Excuse the scrappy illustrations! It's been around ten years since I've drawn anything digitally so I'm going to use this channel as an excuse to practice and get better! 😜 EDIT: Thank you so much for all your lovely comments - I'm absolutely blown away as I wasn't expecting very many people to watch this video! I'm trying to respond to everyone but apologies if I miss anyone. Please know I'm reading all of them! 🧡
Welcome to the adult-diagnosed community. I was diagnosed in December at age 75. It's interesting and strange to think back to things that happened in life and realize they were related to autism when I and nobody around me suspected. I have no experience of being a neurotypical person, but I have lots of experience with being treated like a neurotypical person!
Hi. At 65, last year, I figured this out. Autistic with a side order of ADHD. I too do art...mixed media, but not "professionally". Nice to hear from another older female who has discovered this.
I have self diagnosed, at 45. Its such a huge relief to know whats “wrong” with me. But also sad bcuz my life could have gone better if i had known earlier. And now it feels a bit late to do much about it.
I think it’s very common to feel this way - I know I do. I try to focus on the positives that probably wouldn’t have happened if I’d had an earlier diagnosis 🧡
I am the same Carrie at 51 try not focus on what could have been and be thankful you know now so the rest of life does not have to be the same muddle as before
It's understandable there'd be grief at what could have been. Give yourself permission to grieve before you move on to what now... what next... I'm 58 and just realising, a year after my daughter's diagnosis that I may also be autistic, definitely ADHD and I already knew about the anxiety, noise sensitivity and some touch issues. I know about masking but didn't realise that's what all my head-talk was over all these decades!
@carriemartin I was diagnosed autistic & adhd aged 48, now 54, & it was a relief for me too, also sadness.. it's really important to acknowledge & feel grief & regrets (& other emotions too - or they can cause health issues, as I've been finding) A recent adhd friend introduced me to videos (on UA-cam) by Martin Petchell about Grief & Joy, & discovered Francis Weller too. Love to you ❤️
I was diagnosed at 48 and am now 50; I also suspected for about 20 years but told myself someone would have noticed by now. Apparently us women are very skilled at masking. Thank you for sharing your story.
Fellow late diagnosed middle-aged autistic (AuDHD in fact) here, welcome to the fold! It's a unique experience to have lived with and adapted to one's sensitivities for so long only to discover that it's not just eccentricity but rather an actual, specific biological configuration responsible for many of the life challenges that one has had to face without systemic recognition or support. Keen to check out your clay channel as well (I love stopmo and have long adored the Quay Brothers' oeuvre)!
Recently diagnosed with autism and adhd at the age of 51. Like you I have known that I was autistic for many years. Like many others, I discovered mine when my daughters were diagnosed, my eldest with ADHD and my youngest with autism. I also have immune system problems! Good on you for starting your channel! I am sure many will find it helpful. You are right that we older ones are not represented in the social media space and you will give comfort to many. Good luck!
You are very brave sharing openly. Im shy about showing my face 😅 I like the figurines, its cool. Do you use clay? Ahhh. Yeah ive also have an auto immune disease. Ankylosing spondilitis...inflammed spine, joints. 😑 i got diagnosed a couple of months ago. Im almost 35. I subscribed. Open your channel grows. It really helps me to see autistic peoples testimonies.
I'm so glad I found your channel! Middleaged autistic women experience seemed hard to find. I was recently diagnosed at 48, thought I would never find out why I always felt so different all my life. Lots of guilt and self blaming/self loathing☹️ But after all this years of masking has messed with my identity, who am I/how shall I be without some mask? Before the diagnosis I always felt I had to pretend to be human, like a fake somehow. But now I am facing the problem of how to be autistic. Comments like: You dont seem autistic! Are you sure your autistic? Make me feel like an imposter again🙄
Thank you for sharing and congrats on your diagnosis! I hope it helps you to slowly reframe things, and I'm sure it will. It's difficult to ignore these comments/questions, but the more you learn about autism, the more ridiculous these comments seem. Knowledge is power ✨💪✨
I just found your channel and want you to know that I can relate to you in several ways. I will be 53 in a few months, have already menopaused (thanks to a hysterectomy at 40), have had mental health, social, communication issues my entire life, but was finally diagnosed with autism last week. I admit to not having known enough about autism until the recent months, which is a testament to how uninformed the general population must be. I always thought I was destined to live out my remaining years sad, scared, lonely and improperly medicated for this, that and the other psychological condition. I allowed myself to research a bit about autism after catching a youtube short which resonated with me. I waited a few weeks then concluded that it was a real possibility. With that, for the sake of there being a tiny glimmer of hope of this being my answer, I found an expert in adult diagnoses. She validated my suspicion. I've been going from "this explains everything!" and feeling ok with it, to "I've no idea who I am" and freaking out. The good thing, the AMAZING thing, is that there are so many of us. I also want to mention that i also used alcohol as a crutch of sorts, for a long time. It just made interactions easier, albeit still not authentic. It wasn't a good idea and I'd never ever recommend it, but it's what i did to get me through horrible times. I don't drink now due to reflux and the awful feeling of a hangover. Little did I understand that it was a way to mask my discomfort.
I can relate to a lot here! I think alcohol is a huge crutch for lots of autistic people. I kind of miss it but I'm thankful I don't have hangovers anymore as they were always awful and often lasted for days.
Diagnosed at 36, and it was equally crushing and comforting. I myself am a UA-camr and i wanted to say 1) LOVE love LOVE your clay channel, very cute work you do 2) You have a very great UA-cam presence 3) I hope you keep it up
I didn't realize how much I wasn't really "doing eye contact" all my life until I became more self aware about this and allowing myself to be my real self. Although, I did notice over the years that I was focusing in on weird details like people's teeth or fingernails. And then I would wonder if other people are looking at those details on me (ack!). I actually find it really distracting and tiring to look at people. I miss 2020 when it was cool to wear a face mask for a split second because it was less stuff to process and I didn't feel compelled to make fake facial expressions.
I've had a very similar experience with becoming aware of the eye contact thing. The first thing I remembered is when I was in college, I'd look away as soon as a professor would look at me. During a lecture, I'd watch them but felt SO weird and uncomfortable if I locked eyes with them. The more I thought of it, I notice that I watch people's mouths more than anything. It's not that I/we CAN'T look people in the eyes, as I learned to do it after realizing what I was doing. That's something I don't think non autistics understand.
As an aspie that was diagnosed at 48, I can relate with the relief of receiving the diagnosis because it was extremely disconcerting knowing that *something* was off-kilter (compared to society in general, allistics, et al) with me my entire life, but not having an explanation for what it is. I cannot relate with crying over the diagnosis. I am a bit disappointed at being deprived of the support that would have made my life both happier and more productive, but that came in retrospect. In the moment of the diagnosis, I was mostly gratified at having my suspicions confirmed because that was my leading theory going into the testing process. Acknowledgment and acceptance of the diagnosis so that I no longer have the looming cloud of the unknown above my head has done more good for my mental health and capability of dealing with my other challenges than any amount of strangers trying to tell me how I should live my life.
Agree - self acknowledgement and acceptance of the diagnosis is really powerful. My mental health really improved once I figured out I could be autistic.
Thank you for sharing 🙏🏽 I have my first appointment next month for testing. I turn 50 later this year. It’s helpful to see others late diagnosed in their 40s +
Just coming across your channel now. Thank you for sharing your experience esp. for those who are getting a dx in their 40s and 50s, representation is so important. Subscribed!
@woodshedtheory Me too Claire. She showed up in my feed. UA-cam is great about promoting small channels as well. I subscribed and then saw your comment
@@autisticjenny not seen your channel/videos show up on UA-cam before - just subscribed! I wonder how many others are hiding on UA-cam until the algorithm recommends them one day 🤔
@@Simon-L-B thank you Simon. I appreciate that. I am looking forward to this channel too. She seems like someone I can really relate to. Thank you for supporting the autistic community! :)
Recently diagnosed with multiple sclerosis at 51 and had to start therapy for the first time in my life because I have adjustment disorder associated with my diagnosis. Frankly, due to my childhood, therapy is long overdue. I've been diagnosed with ADD/PTSD and Autism testing has been suggested. At my age, and with all I have just been slammed with, do I really need to know? Anyone else really tired! GROUP HUG! Virtually of course. I like my hugs real tight and over quickly, please ❤
Thank you. I've recently turned 60 and figured out that I was autistic about 18 months ago. I mentioned it in a support group for overcoming emotional abuse (CPTSD) and their response was "Oh, you didn't know? It's been obvious to us since you joined." Also ADHD, which is perhaps what masked my social awkwardness. The combination of CPTSD and autism means I find it very difficult to ask for help, and this includes going to my GP for anything. I was told about the NHS "Right to Choose" a year ago and I've done nothing about it. Your video has just given me new motivation to get my diagnosis. Thank you also for mentioning MCAS. I just searched the web speculatively for "mast cell oedema" not knowing that it was actually the name of a condition! I had occasional mild peripheral oedema after the first AstraZeneca Covid-19 vaccine, which was blamed on my antidepressant (Escitalopram), then it flared up big time and has been the bane of my life for 3 years after the second AstraZeneca Covid-19 jab. My feet are so swollen that I can't fit my shoes or boots and I'm having to wear Crocs. I'm being treated for the oedema with a diuretic (Furosemide) but it provides only partial symptomatic relief, and causes severe night-time cramps in my feet, calves and sometimes my thighs, which is why I was awake and watching your video at 4am. This gives credence to my hypothesis that my oedema is an auto-immune response, triggered by the AstraZeneca vaccine. I'll need to join the queue for compensation, it seems.
