Hey everyone, I can't thank you all enough for the overwhelmingly supportive comments. I wanted to let everyone know that typing is very difficult for me atm, and I am unable to respond individually to all of the comments. I apologise for this, as I want everyone to know that I am here to support you, I just can't show it at the moment due to my symptoms. Please do comment though, if you have anything to say because I am able to get my family to read them out to me. Sending peace and love, and wishing you all well with your healing journey 💚
Bedridden most every day with me cfs, fibromyalgia, osteoarthritis, ulcerative colitis and more. Cancer is in remission and I can say that me/cfs and fibro are harder esp because ppl don’t get it and judge me thinking I’m lazy. Hard to make a living wage even while getting disability. Feeling hopeless. Thank you for making this video to help me know I’m not alone
Thank you so much for your comment I'm so sorry but I am experiencing a bad crash and and I'm not able to type much at all right now. Sending support your way.
So glad to find you. I've been bedbound for 3 years and getting worse. Plus like you, I cannot talk for more than 5 minutes. I've no friends or family. Just me and my cat. It's very scary lonely and misunderstood by everyone. My head and eyes also are agony. So I'm doing this within a small window of energy. My hobbies were reading and sewing. Now I'm learning that I can do these for a maximum of 10 minutes then need to rest. So so pleased to meet you
I am not able to type much currently, but I'm grateful for your comment. So sorry things are difficult for you also. Keep strong, and I really hope it gets easier soon. Appreciate the comment, All the best :)
So sorry to hear this, but so so relived to find others like me (bedbound/housebound 3.5 years)... You just feel completely alone don't you, so impossible to explain to others or for them to understand Properly. Sending love to all of you 💜 it's so very hard, it really is like being 'buried alive' as you said Connor!
Hi conor never give up i was bedridden three years slowly improved to sit in chair and move about house still fighting M E its a devastating illness little understood keep within your energy envelope never give up big hugs from patricia knights
If GET is working for you then that's great, I tried it and it's made me bed bound, set me back a decade. I'm 30 years almost with this disease and I've tried everything, all the diets, herbalists etc. We live in hope for a cure, but first we have to find out what causes it. Positive thoughts to you 💕
Hay Conor , I'm Dee from New Zealand. I also have, fibromyalgia, crps along with heart rhythm issues. Your so brave making a video but you know what, your right when you look up cfs you dont get much, or you look and think that's so not me. You encourage others . I've added you on Instagram, we can support each other even a world away. Everyone can support each other the more we can beat this illness.
Im watching bedbound with CFS-M.E And im a 33yo female I also have hypermobile elhers danlos syndrome and POTS Postural orthostatic tachycardiasyndrome I feel your suffering and pain Just typing this is so so very difficult :-( Im bedridden daily been ill since 16 Im also on strong medication I cant shower I drag myself to the toilet ❤❤❤ your not alone Love from australia
Hi Conor, thank you for this video. I have appreciated a ginger haired guy talking to me on UA-cam. 😉. I’ve had 9 years of chronic fatigue and the word fatigue really doesn’t cut it. It’s tiredness to a completely different level. But I’m okay too. Keep going mate.
Richard it's going on 3 years for me. Debilitating fatigue into your very bones man. Getting 10 hours rest getting up with muscles so sore, feeling like I need 10 more hours and it wouldn't help. Nothing helps. It sucks.
