Before watching this, you may want to watch these first... Back Surgery Story Part 1: ua-cam.com/video/iGrbWeoCwW8/v-deo.html How I Broke My Back: ua-cam.com/video/FHoVtinJSb0/v-deo.html
I cannot believe the nightmare you had to endure while in the hospital. The pain from your surgery was bad enough, but having to listen to the old lady yelling all night was pure hell for you. They should have moved her out of your room. I need complete silence when I'm trying to go to sleep. My heart breaks for what you have been through. I hope you're doing better and your days are getting easier. You are one of the bravest people I have ever seen and I love seeing your smiling face. My prayers are with you during this difficult time.
@@marcK599. Oh yes I have. That's why my heart goes out to Samantha. It's bad enough just being in pain, but having a crappy room mate makes it even worse.
@@patriciahagedorn5694I’m a nurse and I can tell you right now we do sympathise with patients who are in shared rooms, who are getting over surgery and the room mate is acting out! Unfortunately there isn’t always a “spare room” a stroke patient can be very confused and we hear patients like this every shift! Try looking after them everyday lol! You are not aloud to sedate them, so what do you do, unfortunately it’s part of the hospital experience. I know it’s hard! I’ve had two spinal fusions and I was blessed to have a single room and the pain was unbearable and to have a patient like that in the same room as me would almost push me to the point of wanting wheel the patients bed out into the corridor! :) ❤
Shared wards are the worst. I’ve had my fair share of noisy patients next door, but it certainly the worst when you are in huge amounts of pain. You have been incredibly gracious understanding the trials others are going through. At the same time sleep is healing and ironically hospitals are often not restful. I’m so glad you are over those challenging days. Onwards and upwards!
Does anyone ever have a private room? Having worked in healthcare for 14 years, I’ve never seen one in the US except the ICU and some step downs. I stayed in for both cancer surgeries, 5 fertility surgeries, gallbladder surgery, and one when I had plastic surgery at 7 bc I was lifeflighted after a dog tore my face apart and knocked my front teeth out, and when I had COVID. You don’t realize until you’re a patient how damn early and often it is that they come in for vitals!! But I’ve also worked at hospitals as a tech, therapist and doctor. Imagine 36 patients all screaming for you😅😭Call bells constantly going off, you haven’t peed or eaten in 14 hours and have not sat down. And you’re getting screamed at bc you cannot answer more than 1 call bell at a time. But have to get them all within 8 seconds. She was probably so scared. And I would still rather be the worker. I would’ve given anything to be on the other side all these times, no matter how miserable work was at times and how much pain I was in working sick and in pain. You just cannot take off. I got tan over by a horse once and had to work on the broken leg bc it was a holiday and I would’ve been fired for calling off. I also wasn’t certain it was broken until I was able to go be treated after the shift. I’ve stopped working traumas to get an IV for an awful stomach bug and could not stop vomiting and changing clothes- and then go back to working. I also have been peed on, spit on, vomited on, all on purpose in the ER- and put IVs in violent patients (confused and otherwise) w 8 security guards holding them down while they (patients) try to stab me with the needle. Having no idea what the patient had in terms of infectious disease. When stabbed we had to go get HIV work up and treatment. It was scary. Men have other problems w catheters bc of their prostate! Yeah the pain of having drains removed etc was nothing. I cannot imagine the pain of a fusion and the anxiety from it being from cancer. I could never pee after the catheters!!!
@@SamanthaLI agree about the grace and class!!! Some of the comments people leave you is wild to me and shows that they’ve never been in such a situation. Or are not very bright.
@@SamanthaLalso they gave me morphine and dilaudid after my extensive thyroid surgery bc there are so many vessels and your neck is basically in a very uncomfortable position the whole time. So much tissue is cut ear to ear. I had heard as a tech how everyone wanted and loved these meds so I was like yesss!!! It did nothing. In fact it made me feel like I could feel nothing. It scared me. Toradol is like strong Motrin but I agree it’s helpful. It sucks bc none of my pain meds every came on time and you have to stay ahead of the pain. I just cry too but yeah screaming takes too much work. In fact it increased the pain!!! I don’t get using the muscles- especially my abdomen or neck- to scream. I commented above about working on the other side and 36 patients and call bells all going crazy at the same time- but still rather be on that side.
Roasted for being ungrateful? Whoever would do that is beyond evil. You have been so amazingly positive throughout this whole thing. You are the picture of grace and class ❤
Cancer a broken back back surgery being away from your breastfeeding fed baby. No It's beyond understandable the poor ladies noise would be insufferable. You're an amazing person.
@@SamanthaL I don't normally read the comments, but I did on your last video because I heard you say something similar. I was honestly shocked by the pointless negativity. I guess some people just want to kick you while you're down. I'm sorry about that. Thank you for telling your story. I'm here wishing you the best!
Honey I can so relate. I'm a 70 year old wife, mother and grandmother. I had back surgery 9/1/2023 and not recovering because the surgeon fractured my L4 and will not take responsibility but that is a longer story. Because of my age they said I need to go to a Nursing home when I got there I was due for pain meds. They didn't give my my next pill for 26 hours after I call my husband to come get me. I was homme in one week.. I could go on and on. Love watching your videos. Keep them coming
I was put on a 6 bed ward after A&E admission, I had 2 elderly ladies shouting conversation with each other from 5am and another lady screaming all night. Apparently I was put on an elderly ward as it was only bed available. I ended up crying through sheer exhaustion and discharging myself without a diagnosis, I truly feel for you. ❤
Omg these people. I can't understand why in a hospital if you're in pain they can't prescribe anything. It's all about "you had.. 4 hours ago so you need to wait". I ended up telling my partner to go home and get my prescribed opiod tablets as the hospital made a huge fuss about giving me one. I didn't bring mine into hospital as I was told it would be given. It's dreadful. Puts me off surgeries for sure. You are incredible. An incredible mum and such a beautiful soul.
Nurses are given too large of a patient load, they might have had to wait for the doctor to order a med for you, then wait for it to be delivered from the pharmacy to the floor. Most meds these days are delivered by pharmacy for each specific patient so they would have to wait for it, not just get it off a shelf for you on the unit. I’m sorry you had to suffer so much. I recently started subscribing to you and just happen to be a retired night shift nurse also so thought I could offer a little insight. I took care of children and babies most of my life and never understand why some people get annoyed with babies, yours sounds so sweet. I will be praying for you 😌🙏🏻
Yeah I know they were definitely busy. I was trying to help by giving 8 hours notice and continuing to remind them, but I also know there’s a lot of shift changes and stuff and I’m sure they had a lot on their minds too. Thanks for your comment! And yes, our daughter is the absolute sweetest :)
This is crazy! I’m a nurse and this whole scenario is messed up! Not to mention you can give Toradol by injection into a muscle. If you had been my patient this never would have happened! This is one of the reasons I left hospital nursing….they inundate you with so many patients that you are defeated before you even begin. It’s unsafe for everyone involved, I’m so sorry you had to go through this.
Being sick is tough enough, having treatment and endure surgeries as well, but sharing hospital rooms and having roomates make it all harder. You're a very empathetic person Samantha and you have gone through way too much , I'm sorry
You deserve zero negative comments. Coming from someone who has spent year almost all of my life in and out of hospitals with big surgeries. There is nothing wrong with you saying you can’t stand the roommate situation. If you don’t complain they won’t change anything. I had a roommate once who was out of her mind, yelling at me for not taking her to get a cigarette. It is okay to be honest and advocate for what you need. I feel they let you down in so many ways, and I wish I could just give you a hug. There is nothing worse than already being miserable and in the most pain you’ve ever felt. I’ve called the house manager before ( they get stuff done, don’t waste time with patient advocates). I’m glad that you are home and doing well!
I don’t think you were being ungrateful about anything. I’m sure many of us can relate. Thank you for telling us your story. I’m glad you’re feeling better.
The nurses should have called a physician to help to tranquillize the lady. The nurses should have moved you to another room or even move your bed to the hallway . The nurses direct responsibility for the comfort of the patient. I am a registered nurse.
