Another brave and inspirational story of GBS survivors. I think that our hospital ER doctors could learn a thing or two viewing this series. They all have this one thing in common, they get sent home after presenting with all the same symptoms. Congratulations Cheryl for going back to school and helping people through this very difficult physical and mental recovery.
We are hopeful that these videos will be circulated in medical circles as well. Triage nurses, emergency practitioners, and everyone caring for them all need to know the symptoms and how to handle each patient's needs. Even something as small as the family meeting that Cheryl discussed can cause a ton of anxiety if not handled properly. Tact, patience, education, and empathy can make the scariest situations seem so much more manageable.
Cheryl is so positive and optimistic that it's hard to picture her going through this. When life handed her lemons she found a way to build a lemonade stand!
My son is in the hospital with GBS I’m at a loss I can’t get answers from doctors he still has no reflex, tingling and they want to discharge from the hospital it’s only been 3 weeks he is not ready to come home . What do I do ? I love your story thank you for sharing .
Go to another hospital. I went through 3. Diagnosed 3/2023. Paralyzed waist down. I had to go through it alone and homeless after 2 hurricanes. I need to post my story.
How is GBS or it's cousin CIPD diagnosed? I have neuropathy below my waist that feels like GBS. I've seen army of doctors and specialists over the last 9 months. X-rays, CT scans, EKGs, MRIs, nerve conductivity studies, etc, etc. No diagnosis at all... So frustrating. Maybe they are hiding the dignosis due to my advanced age. GBS takes months even years to treat, and that costs money. I went from being 100% mobile to unable to walk. My legs feel like concrete blocks.
Another brave and inspirational story of GBS survivors. I think that our hospital ER doctors could learn a thing or two viewing this series. They all have this one thing in common, they get sent home after presenting with all the same symptoms. Congratulations Cheryl for going back to school and helping people through this very difficult physical and mental recovery.
We are hopeful that these videos will be circulated in medical circles as well. Triage nurses, emergency practitioners, and everyone caring for them all need to know the symptoms and how to handle each patient's needs. Even something as small as the family meeting that Cheryl discussed can cause a ton of anxiety if not handled properly. Tact, patience, education, and empathy can make the scariest situations seem so much more manageable.
@gbs-cidpcanada5886 where can I share my story?
Very good interview Cheryl, I forgot what you went through, those were scary days.
Cheryl is so positive and optimistic that it's hard to picture her going through this. When life handed her lemons she found a way to build a lemonade stand!
My son is in the hospital with GBS I’m at a loss I can’t get answers from doctors he still has no reflex, tingling and they want to discharge from the hospital it’s only been 3 weeks he is not ready to come home . What do I do ?
I love your story thank you for sharing .
how's your son doing?
Go to another hospital. I went through 3. Diagnosed 3/2023.
Paralyzed waist down. I had to go through it alone and homeless after 2 hurricanes. I need to post my story.
How is GBS or it's cousin CIPD diagnosed? I have neuropathy below my waist that feels like GBS. I've seen army of doctors and specialists over the last 9 months. X-rays, CT scans, EKGs, MRIs, nerve conductivity studies, etc, etc. No diagnosis at all... So frustrating. Maybe they are hiding the dignosis due to my advanced age. GBS takes months even years to treat, and that costs money. I went from being 100% mobile to unable to walk. My legs feel like concrete blocks.
I had it Nov 2014