Hello Conor, my name is Jo, I am writing you from Italy. I was bedridden for long time with ME, Fibromyalgia and Multiple Chemical Sensitivities, I really understand what you are saying in this video, I went through a real nightmare as you know, no doctor, no hospital, no test would help to understand what was going on with my health. In 2017 my body weight was so low and I was unable to eat anything at all because of MCS and ME, I was always sick in a dark room, no sounds, no light, everything was causing pain, not walking any longer, you know what I mean. I am now so much better and I am writing to you to give you hope, we can heal, it is a long and bumpy journey but is indeed possible. Because I had no answers from the current medical doctors, and sometimes I didn’t gat any help or compassion, I started a strict diet : no sugar, no dairy, no gluten, no eggs, lot of green juicing and fruit and vegetables. Than feeling a bit better I started meditating, mindfulness meditation, all other one were too stimulating for my inflamed nervous system, after a few months when I was able to sit, to go to the toilet by myself I was able to read and research for a while before getting too tired and I stumbled on an article in the Goop magazine, that was a long article and there was my full story there, from there I read little by little Anthony Williams books and implement little by little freshly squeezed celery juice and other suggestion he is giving like lemon water every day, blackberries and heavy metal smoothly. I am now 95% healed, and still struggling with MCS symptoms quite often but they are milder and last only 1 or 2 days. Have someone help you and go to the Instagram @medicalmedium, it needs a huge leap of faith but is all worthy, you do not have anything to loose when you are so ill, please trust me. I could not take any supplement because of MCS but I am so much better, go to medicalmedium.com and get his books, trust me I was safe by the fact I could not take any medications and thi has helped so much. Ciao
Yes I have to use a commode too, have to be lifted onto it, Iam like you Thanks for the videos that’s it Iam exhausted after just typing this, bed bound too
Stumbled upon your video and I feel you. I believe that this is what I have and am looking at getting it confirmed tomorrow at the doctors. Granted I’m not looking forward to the energy that it’s going to take as I’m currently bed bound unless it’s absolutely necessary and doesn’t take to much out of me. Best wishes and hopefully you are doing well.
Hi Conor, and everyone. I've been suffering like this for 6 years now. I 'm so sick of it, and unable to get out of it. I have a prolapsed disc, but it's just a title, I have pain all over my back at times and shooting pains down my legs. I'm all alone, I feel, and would love to talk to you, I can't even speak on a video like you because I feel like my face is horrible (from nicotine, from vaping, acne that I've never had before, had it for 2 years now, since I've been vaping, though I wasn't a smoker). Always was an outgoing, adventurous, loving, caring (about animals and children and my dear friends, 4 who I was close to passed away from 2014 - 2016). I' m rambling a little here. Jus t feel very alone, and stuck in a major rut. If anyone wants to get in touch, please do, I am on FB, and Twitter, a little on Insta, but I do not communicate, like send regular messages etc. I want to, but sometimes I suffer extreme exhaustion, or otherwise feel too zombified, I know you guys will understand, Conor it would be lovely to really get to know your and share with you like a close friend. Hope you are feeling better more and more. I did set up a group on FB for ppl to discuss whatever is on their minds, but it didn't really take off, when I find it, I will link it, I don't wanna be the only one sharing, it's why I stopped using the group, I miss my friends, I do not get close to many people, so these guys, I had a friend each year or so, if that and that was the only person I shared with and it was reciprocated. One mate, we used to swim in the sea in Wales together, when both of us were feeling ok, which was not most the time, not nearly enough use of the precious sea moments, but I have those memories and they are important, if heartbreaking. Wishing you all the best to recover or live a better quality life, lots of love, Kitty x x x
Thank you so much for your comment I'm so sorry but I am experiencing a bad crash and and I'm not able to type much at all right now. Sending support your way.
Bless you Conor I looked up I'm exhausted and can't move yet again. After 15 years of progressive exhaustion and pain I'm trying to figure it out. At least I can say I've tried everything. Your vidio helped me feel less alone.🐇
I'm so sorry you are struggling. For me, the only way I've been able to improve is just to make extremely small increases in activity every week, and to rest through it. I'm sorry I can't be of more help. Warmest regards.
May God bless you, Conor! Keep up the fight! You are amazing! Definitely get tested for parasites. Only 2 reputable labs that can find them. They cause horrible pain, fatigue, and GI issues. They can be disseminated in the body. Parawellness Research Center is reputable. Hope you have been tested for Lyme disease as well. Never give up hope or seeking answers!! You can get well!