I am a registered nurse also, you can’t just sedate a patient anymore, that is classified as a chemical restraint. Benzos post stroke are not given and any other sedation can cause a patient to fall. Increase the agitation or interfere with neurological obs. Maybe?
@@KiwikimNZI just got out of hospital and had a similar type of situation on an acute coronary ward ! Omg bleeping machines and other patients and medical staff checking you every hour to do stuff so absolutely NO sleep AND a woman snoring as loudly as a Airbus A320 taking off !! I never heard the like 😮 I am eternally grateful to the medical staff but by the end of 2 nights I was the one begging to be sedated 😢
I just don’t understand how nurses are able to deal with so many screaming patients these days. Doctors aren’t able to prescribe adequate pain medications anymore. I had never heard of someone like the 2nd lady in Samantha’s room who probably doesn’t have cancer screaming in pain. That’s what the government has done. I’ve heard of people having a surgical procedure done and been told to take ibuprofen. It’s just terrible.
You're on the floor, and call the on-call physician to okay medications already written as prn. Two hours later, it may be authorized and administered.
Samantha, you are one tough lady. So glad that you were able to get back home and have your family with you. Dad sure pitched in for his little girl. You are so loved💕
I'm a nurse, and Im so, so sorry you went through all that. 😢 Ive been on both sides, and let me tell you, hospitals are never restful and healing. 😠 Ugh. Idk what your nurses did or didn't do so i can't explain why things happened the way they did. There are things we can control and things we can't in terms of getting patients moved around or how fast we can get orders from doctors. There are so many variables in play, it just depends. And on shift, we are pulled in so many directions at the same time, it comes down to prioritizing whoever is the sickest or most unstable which means our other patients get somewhat neglected. However, NONE of that is your fault or your problem. As a patient you want to feel heard and taken care of, so again, im so sorry. It sounds like you were being as patient and understanding as you could be but of course you have to prioritize your own well-being over anothers! But never hesitate to advocate for yourself. ❤
I work in a hospital. I've worked on a stroke floor in the past as well. Oh my goodness, I feel for you & your roommate....and the nurses & aides on your floor! That is everyone's worst nightmare! I am sorry you could not have a quiet space and feel bad the woman who had a stroke didn't have someone by her side to help calm her. It is sad too that some people don't have family who can step in to help a patient in a situation like you described. Patient loads are sometimes crazy & it just takes 1 patient who needs more to throw the whole floor into chaos and a collective panic attack! It can trigger all the other patients to become more needy. I'm not saying that as a judgement- just that everyones anxiety goes way up which aggravates everything! I've worked on a Med-Surg floor that in that situation you were in have triggered other patients to put their call lights on every 5 mins. over & over again all night long. So you run from one room to another w multiple call lights on constantly even in the event that a patient may be having a medical emergency! The fact other patients are in need of attention can make other patients even more needy themselves. I am sure its an anxiety thing- I get that. (I am a nurse aide so the emergency would be dealt with.) That is a miserable, unsafe situation for everyone!! Its not the patient's fault and some times not the floor nurses & aides fault either but is a miserable, miserable situation!! Covid and post-covid repercussions seemed to aggravate things too. 😢 Just writing this out is giving me PTSD. I hope I don't sound sympathetic because I am! Being in that kind of pain is horrible. Adding a screaming roommate amplifies it exponentially! I guess my point is to mention the chain effect short staff + patients w a wide range of needs that can't/ aren't being met is pure misery for everyone! I normally like working w patients and am a caregiver by nature so to be in situations where I can't help make it better while patients get angry, nasty or are miserable is in itself misery for hospital employees too. PS Anger is a valid response when directed to the right person. As an aide we would often bear the brunt since we are the ones w the most patient interaction but also the ones w the least authority.
You handled the older lady well; you have so much patience for her shenanigans when you needed your rest to help with pain. I’m so sorry you had to go through all this. You’re a trooper!!
I am so sorry for what happened to you. I've mentioned before that many years ago when I was in my 30s I went through a major medical situation (not cancer that time; my cancer has waited until I was an old lady!) and during that time I gave birth to my daughter. When I listen to you sometimes I feel like many of my experiences are just being repeated by you! I had to go into the hospital when my infant was 2 weeks old and had to stop breastfeeding for 6 weeks. I almost bled to death in the recovery room after a procedure and nobody noticed the blood leaking into the mattress. (The nurses were very busy and I seemed to be doing "so well" that they weren't checking.) I was slowly drifting off and later I realized I was going into massive shock from blood loss. Thank goodness, a doctor finally made a routine visit and saw what was happening. When I was stabilized they put me in a shared room. I do not know what was going on with the lady in the bed next to me but she yelled all the time, night and day. Constantly screaming. Like you, I was in pain and exhausted but getting no sleep whatsoever. I can laugh about it now but at the time it didn't seem very funny. I want to tell you that you are a very very brave lady. And your willingness to share your story so that the truth about what it's like to battle major illness, both the good, the bad, and the ugly, is so helpful. Even if we don't know each other, or any of the other women who are going through this and who follow you, I think we all feel that we are walking together because we connect through you. Give your dear daughter a hug from an old grandma who thanks God every day that she is still here to give her own grandchildren those hugs. As you will give them to your little grands someday.
You certainly don't deserve any negative comments at all. You have been through too much. Fighting cancer is a huge battle itself without all thing extra things you have had to experience. I know very well since I have been in the fight for 4 years myself.Those older people should be ashamed of themselves since she was such a good baby, They should have been complimenting her and you. I hope things continue to improve for you now, Take care and keep fighting.
I have MS and caregive for our medically fragile daughter. I have had the stiff man spasms full body bone squeezing over and over for months. Then i got meds to stop. That was the worst pain of my life!! I had to lay flat and try and gasp for breath while screaming involuntarily. 😢😢😢. I agree trying to focus to relax is key
@@SamanthaL. Magnesium citrate daily. Its called natural calm. A powder we put in a tiny bit of hot watee then some cold. If I drink a small half daily dose of this magnesium it CURES those body bone spams! Have not had them for years. Makes me wonder if it would help celine dion and others
I cried when you sent the first video. Just everything you, Gray, and baby went through. I especially remember it was so important to get the family photo session, and you soldiered through. 😮 Amazing Samantha. 🌷
Samantha, I’ve been a prayer warrior for you since your journey began, and I will always be, this make me so sad, you’ve been through more than anyone should have to endure, my love, hugs, prayers, positive energy and vibes I’m sending to you sweetie🙏🏼🥰☮️💝🦋🫶🏼✝️🌞💐🕊️🌸🩷❣️❣️❣️❣️
That hospital stay sounds awful! Pain management isn't always easy. Morphine knocks me right out. I can't function on it. Hospitals kinda freak me out, and they aren't comfortable, you're right about that too. Being home in my own bed is sometimes the BEST feeling in the world! Your fortunate to have such a supportive family. Your mom sounds great! My mom passed away in February, and I'm still not quite myself since. She was an ICU nurse, so she was always great during these kinds of things. She woulda had that unit entirely under her authority the whole time, lol, kinda like your mom was for you. I think it's sweet. She must be terribly concerned for you, so I can't blame her for not being able to stand by watching you in that much pain! You'd do the same for your baby too! Love & hugs, Samantha! Thanks for sharing your story!
I'm sorry you're going through this. I too have MBC diagnosed @35, first was stage II@30....now on chemo, Enhertu, cuz all endocrine/hormonal tx failed me....spine, lungs and chest bones are involved...you're awesome and giving hope for so many young folks with this disease....you're amazing for sharing and inspiring more to share their journey, including my own ❤❤❤
2nd comment this video, I also stumbled out of my bed and sat with the lady screaming for help, once the nurses came and said they had done everything they could I sat and spoke with her, she was the sweetest lady but was clearly confused and it broke my heart. I could hear the doctors in the morning saying she was basically end of life but I never saw anybody visit her.
I'm so sorry you went thru all of that, I'm so glad you are doing so much better! Side note- I would have been like I demand another room, I am supposed to be healing from an extensive surgery and you hear all the hollering she is doing and I can't sleep which is compromising my healing.