I am 50, in full blown menopause, was diagnosed with ADHD when I was 9, and highly suspect that I am also Autistic. It is so nice to see somebody my age talking about this. Like you said, other later diagnosed creators are in their 20s or 30s, and while their voices are great it is also nice to have somebody who is closer to my actual age. Thanks for starting this chancel. I'm from Kentucky USA. Nice to meet you.
I was diagnosed last year and also going through perimenopause. It’s been quite a rollercoaster. I often find myself experiencing imposter syndrome around my Autism diagnosis. I’ve been feeling so burnt out and run down that I haven't had the desire to keep up with video creating. Good for you for starting this channel and adding representation to us late diagnosed women.
I'm with u I got my results yesterday few montns shy of 53. Honestly I never thought I was autistic untill late 2023 because I didn't act like the autistic males in my family. Also because I have combined ADHD and I blamed everything to ADHD. I used to say I'm severely ADHD. In reality I was missing the Autistic part of my diagnosis. I even got a EEG that showed both diagnosis in my brain. You had it better than me my test lasted from 9 am to 2pm with a 30 min lunch time. I was exhausted by the time I did the EEG. A d for 3 week I had to wait for the results I was I. Total breakdown because I didn't think I was able to show my symptoms because of a bad experience with a different tgerapist earlier. Little did I know it was so clear!
Thanks for sharing this! I am adding it to my playlist if autistic creators talking about autistic topics. There are a number of videos there about adults' autistic discovery journey, but most are in their 20s and 30s. You are right that it is important to have representation of all ages.
Thanks for sharing! I have had a similar experience, but i am just now pursuing a diagnosis at 29. Very validating to hear other late diagnosed people talk about their experiences and it is so helpful. Its what actually pushed me to pursue some kind of diagnosis this year and im so grateful so many people in the community are sharing.
Thank you for your candid sharing. I too am 49. No diagnosis. (Completely relate to your feelings of completing such tasks!) But after watching yours and countless videos on Autism and ADHD I am without a doubt in both communities. I find it tremendously freeing. A reason! For it all. And I mean all the being the “odd one” moments, and also my current health situation that has gotten acute these last few years. It all adds up. I remember saying something to my dad about me thinking I’m autistic and his face said it all. It was like this understanding just washed over his face.
I was diagnosed in my late 60s. It was actually a relief because it explained basically my entire life. I've struggled with feelings of regret over every little thing that didn't go as well as it could, and I have a long memory, so, that's a lot of regret. LOL. But now I can dismiss so much of those regretful moments as due to being on the autism scale. Hey, it all seemed normal to me at the time! 😉
I had my last diagnostic appointment last week - 55, female, in the UK and also dealing with perimenopause and diagnosis here... so glad to "meet" you!
I relate alot to having difficulty coping with body change! Teen years were hell for me, partly because of body changes, even if I welcomed having a more ‘grown up’ body. But suddenly I didn’t fit or suit the same clothes and clothing style, it just threw me off. And pregnancy, it is the same problem but enhanced, since the changes are so extreeme and rapid! Even the period after birth is horrible in the context of body-change. Thank you for your video ❤
Thank you for sharing your story lizzie, and for starting your own youtube channel on autism. I was diagnosed aged 38 im now 45, it felt like a long process i had to go and see a doctor for i think it was 8 sessions it was spread out over quite a lengthy time period, and then see the lady who eventually gave the diagnosis for a 7hr face to face meeting!! There was a 45 minute break in that time. Then i had to wait for her to go away and write to me weeks later with her decision. I also have sensory issues with noise and light, i dont think a lot of people truly understand noise sensitivity and how disabling it is. Iv'e never been one for mixing in social groups i just dont like it at all it feels pressurised, foreign and fake. Thank you.🙋♂️
I'm sorry about the loss of your mother at such a young age❤, my mother passed away aged 27 when i was seven. She's an unofficial member of the 27 club, in fact she's probably having a coffee with kurt cobain, brian jones, jimi hendrix, janis joplin, amy winehouse etc right now🙋♂️@@CreativeAutistic
Diagnosed with AuDHD 2 years ago as I turned 50. Had similar issues at schools in 80's, became high masker - but struggling beneath. Luckily, met and stayed with great partner early on and they have helped with frequent burnouts over years since. Finally, after yet another crash, came to notice of (wonderful) NL health services and soon got dx's. Even with dx's, still on a journey to acceptance. TY for sharing your experience, it really helps.
I just got diagnosed at age 40. It’s such a relief! Feels like my brain is finally resting from always trying to figure out the puzzle that was me. Now I know and can work with myself, now that I know what I need.
Thank you for sharing! I too am 49 awaiting my diagnosis this week and I also have the fear that they'll say "Nah, you're just weird," lol. I worked in retail during the 90s, I was always told I wasn't showing eye contact when I know I did, I remember thinking "Okay do they want me to do my job or just sit there doing eye contact with everyone that walks through the door?" I always felt like an alien, I didn't understand people and they likewise did not understand me but I didn't know I was autistic until I started researching for my oldest son because he was struggling in school. While researching I felt like they were all talking about me.
Such is the story of my life. It wasn't until nearly 50 years of age that I realized I have BOTH Autism AND ADHD. I've always had sensory sensitivities. I've always had differences in language processing and socializing. The push and pull between craving order and struggling to maintain it. Hyperfocus and highly distractible. Wanting to Do All The Things, yet feeling burnt out before the end of every single day. The list of struggles and issues goes on ... And yet, because I've learned how to mask and almost blend in, many people are not aware that I really am struggling to live up to "normal" expectations. Most of my friends and family either wouldn't believe that I could possibly have either Autism or ADHD, or they're surprised when they realize that I have both together, "Yes, everything finally makes sense." On the topic of "I can feel sound, and sometimes it hurts": I describe it as, "it feels like something is physically striking my eardrums." For those who can't imagine the sensation, I offer two scenarios that you might relate to. (1) Have you ever had a droplet of water pull a "Luke Skywalker versus the Death Star" and hit you square on the eardrum? It kind if hurts, doesn't it? Imagine that all sudden, sharp, or loud noises make it feel like your eardrums are being assaulted by a continuous sprinkling of water droplets. You'd soon be covering your ears, crying out to "make it stop!" (2) In a bare-floor empty room, like when you're moving into a new space, all the sounds bounce and resonate and feel physically uncomfortable. This is everyday life inside my ears. Then, after adding furniture, a rug, anything to soften the acoustics, sounds feel normal and comfortable. I was introduced to Flare Calmers recently. They don't block or muffle sound, as would earplugs. They soften the acoustics, dampening the resonance, just like adding furniture to an empty room. One of these days, I want to write a review based on my personal experience with Calmers. If only these existed 40+ years ago!!! ...If only anyone took the time, decades ago, to analyze and recognize why I appeared to be "highly intelligent and almost normal" and yet I was struggling so hard inside my mind to present myself as "almost normal." Plus, it didn't help that I'm female, quiet, not disruptive, studious... I don't fit into the stereotypical mold of "hyperactive male child." ❤️🩹
Thank you so much for your video. I’m a 62 year old woman from the USA & I’m going to have my autism assessment in august. I’m very nervous because it’s going to be in person & I’m going to have to go through the ADOS2. But thank you I’m very grateful to know I’m not alone.
Cheers, very informative video. I've been diagnosed at 35 and my aunt in law was diagnosed ~50 as well so videos like this help me understand her struggles and give me insights on how to be a better family member.
Congratulations on your Autism diagnosis. That's wonderful. Your journey in self discovery will be so much more enriching now that you know for sure. ❤ I was diagnosed with Autism at 47. Knowing is one of the best things that ever happened to me. Hopefully it will help you understand your medical issue better as well. A lot of ND people have medical issues like that.
I’m newly diagnosed adhd and autistic at 55. I knew I was ADHD but I never thought I was also autistic. So like you, I in a new discovery phase of my life.
