My baby is fed via g tube, she also has a pace maker and an auto immune disease. I'm just so amazed that you're able to have time to make videos or even have energy. How do you do it? I'm literally up almost all day because my daughter has really bad reflux as well and I need to watch her to make sure she doesn't throw up. I also loved the video if the diff. G tube formulas you reviewed. I'm looking to change to complete pediatric organic formula which is new and better than the original. Have you heard of it ?
First of all, I want to say I’m sorry about your daughter. I know how exhausting it can be, both physically and mentally, when taking care of a child with multiple co-morbidities. I hope you are taking out some self-care time. Secondly, I’m so glad you found my channel and you’ve found it helpful! When I first joined the special needs community, I noticed a lack of informative videos online. I also needed a creative outlet. So I decided to bridge that gap and start making my own. Videos take months to be ready to put up. Yes, I seem to never have enough time. Yes, it’s difficult shooting and editing videos. But is it rewarding? Absolutely! Especially when I read comments like yours, I’m inspired to put out more content.🙂 I’m actually in the process of researching some organic formula options, so I don’t have one to recommend at the moment. Hopefully, I can have that video out soon for you!
This video is brilliant and so informative, thank you for putting it up. Last time we flew was before my daughter's feeding tube and I haven't dared to plan a trip since 😃
Very informative video . Keep up the good work . I am lucky I came across this video . Can you list the name of that iv pole as it looked very hAndy and great . Also you listed in ur video that checked bag with medical supplies are not counted and they are seperate ? Can you pls explain this ? Bcoz I travelled in dec and I was not given such option and it was a nightmare to do packing with all equipment. Any suggestion on feeding bag which to buy as my daughter is using eternal pump . Also that black small pouch was quite comfy which had a hook . Don’t mind can you list them for me . It will be very helpful 😊
Hi Eram! I have added both links for the IV pole and the travel feeding bag to the description box. In regards to the medical supplies, the links to TSA website are in the description box. I would also advise you to call the airline ahead of traveling to inform them you will be bringing on medical equipment in a separate bag/box and to confirm their policies regarding checked medical equipment. Print off the policy from their website and bring it with you in case the airport officials are unaware of it. I hope this helps for the next time you fly! 🙂
Haniya I am trying to click on that links but it’s showing me server not found 😔 I tried for others they seems to be working but only that iv pole link not working , no luck . Also that travel feeding bag shows can’t be delivered to my country , but c if you can re share that I’ve pole link . Thanks
The IV pole is called "Pitch-it IV Pole". The link is working on my end. But you can also Google portable IV pole to look at some options! Hope that helps!🙂
Hi there!!! Im so happy I came across your channel and particularly this video! is stressful as it is flying around this times with the corona virus but we have to make this trip from california to boston. Im flying with delta and they have a list of machines that they allow, I have the infinity pump, are they strict on feeding pumps as well as POCs?
Hi Koalita! Thank you! I'm glad you found the videos helpful 🙂. None of the airlines, including Delta, had an issue with the feeding pump. The most TSA would do, if at all, is scan the pump outside of the carry-on. Good luck and have a safe trip!
I've tried both the infinity pump and the kangaroo pump. They're not much different from each other, but I prefer using the Kangaroo pump because it was the one we first used in the NICU so I am more comfortable with it. I can do a more in-depth review of both if you would like!
Hello beautiful people! Traveling is exhausting but visiting family makes the extra effort worth it!😊 What are your greatest struggles when traveling?
My baby is fed via g tube, she also has a pace maker and an auto immune disease. I'm just so amazed that you're able to have time to make videos or even have energy. How do you do it? I'm literally up almost all day because my daughter has really bad reflux as well and I need to watch her to make sure she doesn't throw up. I also loved the video if the diff. G tube formulas you reviewed. I'm looking to change to complete pediatric organic formula which is new and better than the original. Have you heard of it ?
First of all, I want to say I’m sorry about your daughter. I know how exhausting it can be, both physically and mentally, when taking care of a child with multiple co-morbidities. I hope you are taking out some self-care time. Secondly, I’m so glad you found my channel and you’ve found it helpful! When I first joined the special needs community, I noticed a lack of informative videos online. I also needed a creative outlet. So I decided to bridge that gap and start making my own. Videos take months to be ready to put up. Yes, I seem to never have enough time. Yes, it’s difficult shooting and editing videos. But is it rewarding? Absolutely! Especially when I read comments like yours, I’m inspired to put out more content.🙂 I’m actually in the process of researching some organic formula options, so I don’t have one to recommend at the moment. Hopefully, I can have that video out soon for you!
This video is brilliant and so informative, thank you for putting it up. Last time we flew was before my daughter's feeding tube and I haven't dared to plan a trip since 😃
I totally understand, there's definitely a ton of planning involved. I'm so glad you found it helpful! ☺️ Let me know how it goes!
Very informative video . Keep up the good work . I am lucky I came across this video . Can you list the name of that iv pole as it looked very hAndy and great . Also you listed in ur video that checked bag with medical supplies are not counted and they are seperate ? Can you pls explain this ? Bcoz I travelled in dec and I was not given such option and it was a nightmare to do packing with all equipment.
Any suggestion on feeding bag which to buy as my daughter is using eternal pump . Also that black small pouch was quite comfy which had a hook . Don’t mind can you list them for me . It will be very helpful 😊
Hi Eram! I have added both links for the IV pole and the travel feeding bag to the description box. In regards to the medical supplies, the links to TSA website are in the description box. I would also advise you to call the airline ahead of traveling to inform them you will be bringing on medical equipment in a separate bag/box and to confirm their policies regarding checked medical equipment. Print off the policy from their website and bring it with you in case the airport officials are unaware of it. I hope this helps for the next time you fly! 🙂
Haniya I am trying to click on that links but it’s showing me server not found 😔
I tried for others they seems to be working but only that iv pole link not working , no luck . Also that travel feeding bag shows can’t be delivered to my country , but c if you can re share that I’ve pole link .
Thanks
The IV pole is called "Pitch-it IV Pole". The link is working on my end. But you can also Google portable IV pole to look at some options! Hope that helps!🙂
Great and thanks for ur instant reply 😊
Hi there!!! Im so happy I came across your channel and particularly this video! is stressful as it is flying around this times with the corona virus but we have to make this trip from california to boston. Im flying with delta and they have a list of machines that they allow, I have the infinity pump, are they strict on feeding pumps as well as POCs?
Hi Koalita! Thank you! I'm glad you found the videos helpful 🙂. None of the airlines, including Delta, had an issue with the feeding pump. The most TSA would do, if at all, is scan the pump outside of the carry-on. Good luck and have a safe trip!
I saw that you had two diff feeding bags, I have the eternal pump. Which do you like better the eternal or kangaroo?
I've tried both the infinity pump and the kangaroo pump. They're not much different from each other, but I prefer using the Kangaroo pump because it was the one we first used in the NICU so I am more comfortable with it. I can do a more in-depth review of both if you would like!