Hi Conor I’m a fellow bedbounder & this last Christmas was my 5th in bed & on my own other than a quick visit from my brother & 2 nieces at 8am before I went to sleep “for the night” (my sleep is fully reversed). I finished the year in the same place I started. I had made significant progress during first 6 months but a MRI & 2 dental apt’s saw me crash back further than I had been at start of year which was just devastating. Thankfully I’m back on the up. I’m really interested to know what your graded exercise therapy entails whilst being bed bound. I do things like stretches and trying to increase time sitting up in bed. I’m glad I found you & will check out your other videos 😀
Hi Conor, Bless you & thank you for sharing your journey. You are not alone. I have had Chronic Fatigue & Fibromyalgia for many years. I have had seasons of bring bed bound for months and many better times of enjoying a part normal life. I have just spent 2 years bed bound. It’s hard and my heart goes out to you. I relate to all your symptoms. 😘
I've had ME/CFS progressive for over 10 years. I'm still not bedbound. As far as SIBO you would do a hydrogen sulfide breath test and anti-vinculin blood test. Neither of those things are available from the NHS. You don't test for SIBO by doing a colonoscopy and stool test. However, you should do a stool pathogen test which is a PCR test which can be useful, and a calprotectin test for inflammation, but that is still different than a culture test.
I'm sorry to hear of your struggle. I hope things pick up for you soon :) Thanks for your advice, yeah I had the breath tests through private doctors, and rounds of antibiotics which didn't do anything. The NHS gastro said she thinks the problem isn't bacterial related, and is due to sensitisation of the nerves in the gut. I think I agree with her on that now. As always though, learning every day. Wishing you well.
@@conorhope2307 I m bed bound by klopomin idiot doctor gave it to me for sleep marihuana helps also I have akathasia youtube it I dont think I m going to make it. No doctors can help dam big pharma
So sorry to hear you're in a similar situation. Sending my support. I post any updates on this channel, and my Instagram @bedboundbotany Can't usually type too much, but I appreciate your comment :) all the best
Have you tried prolonged fasting Connor? It has helped me with my long covid. I am very uneducated on the topic of CFS/ME. Just suggesting. God bless you brother🙏🏼
I suffer from fibromyalgia, and I have osteoarthritis all over my body and my joints and now I have psoriatic arthritis. My point is I’m only 5 foot tall and I have a daughter in a wheelchair that is severely disabled. I cannot walk or talk or do pretty much anything so basically I live for two people, I don’t have the choice to lay down. I don’t have the choice to do anything I’m on my feet all day taking care of my daughter and they want to cry pretty much all the time because I am in so much pain in my body, but I want you to know Jesus is going to wipe away all my tears. Oh my daughters tears and we will suffer no more as soon as he comes and he’s coming very very soon I look forward to that moment, and when he calls us up to him, I probably will collapse in front of his feet when I see his face because I will finally finally be in front of him seeing him and I don’t know I’ll be so happy I’ll just probably collapse. I am so excited to be with Jesus, my Lord and Savior for eternity.
Hey I have cfs too, was wondering how you survive, pay bills and live. I don't have a job at the moment and it is getting harder and harder for me to work. I feel like shit everyday, my relationship is crumbling and i have no freinds. How do you do t? How do you keep hope? My GF has lost all compassion and thinks I am lazy. I wish she could feel this for one hour and understand.
Thank you so much for your comment I'm so sorry but I am experiencing a bad crash and and I'm not able to type much at all right now. Sending support your way.
That's crazy. Please seek some help on groups/forums etc because I'm sure there are people in the US who could help you get medical advice and help. Really hope things start to work out for you. :)
Dam the USA for not helping people with pain medication. Because of the opioid epidemic those who are really suffering get to suffer more. I'm next door in Canada and the doctors here will help the people who truly need help. If I was not able to get help for my pain it would have been the end for me. Get a lawyer and sue the state you are in.
