Trouble swallowing? Maybe it’s from EOE
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- Опубліковано 11 вер 2024
- Eosinophilic esophagitis (or EOE) is the GI disease of the week! This disease is tough to manage but we are getting better at treating it every year. Learn more about the food elimination diet by subscribing to my free newsletter here: eepurl.com/iaYycn The next issue comes out 2/1/23 and will discuss the diet further!
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When I talked to my doctor and my mom about my throat problems. I mentioned a condition to do with your esophagus and they both laughed in my face and my mom even said the word esophagus in a way she could mock me.....
I went with my gut and after a bit more persisting and a bunch more choking on food.. To "reassure" me that I am ok
My doctor sent me to a pediatricians hospital.....
Turns out I might have Eosinophilloc Esophagitis
And I'm getting a biopsy and endoscopy done on the 2023 October Friday the 13th....
I get they both probably didnt mean any harm and thought I was being dramatic. But I was full on crying, choking on my food almost every time I ate it. I would get anxiety to eat, and only when the new doctor (pediatrician) a female mind you. She was so sweet and was asking me questions about like how long this was going on, etc, etc. Note that more times than I can count, my mom kept interrupting me and kept spewing nonsense that made both me and the doctor kind of confused. It just frustrates me when I don't get to speak about my own body and when I'm concerned they brush it off....
Funnily enough my same family doctor the original one (male) he and my mom were in a bit of denial that I had ADHD. The results were there, but more so my mom. Thankfully she came around and so did he but it still sucked because they kept saying "there's nothing wrong with you, you're just a bit distracted". I'm 14 keep in mind. It really hurts to not be heard or to get told ur fine when in fact i am not and it took me so much courage in the first place to ask for help...
(Sorry if this isn't written very well as I am tired and need to get some sleep)
TL:DR My mom and family doctor didn't believe me when I said I was always choking on food. Turns out I might have EOE.
Edit: Oh goodness I forgot i left this comment here. Ok so turns out a do have EOE and i have been medicated for almost 3 ish months now.
I take Mylan-Pantoprazole and oh my lord has it helped me, i can finally eat again!
Moral of the story, please trust your kids when they tell you something is going on 🫶🏼
I love these short forms (also as a med students I knew all of them so far but to have them quickly revised is great)
Thanks for watching! We’ll see if I can stump you by the end of the series!
@@Doc_Schmidt 😂 you probably will.
It’s great to learn more
@@Doc_Schmidt Sorry to bother you, but there's a spam channel peddling malware links guised as you. It replied to my comment on your girl scout cookie post. I reported the comment.
It's Doc Schmidt 491. UA-cam's poor maintenance as a product isn't letting me report it
Agreed. I'm a doctor and this format is great for repetition!@
These little videos are awesome. It's like an "explain it like I'm 5" or a "TL:DR" for medical issues.
absolutely, love this short form content :)
I really love that you mentioned some food/diet options. My mom's old GI basically said that diet doesn't matter lol even though I had noticed her having more issued when she consumed tomato products. I told her to switch GI doctors immediately. Especially since she has a vomiting issue they believe to be "cyclic vomiting syndrome", on top of the many other reasons she vomits. Yet that Dr wouldn't give her any anti-nausea meds. It was so bad that she would wake up choking on it, due to her cpap forcing the vomit down her airway and into her lungs. We got away from that Dr asap, got her on appropriate nausea meds and in for surgery for the inspire device in place of the cpap.
DX'd with EOE in 2019 after yet another trip to ER for emergency clearing of an impaction. 1996-2019, had 16 endoscopic procedures to dilate (three of those were emergent to clear impaction). Faithful on a total elimination diet x six months. By far, my biggest offender is the ubiquitous soy! I've also not had peanut butter in my house x 4 years, and this Florida girl hasn't had fish or seafood, either (the hardest!). But, no need for endoscopic dilation in over four years!!! I appreciate all your videos, especially this one! Your compassionate humor undergirding your excellent medical knowledge is such a gift! Thank you!
