Anne Maitland what a sweet person you are! I could only wish to have such an empathetic doctor❤ your opening comment :: your first lesson was each and every one of you should be on the other side of the bed pan at least once :: was so empathetic and such a good idea to teach doctors. Thank you for being you.
Wish this subject could be updated post Covid or Covid shot. Been messed up for 11 months post jab with headaches, shingles, and never ending eczema. Allergist didn’t know about DAO level. Only ordered tryptase level they said was fine. I feel I have MCAS. Doing low histamine diet to quiet the reactions. I take a daily antihistamine. I’ve read a lot of ppl with similar symptoms post jab. I feel I’m not believed or they just don’t know what to do with me. This doctor is amazing.
Also it all starts in the gut, we need to fix our gi system. Repairing our stomach should be the first protocol to heal any disease. Vitamins aren’t enough, short chain fatty acids along with l-glutamine, monolaurin, avoiding plastic at all costs, organic grass fed meat and organic greens are your best friend to heal your gut. Cutting our fake sugars, processed food, and alcoholic drinks should be avoided during your healing phase
Thank you for getting this info out there. I wish they would of had your knowledge when I was young. I was born with a VSD, I also have EDS but wasn't dianosed until I was early 30's at Mayo. I have had a horriable time after I had endometryosis, I had the Hystorectomy in 1995. After that surgury my body started to attack itself. I would not heal for about 7-9 month I kept hemorrhaging, also had spinal fluid leakage. was in bed the whole time with such pain and migraines. I have never been the same and the Dr.'s can't figure this out as well as lesions on my brain. Finally they put me on disability and I have medicare. I am praying you take that insurance and I can come to see you. Please let me know if it is a possibility.
I’m so glad someone said it about the Lyme testing. I don’t know ANYONE that’s had that testing be negative. I don’t believe everyone has Lyme! Is Lyme real? Yes but I don’t believe it’s as prevalent as some make it out to be.
Yes! Finally someone addresses the fact that the antibiotics for so many months w Lyme disease causes more problems than it solves . After 5 months of doxycycline I developed full blown histamine intolerance and my life has never been the same . I also am homozygous for DAO , however I never knew until I had all the horrible symptoms arise after the Lyme protocol . I actually figured it out myself and later confirmed the gene mutation w a 23andme and the help of a functional medicine doctor . If I could go back I would have never done anything to treat chronic Lyme with antibiotics.
Caroline Laronda oh boy! I am just in the process of recovery from Covid (6 mos of post viral syndrome) and what may be a reactivation of chronic Lyme disease. I also think I suffer from MCAS and lately starting to react to everything again. I have had several trials of different antibiotics to combat Covid without full recovery yet. Your comment caught my attention and now I am concerned that I may be doing more harm than good.
I’m sorry that happened to you! Unfortunately that is a very commonly known problem with antibiotics treating for Lyme. It’s being caused by leaky gut. Some Lyme literate practitioners prescribe antibiotics but a good Practitioner should be aware of all the common herbal therapies you can do.
Karen Kilba wow , I can’t imagine getting covid right now and needing anymore antibiotics. I hope we can all find some sort of relief soon . I’m dealing with so many things right now ( systemically with my health) and I have no means to treat anything appropriately with out of pocket expenses using real doctors . I’m on Medicaid and broke so it’s a nightmare dealing with these lame puppet MD’s . I’m very careful what I tell them bc they don’t have a clue about real medicine . It’s so sad .
Bri Jamshidi yes , hindsight is a b..... I’m so tired of being the patient and the doctor . It’s so difficult when you have nobody but yourself to navigate your own treatment when you don’t feel good and have limited resources .
Started having charlie horse type pain in all of my muscles including spasms after getting Covid. Wasnt ill with classic symtpms but now suffering this pain everywhere as well as burning/tingling like sensations, redness and swelling in arms and hands. Anyone else deal with this type of pain?
Me, I am undiagnosed but just watched and this could be it?? When I read your ear comment I had to reply! My ear is red and hurts for no reason. Chronic everything it seems like, brain fog is pretty bad & ibs. Do you have swelling?
