I thought for sure I’d struggle to get pregnant after having so many surgeries myself and with my crohns issues. I got pregnant back to back (miscarried the first time). Flared really bad during pregnancy and delivered early for unrelated (to IBD) reasons.... BUT have a healthy happy baby!
Please please don't settle for the "just take birth control" treatment. I did that for 10 years and it did not help either my mood swings or my endometriosis or my bowel issues. A good gyno will not just put you on BC without investigating the root cause of your issues. Also, I have had a dozen "normal" transvaginal ultrasounds when I what I had was severe deep infiltrating endometriosis. Your symptoms sound like something is going on. If BC helps you, great, but it's a bandaid at best and it can actually make certain things worse. You deserve to know what's causing your issues so you can get the best possible treatment.
i agree. please don’t settle. like you said, birth control is not completely without risk. there are several birth controls that are known to cause things like increased intracranial pressure (because they increase your CSF production) and they actually increase your risk of a stroke. my aunt was in her 40’s and running marathons and preparing for a triathalon when she had a stroke because of birth control. i don’t say this to scary you out of taking the birth control. birth control is great when it works appropriately... but i definitely think there are other options out there to pursue first. especially if you consider that birth control is not really fixing the problem... it’s masking it. what’s going to happen when you come off of it? will you have to suffer with PMDD symptoms until you get pregnant? immediately go on birth control after giving birth to prevent PMDD symptoms?
Felicity I struggled with my PMDD until this year when I had surgical menopause induced (for my endo but it had the side effect of doing away with those horrible mood swings), I obviously do not recommend that to someone young and planning to have a family. Antidepressants and counseling are an option for PMDD. They did help me stay more stable. PMDD is a tough nut to crack.
DarkBlue Matter I’ve tried antidepressants and antipsychotics and am in therapy (for the last 5+ years). The only thing that had helped my PMDD had been a combo of the pill and mirena coil. Obviously birth control hasn’t helped the endo and PCOS as much but still slight improvements in those areas. I want a hysterectomy but not until I’m sure I don’t want kids (is that the surgical menopause you were talking about?) xx
Hi Maggie, I just wanted to give you a little encouragement by telling you about my daughter’s experience. She used to suffer terribly with PMT & was eventually put on “ the pill”, which she still takes even now. It is a progesterone only pill called Cerazette. The good news is that it worked for her & she was able to have five beautiful boys in between times. Their ages are 20,18,15,13 & 4. You can still have a happy ending. I know everybody’s circumstances are different but it could happen for you too. Wishing you & Zack all the very best from Kit. XX.
Even if the cause of your symptoms is something like endo or adenomyosis, birth control (a silly slang term for medication that treats a wide variety of medical conditions) is usually the first-line treatment anyway. Also, the PMDD would indicate at least part (if not all) of the problem is indeed hormonal. Keep in mind that the first form of birth control you try may not work, so don't be discouraged as there are so many to try out there and how you feel on one type is no indication of how you'll do on another type. Also, I went through a period of unbalanced hormones like this and it eventually went away because your hormones naturally fluctuate as you age (I switched birth control in the meantime to mitigate the symptoms). For me it occurred when was in my mid-twenties and it lasted maybe 18 months. So, if you are on birth control for a year, you won't necessarily experience the same symptoms again when you get off of it.
I have endometriosis and after my surgery I was put on continuous birth control and it has improved my quality of life so much!! Everyone is different but I had a positive experience with it
I HIGHLY recommend the book 'Period Power' by Maisie Hill. So so informative about menstrual cycles, fertility and hormones. It's on audible as well as printed
I wish yall the best and hope you have an easy pregnancy when it does happen for you...much love and respect for yall....hope its triplets..a name suggestion for triplets...oh my God....also i did norplant like 2 months after my last baby which was c section..so they look for pre cancer and stiff and not even a year later l had bad issues and had the rod took out and before another a year passed was diagnosed with cervical cancer stage 4 was told on a Wednesday that the following friday l would have a "drive thru hysterectomy. I pray you have a better experience than me. I also had alot of female issues that l think was hereditary and now that my girls are over ten l have explained my issues to warn them of this possibility...best of luck to yall in all you do
Just curious coming from a girl who's mom had crohn's disease and a mother of a child who has a high risk of developing an autoimmune disorder. What makes female with crohn's at a high chance of fertility issues? Is it just the disease that creates the issues or is it if the person has had surgery on a specific part of the digestive tract? I would love the feed back as I'm always willing to learn more about the disease that effected my mom so much, it's kind of my way of dealing with the loss of my mother.