On my GI rotation now and there was a patient coming in query eosinophilic oesophagitis. The doctor doing OGDs had never seen it in practice before and said we may be able to se a feline oesophagus but its rarely seen inn cases.. Long behold it was there. A great first experience for the both of us!
Lo and behold.
I definitely had those changes in my throat along with linear furrows. I'm scheduled to see an allergist soon.
You're the first GI doctor I've EVER heard mention EOE. Maybe because it's newer? I had a friend in college who had these exact symptoms and kep having to go to the ER due to food getting caught in her esophagus.
Really interesting to see increasing awareness and understanding!
Thanks for getting to this so fast, I really appreciate it !
I'm really amazed at how you can unpack such a complicated topic in one minute and still manage to be clear and informative.
I've definitely leaned here more about EOE than I learned at my gastrologist office in the 15 minutes we had !
Keep up the good work !
My mom is constantly choking on her food. She has lupus so it would make sense even just that she’s having inflammation from that, it’s really effects her connective tissues 😢. I’ll tell her about this. Thank you!! I’ll keep it in my mind while I’m EMT-ing too lol
I have lupus and Schleraderma and this happens to me daily.
Coordination required to swallow affected by lupus apart from EOE.
Really need more information on EOE treatments that are well studied and relatively safe 🙏
I had esophogitis to the point where I developed a food impaction. Mine was from a different cause, severe undiagnosed gerd. Went on PPI's only to be taken off again a few weeks later, worst week of my life.
This was a timely video. I have an esophageal manometry scheduled next week due to dysphagia and long standing and worsening GERD... i will def discuss EOE with my gastro
hey, wish you the best for your surgery :)
In 2006 I started having trouble swallowing. It was esophageal cancer. I knew what my esophagus was just never heard of anyone having cancer there. Maybe do a piece on that. April is Esophageal cancer month.
OMG! I’m waiting for my GI to call me back, because I need my esophagus! It’s been a few years since I’ve had it done. That year I needed to have it done 3 times. I have selective IgA deficiency and systemic mastocytosis. It’s so much fun!
Ah I'm sorry to be rude but I was just wondering if you meant endoscopy? Because I'm getting and endoscopy and biopsy done on the 18th to check if I have EOE seeing as I've had majority of the symptoms for years now, especially the dysphagia. Once again sorry if I'm being rude!
I was diagnosed with EoE when I was around 6-8. EoE is so rarely talked about, so thank you for making this video. I was in remission from ages 12-15, but am out of remission now. I feel like nobody talks about how debilitating this disease is, as every meal is a struggle.
How are u doing now and what's the diet u eat and do u take medication?
Sameee its so hard
Discuss next: Radiation esophagitis. What options are there to help patients who don’t recover back to baseline swallow comfort on their own after a few months?
hey, research and past data suggest that its symptoms may regress in 2 to 4 weeks
These are awesome! Please keep making more.
One subject that I’m curious about is neurological/ANS conditions that affect the G.I. system. I recently learned that upper cervical instability (UCI) can cause dysphasia, and dysphasia is also a symptom of dysautonomia.
Dysphagia or dysphasia?
Doc Schmidt, Have you ever notice that EOE goes along with Myasthenia Gravis? I’m have a ton of progressive GI symptoms, and my doctors are somewhat stumped. Just curious what your experience has been. I am not looking for medical advice, I’m just curious bc MG and EOE have a lot in common! Thanks, Doc Schmidt!! I absolutely love your content!!! 🫶🏻🫶🏻🫶🏻
I’ve never seen the 2 together but it is true that having one autoimmune disease increases your risk for another!
@@Doc_Schmidt Thank you for taking the time out of your day to respond!! I appreciate it so much!! 🫶🏻
This !!!