I had the exact same thing happen when I was in the hospital for open heart surgery. A guy screaming " help, help me!" Over and over again, day and night. It makes recovery so hard. There is no sleep to be had. The hospitals are now holding places for mentally ill or severely cognitively impaired people because there are not enough long term care beds available. At least that's the case in Canada. It's very sad, but also frustrating for people who are needing to recover from surgeries or illness.
Keep telling your story as many of us do not have the skill to do what you are doing but have experienced what you have been through. The surgery and all the emotional and physical pain it causes will always be in your memory. Unfortunately the pain of what happens next is too. I am glad that you are your own advocate and all of your family is supportive and advocates for you too. It is unfortunate that our health care system is overloaded to a point where individual care is a thing of the past. Your compassion for others is outstanding. One thing is for certain is that THERE IS NO PLACE LIKE HOME TO HEAL! I hope your doing something special for the 4th of July!
Had a fusion a little over a month ago and your hospital story sounds very familiar to mine with the meds. I am also a breast cancer survivor of 5 years and so scared it will return or spread because I refused to take tamoxifen. Anyways, been watching you for awhile and think you are a tough girl for everything you have been through. Oh- my daughters name is Samantha so 👍
My goodness what an ordeal!! A baby on first class….HECK YES❤ I’m so glad you have an AMAZING FAMILY SUPPORT SYSTEM!! How is your back feeling now? I really enjoy your videos. You are one TOUGH COOKIE!!!
Did nobody in that hospital know that sleeping helps healing!? I'm impressed at how quickly you have recovered just because from Day 1 they were setting you up for a long, painful recovery simply by not making sure you were able to get any amount of sleep. P.S. I've had multiple back surgeries, so I understand that *just* because you're able to sleep at all doesn't mean you're A-okay. It does make a small difference, though.
Oh man I’ve had back pain that is in this level, it’s un-liveable pain, It felt like I was cut in half at my tail bone, couldn’t put ANY pressure on it, walk sit or even lay in a single position for more than 30 seconds, with intense sharp spasm like sharp stabbing every 30 seconds, zero sleep for two nights, no meds either, I feel for u man x
Samantha, I am so sorry that you had to share the same room with a woman that was so noisy and unpleasant especially when you were in so much pain. I am glad that she moved to another room. I would had not put up with a person like that.
Samantha, I would have felt the same way! How overwhelming & stressful 😥. I'm so sorry you are going through this, I pray for comfort & strength for you! Also, I hate the radio & prefer silence whenever I can get it.. I thought I was the only one, lol
Im so sorry you even had to ask to be ready for pain meds. That is not your job but good for you for trying and that stinks the care you got was so sparce😢
You and I went stage 4, mets in spjne and ribs at about the same time. Thank you for sharing this experience. It will be a help for me, also now I understand the weird pains I get. Fortunately my oncology team is mostly understanding and support me with therapy and pain meds, but hospitals are another trial to endure, like we don't already have enough.❤
Oh my goodness Samantha....I've had herniated discs at L 3, 4 & 5 for many years, (but general anesthesia inadvertently killed my dad, so I completely refuse surgery) and the pain is SOOO debilitating! So to have cancer, & actually to have broken your back is BEYOND WHAT I CAN IMAGINE!! I'm SOOO glad that the surgery helped you! I think of you daily, & so hope that there will continue to be therapies that can keep your cancer from spreading further. Love from toasty Sacramento California!!
No need to sugar code it. That was literally the worst torture! When we simply don't feel good we want peace, calm environment, not to be bothered so I can't even imagine what you went through!! ~ Take care!! You are so strong and SO unbelievable smart.❤ I wish you all the BEST!!!
I totally understand how frustrating it is to have a patient next to you screaming all the time and through the night ,I was in hospital for a week in February and I had a patient in the bed next to me who had very severe Alzheimer’s and she would scream and scream and yes I felt horrid for her to be so scared but when you sick it was also super frustrating too ,so I fully understand that what you went through,I’m so glad you are doing better now
The screaming lady--I went through something similar. I broke my arm very badly at school in the 4th grade. I ended up the hospital in a ward type thing with an old woman screaming and yelling all night. I was pretty much out of it and throwing up all night from the anesthesia. So it was my poor mom who tried to calm the old lady, take care of me, and knock cockroaches off the wall all night. My poor mother! Thankfully the next day I was moved to a private room but I still remember the wailing all night. Now I'm recovering from breaking L1 and injuring L4/5. You've had it so much harder and you're so strong! Glad you got through all that mess!
Samantha I’m so sorry 😞 you had to go through all that nonsense at the hospital 😢. I too have been in and out of the hospital past few months. I had a similar roommate who constantly had her tv 📺 on. She didn’t yell a lot but she had to have her light on 24/7 which directly was in my right eyesight. I asked the nurse to ask her politely if she would consider the bathroom light (especially when she was sleeping), she would not budge 😠. I was in the room before she got there. Another thing the hospital allowed visitors around the clock 🙄. They tried giving me a blindfold to help sleep and earplugs. Nothing helped. I even yelled at the lady saying “You’re not the only patient healing from surgery”, you won’t even compromise! She then yelled “I’m an older lady (not much older than me) and said “I can’t sleep with the light 💡 off”. Oh my gosh when she left I was so happy. Then next lady in my room was amazing and friendly. 🙏🏼 Thank you for updating us and I hope 🤞 you continue to heal. Like the saying goes “There’s no place like home” 🦋🌹
Samantha,if I have to go to the hospital in the future, I shall plan to bring noise-cancelling ear plugs. Thanks for telling your story, and I hope and pray for your continued stamina and well-being.
If you have the urge to pee and you have a catheter in, it is because you the tubing is either kinked, or there could be a clot blocking off the urine from draining. You poor thing. Sounds like the hospital stay from hell! I’ve had two spinal fusions, multi level thoracic and two levels in my cervical spine, and a third to remove the metalware. I totally understand the pain! I remember waking up from my surgery in recovery and thinking oh no what have I done, the pain from multiple spinal fractures was bad enough! But man I was beside myself with pain, they got me up that next morning, made me have a shower, walk and I was almost passing out! I’ll never forget that pain it is horrible I’m so sorry x
Samantha, everything is amplified after spinal surgery. I understand the over crowding. Here they just send people home with nurses visiting after 24 hours. The raw exterior pain and internal nerve firing is brutal. Thankful you got through it. Your story is more common than you think. Very thankful you had parents to help you with the traveling. People in first class seriously aren't always grounded in mind. Hope you are having a happy weekend ❤
I'm so thankful our hospitals have private rooms. I'm sorry for what you endured what you did. How did they expect you to heal being in that much pain and listening to a screaming patient.
I can't believe all that you were dealing with and having a roommate like that, making it so much worse. I got lucky bcz many times when I was in the hospital, I was by myself
Maybe hydrocodone would have worked better for you even though it's milder. Or they could have switched to dilaudid which is stronger than morphine but morphine has no maximum dose so that is helpful. There is an oral version of toradol but you're right at least the last i heard it can delay healing from surgery on bones. I wish you had had headphones or something similar to block out the lady's noise. Noise cancelling headphones could block the noise when turned on even if you don't play anything. Mine are Bose. And when the catheter balloon is deflated, it just falls out. ( Just a little wisdom from caring for some wonderful people over 30 plus years) I just thought you might need this info at some point in the future. When you know as much as possible you can advocate for yourself the best. I admire you so very much! You are my hero! If I had been your nurse, I would have been thrilled for your advice on your own care! That really helps more than you know!
@@SamanthaL Oh, also I have a set of earplugs made for me by an audiologist for swimming so I don't get an ear infection. Those also block sound pretty well so I occassionally use them for that purpose. I would definitely get something to have in a "go bag" for any hospital visit. My husband has these little ear pieces to listen to movies on his phone but they also block noise when he turns the movie off to sleep. I have a "go bag" ready for my husband cause we rarely can anticipate his hospital stays. It has a soft blanket, phone charger, and such.
I too use a tempurpedic mattress. It’s the best. I also have an adjustable bed. Poor lady couldn’t help it. That’s so sad. I’m so sorry you went through that.
All of our hospitals are private room. I guess due to HPPA regulations. It is easier to heal when you can rest for sure. Praying your healing is progressing well.