Someone [5-2 YO] in the process of getting things started. But it is [would be] good to have something to pinpoint [what] the problem could be. May Abba [God] bless you, your family, and your ministry. And help you in your everyday life.
Found out I was autistic a couple years ago in my 30's. Wasn't screened for ADHD but I'm convinced that's what I'm dealing with as well. The center I was evaluated at only evaluated for autism unfortunately. I also found out that my chronic fatigue and lots of physical symptoms were because of POTS and Ehlers-Danlos Syndrome. If I'd never discovered my neurodivergence, I likely wouldn't have discovered all the rest.
Hoping you’ll see this. My 6 year old is autistic. I have adhd and didn’t know a whole lot about autism until I had my son. He was my 4th child and around the time he was 2, there were noticeable differences from my other kids when they were the same age. I have learned that autism can be hereditary, and that a large number of people who have adhd also have autism. I do have a lot of symptoms and plan to speak with my psychiatrist soon. I’ve been doing a lot more research on adult autism to be sure I’m on the right track in my thinking before I bring it up. Thank you so much for sharing your story! You are very talented, by the way! I wish you the best! 😊
Just turned 40, and my son was diagnosed w/ Autism about 3 years ago (he's 6 now). Ever since his diagnosis, since doing a lot on research on Autism, it was like a lightbulb went off in my head & I was like, '.....Ohhhh....' I always felt 'different', like an alien compared to other people, and never really knew why. My son getting diagnosed open my eyes, and I've been trying to pursue a diagnosis for myself ever since. It hasn't been easy... and it's kind of sad that, as difficult as it was to get my son formally diagnosed, it's even harder for ADULTS to get diagnosed. I think a lot of older doctors are basically like, "Well, you're an adult. You've made it this far, why do you need a diagnosis NOW?" (Which is obviously frustrating and makes you feel like a hypochondriac or something) Thank you so much for sharing your experience & words - it helps to know that other older people trying to get a diagnosis aren't alone.
As a side note: among many, many other things, eye contact (especially CONSISTENT eye contact) is also very difficult for me. I really have to force myself, and even THEN it's a struggle to meet people's eyes and HOLD my gaze there. Also have Hashimoto's thyroiditis (an immune disorder of the thyroid) and ongoing fatigue/focus/concentration issues... it's a 'long road'.
Yay, I love hearing from our lot. I'm going to throw what social skills I have to the wind and just be honest and say you have a really enjoyable voice, and pigtails just make me unexplainably happy.
38 here, diagnosed 6 years ago at 32. Known my whole life I was 'different'. Blessing and a curse in one! I often think my running that I have done for 19 years is just a rhythmic stim of doing the same motion over and over again
I got into running (well, slow jogging to be more precise 😆) last year and I loved it. The whole 'getting into the zone' thing finally made sense and I can certainly see how it can be described as a stim. A recent health flare has stopped this though (ugh!) but I hope to get back into it as soon as I can. Keep on running! 🧡
There are several you tube channels by people with Autism. Clare at "Woodshed Theory " is one and the Aussie guy Orion Kelly at "That Autisvic Guy" are two I follow. Wishing you all the best
Hi Lizzie, I got diagnosed (out of the blue) just recently at age 36, and a few months before that, ADHD. So much of how I function makes sense now! Welcome to our new community!
I was diagnosed with ADHD inattentive type two months ago at 42. I have a younger sister who was diagnosed ASD last year and also has EDS. My late diagnosis has been difficult for me after struggling for so long. Thank you for sharing your experience. It has been so validating to find others my age who are going through something so similar with a late diagnosis. I am not ASD but the neurospicy symptom overlap is remarkable, and I hope to understand my sister a little better while she opens up to me more in her own time.
Dear Lizzie, so good to meet you! I am an artist (singer and songwriter/lyricist and different preferences) from Germany in my 50''s, right now in diagnostic process (2nd on Thursday, 1rst led to the guess I might be ADHD, I am searching for validation). It is so interesting, You just started you channel 🍀. Thank you for sharing. I came across the idea being autistic roughly two years ago. I can see ADHD, on top I resonate the most with everything other (female) adults reflect. That seems so natural to me and seen backwards it explains my personality and experiences like my own autobiography. Curious what will be coming up here in future. All the best to you (to UK 💚) Teasy
Thank you for sharing. I am 57 and just got diagnosis with autism, and adhd at 46. I am trying to accept this. I do know its true. My health has changed, and I wasn't masking as well. I've also had auditory hallucinations in the last year.
I'm 45 and was diagnosed with ADHD in Nov 23, and I'm due an ASD assessment soon, with the likelihood of getting a diagnosis. It's a bit of a mind f**k to be honest. I'd never suspected it, but now it seems so obvious; and, it explains a lot. Alcohol was my coping mechanism but haven't had any in nearly 3 years.
At 54 I was diagnosed with ASD. I mentioned my diagnosis with an old friend since 2nd grade, and she said I had a feeling you had ADHD or something. She said that makes a lot of sense that I have ASD. As I reflect on my childhood years. It was obvious that I had Autism🤦♀🤦♀.
there's never been a better time to be autistic - eventhough it's still hard. thanks for sharing your journey. late diagnosis/ autoimmune is my category as well. have you been to Dr. Mel Housers site All Brains Belong? if not, follow the trail to "all the things" to see the cluster of symptoms that autistics tend to experience. looking forward to your videos.
I got diagnosed with autism at age 47 (a few weeks before age 48). I am 49 now. I look at people's eyebrows instead of their eyes. It fools them. I am in menopause. I didn't have perimenopause for long.
I was just diagnosed 5 months ago, at age 60! I've always looked at people's mouths much more than the eyes when in conversation. I feel so much more comfortable when I can just look away. When I'm looking someone in the eyes, I lose track of my train of thought, because I get so caught up in the uncomfortable sensations, and worrying that my facial expressions aren't what they "should" be. Everything makes so much more sense now that I have my diagnosis! Now comes the difficult work of figuring out what accomodations I need to make existing in this world a little easier.
I have the same struggle with eye contact as you. I don't know which eye to look at, is it even possible to look at both at the same time? And then I always wonder if it's making me look cross-eyed. The hyper focus on eye contact, body language, and facial expression all take me out of the interaction. I also turned to substances early on in order to cope with these things. Needless to say, I was in full blown addiction by 24. Luckily, I've been clean since 2017 but now I just isolate because it's too overwhelming to socialize. Thank you for sharing your experiences with all of us.
With family and close friends I have normal eye contact. Otherwise I look at people's mouths or just above the eyes. If I'm having a serious conversation, I don't look at people in the face at all, but towards the side. Then I can listen a lot better. Facial expressions are distracting!
Thank you all. Also late dx ASD. I was seeing an lpc for trying to deal with my struggles. Mentioned to her maybe I’m autistic. Guess was thinking about my thinking process, failures and extreme limitations. Sent me to someone. Sure enough ASD along w some learning disability, anxiety, attention deficit …. It’s been hard to deal w all as so much hit all at once 💞💙🙏🏻🙏🏻🙏🏻👊👊
I recommend trying a homeopathic practitioner to help with the perimenopause experience. The regular doctors did various meds and eventually surgery to help me. None of their actions lead to lasting solutions. The homeopath suggested one thing and it worked. My next step with the regular doctors was a complete hysterectomy. I have avoided that now.
On the allergy thing, I have some suggestions. I came down with Celiac disease about 30 years ago. This was accompanied by full-blown panic attacks. These burned out my adrenal glands. This can lead to a kind of negative spiral. I started becoming allergic to other things too. I got a nutritionist to do muscle testing for allergies, and she told me I allergic not just to gluten, but to milk products. I cut milk products out of my diet, and have never had another panic attack, and that was over 20 years ago. There is one supplement that is super helpful--adrenal cortex. This is just the adrenal glands of pigs or cows, and it supports burnt-out adrenal glands. You can take a lot without any problems, and at least here in the U.S. it is over the counter. I was told by a doctor that he has taken up to 8 pills a day without side effects. I take two or three a day. It definitely helps. Another thing to support the adrenals is DHEA. Since this is a precursor to testosterone and estrogen, you might want to do some research on that before taking it. It is also over-the-counter. I take DHEA when I'm feeling fearful. Of course B vitamins are also good, and stress tends to burn them out. I think autistic people have adrenal problems because they are under so much stress all the time.
Thanks for sharing and I'm sorry you've been through such a tough time. I've now been diagnosed with MCAS so thankfully I can access mast cell stabilising meds. I'll have a look into the supplement you mention at some point but as I react to so many foods and supplements, it's one very slow step at a time. 🧡
I decided to take an online autism assessment because I realized I had a lot in common with my friends daughters 3 of 4 have autism. And the fact that kids with autism who are almost non-verbal would walk up to me and start talking to me surpising the heck out of there parents. The assessment said I have it but it is almost imposible in my area to get an offical diagnosis at my age. I'm 33 now but took the assesment in my late 20's.