You have just hit it all on the head for me.. I've been going threw the doctors and waiting over a year for an actual spot at the hospital just to get the E.O.E surgery. I haven't been able to eat food In over a year im living off milk and sustagen
The neglect I've had
Well... That was unexpectedly enlightening 😬 i dont think thats what i have... But it would certainly tie up lots of separate issues that are proving impossible to treat separately. More likely a neurological issue affecting swallowing though... And all the other symptoms are quite vague unless all presented together 🤷🏻♀️ if i had a doctor with the smarts to diagnose something more than a common cold, id be impressed 🤷🏻♀️ i really should just work on getting a medical degree... Would be quicker 😂 too many people involved though! Maybe a vet?
My 6 year old daughter just had an upper endoscopy done last week. They were mainly checking for Celiac disease, but they also looked for EOE. She didn't have any signs of either condition, luckily, but it was interesting to learn more about EOE, as I hadn't heard of it before last week.
I dont necessarily have trouble swallowing, but its like i get a bubble stuck in my throat, in the adam's apple area on guys, and i cant get it to go away no matter how much water i drink or however many times im able to burp it doesnt go away, sometimes for a day or two
I have Osteogenesis imperfecta and albinism and Lupus. You pick
when you asked what disease we thought this would be on instagram I answered dysphagia when it's not even a disease
That’s ok! I appreciate you guessing!
Quick & easy explanation. Son diagnosed in 2017. It's been an adventure. Doc great video
I would like to hear about gastroparesis.
I have Schleraderma and lupus and have issues w/swallowing food and it getting stuck. Thanks for the video love them!
Thank you Doctor you made this very easy to understand my son was diagnosed with this in 2016. If my doctor goes out of business or retires early I'm moving to your state for treatment
I'd be really grateful if you covered TOFS syndrome (Tracheo-oesophageal fistula) or OA (Oesophageal Atresia) as I was born with both of these conditions!
tofs is when your food pipe and windpipe are connected together, it must have been treated by surgery during your first few days.
OA is very much linked to TOFS, in fact, OA is what might cause TOFS, as OA prevents your esophagus from developing properly.
@@drnatesw It was; I was given a tracheostomy which was then removed when I was 7
@@charlielittlechild happy to know that it has worked out so well in your case :)
btw, I also make some fun content on medicine, do check it out 🙂
Esophagus scarring was my nickname in college
I’ll promptly recommend this video to my gf
I just got diagnosed with esophageal hernia, can you do a video on those please?
Stumper: it hurts a lot when I swallow banana. Nothing else hurts. Just banana. I even chew it like crazy. Still hurts. Weird? Or common?
What a great video on EOE! As an SLP, could you do a comical video on who is responsible to dilate the UES/PES from a cricopharyngeal bar seen by the SLP on an MB?--a battle between GI vs ENT and the SLP gets caught in the middle 😂😂😂
Another good video Doc! 😁♥️
My hubby has this. Chokes on a piece of rice and had to have surgery to wide. Throat that helped some. Nasty business
Just got my endoscopy last week because I’ve had reflux symptoms since I was small. The doctor who did the procedure diagnosed me with EoE, but my gastro said it’s probably just allergies, so I guess I gotta get a second opinion 😅😂
Hereditary Hemochromatosis please. I'd some more info especially on the differences between men and women and age of diagnosis. :)
Wasn't my first thought long ago when seeing such a pt. in the ER. "Mrs. Smith, open your eyes. Do you by any chance can your own food? Have you eaten any of it in the last 2 days?"
Please discuss idiopathic gastroparesis
Very educational. Can you talk about Diverticulitis
My son has EoE. He's only 7 and has had 14 scopes already.
I have trouble swallowing and had a scope done. Narrowed esophagus and the report said possible beginnings of EOE. Not fun
This is what I worry about with my multiple sclerosis
I’d like to learn more about achalasia. My husband was recently diagnosed and I’ve never heard of it before.
I also want to learn more about achalasia. My GI was concerned I might have that but the tests weren’t conclusive.
Curious if eating a plant based diet could lower this Inflammation? And fasting- which seems to lower Inflammation in general.
