Patty did an outstanding job. no one should criticize the wife. She’s doing the best that she can and while I don’t have this in my family, I have great compassion for those that do.
Such a beautiful couple, she is an awesome wife. I don't have huntington's disease in my family but we do have cancer and diabetes. Unfortunately I got diagnosed with stage 3c ovarian cancer in 2012. My family has a history of breast cancer, but that makes you high risk for ovarian cancer and vice versa.
I don't have this gene in my family, nor do I know anyone who has it. I just want you guys to know that there are people out here who have compassion and love for the people who have to live with this horrible disease. Sending love out to all the families out there who have to suffer the loss of loved ones or even their own lives. 3 I'll share this with my children so that maybe our next generation can be more aware and compassionate as opposed to uninformed and apathetic.
if anyone can help, my buddy shane haney is suffering from huntingtons he is in a nursing home in bonner springs kansas 4/15/23 he sure could use some help. he has no support and is very strong for any clinical trial
HD wiped out my whole Moms side of my family ... i havnt been tested Yet ... if i do have im still gald that i was born ... my brother has it now he is in first stage and he is still the coolest person i ever met in my life ... Ronnieboy RULES ...
Thats easily said considering you are probably not a Huntington's patient, nor would you have a parent with Huntington's? If one of your parents had this disease, and had you before being diagnosed, would you no longer appreciate your life and wish no longer to exist?
the sad thing about HD is that it has a late symptom onset, when one ALREADY had children. Go study Genetics, it will explain you a lot about hereditary diseases.
A married couple who know HD is in one or both families can be tested to see if they carry the HD gene. If the test is positive that couple can decide NOT to have children to eliminate the risk.
It is illegal to test your children for HD. The only way to test your child is if they are showing severe symptoms of HD and a doctor would have to determine that. Even when the child turns 18 they still cannot get tested until they are 20, again, unless they are showing severe symptoms. My feeling... It's better to know there is a chance you don't have it then finding out you do and knowing you are going to suffer slowly to your death.
There are far too many people in this world already. Why not adopt a needy child instead of potentially subjecting one of your own children to a fifty/fifty chance of inheriting a horrible fate?
Most of the time folks with HD don't know they have HD until late in life, when they already have kids on the ground. Genetic testing everyone could wipe this disease out, but not everyone can handle learning they have a fatal disease early on in life. A disease that might not affect them until much later in their lives.
@jpayres - there is probably more that can be done right now. Glutamate excito-toxicity is in chain of steps that kills neurons... and nature's endo-cannabinoid system is in place to stop this toxicity. Eating plenty of Omega-3s, limiting Omega-6, and avoiding MSG, alcohol + sugar should help the body slow progression of the dementia (neuron stress and death). These are NOT cures, but might help to greatly slow the progression.
I hope this wife has changed her thoughts on this. Watching this in 2022, she seems pretty ignorant on this disease. If my spouse saw me declining and decided not to tell me, I’d be pretty upset.
watch the first documentary about huntington disease in portuguese made in brazil, we're looking for channels to show it. see on my profille, the " convivendo com a doença de huntington" video
Patty did an outstanding job. no one should criticize the wife. She’s doing the best that she can and while I don’t have this in my family, I have great compassion for those that do.
10 years has long gone and sadly no cure. This disease was present in my ancestry. This hits close to home.
I thought the same, very sad. I hope this family had no children with HD because now they probably would be affected too.
Such a beautiful couple, she is an awesome wife. I don't have huntington's disease in my family but we do have cancer and diabetes. Unfortunately I got diagnosed with stage 3c ovarian cancer in 2012. My family has a history of breast cancer, but that makes you high risk for ovarian cancer and vice versa.
I don't have this gene in my family, nor do I know anyone who has it. I just want you guys to know that there are people out here who have compassion and love for the people who have to live with this horrible disease. Sending love out to all the families out there who have to suffer the loss of loved ones or even their own lives. 3 I'll share this with my children so that maybe our next generation can be more aware and compassionate as opposed to uninformed and apathetic.
You are doing quite well at this point and have a positive outlook on life and on dealing with HD. God bless and and your family.
I thought this was really good. It's hard to find video of someone in the earlier stages. My husband has HD too.
hows he doing now?
if anyone can help, my buddy shane haney is suffering from huntingtons he is in a nursing home in bonner springs kansas 4/15/23 he sure could use some help. he has no support and is very strong for any clinical trial
HD wiped out my whole Moms side of my family ... i havnt been tested Yet ... if i do have im still gald that i was born ... my brother has it now he is in first stage and he is still the coolest person i ever met in my life ... Ronnieboy RULES ...
I hope you are still doing well. Sorry about Ronnie getting HD. Hope he is doing ok now.
Thats easily said considering you are probably not a Huntington's patient, nor would you have a parent with Huntington's? If one of your parents had this disease, and had you before being diagnosed, would you no longer appreciate your life and wish no longer to exist?
the sad thing about HD is that it has a late symptom onset, when one ALREADY had children. Go study Genetics, it will explain you a lot about hereditary diseases.
A married couple who know HD is in one or both families can be tested to see if they carry the HD gene. If the test is positive that couple can decide NOT to have children to eliminate the risk.
Woody Gutherie died of this terrible disease.
She shouldn't stop her children from testing for HD. It is their right to know. My Parents wouldn't stop us.
When did this interview take place?
It is illegal to test your children for HD. The only way to test your child is if they are showing severe symptoms of HD and a doctor would have to determine that. Even when the child turns 18 they still cannot get tested until they are 20, again, unless they are showing severe symptoms. My feeling... It's better to know there is a chance you don't have it then finding out you do and knowing you are going to suffer slowly to your death.
What?! Why the fuck!? I want to get tested!!!
Londen Tabor I don't think it's illegal here in the US, but most doctors will not test a child after they're born for ethical reasons.
Australia it’s the age of 18 yrs
Why is it illegal to test a child?
What a caring lovely wife
There are far too many people in this world already. Why not adopt a needy child instead of potentially subjecting one of your own children to a fifty/fifty chance of inheriting a horrible fate?
Most of the time folks with HD don't know they have HD until late in life, when they already have kids on the ground. Genetic testing everyone could wipe this disease out, but not everyone can handle learning they have a fatal disease early on in life. A disease that might not affect them until much later in their lives.
Some people don't find out until after they have children.
@YawnGod and still no cure available. My best friend has hd and it fucked up!!!
@jpayres - there is probably more that can be done right now. Glutamate excito-toxicity is in chain of steps that kills neurons... and nature's endo-cannabinoid system is in place to stop this toxicity. Eating plenty of Omega-3s, limiting Omega-6, and avoiding MSG, alcohol + sugar should help the body slow progression of the dementia (neuron stress and death). These are NOT cures, but might help to greatly slow the progression.
I hope this wife has changed her thoughts on this. Watching this in 2022, she seems pretty ignorant on this disease. If my spouse saw me declining and decided not to tell me, I’d be pretty upset.
Dr Google didn't exist back then, people didn't know much when it came to diseases, apart from what they were often told by 1 doctor.
completely agree
ty
all thanks to doctor stanley for curing my from huntington disease i am forever grateful sir
Hello early-to-mid 90's!
watch the first documentary about huntington disease in portuguese made in brazil, we're looking for channels to show it.
see on my profille, the " convivendo com a doença de huntington" video