I agree with that. I saw that you left another comment, but youtube seems to have deleted it, so I can only see the first line. I'm sorry you've struggled with your health too. I hope things pick up for you overtime. All the best.
Bedridden for most of my day with central Sensitization or fibromyalgia or CFS idk i get different answers from different specialists. It's been 9 years, on & off, for me. Definitely spent the better part of that 9 years in bed. Im tired of living like this.
So sorry to hear that. Really hope things can get better for you. I think the power lies in consistent incremental changes, over a long period of time. Sending strength and support.
Honestly, I have been mad at the world I’m always alone I haven’t how many friends because I’m always taking care of my daughter. I had her when I was 18 and she was from being raped by three guys the night of my high school graduation. She’s awesome now and I love her dearly. It’s been a very very hard long road. She’s 34 and I am 53. I just know that she’s taught me a lot And I love her dearly but the loneliness that I have felt all these years have been horrendous and now it’s getting worse because I tell people about Jesus and they told me off. Unfortunately a lot of people don’t want to hear about Jesus I don’t know why who wouldn’t want to go be with Jesus and be made new and not ever have pain or sorrow anymore maybe people who’ve never experience pain and suffering I don’t get it I don’t know. I just hope you seriously listen to what I’m saying.
@@conorhope2307 There is no doubt, what I can see, that you will improve through time. You got that will... I was lucky that I dropped only to 20% in Spring 2019, now in April 2022 I am practically back 95%. Every next level on cfs/me scale will be easiest and shorter... One advice, hope you got a total dark room when you go to sleep, even when the day is out you can't tell the difference, its realy important for a good night sleep. Probably the most important thing. With Love, Mike. ♥️
I pray that you have Jesus in your heart!!!!! Jesus is coming for the true believers any moment. If you don’t have him please confess your sins and ask Jesus in to you heart now. If you have him you will go to heaven and receive a new body. No more pain and suffering. For eternity!!!!! If you don’t have Jesus unfortunately you will perish . I don’t even want to say it but nonbelievers go to hell and suffer eternal damnation for ever. It’s too late to sugarcoat anything Jesus is almost here. He comes in the clouds and calls us up to him. It’s in the Bible it’s almost time. Get Jesus I’ll get left behind.
![Life with ME/CFS | Professor Warren Tate [Chronic Fatigue | ME]](/img/n.gif)
Hey everyone, I can't thank you all enough for the overwhelmingly supportive comments. I wanted to let everyone know that typing is very difficult for me atm, and I am unable to respond individually to all of the comments. I apologise for this, as I want everyone to know that I am here to support you, I just can't show it at the moment due to my symptoms. Please do comment though, if you have anything to say because I am able to get my family to read them out to me. Sending peace and love, and wishing you all well with your healing journey 💚
Bedridden most every day with me cfs, fibromyalgia, osteoarthritis, ulcerative colitis and more. Cancer is in remission and I can say that me/cfs and fibro are harder esp because ppl don’t get it and judge me thinking I’m lazy. Hard to make a living wage even while getting disability. Feeling hopeless. Thank you for making this video to help me know I’m not alone
Thank you so much for your comment I'm so sorry but I am experiencing a bad crash and and I'm not able to type much at all right now.
Sending support your way.
So glad to find you. I've been bedbound for 3 years and getting worse. Plus like you, I cannot talk for more than 5 minutes. I've no friends or family. Just me and my cat. It's very scary lonely and misunderstood by everyone. My head and eyes also are agony. So I'm doing this within a small window of energy. My hobbies were reading and sewing. Now I'm learning that I can do these for a maximum of 10 minutes then need to rest. So so pleased to meet you
I am not able to type much currently, but I'm grateful for your comment.
So sorry things are difficult for you also. Keep strong, and I really hope it gets easier soon.