I’m dealing with Spine issues here and there to. My biggest fear is what you went through. My worry now though is the long bone in my right thigh. This is not a fun/ easy journey.
@@princessrosalina8079 I’m still going. I go back end of October to check on the cancer. I feel ok, just sore bones here and there. I’m about to hit 14 years of living with terminal cancer.
Im super sound sensitive too! I dont close cupboards, closets, and drawers fully. I hate the sound they make even when closed softly. I try to close them when my husbands home and brace myself each time😢
Just that you have to "worry" about people roasting you is absurd. Gen X here, and I'm old enough to have experienced when there was no internet. If you had something to say, you'd have to say it in person most of the time. Just the thought of somebody visiting a ward for cancer patients, approach some random patient that you don't know and say just so you know, you should be grateful that they even take care of you!
I find it so strange not being able to get Toridol tablets. I understand not taking it for healing purposes. Just seems strange. You are looking better with each video. Sending prayers.
They should have immediately shuffled patients around to match better. It’s not that difficult to do. Unfortunately, there are some people that feel they are only there to give medicine and chart. That’s it. Nothing more. Nursing has changed so much. And not for the best. Always ask for the charge nurse and be the squeaky wheel. You or a loved one are the only ones that can be the advocate for your health and safety in the hospital. You are paying for good, safe care. Demand it!
I'm the same, Samantha, I prefer silence and if I'd had to share room with someone constantly invading my space with yelling, or simply talking non-stop, playing music, it would be enough for me to scream myself. I think I'd actually scream extremely loud on purpose, just to force the staff to put me somewhere else.But that's me, I rarely win popularity contests.
Idk about babies in first class. My once in a lifetime ticket in 1st class was $12,000 . I had to ensure that I was in a quiet space and that I'd be able to sleep, otherwise I've been known to have a grand mal seisure & stop breathing. That said, anyone bringing their baby in for just the last 30 minutes of the flight is fine by me.
Wow, that’s a crazy amount of money for a flight! Idk, those people behind us caused much more of a fuss than my baby did, so babies aren’t always the problem haha
I AM SO SORRY!!! I have been a nurse for 40+ years and have worked in hospital (nursing) leadership the last 20 yrs. I am appalled at a number of things you shared - things that are inexcusable! The top 4: (1) The lack of responsiveness - to your call light and to your requests. This should NEVER happen (!)….but if it had happened once or twice for the entire stay (and was otherwise a non-issue), ok, unfortunate but things do happen. But their extended response times were NOT the exception - they were the rule. It IS THEIR FAULT. TOTALLY UNACCEPTABLE. (2) Not moving the stroke lady the FIRST NIGHT. I don’t care how FULL the hospital is (and believe me, there are many times when we are so full we have patients backed up in the ER that we can’t place because there are no beds) - but just as they finally did AFTER your awesome Mom advocated for you (GO MOM! 💪🏻🏆), THEY could have done that the FIRST NIGHT!!! In fact, YOU should have NEVER been placed in the same room with that patient in the first place! (3) The catheter should not have been “pinched” long enough to fill up to the point you feel it! They are supposed to do hourly rounding and check the catheter. I’m guessing that wasn’t happening because if it was, they would have found the kink and corrected it before you ever noticed it. (4) Your pain was not controlled AND they basically blew you off when you tried to partner with them to transition you to an oral pain med. You went above and beyond in trying to work with them - you are a great patient!!! I’m so sorry they were AGAIN - non-responsive. 😡 Thank the good Lord above this is NOT my hospital. This would NOT happen - my nurses are on point! 🙌🏼 (and it wouldn’t be tolerated if it did!!!) Your experience was horrible and NOT what it should have been. I’m so sorry. 😢
They should never have put you in a room with an elderly stroke pt that is confused! That is so not conducive to a new surgery pt and healing! I am a retired RN and that shouldn’t have happened!
I’m not sure what hospital you were in but this is horrible. My dad has back surgery and the physicians were very particular about their patients and pain regime!!!
Morphine makes me ill Fetynal i do ok with but i refuse oxy No narcotics for me. My family had addicts in it. Never struggled with substances personally but I avoid alcohol and narcotics when possible. I need to be clear headed as much as i can be
My neurosurgeon said that pain medication is no good for the back pain. I was on that from emergency doctor before I went to my neurosurgeon. They only gave me prescription very few.
May I ask, do you have any Bed Mattress recommendations for really bad backs? Any recommendations, I would GREATLY appreciate ❤ Also, i COMPLETELY relate to the sound thing. When I’m alone, especially in the car, I NEED silence. No radio, not anything. That poor lady in the room with you…it almost sounds like she had some level of dementia along with the stroke. My dad does that now and he’s suffering from Lewy Body Dementia.
Yes! I tagged two tempur-pedic mattresses that you should see in the video description (one Queen and one king size). They are pricey but they are the absolute best in my opinion and have helped sooo much so many times!
They should of never put an elderly lady in that condition in a young person's room who is in extreme pain. When my Husband had his tumor removed they put him in a private room, because I told them he was extremely scared of hospital and wanted me to stay overnight. They were very accommodating giving me pillows the lounge chair that goes all the way back, even bringing me food. I'm so sorry you went through that. Blessings and Prayers to You and Your Family ❤💙🧸🙏✨
That is just ridiculous. At times especially with a horrible disease like cancer you’re going to need pain pills. And I don’t mean aspirin or Tylenol. There might be times several times when you have to take more than one. When you’re in pain you gotta do what you Gotta do. Then later, the doctor should help you wean off of it.
Why didn’t they just order you Toradol in pill form? Both my mother and I have had to use it. Just curious as it seems like it would have been the best and easiest option for pill form pain relief
Because after a certain number of hours after the surgery, they don’t want you to continue taking toradol because it messes with the recovery. But yeah one more dose probably would’ve been fine. Not that I would’ve gotten it in my chart in a reasonable amount of time though…
Sorry Mrs Screamerton was your roommate. There is always one and usually you can hear them all the way down the hall. Ask me how I know. Next time, demand that you be moved. The squeaky wheel gets the grease.
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Before watching this, you may want to watch these first...
Back Surgery Story Part 1: ua-cam.com/video/iGrbWeoCwW8/v-deo.html
How I Broke My Back: ua-cam.com/video/FHoVtinJSb0/v-deo.html
Sucks when you have roommates that are loud .It is unfortunate. You do not get to choose a private room
I cannot believe the nightmare you had to endure while in the hospital. The pain from your surgery was bad enough, but having to listen to the old lady yelling all night was pure hell for you. They should have moved her out of your room. I need complete silence when I'm trying to go to sleep. My heart breaks for what you have been through. I hope you're doing better and your days are getting easier. You are one of the bravest people I have ever seen and I love seeing your smiling face. My prayers are with you during this difficult time.
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Well said
You’ve never stayed in a hospital
@@marcK599. Oh yes I have. That's why my heart goes out to Samantha. It's bad enough just being in pain, but having a crappy room mate makes it even worse.
@@patriciahagedorn5694I’m a nurse and I can tell you right now we do sympathise with patients who are in shared rooms, who are getting over surgery and the room mate is acting out! Unfortunately there isn’t always a “spare room” a stroke patient can be very confused and we hear patients like this every shift! Try looking after them everyday lol! You are not aloud to sedate them, so what do you do, unfortunately it’s part of the hospital experience. I know it’s hard! I’ve had two spinal fusions and I was blessed to have a single room and the pain was unbearable and to have a patient like that in the same room as me would almost push me to the point of wanting wheel the patients bed out into the corridor! :) ❤
Shared wards are the worst. I’ve had my fair share of noisy patients next door, but it certainly the worst when you are in huge amounts of pain. You have been incredibly gracious understanding the trials others are going through. At the same time sleep is healing and ironically hospitals are often not restful. I’m so glad you are over those challenging days. Onwards and upwards!
Yes, they’re never restful. No wonder I hate being in hospitals so much haha!