How much of your colon do you have left, if you don't mind me asking? I have my sigmoid and rectum left, which are the two areas that are the worst for me, so I understand how frustrating it can be to still get flare-ups, despite having the ileostomy (which often causes its own issues). Also, I struggle with bad hormonal issues too. It makes dealing with all of this so much harder. I hope you find a solution that brings you healing and health. 🤗
I am also having a horrible time around my period. My crohns symptoms are horrible, I’m moody, emotional. I was put on birth control that stops your periods but it made me so nauseated and just feel awful. So now I’m back to the drawing board. 😔 I hope it helps you.
I hope birth control helps in the short term anyway, especially with a wedding coming up you want to feel well. If it helps I know lots of people who have been on and off birth control and they have had healthy pregnancies
please don’t settle. like you said, birth control is not completely without risk. there are several birth controls that are known to cause things like increased intracranial pressure (because they increase your CSF production) and they actually increase your risk of a stroke. my aunt was in her 40’s and running marathons and preparing for a triathalon when she had a stroke because of birth control. i don’t say this to scary you out of taking the birth control. birth control is great when it works appropriately... but i definitely think there are other options out there to pursue first. especially if you consider that birth control is not really fixing the problem... it’s masking it. what’s going to happen when you come off of it? will you have to suffer with PMDD symptoms until you get pregnant? immediately go on birth control after giving birth to prevent PMDD symptoms?
👋 hi Maggie 👋 New video!!! Yay!!!!! 🙌 🙌 Thought you were seeing the doctor because you were thinking about starting a family or you were already pregnant!! 😱 Think birth control is a gamble. Without getting to the root cause of why you're feeling that way and to prescribe birth control may mask whats really going on. Plus, when you come off of it, you don't know how your body is going to respond, especially if its not the right treatment. Then you'll be back at square one. It's good that they did transvaginal ultrasound so your doctor could see anything abnormal. Did they do what's known as a HORMONE PANNEL?? Or is your doctor looking for one specific thing in the bloodwork? With a HORMONE PANNEL, it can help determine what hormone is doing what or making more or less in your body. This gives your doctor a better way to figure out how to treat you. Hang in there, has to be frustrating but keep pressing onward!! You got this!!! 🌼hope you're having an amazing day🌼
For male U/C patients who are using salasulfazin prescription, a major side effect of the drug is decreased sperm count sufficient enough to decreased probability of couples achieving pregnancy. If possible, discontinuation temporary of its use will be enough to restore fertility.
Praying that the medication helps with your hormonal issues and also when you and Zack are ready that you will be able to start a family .🙏🙏 Thank you for all your very informative and helpful and positive vlogs. You have been such a big help to me during my time with a temporary colostomy and then ileostomy. You are a real trooper! ❤️👍
Did they give any answers in regard to what happens when you come off birth control? Obviously the symptoms will come back and then you'll probably be trying to get pregnant. Doesn't seem like the best time to go through all those symptoms again. I'm just frustrated for you and with you.
Hey, hang in there. Birth control is a disappointing answer. Have you possibly tried finding a reputable Naturopath Doctor? Sometimes they can help those kinds of things with diet and supplements. If you can conquer the life adjustments of having an ostomy and crohns you can definitely see this through, no matter what it looks like. Best of luck and thank you for all the videos you post. They have helped me a lot. Hope this little message encourages you the same way you've been able to encourage me.