@@haleybomb1778 yes I do I had a knee replacement may 1st 2019 did not go well infection another surgery in June for infection... I get swollen weird rashes diarrhea bloating headaches nausea excessive sweating severe pain.
Tell me more, Please. I have many reasons to suspect ACM and I know I have histamine intolerance (MCAS) and suspect mastocytosis. I would appreciate anything you can tell me about the connection between the two. I suspected there is a connection between ACM and MCAS and am trying to find out.
I’m sorry to correct but my son and daughter both had transient hypogammaglobulinaemia. Our son was born in 1981 and he had multiple allergy/anaphylactic reactions to 7 major foods and many minor reaction and by 9 months old…1981… IgE was ‘through the roof’ according to the consultant paediatrician. Over 78 where normal was below 10. Our daughter had same in 1986 and at birth had blisters develop within hours of birth… high IgE. Edit: sorry I lacked understanding of your comment. I WRONGLY thought IgE wasn’t discovered until 1989, and NOT associated with… I’m watching this because we are all suffering so many symptoms that I believe this is why. Dislocated collar bone and first rib from Pilates exercising, massive hiatus hernia, fibromyalgia, interstitial cystitis, vulvodynia, reacting to any ferments, gluten, dairy, ripe fruits, leftovers, house dust mite, moulds , stomach cramps, asthma. We live in uk but I won’t find a GP who would understand a word you are saying so I avoid and take Fexofenadine 180mg . 😞 thank you so much for sharing.
Anne Maitland what a sweet person you are! I could only wish to have such an empathetic doctor❤ your opening comment :: your first lesson was each and every one of you should be on the other side of the bed pan at least once :: was so empathetic and such a good idea to teach doctors. Thank you for being you.
Wish this subject could be updated post Covid or Covid shot. Been messed up for 11 months post jab with headaches, shingles, and never ending eczema. Allergist didn’t know about DAO level. Only ordered tryptase level they said was fine. I feel I have MCAS. Doing low histamine diet to quiet the reactions. I take a daily antihistamine. I’ve read a lot of ppl with similar symptoms post jab. I feel I’m not believed or they just don’t know what to do with me. This doctor is amazing.
This is a great suggestion! We absolutely will reach back out to Dr. Maitland and other immunologists on this matter. :)
I have a daughter with the exact same symptoms and situation. You are not alone.
I’m about to bawl my eyes out- finally!🙏🏼💝😭😭😭 THANK YOU DR. MAITLAND
I didn’t have mast cell activation until mold exposure. CIRS is a good term to search.
Brilliant presentation...the best ive seen! Thank you!
Thank you for this presentation it is one of the most outstanding I have seen on MCAS.
Amazing
Also it all starts in the gut, we need to fix our gi system. Repairing our stomach should be the first protocol to heal any disease. Vitamins aren’t enough, short chain fatty acids along with l-glutamine, monolaurin, avoiding plastic at all costs, organic grass fed meat and organic greens are your best friend to heal your gut. Cutting our fake sugars, processed food, and alcoholic drinks should be avoided during your healing phase
Thank you for getting this info out there. I wish they would of had your knowledge when I was young. I was born with a VSD, I also have EDS but wasn't dianosed until I was early 30's at Mayo. I have had a horriable time after I had endometryosis, I had the Hystorectomy in 1995. After that surgury my body started to attack itself. I would not heal for about 7-9 month I kept hemorrhaging, also had spinal fluid leakage. was in bed the whole time with such pain and migraines. I have never been the same and the Dr.'s can't figure this out as well as lesions on my brain. Finally they put me on disability and I have medicare. I am praying you take that insurance and I can come to see you. Please let me know if it is a possibility.
If you’re going to ask about Lyme testing, don’t ask Labcorp, you’ve got to ask someone like Genova or Igenix who has actual good testing.
Thank you for letting me know.
Wonderful presentation !
I have a connective tissue disease similar to eds
I’m so glad someone said it about the Lyme testing. I don’t know ANYONE that’s had that testing be negative. I don’t believe everyone has Lyme! Is Lyme real? Yes but I don’t believe it’s as prevalent as some make it out to be.