Appreciate the comment,
All the best :)
So sorry to hear this, but so so relived to find others like me (bedbound/housebound 3.5 years)... You just feel completely alone don't you, so impossible to explain to others or for them to understand Properly. Sending love to all of you 💜 it's so very hard, it really is like being 'buried alive' as you said Connor!
bless you all
Bedbound also without any friends or family at all! My cats honestly keep me going! I see you. 💜
Keep going, it can get better 💪
Hi conor never give up i was bedridden three years slowly improved to sit in chair and move about house still fighting M E its a devastating illness little understood keep within your energy envelope never give up big hugs from patricia knights
Thank you so much for your comment. Well done for making those improvements! All the very best :)
If GET is working for you then that's great, I tried it and it's made me bed bound, set me back a decade. I'm 30 years almost with this disease and I've tried everything, all the diets, herbalists etc. We live in hope for a cure, but first we have to find out what causes it. Positive thoughts to you 💕
Thanks so much for your comment! Please see the pinned comment in the comment section, wishing you well.
What is "GET?"
Hay Conor , I'm Dee from New Zealand. I also have, fibromyalgia, crps along with heart rhythm issues. Your so brave making a video but you know what, your right when you look up cfs you dont get much, or you look and think that's so not me. You encourage others . I've added you on Instagram, we can support each other even a world away. Everyone can support each other the more we can beat this illness.
Thanks so much for your comment! Please see the pinned comment in the comment section, wishing you well.
Im watching bedbound with CFS-M.E
And im a 33yo female
I also have hypermobile elhers danlos syndrome and POTS
Postural orthostatic tachycardiasyndrome
I feel your suffering and pain
Just typing this is so so very difficult :-(
Im bedridden daily been ill since 16
Im also on strong medication
I cant shower
I drag myself to the toilet ❤❤❤ your not alone
Love from australia
Hi Conor, thank you for this video. I have appreciated a ginger haired guy talking to me on UA-cam. 😉. I’ve had 9 years of chronic fatigue and the word fatigue really doesn’t cut it. It’s tiredness to a completely different level. But I’m okay too. Keep going mate.
Thanks so much for your comment! Please see the pinned comment in the comment section, wishing you well.
Richard it's going on 3 years for me. Debilitating fatigue into your very bones man. Getting 10 hours rest getting up with muscles so sore, feeling like I need 10 more hours and it wouldn't help. Nothing helps. It sucks.
OMG another Conor with ME/CFS! I am hoping things are going better for you.
Things get really hard for me around the holidays...
Hope things are feeling a little better 💪🌿
Hello Conor, my name is Jo, I am writing you from Italy. I was bedridden for long time with ME, Fibromyalgia and Multiple Chemical Sensitivities, I really understand what you are saying in this video, I went through a real nightmare as you know, no doctor, no hospital, no test would help to understand what was going on with my health. In 2017 my body weight was so low and I was unable to eat anything at all because of MCS and ME, I was always sick in a dark room, no sounds, no light, everything was causing pain, not walking any longer, you know what I mean.
I am now so much better and I am writing to you to give you hope, we can heal, it is a long and bumpy journey but is indeed possible.
Because I had no answers from the current medical doctors, and sometimes I didn’t gat any help or compassion, I started a strict diet : no sugar, no dairy, no gluten, no eggs, lot of green juicing and fruit and vegetables. Than feeling a bit better I started meditating, mindfulness meditation, all other one were too stimulating for my inflamed nervous system, after a few months when I was able to sit, to go to the toilet by myself I was able to read and research for a while before getting too tired and I stumbled on an article in the Goop magazine, that was a long article and there was my full story there, from there I read little by little Anthony Williams books and implement little by little freshly squeezed celery juice and other suggestion he is giving like lemon water every day, blackberries and heavy metal smoothly.
I am now 95% healed, and still struggling with MCS symptoms quite often but they are milder and last only 1 or 2 days.
Have someone help you and go to the Instagram @medicalmedium, it needs a huge leap of faith but is all worthy, you do not have anything to loose when you are so ill, please trust me.