Prayers for a sick recovery O Lord the Greatest Doctor, we bring you all Confidence and humility are confident in the greatness of your mercy and the depth of your tenderness, especially for the sick and the suffering We put in your hands your sick son, hoping from your majesty to touch it with your caring hand with a touch of healing I said, "Come to me, you who are tired and heavy in loads, and I will rest you." Compassionate O Lord, rest your daughter give her complete recovery, and return him to his family, safe from all pain and distress. We thank you for your love and love, and we ask that your will be fulfilled, including for the good of the patient and his family, for the good of God and all that comes out of you is good. For you are in fatigue, comfort in sadness, consolation, and sickness with healing You have to trust us, and you have our hope, and from you we ask through the intercession of our mother, the Blessed Virgin, who does not disappoint the hope of those who ask for her intercession and aid So, Lord, Amen
Unless a procedure was performed near the reproductive organs in a male, men should be fine. For women, every body is different. There are different things to think about when it comes to being able to conceive. Scar tissue build up, the risk of the woman’s life depending on her state of health, and possible IBD unrelated complications. My husband and I have been trying for over 2 years to get pregnant and no luck. I’ve had 4 abdominal surgeries and I have a permanent ileostomy bag. That doesn’t mean I can’t get pregnant but it could be scar tissue around my reproductive system and restricting. I could have other issues. Every person is different because every persons body reacts differently. With all that being said, it’s not impossible. It can come with higher risks
Look for natural medicine, healthy organic foods, quality suplements, doctor's medicine help i know, but read more about natural ways to help your desbalanses, sorry for my English ok? Good luck girl 🙋🏼♀️
Prayers for a sick recovery O Lord the Greatest Doctor, we bring you all Confidence and humility are confident in the greatness of your mercy and the depth of your tenderness, especially for the sick and the suffering We put in your hands your sick son, hoping from your majesty to touch it with your caring hand with a touch of healing I said, "Come to me, you who are tired and heavy in loads, and I will rest you." Compassionate O Lord, rest your Daughter give her complete recovery, and return him to his family, safe from all pain and distress. We thank you for your love and love, and we ask that your will be fulfilled, including for the good of the patient and his family, for the good of God and all that comes out of you is good. For you are in fatigue, comfort in sadness, consolation, and sickness with healing You have to trust us, and you have our hope, and from you we ask through the intercession of our mother, the Blessed Virgin, who does not disappoint the hope of those who ask for her intercession and aid So, Lord, Amen
I thought for sure I’d struggle to get pregnant after having so many surgeries myself and with my crohns issues. I got pregnant back to back (miscarried the first time). Flared really bad during pregnancy and delivered early for unrelated (to IBD) reasons.... BUT have a healthy happy baby!
Please please don't settle for the "just take birth control" treatment. I did that for 10 years and it did not help either my mood swings or my endometriosis or my bowel issues. A good gyno will not just put you on BC without investigating the root cause of your issues. Also, I have had a dozen "normal" transvaginal ultrasounds when I what I had was severe deep infiltrating endometriosis. Your symptoms sound like something is going on. If BC helps you, great, but it's a bandaid at best and it can actually make certain things worse. You deserve to know what's causing your issues so you can get the best possible treatment.
birth control (the pill and mirena coil) has been so so fantastic for me (i have PMDD, PCOS, and endo). Everyone is different xx
i agree. please don’t settle. like you said, birth control is not completely without risk. there are several birth controls that are known to cause things like increased intracranial pressure (because they increase your CSF production) and they actually increase your risk of a stroke. my aunt was in her 40’s and running marathons and preparing for a triathalon when she had a stroke because of birth control.
i don’t say this to scary you out of taking the birth control. birth control is great when it works appropriately... but i definitely think there are other options out there to pursue first.
especially if you consider that birth control is not really fixing the problem... it’s masking it. what’s going to happen when you come off of it? will you have to suffer with PMDD symptoms until you get pregnant? immediately go on birth control after giving birth to prevent PMDD symptoms?
Bumpy Back Roads What would fix the PMDD then?
Felicity I struggled with my PMDD until this year when I had surgical menopause induced (for my endo but it had the side effect of doing away with those horrible mood swings), I obviously do not recommend that to someone young and planning to have a family. Antidepressants and counseling are an option for PMDD. They did help me stay more stable. PMDD is a tough nut to crack.
DarkBlue Matter I’ve tried antidepressants and antipsychotics and am in therapy (for the last 5+ years). The only thing that had helped my PMDD had been a combo of the pill and mirena coil. Obviously birth control hasn’t helped the endo and PCOS as much but still slight improvements in those areas. I want a hysterectomy but not until I’m sure I don’t want kids (is that the surgical menopause you were talking about?) xx
Hi Maggie, I just wanted to give you a little encouragement by telling you about my daughter’s experience. She used to suffer terribly with PMT & was eventually put on “ the pill”, which she still takes even now. It is a progesterone only pill called Cerazette. The good news is that it worked for her & she was able to have five beautiful boys in between times. Their ages are 20,18,15,13 & 4. You can still have a happy ending. I know everybody’s circumstances are different but it could happen for you too. Wishing you & Zack all the very best from Kit. XX.
same with me, the pill was a before and after in my life, the only thing that helped me actually but I take a combined pill
Even if the cause of your symptoms is something like endo or adenomyosis, birth control (a silly slang term for medication that treats a wide variety of medical conditions) is usually the first-line treatment anyway. Also, the PMDD would indicate at least part (if not all) of the problem is indeed hormonal. Keep in mind that the first form of birth control you try may not work, so don't be discouraged as there are so many to try out there and how you feel on one type is no indication of how you'll do on another type. Also, I went through a period of unbalanced hormones like this and it eventually went away because your hormones naturally fluctuate as you age (I switched birth control in the meantime to mitigate the symptoms). For me it occurred when was in my mid-twenties and it lasted maybe 18 months. So, if you are on birth control for a year, you won't necessarily experience the same symptoms again when you get off of it.