Yes! Finally someone addresses the fact that the antibiotics for so many months w Lyme disease causes more problems than it solves . After 5 months of doxycycline I developed full blown histamine intolerance and my life has never been the same . I also am homozygous for DAO , however I never knew until I had all the horrible symptoms arise after the Lyme protocol . I actually figured it out myself and later confirmed the gene mutation w a 23andme and the help of a functional medicine doctor . If I could go back I would have never done anything to treat chronic Lyme with antibiotics.
Caroline Laronda oh boy! I am just in the process of recovery from Covid (6 mos of post viral syndrome) and what may be a reactivation of chronic Lyme disease. I also think I suffer from MCAS and lately starting to react to everything again. I have had several trials of different antibiotics to combat Covid without full recovery yet. Your comment caught my attention and now I am concerned that I may be doing more harm than good.
I’m sorry that happened to you! Unfortunately that is a very commonly known problem with antibiotics treating for Lyme. It’s being caused by leaky gut. Some Lyme literate practitioners prescribe antibiotics but a good Practitioner should be aware of all the common herbal therapies you can do.
Karen Kilba wow , I can’t imagine getting covid right now and needing anymore antibiotics. I hope we can all find some sort of relief soon . I’m dealing with so many things right now ( systemically with my health) and I have no means to treat anything appropriately with out of pocket expenses using real doctors . I’m on Medicaid and broke so it’s a nightmare dealing with these lame puppet MD’s . I’m very careful what I tell them bc they don’t have a clue about real medicine . It’s so sad .
Bri Jamshidi yes , hindsight is a b..... I’m so tired of being the patient and the doctor . It’s so difficult when you have nobody but yourself to navigate your own treatment when you don’t feel good and have limited resources .
Caroline Laronda I agree. Keep fighting ❤️🙏🏼
Started having charlie horse type pain in all of my muscles including spasms after getting Covid. Wasnt ill with classic symtpms but now suffering this pain everywhere as well as burning/tingling like sensations, redness and swelling in arms and hands. Anyone else deal with this type of pain?
Who here has brain fog runs chronic low grade fever one bright red ear on fire? And diarrhea headache
Me, I am undiagnosed but just watched and this could be it?? When I read your ear comment I had to reply! My ear is red and hurts for no reason. Chronic everything it seems like, brain fog is pretty bad & ibs. Do you have swelling?
@@haleybomb1778 yes I do I had a knee replacement may 1st 2019 did not go well infection another surgery in June for infection... I get swollen weird rashes diarrhea bloating headaches nausea excessive sweating severe pain.
Best ever! 👍👍❤️❤️
great video, is it possible to refer me to a doctor that specializes in mast cells activation syndrome in Central New York State, thanks
NAC and vitamins helps... D, C, E, ZINC, blood flow 7
would leukocytes in urine signal anything?
I need to know that too.
Inflammation or as I call it, my body fighting an "infection" that doesn't exist
Anti kidney rejection drug helped my wife's itching
Arnold chiari malformation c1 ka oppration open
Tell me more, Please. I have many reasons to suspect ACM and I know I have histamine intolerance (MCAS) and suspect mastocytosis. I would appreciate anything you can tell me about the connection between the two. I suspected there is a connection between ACM and MCAS and am trying to find out.
Anderson Ronald Anderson Sarah Jones Donna
I’m sorry to correct but my son and daughter both had transient hypogammaglobulinaemia. Our son was born in 1981 and he had multiple allergy/anaphylactic reactions to 7 major foods and many minor reaction and by 9 months old…1981… IgE was ‘through the roof’ according to the consultant paediatrician. Over 78 where normal was below 10. Our daughter had same in 1986 and at birth had blisters develop within hours of birth… high IgE. Edit: sorry I lacked understanding of your comment. I WRONGLY thought IgE wasn’t discovered until 1989, and NOT associated with…
I’m watching this because we are all suffering so many symptoms that I believe this is why. Dislocated collar bone and first rib from Pilates exercising, massive hiatus hernia, fibromyalgia, interstitial cystitis, vulvodynia, reacting to any ferments, gluten, dairy, ripe fruits, leftovers, house dust mite, moulds , stomach cramps, asthma. We live in uk but I won’t find a GP who would understand a word you are saying so I avoid and take Fexofenadine 180mg . 😞 thank you so much for sharing.
SPINE ISSUES
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