I could not take any supplement because of MCS but I am so much better, go to medicalmedium.com and get his books, trust me I was safe by the fact I could not take any medications and thi has helped so much. Ciao
Keep working hard with your therapy, Conor. You seem very gutsy and I think that will carry you through!
Thank you so much! :)
Hey Conor. Your a brave chap. Keep fighting. One day you will be tending to your own outside garden. Until then stay strong.
Thanks man, means a lot.
Yes I have to use a commode too, have to be lifted onto it, Iam like you
Thanks for the videos that’s it Iam exhausted after just typing this, bed bound too
Stumbled upon your video and I feel you. I believe that this is what I have and am looking at getting it confirmed tomorrow at the doctors. Granted I’m not looking forward to the energy that it’s going to take as I’m currently bed bound unless it’s absolutely necessary and doesn’t take to much out of me. Best wishes and hopefully you are doing well.
I really hope they are able to offer you some help and guidance. Wishing you all the best, and stay strong.
Hi Conor, and everyone. I've been suffering like this for 6 years now. I 'm so sick of it, and unable to get out of it. I have a prolapsed disc, but it's just a title, I have pain all over my back at times and shooting pains down my legs. I'm all alone, I feel, and would love to talk to you, I can't even speak on a video like you because I feel like my face is horrible (from nicotine, from vaping, acne that I've never had before, had it for 2 years now, since I've been vaping, though I wasn't a smoker). Always was an outgoing, adventurous, loving, caring (about animals and children and my dear friends, 4 who I was close to passed away from 2014 - 2016). I' m rambling a little here. Jus t feel very alone, and stuck in a major rut. If anyone wants to get in touch, please do, I am on FB, and Twitter, a little on Insta, but I do not communicate, like send regular messages etc. I want to, but sometimes I suffer extreme exhaustion, or otherwise feel too zombified, I know you guys will understand, Conor it would be lovely to really get to know your and share with you like a close friend. Hope you are feeling better more and more. I did set up a group on FB for ppl to discuss whatever is on their minds, but it didn't really take off, when I find it, I will link it, I don't wanna be the only one sharing, it's why I stopped using the group, I miss my friends, I do not get close to many people, so these guys, I had a friend each year or so, if that and that was the only person I shared with and it was reciprocated. One mate, we used to swim in the sea in Wales together, when both of us were feeling ok, which was not most the time, not nearly enough use of the precious sea moments, but I have those memories and they are important, if heartbreaking. Wishing you all the best to recover or live a better quality life, lots of love, Kitty x x x
Thank you so much for your comment I'm so sorry but I am experiencing a bad crash and and I'm not able to type much at all right now.
Sending support your way.
You are not alone.
Hey, are you still suffereing from this? also what is your insta?
In recovery now 🙌 my Instagram is @bedboundbotany
Bless you Conor I looked up I'm exhausted and can't move yet again. After 15 years of progressive exhaustion and pain I'm trying to figure it out. At least I can say I've tried everything. Your vidio helped me feel less alone.🐇
I'm so sorry you are struggling. For me, the only way I've been able to improve is just to make extremely small increases in activity every week, and to rest through it. I'm sorry I can't be of more help. Warmest regards.
@@conorhope2307 your helpful by just being there so I feel less alone and or crazy...🌏✌
God bless you man. Keep fighting and looking forward.
Thank you! It's great to see the pawpaw videos, and hopefully once I'm up and about, I will get myself some plants. :)
You let me know if I can help with that
@@Qingeaton thanks, I will do :)
May God bless you, Conor! Keep up the fight! You are amazing! Definitely get tested for parasites. Only 2 reputable labs that can find them. They cause horrible pain, fatigue, and GI issues. They can be disseminated in the body.
Parawellness Research Center is reputable. Hope you have been tested for Lyme disease as well. Never give up hope or seeking answers!! You can get well!
Love from London bro!
