Living with Von Hippel-Lindau Disease

At the 2016 NORD Breakthrough Summit we interviewed Andrea Berkemeier a Von Hippel-Lindau patient about what it is like living with the rare disease.

[@wefkr]

Thank you for this video and thank you Andrea for sharing your story. All the best.

[@mightyobserver12]

Praying for u

[@nelsons.reviews]

I have the same situation my family has von hipple all that have it have eye tumor and adrenal tumors

[@zhopik]

может новый сделают

[@jorgearacena3072]

Thank you, i have this situación too.

[@nelsons.reviews]

Are you bling in your right eye??

[@puhelimentili805]

blind?

[@nelsons.reviews]

@@puhelimentili805 yes blind