Does anyone ever have a private room? Having worked in healthcare for 14 years, I’ve never seen one in the US except the ICU and some step downs. I stayed in for both cancer surgeries, 5 fertility surgeries, gallbladder surgery, and one when I had plastic surgery at 7 bc I was lifeflighted after a dog tore my face apart and knocked my front teeth out, and when I had COVID. You don’t realize until you’re a patient how damn early and often it is that they come in for vitals!! But I’ve also worked at hospitals as a tech, therapist and doctor. Imagine 36 patients all screaming for you😅😭Call bells constantly going off, you haven’t peed or eaten in 14 hours and have not sat down. And you’re getting screamed at bc you cannot answer more than 1 call bell at a time. But have to get them all within 8 seconds. She was probably so scared. And I would still rather be the worker. I would’ve given anything to be on the other side all these times, no matter how miserable work was at times and how much pain I was in working sick and in pain. You just cannot take off. I got tan over by a horse once and had to work on the broken leg bc it was a holiday and I would’ve been fired for calling off. I also wasn’t certain it was broken until I was able to go be treated after the shift. I’ve stopped working traumas to get an IV for an awful stomach bug and could not stop vomiting and changing clothes- and then go back to working. I also have been peed on, spit on, vomited on, all on purpose in the ER- and put IVs in violent patients (confused and otherwise) w 8 security guards holding them down while they (patients) try to stab me with the needle. Having no idea what the patient had in terms of infectious disease. When stabbed we had to go get HIV work up and treatment. It was scary.
Men have other problems w catheters bc of their prostate! Yeah the pain of having drains removed etc was nothing. I cannot imagine the pain of a fusion and the anxiety from it being from cancer. I could never pee after the catheters!!!
@@SamanthaLI agree about the grace and class!!! Some of the comments people leave you is wild to me and shows that they’ve never been in such a situation. Or are not very bright.
@@SamanthaLalso they gave me morphine and dilaudid after my extensive thyroid surgery bc there are so many vessels and your neck is basically in a very uncomfortable position the whole time. So much tissue is cut ear to ear. I had heard as a tech how everyone wanted and loved these meds so I was like yesss!!!
It did nothing. In fact it made me feel like I could feel nothing. It scared me. Toradol is like strong Motrin but I agree it’s helpful. It sucks bc none of my pain meds every came on time and you have to stay ahead of the pain. I just cry too but yeah screaming takes too much work. In fact it increased the pain!!! I don’t get using the muscles- especially my abdomen or neck- to scream.
I commented above about working on the other side and 36 patients and call bells all going crazy at the same time- but still rather be on that side.
@@SamanthaLwas it Percocet? Or Tramadol. They work well
Roasted for being ungrateful? Whoever would do that is beyond evil. You have been so amazingly positive throughout this whole thing. You are the picture of grace and class ❤
Lol I get roasted no matter what I do/say. Thank you though!
Cancer a broken back back surgery being away from your breastfeeding fed baby. No It's beyond understandable the poor ladies noise would be insufferable. You're an amazing person.
@@SamanthaL Tell the trolls to FOAD!!!
@@SamanthaL I don't normally read the comments, but I did on your last video because I heard you say something similar. I was honestly shocked by the pointless negativity. I guess some people just want to kick you while you're down. I'm sorry about that. Thank you for telling your story. I'm here wishing you the best!
What a blessing the first lady was moved
Oh my gosh. I cannot believe you had to share a room like that. That's terrible.
Honey I can so relate. I'm a 70 year old wife, mother and grandmother. I had back surgery 9/1/2023 and not recovering because the surgeon fractured my L4 and will not take responsibility but that is a longer story. Because of my age they said I need to go to a Nursing home when I got there I was due for pain meds. They didn't give my my next pill for 26 hours after I call my husband to come get me. I was homme in one week.. I could go on and on. Love watching your videos. Keep them coming
That sounds horrible. So sorry and thanks for sharing
I’m sorry, you deserve better ❤
I was put on a 6 bed ward after A&E admission, I had 2 elderly ladies shouting conversation with each other from 5am and another lady screaming all night. Apparently I was put on an elderly ward as it was only bed available. I ended up crying through sheer exhaustion and discharging myself without a diagnosis, I truly feel for you. ❤
So sorry you had to deal with that
Omg these people. I can't understand why in a hospital if you're in pain they can't prescribe anything. It's all about "you had.. 4 hours ago so you need to wait". I ended up telling my partner to go home and get my prescribed opiod tablets as the hospital made a huge fuss about giving me one. I didn't bring mine into hospital as I was told it would be given. It's dreadful. Puts me off surgeries for sure. You are incredible. An incredible mum and such a beautiful soul.
Nurses are given too large of a patient load, they might have had to wait for the doctor to order a med for you, then wait for it to be delivered from the pharmacy to the floor. Most meds these days are delivered by pharmacy for each specific patient so they would have to wait for it, not just get it off a shelf for you on the unit. I’m sorry you had to suffer so much. I recently started subscribing to you and just happen to be a retired night shift nurse also so thought I could offer a little insight. I took care of children and babies most of my life and never understand why some people get annoyed with babies, yours sounds so sweet. I will be praying for you 😌🙏🏻
Yeah I know they were definitely busy. I was trying to help by giving 8 hours notice and continuing to remind them, but I also know there’s a lot of shift changes and stuff and I’m sure they had a lot on their minds too. Thanks for your comment! And yes, our daughter is the absolute sweetest :)
This is crazy! I’m a nurse and this whole scenario is messed up! Not to mention you can give Toradol by injection into a muscle. If you had been my patient this never would have happened! This is one of the reasons I left hospital nursing….they inundate you with so many patients that you are defeated before you even begin. It’s unsafe for everyone involved, I’m so sorry you had to go through this.
Ugh that lady needing help is so sad and not cool you had to share a room😢
Being sick is tough enough, having treatment and endure surgeries as well, but sharing hospital rooms and having roomates make it all harder.
You're a very empathetic person Samantha and you have gone through way too much , I'm sorry
You deserve zero negative comments. Coming from someone who has spent year almost all of my life in and out of hospitals with big surgeries. There is nothing wrong with you saying you can’t stand the roommate situation. If you don’t complain they won’t change anything. I had a roommate once who was out of her mind, yelling at me for not taking her to get a cigarette. It is okay to be honest and advocate for what you need. I feel they let you down in so many ways, and I wish I could just give you a hug. There is nothing worse than already being miserable and in the most pain you’ve ever felt. I’ve called the house manager before ( they get stuff done, don’t waste time with patient advocates). I’m glad that you are home and doing well!
I don’t think you were being ungrateful about anything. I’m sure many of us can relate. Thank you for telling us your story. I’m glad you’re feeling better.
The nurses should have called a physician to help to tranquillize the lady. The nurses should have moved you to another room or even move your bed to the hallway . The nurses direct responsibility for the comfort of the patient. I am a registered nurse.
I am a registered nurse also, you can’t just sedate a patient anymore, that is classified as a chemical restraint. Benzos post stroke are not given and any other sedation can cause a patient to fall. Increase the agitation or interfere with neurological obs. Maybe?
@@KiwikimNZI just got out of hospital and had a similar type of situation on an acute coronary ward ! Omg bleeping machines and other patients and medical staff checking you every hour to do stuff so absolutely NO sleep AND a woman snoring as loudly as a Airbus A320 taking off !! I never heard the like 😮 I am eternally grateful to the medical staff but by the end of 2 nights I was the one begging to be sedated 😢
Sounds like that sundowning patient had no meds ordered for episodes, which is strange.
I just don’t understand how nurses are able to deal with so many screaming patients these days. Doctors aren’t able to prescribe adequate pain medications anymore. I had never heard of someone like the 2nd lady in Samantha’s room who probably doesn’t have cancer screaming in pain. That’s what the government has done. I’ve heard of people having a surgical procedure done and been told to take ibuprofen. It’s just terrible.
You're on the floor, and call the on-call physician to okay medications already written as prn. Two hours later, it may be authorized and administered.
