Anyway, now I don't work I needed something to help my mental health, for the past 18 months I have tried making Aromatherapy candles, drying flowers from my garden to make Wreaths etc. Some days I can do a little, some days too much, some days none at all. I love the planning of a project and being able to do it when I can.....I needed this. Xxxxxxx
I was a Mental Health Secretary for many years but would often visit the Art Gallery in Aberdeen City centre on my lunch break as it was across from my workplace. Since then the Gallery was shut for years throughout renovation and the pandemic. I think its now open and I'd love to visit again. X
Greeting form Australia, This is great info for people with ME/cfs on how to prevent PEM. I’ve had me/cfs for over 35yrs & do mostly the same as you re my art. I’ve only managed to get into my studio once this year, instead I have small projects I can do from bed or recliner. I keep them nearby with everything I need so I don’t have to waste time looking for items. I also use my phone to set alarms that alert me to rest as I have a tendency to want to complete a task. When I do that I often find myself in agony laying flat in bed for a few days. What emb machine do you have that has alerts? Both of mine require some degree of supervision & I need to physically change threads when doing multi coloured designs. It’s been a few years since I last used them. Wish I could afford computer automation for my Longarm quilting machine, I really miss not being able to quilt & I don’t like saying no to commissions.
I have a Babylock Intrepid. It has 10 spools, so usually not having to swap the colors, but I think smaller recent baby locks have the same feature . Wish you luck doing your artwork!
Thank you so much for this Corey. It is great to know you can still do your art by pacing. I love watercolour painting and making miniature rooms as it involves so many different crafts, but I haven’t done one in ages. I always think I can’t sit up long enough to do any, but I will try setting a timer. I imagine I will want to keep going but will have to rest because if I don’t, I won’t be able to do anything at all. I tend to hyper focus and used to spend hours on my projects. Thank you for showing us a way to get back to doing things I love. 🥰
Corey this is amazing as I too love Art and craft. I think alot of people with Chronic illness are very talented and driven. Obviously your art will be professional....are you on Instagram so we can possibly see some exhibits or would that be too much for you? The balance us very fine, I know. Xxxxx
Corey Corey Corey Dear Corey... I wish that I had a friend like you to talk to mostly I have no one at all to talk to. How I haven't lost my mind yet I dont know but frankly I really do think that I'm starting to. I've been an artist in mind heart and spirit but not so much in body. As you well may know if your an artist and you cant create you start to lose it or maybe that's just me. I've been sick always, that's 59, almost 60, years with more things medically then I can count not only chemically but mechanically i.e. fractures in my back ect... Not that ME, I can not for the life of me pronounce those 2 words, but the CFS I've known about since the 80s and was told that I had it at 18 but I've been sick with it as well as other things as far back as I can remember. Basically I've had no life other then being sick. And I still have an artist heart mind and spirit and walk around, when I do walk around that is I tend to bump into walls doors door frames and when I do fall I can no longer get up off of the floor none the less when I'm not crying I'm mad all the time. I still try to do my art, been making jewelry but even that is hard at times too hard. Its not just the sitting up, cant do it any other way, but what goes on in my head, the creativity suffers greatly. I cant think. I set everything, all my boxes of beads, on the bed, which means there is no place to lay down even for a minute no place for that, but there have been times when at first when I set everything out I some how lose all my train of thought and all interest I cant seem to remember what it was that I wanted to do and all I want to do is put everything, no small task, away and go to sleep. Even writing this hurts but I so badly needed to find other artists who have this stinking ??? disease illness curse what ever you want to call it mainly because I cant deal with this anymore I feel like I'm creaking up. Sorry no one else's problem I know I just didn't know where to go with this I dont have a soul to talk to about any of this or anything else either so I went looking on here and found your video beautifully done I might add thank you for it and yeah pacing slow going is the only thing we can do or we end up suffering more then we already do. Anyone I talk to not a one understands me or worse believes me I've been called a liar or nuts all my life so for the most part I've had no one there my whole life really. I keep saying if I ever went to jail and they put me in solitary confinement I'd do great cause that's the way I've been living my whole life anyway. Anyway forgive my going on like this I appreciate you thank you your in my prayers. Peace.
