Thank you for continuing help raise awareness. The wider community needs to recognise that we are an abandoned group of people, often in very desperate circumstances. We are begging for recognition and help.
Thank you both. I'm glad to hear what's actually happening behind the scenes. 🙏🏻 Without information it's difficult for the community to rally in support. I've always liked what Solve does and once again I thank you all.
This gives me some confidence now, hearing Oved Amitay speak. As one in a family of whom at least three or four have / have had ME/CFS, I think the long covid is certainly the same post viral syndrome / ME/CFS. Same result, same reality after the initial virus. Will see progress with great interest. Good luck with all your work now and in the future. Thanks for this interview.
I'm glad someone is using AI to analyze data. I commented on an OMF post that even if they didn't develop their own that using something like Open AI might be an option but I think everyone is a bit overloaded in the current circumstances.
We need to separate out ME from CFS and other diseases that may cause fatigue. ME is a separate disease and can be diagnosed as such with the International Consensus Criteria (ICC) in the IC Primer.
Yes. I think what you are saying is that ME is always triggered by a virus and involves symptoms that are more flu-like than CFS? I feel that CFS is more of a brain disorder. I have CFS and am terribly affected and have glandular problems after exertion. But I think I am different to someone I know who has a pure viral form of the illness.
@@RMT192 I don't think ME is ALWAYS triggered by a virus. Maybe something like 80% triggered by a virus. It can be other factors, too, such as stress. CFS can be a number of fatigue-like symptoms, but ME, being a separate disease, has well-defined symptoms. Please check out the position paper from ME International that explains their position quite well. www.me-international.org/position_paper.html Thanks.
I have had ME/CFS for 33 years. It atarted with a flu that I got on Jan 12, 1988, I have not been as well as I was on Jan 11th.. I disagree wo that they are different that they don’t start with a virus. I was 50 in 88 and now am 82 years in 2021. I have tried many many modalities dozens of kinds of MD, acupuncture, Chi Kung, mercury fillings removed, Chelation for mercury.;;; and on and on more than a dozen MD’s in California Bay Area.
![Lp. Сердце Вселенной #30 ДВА В ОДНОМ [Один человек]• Майнкрафт](http://i.ytimg.com/vi/nrXy15orKhY/mqdefault.jpg)
Thank you for continuing help raise awareness. The wider community needs to recognise that we are an abandoned group of people, often in very desperate circumstances. We are begging for recognition and help.
Thank you both. I'm glad to hear what's actually happening behind the scenes. 🙏🏻 Without information it's difficult for the community to rally in support. I've always liked what Solve does and once again I thank you all.
This gives me some confidence now, hearing Oved Amitay speak. As one in a family of whom at least three or four have / have had ME/CFS, I think the long covid is certainly the same post viral syndrome / ME/CFS. Same result, same reality after the initial virus. Will see progress with great interest. Good luck with all your work now and in the future. Thanks for this interview.
I'm glad someone is using AI to analyze data. I commented on an OMF post that even if they didn't develop their own that using something like Open AI might be an option but I think everyone is a bit overloaded in the current circumstances.
We need to separate out ME from CFS and other diseases that may cause fatigue. ME is a separate disease and can be diagnosed as such with the International Consensus Criteria (ICC) in the IC Primer.
Yes. I think what you are saying is that ME is always triggered by a virus and involves symptoms that are more flu-like than CFS? I feel that CFS is more of a brain disorder. I have CFS and am terribly affected and have glandular problems after exertion. But I think I am different to someone I know who has a pure viral form of the illness.
@@RMT192 I don't think ME is ALWAYS triggered by a virus. Maybe something like 80% triggered by a virus. It can be other factors, too, such as stress. CFS can be a number of fatigue-like symptoms, but ME, being a separate disease, has well-defined symptoms. Please check out the position paper from ME International that explains their position quite well. www.me-international.org/position_paper.html Thanks.
I have had ME/CFS for 33 years. It atarted with a flu that I got on Jan 12, 1988, I have not been as well as I was on Jan 11th.. I disagree wo that they are different that they don’t start with a virus. I was 50 in 88 and now am 82 years in 2021. I have tried many many modalities dozens of kinds of MD, acupuncture, Chi Kung, mercury fillings removed, Chelation for mercury.;;; and on and on more than a dozen MD’s in California Bay Area.
Do long haulers have low natural killer cell function like mecfs?
To be honest, we don't want a therapy, we want a CURE!
At this point I'd take a drug therapy. Why wouldn't you want atleast some normality back?
@@steveozone4910 no, I've done therapy's for 25 years. That's the the business plan of the drug companies.
@@steveozone4910 Agreed. An effective therapy would be awesome.