Samantha, you are one tough lady. So glad that you were able to get back home and have your family with you. Dad sure pitched in for his little girl. You are so loved💕
Definitely 🥰
I'm a nurse, and Im so, so sorry you went through all that. 😢 Ive been on both sides, and let me tell you, hospitals are never restful and healing. 😠 Ugh. Idk what your nurses did or didn't do so i can't explain why things happened the way they did. There are things we can control and things we can't in terms of getting patients moved around or how fast we can get orders from doctors. There are so many variables in play, it just depends. And on shift, we are pulled in so many directions at the same time, it comes down to prioritizing whoever is the sickest or most unstable which means our other patients get somewhat neglected. However, NONE of that is your fault or your problem. As a patient you want to feel heard and taken care of, so again, im so sorry. It sounds like you were being as patient and understanding as you could be but of course you have to prioritize your own well-being over anothers! But never hesitate to advocate for yourself. ❤
I work in a hospital. I've worked on a stroke floor in the past as well. Oh my goodness, I feel for you & your roommate....and the nurses & aides on your floor! That is everyone's worst nightmare! I am sorry you could not have a quiet space and feel bad the woman who had a stroke didn't have someone by her side to help calm her. It is sad too that some people don't have family who can step in to help a patient in a situation like you described. Patient loads are sometimes crazy & it just takes 1 patient who needs more to throw the whole floor into chaos and a collective panic attack! It can trigger all the other patients to become more needy. I'm not saying that as a judgement- just that everyones anxiety goes way up which aggravates everything! I've worked on a Med-Surg floor that in that situation you were in have triggered other patients to put their call lights on every 5 mins. over & over again all night long. So you run from one room to another w multiple call lights on constantly even in the event that a patient may be having a medical emergency! The fact other patients are in need of attention can make other patients even more needy themselves. I am sure its an anxiety thing- I get that. (I am a nurse aide so the emergency would be dealt with.) That is a miserable, unsafe situation for everyone!! Its not the patient's fault and some times not the floor nurses & aides fault either but is a miserable, miserable situation!!
Covid and post-covid repercussions seemed to aggravate things too. 😢 Just writing this out is giving me PTSD. I hope I don't sound sympathetic because I am! Being in that kind of pain is horrible. Adding a screaming roommate amplifies it exponentially! I guess my point is to mention the chain effect short staff + patients w a wide range of needs that can't/ aren't being met is pure misery for everyone! I normally like working w patients and am a caregiver by nature so to be in situations where I can't help make it better while patients get angry, nasty or are miserable is in itself misery for hospital employees too. PS Anger is a valid response when directed to the right person. As an aide we would often bear the brunt since we are the ones w the most patient interaction but also the ones w the least authority.
You handled the older lady well; you have so much patience for her shenanigans when you needed your rest to help with pain. I’m so sorry you had to go through all this. You’re a trooper!!
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I am so sorry for what happened to you. I've mentioned before that many years ago when I was in my 30s I went through a major medical situation (not cancer that time; my cancer has waited until I was an old lady!) and during that time I gave birth to my daughter. When I listen to you sometimes I feel like many of my experiences are just being repeated by you! I had to go into the hospital when my infant was 2 weeks old and had to stop breastfeeding for 6 weeks. I almost bled to death in the recovery room after a procedure and nobody noticed the blood leaking into the mattress. (The nurses were very busy and I seemed to be doing "so well" that they weren't checking.) I was slowly drifting off and later I realized I was going into massive shock from blood loss. Thank goodness, a doctor finally made a routine visit and saw what was happening. When I was stabilized they put me in a shared room. I do not know what was going on with the lady in the bed next to me but she yelled all the time, night and day. Constantly screaming. Like you, I was in pain and exhausted but getting no sleep whatsoever. I can laugh about it now but at the time it didn't seem very funny. I want to tell you that you are a very very brave lady. And your willingness to share your story so that the truth about what it's like to battle major illness, both the good, the bad, and the ugly, is so helpful. Even if we don't know each other, or any of the other women who are going through this and who follow you, I think we all feel that we are walking together because we connect through you. Give your dear daughter a hug from an old grandma who thanks God every day that she is still here to give her own grandchildren those hugs. As you will give them to your little grands someday.
You certainly don't deserve any negative comments at all. You have been through too much. Fighting cancer is a huge battle itself without all thing extra things you have had to experience. I know very well since I have been in the fight for 4 years myself.Those older people should be ashamed of themselves since she was such a good baby, They should have been complimenting her and you. I hope things continue to improve for you now, Take care and keep fighting.
Man you had to be strong to get through that ❤
I have MS and caregive for our medically fragile daughter. I have had the stiff man spasms full body bone squeezing over and over for months. Then i got meds to stop. That was the worst pain of my life!! I had to lay flat and try and gasp for breath while screaming involuntarily. 😢😢😢. I agree trying to focus to relax is key
Ugh I hate those so much. So sorry
@@SamanthaL. Magnesium citrate daily. Its called natural calm. A powder we put in a tiny bit of hot watee then some cold. If I drink a small half daily dose of this magnesium it CURES those body bone spams! Have not had them for years. Makes me wonder if it would help celine dion and others
I cried when you sent the first video. Just everything you, Gray, and baby went through. I especially remember it was so important to get the family photo session, and you soldiered through. 😮 Amazing Samantha. 🌷
Samantha, I’ve been a prayer warrior for you since your journey began, and I will always be, this make me so sad, you’ve been through more than anyone should have to endure, my love, hugs, prayers, positive energy and vibes I’m sending to you sweetie🙏🏼🥰☮️💝🦋🫶🏼✝️🌞💐🕊️🌸🩷❣️❣️❣️❣️
That hospital stay sounds awful! Pain management isn't always easy. Morphine knocks me right out. I can't function on it. Hospitals kinda freak me out, and they aren't comfortable, you're right about that too. Being home in my own bed is sometimes the BEST feeling in the world! Your fortunate to have such a supportive family. Your mom sounds great! My mom passed away in February, and I'm still not quite myself since. She was an ICU nurse, so she was always great during these kinds of things. She woulda had that unit entirely under her authority the whole time, lol, kinda like your mom was for you. I think it's sweet. She must be terribly concerned for you, so I can't blame her for not being able to stand by watching you in that much pain! You'd do the same for your baby too! Love & hugs, Samantha! Thanks for sharing your story!
I'm sorry you're going through this. I too have MBC diagnosed @35, first was stage II@30....now on chemo, Enhertu, cuz all endocrine/hormonal tx failed me....spine, lungs and chest bones are involved...you're awesome and giving hope for so many young folks with this disease....you're amazing for sharing and inspiring more to share their journey, including my own ❤❤❤
Thank you. I hope the chemo works for you!
2nd comment this video, I also stumbled out of my bed and sat with the lady screaming for help, once the nurses came and said they had done everything they could I sat and spoke with her, she was the sweetest lady but was clearly confused and it broke my heart. I could hear the doctors in the morning saying she was basically end of life but I never saw anybody visit her.
That is so sad!
I can't even imagine. Glad this is over behind you!
I'm so sorry you went thru all of that, I'm so glad you are doing so much better! Side note- I would have been like I demand another room, I am supposed to be healing from an extensive surgery and you hear all the hollering she is doing and I can't sleep which is compromising my healing.
It took 8 hours to get that room so I figured there wasn’t anything else
I had the exact same thing happen when I was in the hospital for open heart surgery. A guy screaming " help, help me!" Over and over again, day and night. It makes recovery so hard. There is no sleep to be had. The hospitals are now holding places for mentally ill or severely cognitively impaired people because there are not enough long term care beds available. At least that's the case in Canada. It's very sad, but also frustrating for people who are needing to recover from surgeries or illness.
Keep telling your story as many of us do not have the skill to do what you are doing but have experienced what you have been through. The surgery and all the emotional and physical pain it causes will always be in your memory. Unfortunately the pain of what happens next is too. I am glad that you are your own advocate and all of your family is supportive and advocates for you too. It is unfortunate that our health care system is overloaded to a point where individual care is a thing of the past. Your compassion for others is outstanding. One thing is for certain is that THERE IS NO PLACE LIKE HOME TO HEAL! I hope your doing something special for the 4th of July!