Thank you for showing us, that in the greatest of trials we can keep positive.
Big love
Joe 👊🏾
Cheers man!
And good stuff with the figs and persimmons! All looking great 🙌
Conor Hope thanks bro 👊🏾
Hi Conor
I’m a fellow bedbounder & this last Christmas was my 5th in bed & on my own other than a quick visit from my brother & 2 nieces at 8am before I went to sleep “for the night” (my sleep is fully reversed). I finished the year in the same place I started. I had made significant progress during first 6 months but a MRI & 2 dental apt’s saw me crash back further than I had been at start of year which was just devastating. Thankfully I’m back on the up.
I’m really interested to know what your graded exercise therapy entails whilst being bed bound.
I do things like stretches and trying to increase time sitting up in bed.
I’m glad I found you & will check out your other videos 😀
Thanks so much for your comment! Please see the pinned comment in the comment section, wishing you well.
I hope you are stable.
Hi Conor, Bless you & thank you for sharing your journey. You are not alone. I have had Chronic Fatigue & Fibromyalgia for many years. I have had seasons of bring bed bound for months and many better times of enjoying a part normal life. I have just spent 2 years bed bound. It’s hard and my heart goes out to you. I relate to all your symptoms. 😘
Thanks so much. So sorry you have struggled too, let's hope those periods of feeling better, become the norm. All the very best :)
I've had ME/CFS progressive for over 10 years. I'm still not bedbound. As far as SIBO you would do a hydrogen sulfide breath test and anti-vinculin blood test. Neither of those things are available from the NHS. You don't test for SIBO by doing a colonoscopy and stool test. However, you should do a stool pathogen test which is a PCR test which can be useful, and a calprotectin test for inflammation, but that is still different than a culture test.
I'm sorry to hear of your struggle. I hope things pick up for you soon :) Thanks for your advice, yeah I had the breath tests through private doctors, and rounds of antibiotics which didn't do anything. The NHS gastro said she thinks the problem isn't bacterial related, and is due to sensitisation of the nerves in the gut. I think I agree with her on that now. As always though, learning every day. Wishing you well.
@@conorhope2307 Is this from benzos?
@@tyrel-fg7zf I haven't had benzodiazopine before I don't think. Its hard to remember as I've had so many medications.
@@conorhope2307 I m bed bound by klopomin idiot doctor gave it to me for sleep marihuana helps also I have akathasia youtube it I dont think I m going to make it.
No doctors can help dam big pharma
Hey Conor , I am from India. Suffering from CFS from last 4 years.
Sorry to hear you're also suffering. Sending strength and support 🌿
Hi Conor, I am also bedbound and have been going on 3years I would love to stay in touch with you as a fellow sufferer. Sending ❤️
So sorry to hear you're in a similar situation. Sending my support. I post any updates on this channel, and my Instagram @bedboundbotany
Can't usually type too much, but I appreciate your comment :) all the best
Its Adam from school, i miss you buddy and i hope you get better dude ❤️ youre one of the best people i know and you can get through this
Thanks man, will catch up when I'm able :)
Have you tried prolonged fasting Connor? It has helped me with my long covid. I am very uneducated on the topic of CFS/ME. Just suggesting. God bless you brother🙏🏼
I suffer from fibromyalgia, and I have osteoarthritis all over my body and my joints and now I have psoriatic arthritis. My point is I’m only 5 foot tall and I have a daughter in a wheelchair that is severely disabled. I cannot walk or talk or do pretty much anything so basically I live for two people, I don’t have the choice to lay down. I don’t have the choice to do anything I’m on my feet all day taking care of my daughter and they want to cry pretty much all the time because I am in so much pain in my body, but I want you to know Jesus is going to wipe away all my tears. Oh my daughters tears and we will suffer no more as soon as he comes and he’s coming very very soon I look forward to that moment, and when he calls us up to him, I probably will collapse in front of his feet when I see his face because I will finally finally be in front of him seeing him and I don’t know I’ll be so happy I’ll just probably collapse. I am so excited to be with Jesus, my Lord and Savior for eternity.
