some weird deadly autoimmune disease. I am very sick atm and I have a lot of surgeries lined up (e.g. hysterectomy, as I have adenomyosis and endometriosis and I am needing iron infusions now) but they don’t want to do surgery until I am in remission. I cannot wait any longer for these surgeries to improve my quality of life. The thyroid cancer has gotten in the way and still is, one year on. I hope it works out better for you though, but you will be fine either way!
This is a really big, nuanced question, but I'm really curious... If I were to be working and had health insurance through my place of work ( USA, of course, :/ ), and then were diagnosed with cancer and could no longer work for a certain period of time and therefore lost my health insurance, is there a good secondary healthcare plan that I could purchase now to help me during that time of unemployment? I realize there is a lot to that question, but any advice would be much appreciated. Either way, thank you so much for posting and I'm glad you are doing well and I hope that things continue to progress positively for you!
Just had mine done a week ago.. No stress, no side effects, just sucks having to be away from my family for 5 days
Sally: “I won't be able to hug anybody or kiss anybody or cuddle anybody”
Rachel: “I'm gonna fuckin scream🤺🤺🤺”
you two are so cuteee! and I love seeing your journey and how you are doing
Thank you Sally mine one is coming Friday,it's a great help dude❤❤❤
I hope it goes well 💕
hey Sally, thanks for the vlog! how are you now that its been 5 months? chronic dry mouth?? or any other side effects?
what will your first non-iodine meal be?!?!
okay this was weeks ago but I believe I got a bacon egg and cheese bagel near the dog park 🥹
@@sallyvonrohan Hello ❤, if there is any account or way to contact you? Thank ❤❤
Mug in the car! Classy
thank you! It tastes better lol
how do you manage to focus on your school work when you are having a bad day of nausea or something similar?
7:24 could you explain the sour candy?
Don’t know if you got your answer, but you suck on sour candy post RAI because it affects the salivary glands and can give you dry mouth.. hope that helps
Hello! M from India,31, Male.
I had a total thyroidectomy last week and now Dr are suggesting me to take RAI.
Let me know one thing can I live normal life after that?
please reply..
RAI for me was a little lonely for the week but I don’t feel any different months after taking it 💕
@ Thanks dear❤️
What amount of RAI you got?
100 millicurie!
I have done recently this treatment.thanks for your kin help.
i really hope the insurance issue will get fixed soon 🤞 i was kinda hoping for a sour candy taste test, but i hoped you liked most of them 😂 saw some sour cokes in there, i really love them 😄
If you have TikTok, I made a whole series trying them!
@@sallyvonrohan oohh i need to check that out then! ❤
you should learn modular synthesis lol, considering you can't be around ppl
How do you get a lesbian couple to stay the night in their own apartments? One has to be literally be radioactive! lol
The creator’s words “We will certainly test you with a touch of fear and famine and loss of property, life, and crops. Give good news to those who patiently endure-
who say, when struck by a disaster, “Surely to Allah(God)we belong and to Him we will ˹all˺ return.”
Via:Quran
thank you for sharing❤ I am having RAI in a few days (recurrent TC after 8 years, did not have RAI after my first surgery) wonder if you have any side effects from RAI that last a few months or still effect you today. What dose did you get 💪🏼🫶