My heart goes out to you so very much....I wish I could help you...I put my hand on this video and prayed for you and will continue ❤
Thank you for sharing and I prayed over your health, mind, and family❤. I hope you have a blessed day❤❤❤
Had a fusion a little over a month ago and your hospital story sounds very familiar to mine with the meds. I am also a breast cancer survivor of 5 years and so scared it will return or spread because I refused to take tamoxifen. Anyways, been watching you for awhile and think you are a tough girl for everything you have been through. Oh- my daughters name is Samantha so 👍
That’s a trauma within a trauma. I’m so very sorry ❤
What an ordeal from start to finish. What a blessing that you were surrounded by such strong and capable people. And that you still are. Take care💕
My goodness what an ordeal!! A baby on first class….HECK YES❤ I’m so glad you have an AMAZING FAMILY SUPPORT SYSTEM!! How is your back feeling now? I really enjoy your videos. You are one TOUGH COOKIE!!!
Doing sooo much better now! Thanks :)
@@SamanthaL I’m so glad to hear that ‼️
Spinal fusion has completely ruined my life. I pray for you
Did nobody in that hospital know that sleeping helps healing!? I'm impressed at how quickly you have recovered just because from Day 1 they were setting you up for a long, painful recovery simply by not making sure you were able to get any amount of sleep.
P.S. I've had multiple back surgeries, so I understand that *just* because you're able to sleep at all doesn't mean you're A-okay. It does make a small difference, though.
Oh man I’ve had back pain that is in this level, it’s un-liveable pain, It felt like I was cut in half at my tail bone, couldn’t put ANY pressure on it, walk sit or even lay in a single position for more than 30 seconds, with intense sharp spasm like sharp stabbing every 30 seconds, zero sleep for two nights, no meds either, I feel for u man x
Samantha, I am so sorry that you had to share the same room with a woman that was so noisy and unpleasant especially when you were in so much pain. I am glad that she moved to another room. I would had not put up with a person like that.
Samantha, I would have felt the same way! How overwhelming & stressful 😥. I'm so sorry you are going through this, I pray for comfort & strength for you! Also, I hate the radio & prefer silence whenever I can get it.. I thought I was the only one, lol
Im so sorry you even had to ask to be ready for pain meds. That is not your job but good for you for trying and that stinks the care you got was so sparce😢
So frustrating when you try to prepare people 8 hours in advance 🙃
You and I went stage 4, mets in spjne and ribs at about the same time. Thank you for sharing this experience. It will be a help for me, also now I understand the weird pains I get. Fortunately my oncology team is mostly understanding and support me with therapy and pain meds, but hospitals are another trial to endure, like we don't already have enough.❤
Hope you continue to do well managing pain!
Oh my goodness Samantha....I've had herniated discs at L 3, 4 & 5 for many years, (but general anesthesia inadvertently killed my dad, so I completely refuse surgery) and the pain is SOOO debilitating! So to have cancer, & actually to have broken your back is BEYOND WHAT I CAN IMAGINE!!
I'm SOOO glad that the surgery helped you! I think of you daily, & so hope that there will continue to be therapies that can keep your cancer from spreading further. Love from toasty Sacramento California!!
Thank you. Hope you’re doing well
No need to sugar code it. That was literally the worst torture! When we simply don't feel good we want peace, calm environment, not to be bothered so I can't even imagine what you went through!! ~ Take care!! You are so strong and SO unbelievable smart.❤ I wish you all the BEST!!!
Thank you!
I love you Samantha, you make me smile.
I totally understand how frustrating it is to have a patient next to you screaming all the time and through the night ,I was in hospital for a week in February and I had a patient in the bed next to me who had very severe Alzheimer’s and she would scream and scream and yes I felt horrid for her to be so scared but when you sick it was also super frustrating too ,so I fully understand that what you went through,I’m so glad you are doing better now
The screaming lady--I went through something similar. I broke my arm very badly at school in the 4th grade. I ended up the hospital in a ward type thing with an old woman screaming and yelling all night. I was pretty much out of it and throwing up all night from the anesthesia. So it was my poor mom who tried to calm the old lady, take care of me, and knock cockroaches off the wall all night. My poor mother! Thankfully the next day I was moved to a private room but I still remember the wailing all night. Now I'm recovering from breaking L1 and injuring L4/5. You've had it so much harder and you're so strong! Glad you got through all that mess!
Wow, that’s a rough experience for a 9 or 10 year old!
Samantha I’m so sorry 😞 you had to go through all that nonsense at the hospital 😢. I too have been in and out of the hospital past few months. I had a similar roommate who constantly had her tv 📺 on. She didn’t yell a lot but she had to have her light on 24/7 which directly was in my right eyesight. I asked the nurse to ask her politely if she would consider the bathroom light (especially when she was sleeping), she would not budge 😠. I was in the room before she got there. Another thing the hospital allowed visitors around the clock 🙄. They tried giving me a blindfold to help sleep and earplugs. Nothing helped. I even yelled at the lady saying “You’re not the only patient healing from surgery”, you won’t even compromise! She then yelled “I’m an older lady (not much older than me) and said “I can’t sleep with the light 💡 off”. Oh my gosh when she left I was so happy. Then next lady in my room was amazing and friendly. 🙏🏼 Thank you for updating us and I hope 🤞 you continue to heal. Like the saying goes “There’s no place like home” 🦋🌹
Thanks for sharing your story! Some people are just not good roommates haha
Samantha,if I have to go to the hospital in the future, I shall plan to bring noise-cancelling ear plugs. Thanks for telling your story, and I hope and pray for your continued stamina and well-being.
Next time you are in hospital get a pair of noise canceling ear phones. I was recently in for lCU 10 days. Really helped.
That’s a good idea!
If you have the urge to pee and you have a catheter in, it is because you the tubing is either kinked, or there could be a clot blocking off the urine from draining. You poor thing. Sounds like the hospital stay from hell! I’ve had two spinal fusions, multi level thoracic and two levels in my cervical spine, and a third to remove the metalware. I totally understand the pain! I remember waking up from my surgery in recovery and thinking oh no what have I done, the pain from multiple spinal fractures was bad enough! But man I was beside myself with pain, they got me up that next morning, made me have a shower, walk and I was almost passing out! I’ll never forget that pain it is horrible I’m so sorry x
Thanks for sharing. Ugh sorry you’ve had to deal with so much pain
Samantha, everything is amplified after spinal surgery.
I understand the over crowding. Here they just send people home with nurses visiting after 24 hours.
The raw exterior pain and internal nerve firing is brutal.
Thankful you got through it. Your story is more common than you think.
Very thankful you had parents to help you with the traveling.
People in first class seriously aren't always grounded in mind.
Hope you are having a happy weekend ❤
So thankful for family! Thank you!
Sounds like a nightmare! Heaven forbid that it happens again, but those waxy earplugs can help reduce the volume of noise .💞
I agree, an uncomfortable bed is the worst. Hospitals should know better.
I'm so thankful our hospitals have private rooms. I'm sorry for what you endured what you did. How did they expect you to heal being in that much pain and listening to a screaming patient.
I never even realized the value of a private room until that experience. Made me miss my hospital back home!
oh my gosh … i am soooooo sorrry 😢💔
I can't believe all that you were dealing with and having a roommate like that, making it so much worse. I got lucky bcz many times when I was in the hospital, I was by myself
Feel for you and the elderly lady. Hope she is doing better also.
Me too
I get rage angry then cry when frustrated. 😡😢. That does not help us heal!
Maybe hydrocodone would have worked better for you even though it's milder. Or they could have switched to dilaudid which is stronger than morphine but morphine has no maximum dose so that is helpful. There is an oral version of toradol but you're right at least the last i heard it can delay healing from surgery on bones. I wish you had had headphones or something similar to block out the lady's noise. Noise cancelling headphones could block the noise when turned on even if you don't play anything. Mine are Bose. And when the catheter balloon is deflated, it just falls out. ( Just a little wisdom from caring for some wonderful people over 30 plus years) I just thought you might need this info at some point in the future. When you know as much as possible you can advocate for yourself the best. I admire you so very much! You are my hero! If I had been your nurse, I would have been thrilled for your advice on your own care! That really helps more than you know!