If you're unable to seek a clinical diagnosis (and loads of people can't for many reasons) think it's a case of researching ASD to see how much it relates to you. Self diagnosis is completely valid 🧡
@@CreativeAutistic I have done a lot of research and a lot of the "weird" things I do make sense now. I feel much better knowing more information which is what lead me to your video. I'm glad to see more people that understand the struggles of having autism. It's nice to know I'm not alone. Thank you for your content!
I think a lot of people are reaching middle age and older and are now realising the same thing. I'm going to be doing a video on this soon, but I think the answer is to research as much as you can and, above all, to be kind to yourself 🧡
Claydisarray seems like such an autistic name for a channel, to me. I can totally relate to disarray and it is one of my favorite words. If you can stand foul language, check out The HBO original series 'Deadwood'. In that series, there is a character named Joni Stubbs (I suspect neurodivergence in several characters in that show including her) who uses that word in one episode and that is how I always say the word or imagine it when reading or typing it. Disarraaaay. So much fun. Thank you for sharing. I will definitely check out your other channel.
Crikey, that would be very difficult for a lot of people seeking diagnosis in middle age and older. Even for those with family members who are still alive, they would have to be supportive of the assessment in the first place 😬
I am an HSP... Highly Sensitive Person... ( Elaine Aaron's book The Highly Sensitive Person )... but now i am thinking.. HSP is another /same.. definition of Autism spectrum.... what do you think?
I'm no therapist but I suspect there are many crossovers between the two. I'd maybe advise to keep researching autism to see how much of it resonates with you and your experiences. Self diagnosis is completely valid as it's all about understanding yourself better 🧡
I was 22 when I found out. The feeling was like I had been drowning my whole life, and I finally could rest on a lifesaver. I can’t imagine what it would feel like to be diagnosed in middle age. The worst part about it (for me) was waiting and hoping that one day I would grow out of meltdowns. Each meltdown I thought it would be the last and I would finally grow up and control them! But no, I’m 24 and still have meltdowns. At least I know why!
I think there's various reasons why someone would want to seek a diagnosis. For instance, in the UK being autistic is a protected characteristic in law so it would help with difficulties around employment, etc.
@@CreativeAutistic ah that would be helpful if that is protected in the US as well. Thankfully she is in a job that she enjoys and excels in and gets positive feedback. But she has had difficulties at jobs in the past.
I suspect I'm autistic. I'm not sure, but when I hear others, like you, explaining what it's like fir them, all I can think is "That's me... I'm like that, I do that..." I can't stand loud sounds to the point of feeling nauseous and angry when they go on for a long time. If I'm buying clothes or yarn (I do crochet) or fabric, I always have to touch them and see what they feel like and some textures make me shudder and feel repulse. Smells are another thing that I don't do well with, if a neighbour is smoking in their garden 10 yards away from me and my window is open, I'll go out and try to see just who is smoking, some perfumes are hard to deal with, dishwashing liquid can't leave any traces of a scent or I'll be annoyed and they have to smell right for me even to buy one. I can't stand flashing lights, Christmas blinking lights are not good, and I can't just sit outside in tge sun. I can't even stand to be outside reading in a well lit area because the reflexion of the light in the pages of the book hurts my eyes. If I'm talking with a person face to face, I will start by looking them in the eyes because I remember hearing somewhere about how that is important, but I'll soon catch myself looking at their teeth or lips and wondering if they notice if I'm looking at their mouth too much. I avoid anything that puts some expectations on me, even if it's something I love doing, like crochet, if it turns into something that people are expecting me to do, I'll find a thousand excuses not to do it. I have anxiety/panic attacks just by thinking about something that I have to do. Going to a doctors appointment, to a family member's home, to work, shopping... anything like that, is a nightmare for me. I'll have an anxiety attack just by thinking about it. There are so many things that happened in my life,, that when I started hearing others talk about how they were diagnosed late in life, all I can think is "So this is why I acted like this..." Unfortunately, I live in Portugal and here we are dependent on our doctors. If they don't send me to get a diagnosis, I can't ask for one, and I can't suggest it either because they'll just put it down as me wanting to mislead them. I suffered with asthma for years and my doctor told me that I just "wanted to have asthma because my mother also had it." I was in my 20s when that was finally diagnosed by another doctor who decidedto actually have me do some exams. Sometimes I despair, because I know that something is wrong with me, it's obvious. I've always been the odd one out. I've always been the one pointed out as weird, cold. I was the wilderbug in my family. The one who always hid away from everyone and hated hugs and to be held...
I think it takes a lot of time to start reframing 'feeling wrong' to just 'being different' from neurotypicals - and there's a whole lot of us 'different' people. I think a lot of onus is put into getting a diagnosis, but it's often impossible in terms of accessibility and cost. Self diagnosis is completely valid as it's all about understanding yourself better. 🧡
Aspergers should just be called autism. Diagnosed at 53, nearly 60. Congrats on your first video. The later we get diagnosed and the harder our lives were, the more complex our diagnosis can get. Resulted in ASD-2, ADHD at the most severe, GAD, SAD, PTSD, hEDS and a few others. Pots is the other common combeite.
@@CreativeAutistic Of Course. I should give you a reason on the Aspergers. Far too long both Aspergers and "high functioning" has been used to describe people that have an easier time masking symptoms compared to those with a more normal and below IQ. In and Out of the community, this can easily lead to "I do not have to worry about the symptoms since they do not affect me". But masking is not the same as not having the symptoms.
I currently identify as "presenting autistic" because I can't seem to get a diagnosis, but it means so much to see these videos and feel supported. I'm 46, all the online screenings say, "yup--you're probably autistic," but actually finding a provider who will do the official testing to get an official diagnosis? I was literally told by someone who I think was trying to be supportive was, "well, most don't do ADULT testing--only child testing--because adult autism testing isn't seen as important."
Ugh, I'm sorry you had to deal with that. I think self diagnosis is completely valid as it's *so* difficult for many people to get an assessment due to accessibility, costs, etc - and ultimately it's all about understanding yourself better 🧡
Here is Australia most adult assessments have to be funded privately, but if you can afford to get it done there are quite a few Psychologists who do assessments that identify as Autistic or Neurodiverse themselves. There is usually a waitlist. I booked an assessment late last year for an appointment in September. Psychologists who are autistic themselves and specialise in doing autism assessments do think testing is valuable.
My test came back normal which is very common. Thankfully I've now been diagnosed based on my symptoms and positive reaction to cromolyn sodium (I'm really hoping the longer I'm on it, the more it'll reduce symptoms)
AuDHD... People keep talking about ADHD and ASD like they have just ADHD or just ASD, but that is not how it works, having AuDHD is a THIRD separate condition with it's own special set of life situations. It would be like me as a white male European, comparing my life to a black low income american and invalidating their life experience, because my life is so much better.
Thankyou for sharing. So valuable to hear your story. I've been on the journey now for a while also and am getting closer to seeking a diagnosis so hearing the nuances of different people's experiences is greatly helping guide my own path.
Aww, thank you. I found listening to other people's experiences really helpful too. I previously thought I wouldn't be 'autistic enough' to get a diagnosis (if that makes sense) 👍
Yep. Makes total sense. That's one of my fears also. I tried to get a diagnosis of Aspergers back in 2010 but it did not go well, so I put all those thoughts aside for more than a decade but now after a significant and damaging shut-down late last year, I am back on the trail of a diagnosis. This time I am really trying to get all my due diligence in research done before hand particularly as I'm in Australia and there is no public funding for adult diagnosis, so there is significant risk of spending several thousand dollars for no outcome. Anyway. Thanks again. I hope things go really well for you now you have the certainty about who you are. Cheers. Phil.
Excuse the scrappy illustrations! It's been around ten years since I've drawn anything digitally so I'm going to use this channel as an excuse to practice and get better! 😜 EDIT: Thank you so much for all your lovely comments - I'm absolutely blown away as I wasn't expecting very many people to watch this video! I'm trying to respond to everyone but apologies if I miss anyone. Please know I'm reading all of them! 🧡
Welcome to the adult-diagnosed community. I was diagnosed in December at age 75. It's interesting and strange to think back to things that happened in life and realize they were related to autism when I and nobody around me suspected. I have no experience of being a neurotypical person, but I have lots of experience with being treated like a neurotypical person!
Thanks, Martha - I can very much relate! 🧡
Hi. At 65, last year, I figured this out. Autistic with a side order of ADHD. I too do art...mixed media, but not "professionally". Nice to hear from another older female who has discovered this.
Thank you. I think a fair few of us are artists 🧡
I have self diagnosed, at 45. Its such a huge relief to know whats “wrong” with me. But also sad bcuz my life could have gone better if i had known earlier. And now it feels a bit late to do much about it.