Anyway, now I don't work I needed something to help my mental health, for the past 18 months I have tried making Aromatherapy candles, drying flowers from my garden to make Wreaths etc. Some days I can do a little, some days too much, some days none at all. I love the planning of a project and being able to do it when I can.....I needed this. Xxxxxxx
I was a Mental Health Secretary for many years but would often visit the Art Gallery in Aberdeen City centre on my lunch break as it was across from my workplace. Since then the Gallery was shut for years throughout renovation and the pandemic. I think its now open and I'd love to visit again. X
Greeting form Australia, This is great info for people with ME/cfs on how to prevent PEM. I’ve had me/cfs for over 35yrs & do mostly the same as you re my art.
I’ve only managed to get into my studio once this year, instead I have small projects I can do from bed or recliner.
I keep them nearby with everything I need so I don’t have to waste time looking for items.
I also use my phone to set alarms that alert me to rest as I have a tendency to want to complete a task. When I do that I often find myself in agony laying flat in bed for a few days.
What emb machine do you have that has alerts? Both of mine require some degree of supervision & I need to physically change threads when doing multi coloured designs. It’s been a few years since I last used them.
Wish I could afford computer automation for my Longarm quilting machine, I really miss not being able to quilt & I don’t like saying no to commissions.
I have a Babylock Intrepid. It has 10 spools, so usually not having to swap the colors, but I think smaller recent baby locks have the same feature . Wish you luck doing your artwork!
❤️
Thank you so much for this Corey. It is great to know you can still do your art by pacing. I love watercolour painting and making miniature rooms as it involves so many different crafts, but I haven’t done one in ages. I always think I can’t sit up long enough to do any, but I will try setting a timer. I imagine I will want to keep going but will have to rest because if I don’t, I won’t be able to do anything at all. I tend to hyper focus and used to spend hours on my projects. Thank you for showing us a way to get back to doing things I love. 🥰
Yes- the hyper focus is the part of the artistic process that I really miss! But I'm learning to do it in smaller parts.
Corey this is amazing as I too love Art and craft. I think alot of people with Chronic illness are very talented and driven. Obviously your art will be professional....are you on Instagram so we can possibly see some exhibits or would that be too much for you? The balance us very fine, I know. Xxxxx
I'm at www.marymarch.com
@@corey-me-cfs very interesting. Beautiful x
Hi Corey, I hope you’re doing okay 🌼
Corey Corey Corey Dear Corey... I wish that I had a friend like you to talk to mostly I have no one at all to talk to. How I haven't lost my mind yet I dont know but frankly I really do think that I'm starting to. I've been an artist in mind heart and spirit but not so much in body. As you well may know if your an artist and you cant create you start to lose it or maybe that's just me. I've been sick always, that's 59, almost 60, years with more things medically then I can count not only chemically but mechanically i.e. fractures in my back ect... Not that ME, I can not for the life of me pronounce those 2 words, but the CFS I've known about since the 80s and was told that I had it at 18 but I've been sick with it as well as other things as far back as I can remember. Basically I've had no life other then being sick. And I still have an artist heart mind and spirit and walk around, when I do walk around that is I tend to bump into walls doors door frames and when I do fall I can no longer get up off of the floor none the less when I'm not crying I'm mad all the time. I still try to do my art, been making jewelry but even that is hard at times too hard. Its not just the sitting up, cant do it any other way, but what goes on in my head, the creativity suffers greatly. I cant think. I set everything, all my boxes of beads, on the bed, which means there is no place to lay down even for a minute no place for that, but there have been times when at first when I set everything out I some how lose all my train of thought and all interest I cant seem to remember what it was that I wanted to do and all I want to do is put everything, no small task, away and go to sleep. Even writing this hurts but I so badly needed to find other artists who have this stinking ??? disease illness curse what ever you want to call it mainly because I cant deal with this anymore I feel like I'm creaking up. Sorry no one else's problem I know I just didn't know where to go with this I dont have a soul to talk to about any of this or anything else either so I went looking on here and found your video beautifully done I might add thank you for it and yeah pacing slow going is the only thing we can do or we end up suffering more then we already do. Anyone I talk to not a one understands me or worse believes me I've been called a liar or nuts all my life so for the most part I've had no one there my whole life really. I keep saying if I ever went to jail and they put me in solitary confinement I'd do great cause that's the way I've been living my whole life anyway. Anyway forgive my going on like this I appreciate you thank you your in my prayers. Peace.
This is too big a block of text for me to read at once. I'm so sorry you're having such a rough time. It's such a hard illness.