Hey I have cfs too, was wondering how you survive, pay bills and live. I don't have a job at the moment and it is getting harder and harder for me to work. I feel like shit everyday, my relationship is crumbling and i have no freinds. How do you do t? How do you keep hope? My GF has lost all compassion and thinks I am lazy. I wish she could feel this for one hour and understand.
Thank you so much for your comment I'm so sorry but I am experiencing a bad crash and and I'm not able to type much at all right now.
Sending support your way.
In the US for me they don't believe me & won't prescribe pain medications. I like your talks thx tho!
That's crazy. Please seek some help on groups/forums etc because I'm sure there are people in the US who could help you get medical advice and help. Really hope things start to work out for you. :)
Dam the USA for not helping people with pain medication. Because of the opioid epidemic those who are really suffering get to suffer more. I'm next door in Canada and the doctors here will help the people who truly need help. If I was not able to get help for my pain it would have been the end for me. Get a lawyer and sue the state you are in.
I agree with that.
I saw that you left another comment, but youtube seems to have deleted it, so I can only see the first line. I'm sorry you've struggled with your health too. I hope things pick up for you overtime. All the best.
Keep going! See if you can see a private immunologist and B12 supplements, D3, Co-Q10 and magnesium spray will help!!
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Bedridden for most of my day with central Sensitization or fibromyalgia or CFS idk i get different answers from different specialists. It's been 9 years, on & off, for me. Definitely spent the better part of that 9 years in bed. Im tired of living like this.
So sorry to hear that. Really hope things can get better for you. I think the power lies in consistent incremental changes, over a long period of time. Sending strength and support.
Honestly, I have been mad at the world I’m always alone I haven’t how many friends because I’m always taking care of my daughter. I had her when I was 18 and she was from being raped by three guys the night of my high school graduation. She’s awesome now and I love her dearly. It’s been a very very hard long road. She’s 34 and I am 53. I just know that she’s taught me a lot And I love her dearly but the loneliness that I have felt all these years have been horrendous and now it’s getting worse because I tell people about Jesus and they told me off. Unfortunately a lot of people don’t want to hear about Jesus I don’t know why who wouldn’t want to go be with Jesus and be made new and not ever have pain or sorrow anymore maybe people who’ve never experience pain and suffering I don’t get it I don’t know. I just hope you seriously listen to what I’m saying.
Thank you i am 42.... it begsn at age 12.
Keep going, things can get better 🌿
Conor how are you doing 3 and a half years later?
Able to walk 1km a day now 😊🙌🌿
@@conorhope2307 There is no doubt, what I can see, that you will improve through time. You got that will...
I was lucky that I dropped only to 20% in Spring 2019, now in April 2022 I am practically back 95%.
Every next level on cfs/me scale will be easiest and shorter...
One advice, hope you got a total dark room when you go to sleep, even when the day is out you can't tell the difference, its realy important for a good night sleep. Probably the most important thing.
With Love, Mike. ♥️
@@mihakavcic7237 Thank you, yeah onwards and upwards 🙌🌿😊
Or a special mushrooms that help with stron chronic pain check on Google good luck
Thanks so much for your comment! Please see the pinned comment in the comment section, wishing you well.
I pray that you have Jesus in your heart!!!!! Jesus is coming for the true believers any moment. If you don’t have him please confess your sins and ask Jesus in to you heart now.
If you have him you will go to heaven and receive a new body. No more pain and suffering. For eternity!!!!! If you don’t have Jesus unfortunately you will perish . I don’t even want to say it but nonbelievers go to hell and suffer eternal damnation for ever. It’s too late to sugarcoat anything Jesus is almost here. He comes in the clouds and calls us up to him. It’s in the Bible it’s almost time. Get Jesus I’ll get left behind.