Ehlers-Danlos Syndrome/Stiff Person Syndrome, I'm still alive!

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  • Опубліковано 2 січ 2025

КОМЕНТАРІ • 8

  • @georgecastro181
    @georgecastro181 Рік тому +1

    Your videos are such a blessing Sarah! Please keep them coming! I am very sorry you’re having to go through all this but you are educating us tremendously!👏👏

  • @bettydamnboop3030
    @bettydamnboop3030 2 роки тому +4

    Sarah thank you for sharing your story with us. I’m keeping you in my prayers 🙏🏻

    • @sarahschlomer1046
      @sarahschlomer1046  2 роки тому

      I just want to thank you all for even watching my videos.
      I only put them on there because I had to do so much research to the point that it was overwhelming. Although I was born this way, it took years to find what I have.
      It just felt like it would be better for others if I just put my life out there because there aren't people doing research on both EDS&SPS by me.
      I also can't find any.
      In Michigan, we need connective tissue specialists Extremely bad.
      Seriously, thank you ❤

  • @oshunbleu6511
    @oshunbleu6511 Рік тому +2

    Oh Honey..you have so much going on.
    I'm just now on to a v-eds diagnosis.
    I have 99 percent of these symptoms.
    Hoping the one place that will genetically test for it will accept me.
    I hope you can get through this with some peace. Blessings on You , Dear One 🙏

  • @furbabiesarefamilytoo
    @furbabiesarefamilytoo 2 роки тому +1

    I have chronic migraines. I have one now watching this video

  • @lulumoon6942
    @lulumoon6942 9 місяців тому

    You have such a sweet spirit, Sarah! And you absolutely called out one of your people here, thank you! Wish you comfort and peace in your journey 🙏🕊️

  • @onnicaestelle324
    @onnicaestelle324 2 роки тому +1

    Thank u!

  • @michellelewis1090
    @michellelewis1090 Рік тому

    Most doctors do not know how important the fascia is to the body. When it starts to dry in old people it causes stiffness. I have been researching it because, at 79, the plantar fascia in my feet sometimes makes it painful to walk. I wonder if you do not have a fascia problem?