I think it’s very common to feel this way - I know I do. I try to focus on the positives that probably wouldn’t have happened if I’d had an earlier diagnosis 🧡
I am the same Carrie at 51 try not focus on what could have been and be thankful you know now so the rest of life does not have to be the same muddle as before
It's understandable there'd be grief at what could have been. Give yourself permission to grieve before you move on to what now... what next...
I'm 58 and just realising, a year after my daughter's diagnosis that I may also be autistic, definitely ADHD and I already knew about the anxiety, noise sensitivity and some touch issues. I know about masking but didn't realise that's what all my head-talk was over all these decades!
@carriemartin I was diagnosed autistic & adhd aged 48, now 54, & it was a relief for me too, also sadness.. it's really important to acknowledge & feel grief & regrets (& other emotions too - or they can cause health issues, as I've been finding)
A recent adhd friend introduced me to videos (on UA-cam) by Martin Petchell about Grief & Joy, & discovered Francis Weller too.
Love to you ❤️
I was diagnosed at 48 and am now 50; I also suspected for about 20 years but told myself someone would have noticed by now. Apparently us women are very skilled at masking. Thank you for sharing your story.
Yes, it seems a lot of us are extremely skilled at masking, particularly after decades of doing so 🧡
Fellow late diagnosed middle-aged autistic (AuDHD in fact) here, welcome to the fold! It's a unique experience to have lived with and adapted to one's sensitivities for so long only to discover that it's not just eccentricity but rather an actual, specific biological configuration responsible for many of the life challenges that one has had to face without systemic recognition or support. Keen to check out your clay channel as well (I love stopmo and have long adored the Quay Brothers' oeuvre)!
Thank you! (and I love the Quay Brothers too!) 🧡
Recently diagnosed with autism and adhd at the age of 51. Like you I have known that I was autistic for many years. Like many others, I discovered mine when my daughters were diagnosed, my eldest with ADHD and my youngest with autism. I also have immune system problems!
Good on you for starting your channel! I am sure many will find it helpful. You are right that we older ones are not represented in the social media space and you will give comfort to many. Good luck!
Thank you so much! I'm glad you got your diagnosis too 🧡
You are very brave sharing openly. Im shy about showing my face 😅 I like the figurines, its cool. Do you use clay? Ahhh. Yeah ive also have an auto immune disease. Ankylosing spondilitis...inflammed spine, joints. 😑 i got diagnosed a couple of months ago. Im almost 35. I subscribed. Open your channel grows. It really helps me to see autistic peoples testimonies.
Thank you - I'm glad you're finding UA-cam videos helpful. And yep, I use mainly polymer clay 🧡
I'm so glad I found your channel! Middleaged autistic women experience seemed hard to find. I was recently diagnosed at 48, thought I would never find out why I always felt so different all my life. Lots of guilt and self blaming/self loathing☹️ But after all this years of masking has messed with my identity, who am I/how shall I be without some mask? Before the diagnosis I always felt I had to pretend to be human, like a fake somehow. But now I am facing the problem of how to be autistic. Comments like: You dont seem autistic! Are you sure your autistic? Make me feel like an imposter again🙄
Thank you for sharing and congrats on your diagnosis! I hope it helps you to slowly reframe things, and I'm sure it will. It's difficult to ignore these comments/questions, but the more you learn about autism, the more ridiculous these comments seem. Knowledge is power ✨💪✨
Congratulations on finally knowing. I was diagnosed with ASD2, ADHD and GAD at 53.
Thank you. I'm glad you got your diagnoses too 🧡
I just found your channel and want you to know that I can relate to you in several ways. I will be 53 in a few months, have already menopaused (thanks to a hysterectomy at 40), have had mental health, social, communication issues my entire life, but was finally diagnosed with autism last week. I admit to not having known enough about autism until the recent months, which is a testament to how uninformed the general population must be. I always thought I was destined to live out my remaining years sad, scared, lonely and improperly medicated for this, that and the other psychological condition. I allowed myself to research a bit about autism after catching a youtube short which resonated with me. I waited a few weeks then concluded that it was a real possibility. With that, for the sake of there being a tiny glimmer of hope of this being my answer, I found an expert in adult diagnoses. She validated my suspicion. I've been going from "this explains everything!" and feeling ok with it, to "I've no idea who I am" and freaking out. The good thing, the AMAZING thing, is that there are so many of us. I also want to mention that i also used alcohol as a crutch of sorts, for a long time. It just made interactions easier, albeit still not authentic. It wasn't a good idea and I'd never ever recommend it, but it's what i did to get me through horrible times. I don't drink now due to reflux and the awful feeling of a hangover. Little did I understand that it was a way to mask my discomfort.
I can relate to a lot here! I think alcohol is a huge crutch for lots of autistic people. I kind of miss it but I'm thankful I don't have hangovers anymore as they were always awful and often lasted for days.
Diagnosed at 36, and it was equally crushing and comforting.
I myself am a UA-camr and i wanted to say
1) LOVE love LOVE your clay channel, very cute work you do
2) You have a very great UA-cam presence
3) I hope you keep it up
I didn't realize how much I wasn't really "doing eye contact" all my life until I became more self aware about this and allowing myself to be my real self. Although, I did notice over the years that I was focusing in on weird details like people's teeth or fingernails. And then I would wonder if other people are looking at those details on me (ack!). I actually find it really distracting and tiring to look at people. I miss 2020 when it was cool to wear a face mask for a split second because it was less stuff to process and I didn't feel compelled to make fake facial expressions.
I've had a very similar experience with becoming aware of the eye contact thing. The first thing I remembered is when I was in college, I'd look away as soon as a professor would look at me. During a lecture, I'd watch them but felt SO weird and uncomfortable if I locked eyes with them. The more I thought of it, I notice that I watch people's mouths more than anything. It's not that I/we CAN'T look people in the eyes, as I learned to do it after realizing what I was doing. That's something I don't think non autistics understand.
I can relate for sure! I still mask up because of my dodgy immune system and I love not having to focus on making the right facial expressions. 🧡
As an aspie that was diagnosed at 48, I can relate with the relief of receiving the diagnosis because it was extremely disconcerting knowing that *something* was off-kilter (compared to society in general, allistics, et al) with me my entire life, but not having an explanation for what it is.
I cannot relate with crying over the diagnosis. I am a bit disappointed at being deprived of the support that would have made my life both happier and more productive, but that came in retrospect. In the moment of the diagnosis, I was mostly gratified at having my suspicions confirmed because that was my leading theory going into the testing process.
Acknowledgment and acceptance of the diagnosis so that I no longer have the looming cloud of the unknown above my head has done more good for my mental health and capability of dealing with my other challenges than any amount of strangers trying to tell me how I should live my life.
Agree - self acknowledgement and acceptance of the diagnosis is really powerful. My mental health really improved once I figured out I could be autistic.
Lizzie, thank you so much for your courage, your authenticity, and your kindness and generosity in sharing your journey of self-discovery with others!
Aww, that's a lovely thing to say - thank you so much! 🧡
Thank you for sharing 🙏🏽 I have my first appointment next month for testing. I turn 50 later this year. It’s helpful to see others late diagnosed in their 40s +
Aww, good luck! I really hope it's a positive journey for you 🧡
Just coming across your channel now. Thank you for sharing your experience esp. for those who are getting a dx in their 40s and 50s, representation is so important. Subscribed!
Thank you so much - glad it was helpful! 🧡
@woodshedtheory Me too Claire. She showed up in my feed. UA-cam is great about promoting small channels as well. I subscribed and then saw your comment
Ah, didn't realise you had a channel too - have now subscribed 🧡
@@autisticjenny not seen your channel/videos show up on UA-cam before - just subscribed! I wonder how many others are hiding on UA-cam until the algorithm recommends them one day 🤔
@@Simon-L-B thank you Simon. I appreciate that. I am looking forward to this channel too. She seems like someone I can really relate to. Thank you for supporting the autistic community! :)
Recently diagnosed with multiple sclerosis at 51 and had to start therapy for the first time in my life because I have adjustment disorder associated with my diagnosis.
Frankly, due to my childhood, therapy is long overdue.
I've been diagnosed with ADD/PTSD and Autism testing has been suggested. At my age, and with all I have just been slammed with, do I really need to know?
Anyone else really tired!
GROUP HUG!
Virtually of course.
I like my hugs real tight and over quickly, please ❤
Ha! I think a lot of us are veeeeery tired! Thank you for sharing 🧡
Thank you. I've recently turned 60 and figured out that I was autistic about 18 months ago. I mentioned it in a support group for overcoming emotional abuse (CPTSD) and their response was "Oh, you didn't know? It's been obvious to us since you joined." Also ADHD, which is perhaps what masked my social awkwardness. The combination of CPTSD and autism means I find it very difficult to ask for help, and this includes going to my GP for anything. I was told about the NHS "Right to Choose" a year ago and I've done nothing about it. Your video has just given me new motivation to get my diagnosis.
