It was thru ITSAN that I realized what was wrong with my child’s condition. My husband & I feel heartbroken when we see our 8 yr old struggle so much. But we are hopeful that one day her life will be back to normal again. My prayers to all TSW warriors.
I am currently going through this with my daughter who is only 11 yrs old. It has been so hard for us both. And still is. It made me so angry when I found out what has happened. The fact that NO doctors had warned us of possible side affects from either the topical steroids OR Redipred (oral) just makes me mad!! Isn't it THEIR responsiblility and especially *big pharmas* to warn us of these things before we use them??? Big pharma the multi trillion dollar giant is really responsible for this in my opinion. Docs just follow what they allow them to say. My doc gave me a full run down about how he could loose his lisence if he didn't play by their rules.
I totally get how you're feeling, Audrey! It's a crime no one told us about any possible dangers or side-effects about being on steroids! I hope we can all raise awareness and make sure no one else ever has to go through this.
So sorry to hear this. It seems that duration of usage and even potency doesn't always seem to correlate specifically to withdrawal symptoms and progress. Wishing you a speedy recovery.
This video gave me so much comfort during the worst of it. 6.5 months in TSW, and I'm finally seeing the light! Thanks ITSAN!!!
What's ur method
Thanks ITSAN! I'm one of those people in the video too ... 6,5 months TSW and finally seeing some improvement. Thanks for spreading the word.
+Maja Šter Tell me a bit more? I am 3 months in and my legs are horrific. I need some help
It was thru ITSAN that I realized what was wrong with my child’s condition. My husband & I feel heartbroken when we see our 8 yr old struggle so much. But we are hopeful that one day her life will be back to normal again. My prayers to all TSW warriors.
Only on my third week and although I feel horrible, this gives me so much hope! THANK YOU for spreading awareness and info
How are u now
@@thayavijay4605 hey! I started dupixent and have my life back to normal!
Thank you to ITSAN and the community you have created to educate and support the families and patients in TSW.
I am currently going through this with my daughter who is only 11 yrs old. It has been so hard for us both. And still is. It made me so angry when I found out what has happened. The fact that NO doctors had warned us of possible side affects from either the topical steroids OR Redipred (oral) just makes me mad!! Isn't it THEIR responsiblility and especially *big pharmas* to warn us of these things before we use them???
Big pharma the multi trillion dollar giant is really responsible for this in my opinion. Docs just follow what they allow them to say. My doc gave me a full run down about how he could loose his lisence if he didn't play by their rules.
I totally get how you're feeling, Audrey! It's a crime no one told us about any possible dangers or side-effects about being on steroids! I hope we can all raise awareness and make sure no one else ever has to go through this.
Thanks to everyone who made this video possible to help raise more TSW awareness!
itsan.org/rss-images/
I has been 1 year of battling TSW . I didnt experience signs like oozing or shedding of skin , but got stubborn finelines on face at 21 ..
Thanks to everyone who helped make this video possible!
stay strong warriors! healing happens
+bibblybubs I hope so :(
Kyle Romero are you the guy from the video?
So now what after steroids? How do you now treatment with eczema flares? Living on the edge and not knowing when it will
Come back
Queria tanto que tivesse legenda 😢
I’m going through the same thing and I only used topical steroid cream for 3 months 😩
So sorry to hear this. It seems that duration of usage and even potency doesn't always seem to correlate specifically to withdrawal symptoms and progress. Wishing you a speedy recovery.
I used for 6 years , got finelines , it is rlly frustrating ..