I was just diagnosed with this in June but I am pretty sure I have had it for 20 years.I am still trying to understand and get information on eoe.I was started on Omeprazole but I am hoping I will have other treatment options as I don't want to be on ppis long term due to the side effects.
I think my partner could have this, but they have a lot of trouble with getting to the doctor because of their schizophrenia, what can i do to help them get treatment before it gets too bad?
What if you only have trouble swallowing liquids or semi-liquids? Like it feels like I have to burp it back up everytime I swallow liquid, but it is going down. Went to the Doctor and they didn't do anything and said it's probably my MS. Feels like everything gets blamed on my MS without testing anything.
Don't know if you'd expand this to psychiatric and neurological stuff but I recently learnt of the existence of musical anhedonia (alongside music agnosia) and both of these concepts are just... Weird to me... so would be interested to hear you break one or both of them down. (If my reading on them is right musical anhedonia is an inability to derive pleasure from music, while music agnosia is an inability to recognize music. Music agnosia might be more in keeping with the rest of this channel since it's usually acquired rather than an innate neurological condition as I believe musical anhedonia is)
Can regurgitating be a sign? My son is non verbal asd. Also has type 1 diabetes. He's 8 and were currently waiting to see gastro as he's regurgitating his food after every meal and having bloodsugar drops like crazy! He also seems to have delayed digesting.
Do you have any research on patients allergic to ingredients in medications leading to EOE? My husband started synthroid 1-1/2 years ago for hashimoto. He now has GI complaints leading to EGD demonstrating high eosinophils on biopsy. He has no dysphagia or issues swallowing only vague pain along with mild gastritis. Trying food elimination, but we don’t know the culprit as nothing seems to change his symptoms. He is convinced it could be ingredients in the meds. Would love and research or insights since this is a newer disease as medications causing this high eosinophil response.
I have EOE, with soy as my #1 triggering food. Discovered (after eliminating soy from my diet with great improvment for months) that a new multivitamin and a new brand of probiotic I had gotten b/c they were out of my usual brand had soy products as an ingredient, I think for the capsule itself!!!
Can things like supplement pills get stuck in a specific place when swallowing ? Specifically right side next to/slightly behind tonsils?
If you have been cleared by ENT & GI Physician’s & they can’t find the reason why things keep getting stuck, are there resources for finding a solid second opinion?
What if trouble swallowing is combined with seemingly random loss of voice, especially when entering a new room, smelling a new item or eating a random food.
It could be silent reflux
@@amberforbes3151 no amount of antacids made a difference and ENT couldn't see any inflammation with a camera down the throat.
Interesting!
Will you be my GI doc?
Barretts esophagus, laxatives and their use?
Both my Uncle and my mother have this and have to have their throat enlarged and have strictures removed periodically. My mother is now eating things almost nearly liquid or just sucking on candy as her nutrition like drinking Ensure and then just sucking on candies oh my goodness I wonder if it's this. Her regular doctor doesn't even mention that it could be this at all neither does her gastrointerologist she's 82 years old so not many doctors really care about diagnosing you because you're gonna die soon anyway
This is so sad because EoE, from my reading of everything PubMed, is very treatable, especially with a steroid and an allergy elimination protocol.
My husband's grandfather had a lot of the same diagnoses and procedures your family has, and my husband has EoE. Doctors should be able to diagnose by doing a biopsy on endoscopy. If high eosinphils are present then EoE is diagnosed. My husband also has strictures and a hiatal hernia and acid reflux. He went on a liquid diet before his first endoscopy due to scaring from food being stuck and they didn't find any eosinophils, so they assumed acid was the culprit. Then 5 years later he needed an emergency endoscopy and low and behold they found high eosinophils. A course of swallowed steroids put him on the right track. The research also shows that a high percentage of people with EoE do well with eliminating dairy from their diet, so he tries to limit it. Very likely that doctors aren't thinking of this for your family if they don't fit the description of the typical patient (my husband did at the time) - young, white, male, with history of allergies/asthma/eczema.
👏🏻👏🏻👏🏻
:ooo
speak a little faster