Thank you also for mentioning MCAS. I just searched the web speculatively for "mast cell oedema" not knowing that it was actually the name of a condition! I had occasional mild peripheral oedema after the first AstraZeneca Covid-19 vaccine, which was blamed on my antidepressant (Escitalopram), then it flared up big time and has been the bane of my life for 3 years after the second AstraZeneca Covid-19 jab. My feet are so swollen that I can't fit my shoes or boots and I'm having to wear Crocs. I'm being treated for the oedema with a diuretic (Furosemide) but it provides only partial symptomatic relief, and causes severe night-time cramps in my feet, calves and sometimes my thighs, which is why I was awake and watching your video at 4am. This gives credence to my hypothesis that my oedema is an auto-immune response, triggered by the AstraZeneca vaccine. I'll need to join the queue for compensation, it seems.
Wishing you all the best in seeking a diagnosis. I'd highly recommend the Right to Choose pathway 🧡
I was diagnosed at 48. I can relate! I did subscribe😊
Thank you - glad you got your diagnosis too 🧡
I am 50, in full blown menopause, was diagnosed with ADHD when I was 9, and highly suspect that I am also Autistic. It is so nice to see somebody my age talking about this. Like you said, other later diagnosed creators are in their 20s or 30s, and while their voices are great it is also nice to have somebody who is closer to my actual age. Thanks for starting this chancel. I'm from Kentucky USA. Nice to meet you.
Thanks, Denise - it's great to meet you too 🧡
I was diagnosed last year and also going through perimenopause. It’s been quite a rollercoaster. I often find myself experiencing imposter syndrome around my Autism diagnosis. I’ve been feeling so burnt out and run down that I haven't had the desire to keep up with video creating. Good for you for starting this channel and adding representation to us late diagnosed women.
I totally get the imposter syndrome thing - I imagine a whole lot of late diagnosed Autistics do too. 🧡
I'm with u I got my results yesterday few montns shy of 53. Honestly I never thought I was autistic untill late 2023 because I didn't act like the autistic males in my family. Also because I have combined ADHD and I blamed everything to ADHD. I used to say I'm severely ADHD. In reality I was missing the Autistic part of my diagnosis. I even got a EEG that showed both diagnosis in my brain.
You had it better than me my test lasted from 9 am to 2pm with a 30 min lunch time. I was exhausted by the time I did the EEG. A d for 3 week I had to wait for the results I was I. Total breakdown because I didn't think I was able to show my symptoms because of a bad experience with a different tgerapist earlier. Little did I know it was so clear!
Oh wow, I didn't know that EEG's could be part of the diagnostic process (super interesting!) I'm glad you got your diagnosis too 🧡
Me either. EEG can dx ASD in a brain ???
Thanks for sharing this! I am adding it to my playlist if autistic creators talking about autistic topics. There are a number of videos there about adults' autistic discovery journey, but most are in their 20s and 30s. You are right that it is important to have representation of all ages.
Thank you so much! I'll be sure to check it out 🧡
Thanks for sharing! I have had a similar experience, but i am just now pursuing a diagnosis at 29. Very validating to hear other late diagnosed people talk about their experiences and it is so helpful. Its what actually pushed me to pursue some kind of diagnosis this year and im so grateful so many people in the community are sharing.
You're very welcome - I found other folks' videos really useful too. I hope the diagnostic process goes well for you 🧡
Great video. I was diagnosed at 37, even though I already had two diagnosed children by then.
Thank you! I'm glad you and your children have been able to get your diagnoses. 🧡
Thank you for your candid sharing. I too am 49. No diagnosis. (Completely relate to your feelings of completing such tasks!) But after watching yours and countless videos on Autism and ADHD I am without a doubt in both communities. I find it tremendously freeing. A reason! For it all. And I mean all the being the “odd one” moments, and also my current health situation that has gotten acute these last few years. It all adds up. I remember saying something to my dad about me thinking I’m autistic and his face said it all. It was like this understanding just washed over his face.
I really relate to the freeing feeling! I'm sorry to hear about your health issues - it seems to be a common issue with autistic and ADHD folks 🧡
I was diagnosed in my late 60s. It was actually a relief because it explained basically my entire life. I've struggled with feelings of regret over every little thing that didn't go as well as it could, and I have a long memory, so, that's a lot of regret. LOL. But now I can dismiss so much of those regretful moments as due to being on the autism scale. Hey, it all seemed normal to me at the time! 😉
Regret is one of the worst feelings. I sometimes wonder if my terrible long term memory is a good thing! 🧡
I had my last diagnostic appointment last week - 55, female, in the UK and also dealing with perimenopause and diagnosis here... so glad to "meet" you!
Aww, glad to meet you too Jane. It sure is a lot to process! 💛
I relate alot to having difficulty coping with body change!
Teen years were hell for me, partly because of body changes, even if I welcomed having a more ‘grown up’ body. But suddenly I didn’t fit or suit the same clothes and clothing style, it just threw me off.
And pregnancy, it is the same problem but enhanced, since the changes are so extreeme and rapid! Even the period after birth is horrible in the context of body-change.
Thank you for your video ❤
Oh crikey, I can't even imagine dealing with body changes in pregnancy. So many challenges, I'm sure! 🧡
Thank you for sharing your story lizzie, and for starting your own youtube channel on autism. I was diagnosed aged 38 im now 45, it felt like a long process i had to go and see a doctor for i think it was 8 sessions it was spread out over quite a lengthy time period, and then see the lady who eventually gave the diagnosis for a 7hr face to face meeting!! There was a 45 minute break in that time. Then i had to wait for her to go away and write to me weeks later with her decision. I also have sensory issues with noise and light, i dont think a lot of people truly understand noise sensitivity and how disabling it is. Iv'e never been one for mixing in social groups i just dont like it at all it feels pressurised, foreign and fake. Thank you.🙋♂️
Oh gosh, that sounds like an intense and stressful experience in terms of getting your diagnosis. All worth it in the end though, I'm sure! 🧡
I'm sorry about the loss of your mother at such a young age❤, my mother passed away aged 27 when i was seven. She's an unofficial member of the 27 club, in fact she's probably having a coffee with kurt cobain, brian jones, jimi hendrix, janis joplin, amy winehouse etc right now🙋♂️@@CreativeAutistic
Oh, that's really tough. It's a good way to think of her now though. 🧡
Diagnosed with AuDHD 2 years ago as I turned 50. Had similar issues at schools in 80's, became high masker - but struggling beneath. Luckily, met and stayed with great partner early on and they have helped with frequent burnouts over years since. Finally, after yet another crash, came to notice of (wonderful) NL health services and soon got dx's. Even with dx's, still on a journey to acceptance. TY for sharing your experience, it really helps.
Thank you. Having an understanding partner helps so much 🧡
I just got diagnosed at age 40. It’s such a relief! Feels like my brain is finally resting from always trying to figure out the puzzle that was me. Now I know and can work with myself, now that I know what I need.
Aww, congratulations Christine! It's such an enormous thing to find out, isn't it? 🧡
Thank you for sharing! I too am 49 awaiting my diagnosis this week and I also have the fear that they'll say "Nah, you're just weird," lol. I worked in retail during the 90s, I was always told I wasn't showing eye contact when I know I did, I remember thinking "Okay do they want me to do my job or just sit there doing eye contact with everyone that walks through the door?"
I always felt like an alien, I didn't understand people and they likewise did not understand me but I didn't know I was autistic until I started researching for my oldest son because he was struggling in school. While researching I felt like they were all talking about me.
🧡
Such is the story of my life. It wasn't until nearly 50 years of age that I realized I have BOTH Autism AND ADHD.
I've always had sensory sensitivities. I've always had differences in language processing and socializing. The push and pull between craving order and struggling to maintain it. Hyperfocus and highly distractible. Wanting to Do All The Things, yet feeling burnt out before the end of every single day. The list of struggles and issues goes on ... And yet, because I've learned how to mask and almost blend in, many people are not aware that I really am struggling to live up to "normal" expectations. Most of my friends and family either wouldn't believe that I could possibly have either Autism or ADHD, or they're surprised when they realize that I have both together, "Yes, everything finally makes sense."
On the topic of "I can feel sound, and sometimes it hurts": I describe it as, "it feels like something is physically striking my eardrums." For those who can't imagine the sensation, I offer two scenarios that you might relate to.
(1) Have you ever had a droplet of water pull a "Luke Skywalker versus the Death Star" and hit you square on the eardrum? It kind if hurts, doesn't it? Imagine that all sudden, sharp, or loud noises make it feel like your eardrums are being assaulted by a continuous sprinkling of water droplets. You'd soon be covering your ears, crying out to "make it stop!"