I have endometriosis and after my surgery I was put on continuous birth control and it has improved my quality of life so much!! Everyone is different but I had a positive experience with it
WISHING you and ZAK the BEST......I can’t wait to see you guys FLOURISH 😀😀😀
I HIGHLY recommend the book 'Period Power' by Maisie Hill. So so informative about menstrual cycles, fertility and hormones. It's on audible as well as printed
Thank you for the suggestion!
I'm so sorry for u dear. Hopefully things will get better
Best wishes, and Prayers
I wish yall the best and hope you have an easy pregnancy when it does happen for you...much love and respect for yall....hope its triplets..a name suggestion for triplets...oh my God....also i did norplant like 2 months after my last baby which was c section..so they look for pre cancer and stiff and not even a year later l had bad issues and had the rod took out and before another a year passed was diagnosed with cervical cancer stage 4 was told on a Wednesday that the following friday l would have a "drive thru hysterectomy. I pray you have a better experience than me. I also had alot of female issues that l think was hereditary and now that my girls are over ten l have explained my issues to warn them of this possibility...best of luck to yall in all you do
Just curious coming from a girl who's mom had crohn's disease and a mother of a child who has a high risk of developing an autoimmune disorder. What makes female with crohn's at a high chance of fertility issues? Is it just the disease that creates the issues or is it if the person has had surgery on a specific part of the digestive tract? I would love the feed back as I'm always willing to learn more about the disease that effected my mom so much, it's kind of my way of dealing with the loss of my mother.
How much of your colon do you have left, if you don't mind me asking? I have my sigmoid and rectum left, which are the two areas that are the worst for me, so I understand how frustrating it can be to still get flare-ups, despite having the ileostomy (which often causes its own issues).
Also, I struggle with bad hormonal issues too. It makes dealing with all of this so much harder. I hope you find a solution that brings you healing and health. 🤗
I am also having a horrible time around my period. My crohns symptoms are horrible, I’m moody, emotional. I was put on birth control that stops your periods but it made me so nauseated and just feel awful. So now I’m back to the drawing board. 😔 I hope it helps you.
Love your phone lamp.
Never ever give up GOD WILL GIVE U .... ZAC ALSO THERE
Hopefully the bc makes things better.
Love 💕
I hope birth control helps in the short term anyway, especially with a wedding coming up you want to feel well.
If it helps I know lots of people who have been on and off birth control and they have had healthy pregnancies
Thank you!!
please don’t settle. like you said, birth control is not completely without risk. there are several birth controls that are known to cause things like increased intracranial pressure (because they increase your CSF production) and they actually increase your risk of a stroke. my aunt was in her 40’s and running marathons and preparing for a triathalon when she had a stroke because of birth control.
i don’t say this to scary you out of taking the birth control. birth control is great when it works appropriately... but i definitely think there are other options out there to pursue first.
especially if you consider that birth control is not really fixing the problem... it’s masking it. what’s going to happen when you come off of it? will you have to suffer with PMDD symptoms until you get pregnant? immediately go on birth control after giving birth to prevent PMDD symptoms?
It’s a receiver on the lamp
I’m having the same problem should do as well?
Hope what ever you do helps you!!!
Thank you so much!
👋 hi Maggie 👋
New video!!! Yay!!!!! 🙌 🙌 Thought you were seeing the doctor because you were thinking about starting a family or you were already pregnant!! 😱
Think birth control is a gamble. Without getting to the root cause of why you're feeling that way and to prescribe birth control may mask whats really going on. Plus, when you come off of it, you don't know how your body is going to respond, especially if its not the right treatment. Then you'll be back at square one. It's good that they did transvaginal ultrasound so your doctor could see anything abnormal. Did they do what's known as a HORMONE PANNEL?? Or is your doctor looking for one specific thing in the bloodwork? With a HORMONE PANNEL, it can help determine what hormone is doing what or making more or less in your body. This gives your doctor a better way to figure out how to treat you. Hang in there, has to be frustrating but keep pressing onward!! You got this!!!