Thanks for the comment. Dilaudid was the one they tried before morphine! You just reminded me of the name haha
@@SamanthaL Oh, also I have a set of earplugs made for me by an audiologist for swimming so I don't get an ear infection. Those also block sound pretty well so I occassionally use them for that purpose. I would definitely get something to have in a "go bag" for any hospital visit. My husband has these little ear pieces to listen to movies on his phone but they also block noise when he turns the movie off to sleep. I have a "go bag" ready for my husband cause we rarely can anticipate his hospital stays. It has a soft blanket, phone charger, and such.
I don't listen to anything in the car as well. First person I've talked to that doesn't. Been called weird to enjoy the silence.
So many people have said I’m weird for that! Lots of comments here though of others that do it too so it’s less lonely now haha!
I too use a tempurpedic mattress. It’s the best. I also have an adjustable bed. Poor lady couldn’t help it. That’s so sad. I’m so sorry you went through that.
I still think about her and hope things ended up ok for her
All of our hospitals are private room. I guess due to HPPA regulations. It is easier to heal when you can rest for sure.
Praying your healing is progressing well.
Nobody gets well in a hospital.
True
I’m dealing with Spine issues here and there to. My biggest fear is what you went through. My worry now though is the long bone in my right thigh. This is not a fun/ easy journey.
Hoping things get better for you 💜
How are both of you doing now?
@@princessrosalina8079 I’m still going. I go back end of October to check on the cancer. I feel ok, just sore bones here and there. I’m about to hit 14 years of living with terminal cancer.
Im super sound sensitive too!
I dont close cupboards, closets, and drawers fully. I hate the sound they make even when closed softly. I try to close them when my husbands home and brace myself each time😢
It’s horrible what you have gone through!
Just that you have to "worry" about people roasting you is absurd. Gen X here, and I'm old enough to have experienced when there was no internet. If you had something to say, you'd have to say it in person most of the time. Just the thought of somebody visiting a ward for cancer patients, approach some random patient that you don't know and say just so you know, you should be grateful that they even take care of you!
Haha! Thanks for this 😊
Poor baby just wanted her mum
Very cute 😍
I find it so strange not being able to get Toridol tablets. I understand not taking it for healing purposes. Just seems strange. You are looking better with each video. Sending prayers.
Yeah, they didn’t want me to take it starting a certain number of hours after surgery so they wouldn’t have sent me home with tablets. Thank you!
They should have immediately shuffled patients around to match better. It’s not that difficult to do. Unfortunately, there are some people that feel they are only there to give medicine and chart. That’s it. Nothing more. Nursing has changed so much. And not for the best. Always ask for the charge nurse and be the squeaky wheel. You or a loved one are the only ones that can be the advocate for your health and safety in the hospital. You are paying for good, safe care. Demand it!
I'm the same, Samantha, I prefer silence and if I'd had to share room with someone constantly invading my space with yelling, or simply talking non-stop, playing music, it would be enough for me to scream myself. I think I'd actually scream extremely loud on purpose, just to force the staff to put me somewhere else.But that's me, I rarely win popularity contests.
lol!
My veins arr a huge challenge too. I get that😢
Idk about babies in first class. My once in a lifetime ticket in 1st class was $12,000 . I had to ensure that I was in a quiet space and that I'd be able to sleep, otherwise I've been known to have a grand mal seisure & stop breathing.
That said, anyone bringing their baby in for just the last 30 minutes of the flight is fine by me.
Wow, that’s a crazy amount of money for a flight! Idk, those people behind us caused much more of a fuss than my baby did, so babies aren’t always the problem haha
I AM SO SORRY!!! I have been a nurse for 40+ years and have worked in hospital (nursing) leadership the last 20 yrs. I am appalled at a number of things you shared - things that are inexcusable! The top 4:
(1) The lack of responsiveness - to your call light and to your requests. This should NEVER happen (!)….but if it had happened once or twice for the entire stay (and was otherwise a non-issue), ok, unfortunate but things do happen. But their extended response times were NOT the exception - they were the rule. It IS THEIR FAULT. TOTALLY UNACCEPTABLE.
(2) Not moving the stroke lady the FIRST NIGHT. I don’t care how FULL the hospital is (and believe me, there are many times when we are so full we have patients backed up in the ER that we can’t place because there are no beds) - but just as they finally did AFTER your awesome Mom advocated for you (GO MOM! 💪🏻🏆), THEY could have done that the FIRST NIGHT!!! In fact, YOU should have NEVER been placed in the same room with that patient in the first place!
(3) The catheter should not have been “pinched” long enough to fill up to the point you feel it! They are supposed to do hourly rounding and check the catheter. I’m guessing that wasn’t happening because if it was, they would have found the kink and corrected it before you ever noticed it.
(4) Your pain was not controlled AND they basically blew you off when you tried to partner with them to transition you to an oral pain med. You went above and beyond in trying to work with them - you are a great patient!!! I’m so sorry they were AGAIN - non-responsive. 😡
Thank the good Lord above this is NOT my hospital. This would NOT happen - my nurses are on point! 🙌🏼 (and it wouldn’t be tolerated if it did!!!)
Your experience was horrible and NOT what it should have been. I’m so sorry. 😢
They should never have put you in a room with an elderly stroke pt that is confused! That is so not conducive to a new surgery pt and healing! I am a retired RN and that shouldn’t have happened!
Why would they keep you in this room? This should never have happened. I am so sorry you had to go through this
I’m not sure what hospital you were in but this is horrible. My dad has back surgery and the physicians were very particular about their patients and pain regime!!!
Healing prayers 🙏🙏🙏❤️❤️
Morphine makes me ill
Fetynal i do ok with but i refuse oxy No narcotics for me. My family had addicts in it. Never struggled with substances personally but I avoid alcohol and narcotics when possible. I need to be clear headed as much as i can be
Morphine and fentanyl are narcotics - the strongest ones.
I don't listen to music in the car or while working out to think too.
Babies are people too ✈️
My neurosurgeon said that pain medication is no good for the back pain. I was on that from emergency doctor before I went to my neurosurgeon. They only gave me prescription very few.
May I ask, do you have any Bed Mattress recommendations for really bad backs? Any recommendations, I would GREATLY appreciate ❤ Also, i COMPLETELY relate to the sound thing. When I’m alone, especially in the car, I NEED silence. No radio, not anything. That poor lady in the room with you…it almost sounds like she had some level of dementia along with the stroke. My dad does that now and he’s suffering from Lewy Body Dementia.
Yes! I tagged two tempur-pedic mattresses that you should see in the video description (one Queen and one king size). They are pricey but they are the absolute best in my opinion and have helped sooo much so many times!
They should of never put an elderly lady in that condition in a young person's room who is in extreme pain. When my Husband had his tumor removed they put him in a private room, because I told them he was extremely scared of hospital and wanted me to stay overnight. They were very accommodating giving me pillows the lounge chair that goes all the way back, even bringing me food. I'm so sorry you went through that. Blessings and Prayers to You and Your Family ❤💙🧸🙏✨
I wish they had private rooms available
I can send you a link to energy healing class for tumors and cancer. It can help.
Ask for (insist) on a pain management consult.
Ear buds or the foam ear plugs might help.
That is just ridiculous. At times especially with a horrible disease like cancer you’re going to need pain pills. And I don’t mean aspirin or Tylenol. There might be times several times when you have to take more than one. When you’re in pain you gotta do what you Gotta do. Then later, the doctor should help you wean off of it.
They should have taken her out to the nurse station
Why didn’t they just order you Toradol in pill form? Both my mother and I have had to use it. Just curious as it seems like it would have been the best and easiest option for pill form pain relief
Because after a certain number of hours after the surgery, they don’t want you to continue taking toradol because it messes with the recovery. But yeah one more dose probably would’ve been fine. Not that I would’ve gotten it in my chart in a reasonable amount of time though…
I would of demanded , a room change
I am a nurse and they never should have roomed you with her. Terrible.
What's wrong with pain management? Why do patients have to scream in pain?!
Sorry Mrs Screamerton was your roommate. There is always one and usually you can hear them all the way down the hall.
Ask me how I know.
Next time, demand that you be moved. The squeaky wheel gets the grease.
Why wasn't the older lady in a specialist. Stroke ward?
She may also suffer from dementia. Sounds like she was sundowning.