(2) In a bare-floor empty room, like when you're moving into a new space, all the sounds bounce and resonate and feel physically uncomfortable. This is everyday life inside my ears. Then, after adding furniture, a rug, anything to soften the acoustics, sounds feel normal and comfortable. I was introduced to Flare Calmers recently. They don't block or muffle sound, as would earplugs. They soften the acoustics, dampening the resonance, just like adding furniture to an empty room. One of these days, I want to write a review based on my personal experience with Calmers. If only these existed 40+ years ago!!! ...If only anyone took the time, decades ago, to analyze and recognize why I appeared to be "highly intelligent and almost normal" and yet I was struggling so hard inside my mind to present myself as "almost normal." Plus, it didn't help that I'm female, quiet, not disruptive, studious... I don't fit into the stereotypical mold of "hyperactive male child."
❤️🩹
I can relate to a lot here for sure!
This is nearly my story exactly, but I don't have a diagnosis. I completely understand the eardrum pain from sound, too.
Thanks for sharing your story! My appointment is today 😬
Oh crikey, good luck! 🧡
@@CreativeAutistic thank you! Officially dx. No surprise, but huge relief for sure 🙌🏼
@@rachellorton4693 Congrats on your diagnosis! 🧡
Thank you so much for your video. I’m a 62 year old woman from the USA & I’m going to have my autism assessment in august. I’m very nervous because it’s going to be in person & I’m going to have to go through the ADOS2. But thank you I’m very grateful to know I’m not alone.
The very best of luck with your assessment process (I completely understand the nerves!) 🧡
Good luck and I hope you get the right answer.
Hi ❤ Diagnosed years ago(as an adult) but never did anything about it.
It does help explain my weirdness. I have amazing self esteem... thankfully. ❤
Self-esteem matters so much. thankfully I'm getting better at it these days 🧡
I am 62 going for assessment. An artist too. X
Good luck with your assessment 🧡
Cheers, very informative video. I've been diagnosed at 35 and my aunt in law was diagnosed ~50 as well so videos like this help me understand her struggles and give me insights on how to be a better family member.
Glad it was helpful 🧡
Congratulations on your Autism diagnosis. That's wonderful. Your journey in self discovery will be so much more enriching now that you know for sure. ❤ I was diagnosed with Autism at 47. Knowing is one of the best things that ever happened to me. Hopefully it will help you understand your medical issue better as well. A lot of ND people have medical issues like that.
Thank you so much! I'm glad you got your diagnosis too 🧡
❤️@@CreativeAutistic
I’m newly diagnosed adhd and autistic at 55. I knew I was ADHD but I never thought I was also autistic. So like you, I in a new discovery phase of my life.
Congrats on your new diagnosis - I hope it helps you to slowly reframe things 🧡
@@CreativeAutistic I really don’t know yet. It’s been a strange few weeks. But it sure clears up a lot of things that’s for sure.
Someone [5-2 YO] in the process of getting things started. But it is [would be] good to have something to pinpoint [what] the problem could be. May Abba [God] bless you, your family, and your ministry. And help you in your everyday life.
Found out I was autistic a couple years ago in my 30's. Wasn't screened for ADHD but I'm convinced that's what I'm dealing with as well. The center I was evaluated at only evaluated for autism unfortunately.
I also found out that my chronic fatigue and lots of physical symptoms were because of POTS and Ehlers-Danlos Syndrome. If I'd never discovered my neurodivergence, I likely wouldn't have discovered all the rest.
It's a similar story for me as it really helped with my diagnosis of MCAS + POTS. 🧡
Amazing video Lizzie and it's such a great idea to document your journey from the beginning, I wish you all the best with this new channel ❤ 🤓
Aww, lovely to see you over here too Sally! 😍 And yep, I'm looking forward to seeing where this channel takes me over the next few months 🤓💛
Hoping you’ll see this. My 6 year old is autistic. I have adhd and didn’t know a whole lot about autism until I had my son. He was my 4th child and around the time he was 2, there were noticeable differences from my other kids when they were the same age. I have learned that autism can be hereditary, and that a large number of people who have adhd also have autism. I do have a lot of symptoms and plan to speak with my psychiatrist soon. I’ve been doing a lot more research on adult autism to be sure I’m on the right track in my thinking before I bring it up. Thank you so much for sharing your story! You are very talented, by the way! I wish you the best! 😊
Thank you so much - and thank you for sharing too 🧡
@@CreativeAutistic You’re welcome!
Just turned 40, and my son was diagnosed w/ Autism about 3 years ago (he's 6 now). Ever since his diagnosis, since doing a lot on research on Autism, it was like a lightbulb went off in my head & I was like, '.....Ohhhh....'
I always felt 'different', like an alien compared to other people, and never really knew why. My son getting diagnosed open my eyes, and I've been trying to pursue a diagnosis for myself ever since. It hasn't been easy... and it's kind of sad that, as difficult as it was to get my son formally diagnosed, it's even harder for ADULTS to get diagnosed. I think a lot of older doctors are basically like, "Well, you're an adult. You've made it this far, why do you need a diagnosis NOW?" (Which is obviously frustrating and makes you feel like a hypochondriac or something)
Thank you so much for sharing your experience & words - it helps to know that other older people trying to get a diagnosis aren't alone.
As a side note: among many, many other things, eye contact (especially CONSISTENT eye contact) is also very difficult for me. I really have to force myself, and even THEN it's a struggle to meet people's eyes and HOLD my gaze there.
Also have Hashimoto's thyroiditis (an immune disorder of the thyroid) and ongoing fatigue/focus/concentration issues... it's a 'long road'.
Thank you for your kind words - and yep, Doctors can be a real nightmare to deal with as an adult 🧡
Yay, I love hearing from our lot. I'm going to throw what social skills I have to the wind and just be honest and say you have a really enjoyable voice, and pigtails just make me unexplainably happy.
Ha, thanks so much! 🤓 🧡
I've been questioning whether or not I am and I turned 40 back in April. Thank you for sharing. I'm gonna look into it.
Good luck with your journey 🧡
@@CreativeAutistic thank you! I'm in the USA so I'm saving up money for it.
Thank you so much for sharing this. It is so helpful. I’ve got a similar history. This was so validating ❤
Glad it was helpful! 🧡
❤ thanks for sharing. Adhd autism diagnosis at 40. Subscribed ✨️🌷
Thank you, and welcome! 🧡
thank you for this!!! yay so glad to find others on this journey too. I am about 3 months in.. :O
You're very welcome, Krista! I hope it slowly helps you to reframe things 🧡
38 here, diagnosed 6 years ago at 32. Known my whole life I was 'different'. Blessing and a curse in one! I often think my running that I have done for 19 years is just a rhythmic stim of doing the same motion over and over again
I got into running (well, slow jogging to be more precise 😆) last year and I loved it. The whole 'getting into the zone' thing finally made sense and I can certainly see how it can be described as a stim. A recent health flare has stopped this though (ugh!) but I hope to get back into it as soon as I can. Keep on running! 🧡
There are several you tube channels by people with Autism. Clare at "Woodshed Theory " is one and the Aussie guy Orion Kelly at "That Autisvic Guy" are two I follow. Wishing you all the best
Thank you so much. I came across Woodshed Theory the other day so will certainly check out their content soon 🧡
Hi Lizzie, I got diagnosed (out of the blue) just recently at age 36, and a few months before that, ADHD. So much of how I function makes sense now!
Welcome to our new community!
Thank you so much, Simon! It's really nice to be here. Congrats on your diagnoses 🧡
I was diagnosed with ADHD inattentive type two months ago at 42. I have a younger sister who was diagnosed ASD last year and also has EDS. My late diagnosis has been difficult for me after struggling for so long. Thank you for sharing your experience. It has been so validating to find others my age who are going through something so similar with a late diagnosis. I am not ASD but the neurospicy symptom overlap is remarkable, and I hope to understand my sister a little better while she opens up to me more in her own time.
I'm sure you'll be able to understand yourselves and each other more 🧡
Dear Lizzie,
so good to meet you! I am an artist (singer and songwriter/lyricist and different preferences) from Germany in my 50''s, right now in diagnostic process (2nd on Thursday, 1rst led to the guess I might be ADHD, I am searching for validation).
It is so interesting, You just started you channel 🍀. Thank you for sharing.
I came across the idea being autistic roughly two years ago. I can see ADHD, on top I resonate the most with everything other (female) adults reflect. That seems so natural to me and seen backwards it explains my personality and experiences like my own autobiography.
Curious what will be coming up here in future.