🌼hope you're having an amazing day🌼
Hi Melissa!! Thank you! Yes, she did do a hormone panel and it looked like everything came back normal for where I am in my cycle :/
For male U/C patients who are using salasulfazin prescription, a major side effect of the drug is decreased sperm count sufficient enough to decreased probability of couples achieving pregnancy. If possible, discontinuation temporary of its use will be enough to restore fertility.
Birth control does help with my crohns. Except for those stressful times.. hormones are no joke. Hope you feel better soon!!
Thank you!
Praying that the medication helps with your hormonal issues and also when you and Zack are ready that you will be able to start a family .🙏🙏
Thank you for all your very informative and helpful and positive vlogs. You have been such a big help to me during my time with a temporary colostomy and then ileostomy. You are a real trooper! ❤️👍
Aw thanks!
Love your videos! My channel is similar, but for J Pouches! Love building the community!!!! LetsTalk JPouches!!
Subscribed! So glad you're joining in! I'm always looking for more jpouch info for my patients who get reversals!
Stupid question but can you go camping?
Definitely!
Did they give any answers in regard to what happens when you come off birth control? Obviously the symptoms will come back and then you'll probably be trying to get pregnant. Doesn't seem like the best time to go through all those symptoms again. I'm just frustrated for you and with you.
I HATE the wand!
Hey, hang in there. Birth control is a disappointing answer. Have you possibly tried finding a reputable Naturopath Doctor? Sometimes they can help those kinds of things with diet and supplements. If you can conquer the life adjustments of having an ostomy and crohns you can definitely see this through, no matter what it looks like. Best of luck and thank you for all the videos you post. They have helped me a lot. Hope this little message encourages you the same way you've been able to encourage me.
Prayers for a sick recovery
O Lord the Greatest Doctor, we bring you all
Confidence and humility are confident in the greatness of your mercy and the depth of your tenderness, especially for the sick and the suffering
We put in your hands your sick son, hoping from your majesty to touch it with your caring hand with a touch of healing
I said, "Come to me, you who are tired and heavy in loads, and I will rest you."
Compassionate O Lord, rest your daughter give her complete recovery, and return him to his family, safe from all pain and distress.
We thank you for your love and love, and we ask that your will be fulfilled, including for the good of the patient and his family, for the good of God and all that comes out of you is good.
For you are in fatigue, comfort in sadness, consolation, and sickness with healing
You have to trust us, and you have our hope, and from you we ask through the intercession of our mother, the Blessed Virgin, who does not disappoint the hope of those who ask for her intercession and aid
So, Lord, Amen
Can I have a baby with an ostomy
Unless a procedure was performed near the reproductive organs in a male, men should be fine. For women, every body is different. There are different things to think about when it comes to being able to conceive. Scar tissue build up, the risk of the woman’s life depending on her state of health, and possible IBD unrelated complications. My husband and I have been trying for over 2 years to get pregnant and no luck. I’ve had 4 abdominal surgeries and I have a permanent ileostomy bag. That doesn’t mean I can’t get pregnant but it could be scar tissue around my reproductive system and restricting. I could have other issues. Every person is different because every persons body reacts differently.
With all that being said, it’s not impossible. It can come with higher risks
Look for natural medicine, healthy organic foods, quality suplements, doctor's medicine help i know, but read more about natural ways to help your desbalanses, sorry for my English ok? Good luck girl 🙋🏼♀️
Prayers for a sick recovery
O Lord the Greatest Doctor, we bring you all
Confidence and humility are confident in the greatness of your mercy and the depth of your tenderness, especially for the sick and the suffering
We put in your hands your sick son, hoping from your majesty to touch it with your caring hand with a touch of healing
I said, "Come to me, you who are tired and heavy in loads, and I will rest you."
Compassionate O Lord, rest your Daughter give her complete recovery, and return him to his family, safe from all pain and distress.
We thank you for your love and love, and we ask that your will be fulfilled, including for the good of the patient and his family, for the good of God and all that comes out of you is good.
For you are in fatigue, comfort in sadness, consolation, and sickness with healing
You have to trust us, and you have our hope, and from you we ask through the intercession of our mother, the Blessed Virgin, who does not disappoint the hope of those who ask for her intercession and aid
So, Lord, Amen