All the best to you (to UK 💚)
Teasy
Thank you so much, Teasy. I hope the diagnosis process goes well for you 🧡
Thank you for sharing. I am 57 and just got diagnosis with autism, and adhd at 46. I am trying to accept this. I do know its true. My health has changed, and I wasn't masking as well. I've also had auditory hallucinations in the last year.
It's a really difficult thing to process but I hope it brings you some relief 🧡
I am 71. It's been really depressing to know all the pain in my life could have been helped.
I can imagine. I hope you're able to find a positive way forward 🧡
I'm 45 and was diagnosed with ADHD in Nov 23, and I'm due an ASD assessment soon, with the likelihood of getting a diagnosis. It's a bit of a mind f**k to be honest. I'd never suspected it, but now it seems so obvious; and, it explains a lot. Alcohol was my coping mechanism but haven't had any in nearly 3 years.
Good luck with the process. It can/will be a very emotional journey, but I found it all to be really worth it. 🧡
I was diagnosed at 49.9 yrs old.
I'm glad you got your diagnosis 🧡
Thanks for sharing.
Thanks for watching 👍
At 54 I was diagnosed with ASD. I mentioned my diagnosis with an old friend since 2nd grade, and she said I had a feeling you had ADHD or something. She said that makes a lot of sense that I have ASD. As I reflect on my childhood years. It was obvious that I had Autism🤦♀🤦♀.
there's never been a better time to be autistic - eventhough it's still hard. thanks for sharing your journey. late diagnosis/ autoimmune is my category as well. have you been to Dr. Mel Housers site All Brains Belong? if not, follow the trail to "all the things" to see the cluster of symptoms that autistics tend to experience. looking forward to your videos.
Ooh, I haven't. Thanks for the tip - I'll be sure to check the site out 👍
I was also late diagnosed. I was 47 when I got my official diagnosis. It can take a few years to work through all the what-ifs and ahah moments.
I can imagine it takes a long time to fully process (if ever!) 🧡
oh Gosh! I have my assessment next month and I'm 58 so you aren't alone!
Thank you - good luck with your assessment 🧡
Disabused at 45. I've known since my sighted was diagnosed when she was 9. She's almost 27 now.
Thank you for sharing 🧡
@@CreativeAutistic of course!
I got diagnosed with autism at age 47 (a few weeks before age 48). I am 49 now.
I look at people's eyebrows instead of their eyes. It fools them.
I am in menopause. I didn't have perimenopause for long.
I've never been able to master looking at eyebrows for some reason. I'm glad you got your diagnosis too 🧡
I was just diagnosed 5 months ago, at age 60! I've always looked at people's mouths much more than the eyes when in conversation. I feel so much more comfortable when I can just look away. When I'm looking someone in the eyes, I lose track of my train of thought, because I get so caught up in the uncomfortable sensations, and worrying that my facial expressions aren't what they "should" be.
Everything makes so much more sense now that I have my diagnosis! Now comes the difficult work of figuring out what accomodations I need to make existing in this world a little easier.
I have the same struggle with eye contact as you. I don't know which eye to look at, is it even possible to look at both at the same time? And then I always wonder if it's making me look cross-eyed. The hyper focus on eye contact, body language, and facial expression all take me out of the interaction. I also turned to substances early on in order to cope with these things. Needless to say, I was in full blown addiction by 24. Luckily, I've been clean since 2017 but now I just isolate because it's too overwhelming to socialize.
Thank you for sharing your experiences with all of us.
Congrats on getting clean - I really sympathise! I hope to make a video about autism + alcohol at some point 🧡
@@CreativeAutistic Oh yes that'd be a great topic for a video. Autism and alcohol isn't talked about much so that'd be an interesting one.
With family and close friends I have normal eye contact. Otherwise I look at people's mouths or just above the eyes. If I'm having a serious conversation, I don't look at people in the face at all, but towards the side. Then I can listen a lot better. Facial expressions are distracting!
Thank you all. Also late dx ASD. I was seeing an lpc for trying to deal with my struggles. Mentioned to her maybe I’m autistic. Guess was thinking about my thinking process, failures and extreme limitations. Sent me to someone. Sure enough ASD along w some learning disability, anxiety, attention deficit …. It’s been hard to deal w all as so much hit all at once 💞💙🙏🏻🙏🏻🙏🏻👊👊
It's so much to process but I hope it helps you understand yourself much better 🧡
Interesting process
🧡
I recommend trying a homeopathic practitioner to help with the perimenopause experience. The regular doctors did various meds and eventually surgery to help me. None of their actions lead to lasting solutions.
The homeopath suggested one thing and it worked. My next step with the regular doctors was a complete hysterectomy. I have avoided that now.
I'm glad you were able to avoid the hysterectomy 🧡
I was diagnosed at 58. It is absolutely unbelivable.
It takes a while to process for sure 🧡
On the allergy thing, I have some suggestions. I came down with Celiac disease about 30 years ago. This was accompanied by full-blown panic attacks. These burned out my adrenal glands. This can lead to a kind of negative spiral. I started becoming allergic to other things too. I got a nutritionist to do muscle testing for allergies, and she told me I allergic not just to gluten, but to milk products. I cut milk products out of my diet, and have never had another panic attack, and that was over 20 years ago. There is one supplement that is super helpful--adrenal cortex. This is just the adrenal glands of pigs or cows, and it supports burnt-out adrenal glands. You can take a lot without any problems, and at least here in the U.S. it is over the counter. I was told by a doctor that he has taken up to 8 pills a day without side effects. I take two or three a day. It definitely helps. Another thing to support the adrenals is DHEA. Since this is a precursor to testosterone and estrogen, you might want to do some research on that before taking it. It is also over-the-counter. I take DHEA when I'm feeling fearful. Of course B vitamins are also good, and stress tends to burn them out. I think autistic people have adrenal problems because they are under so much stress all the time.
Thanks for sharing and I'm sorry you've been through such a tough time. I've now been diagnosed with MCAS so thankfully I can access mast cell stabilising meds. I'll have a look into the supplement you mention at some point but as I react to so many foods and supplements, it's one very slow step at a time. 🧡
I decided to take an online autism assessment because I realized I had a lot in common with my friends daughters 3 of 4 have autism. And the fact that kids with autism who are almost non-verbal would walk up to me and start talking to me surpising the heck out of there parents. The assessment said I have it but it is almost imposible in my area to get an offical diagnosis at my age. I'm 33 now but took the assesment in my late 20's.
If you're unable to seek a clinical diagnosis (and loads of people can't for many reasons) think it's a case of researching ASD to see how much it relates to you. Self diagnosis is completely valid 🧡
@@CreativeAutistic I have done a lot of research and a lot of the "weird" things I do make sense now. I feel much better knowing more information which is what lead me to your video. I'm glad to see more people that understand the struggles of having autism. It's nice to know I'm not alone. Thank you for your content!
🧡
Hi, I'm 61 and thinking that I'm might be autistic. Have you any advice about what information I need about myself. Thanks Suzanne
I think a lot of people are reaching middle age and older and are now realising the same thing. I'm going to be doing a video on this soon, but I think the answer is to research as much as you can and, above all, to be kind to yourself 🧡
Welcome to your second puberty
Snap, same 49 just received
Claydisarray seems like such an autistic name for a channel, to me. I can totally relate to disarray and it is one of my favorite words. If you can stand foul language, check out The HBO original series 'Deadwood'. In that series, there is a character named Joni Stubbs (I suspect neurodivergence in several characters in that show including her) who uses that word in one episode and that is how I always say the word or imagine it when reading or typing it.
Disarraaaay. So much fun. Thank you for sharing. I will definitely check out your other channel.
Ha! I haven't seen Deadwood but maybe I should check it out! 😆
I finally got my diagnosis of autism and adhd 2 days ago at age 51.
Congrats on your diagnoses. It's a lot to take in but I hope it helps you to slowly figure things out 🧡
Where I live, you have to involve family during the investigation, i.e. mother, father, partner, etc., to find out what you were like as a child.
Crikey, that would be very difficult for a lot of people seeking diagnosis in middle age and older. Even for those with family members who are still alive, they would have to be supportive of the assessment in the first place 😬
I'm 47 in the US and have no idea how to get a diagnosis, but I am almost certain I have it. Doctors over here gaslight, a lot.
I am an HSP... Highly Sensitive Person... ( Elaine Aaron's book The Highly Sensitive Person )... but now i am thinking.. HSP is another /same.. definition of Autism spectrum.... what do you think?
PS. My mother died when i was 11.... I am 74 now...
I'm no therapist but I suspect there are many crossovers between the two. I'd maybe advise to keep researching autism to see how much of it resonates with you and your experiences. Self diagnosis is completely valid as it's all about understanding yourself better 🧡
I'm really sorry to hear this. It's unbelievably tough to lose a parent so young 🧡
I was 22 when I found out. The feeling was like I had been drowning my whole life, and I finally could rest on a lifesaver. I can’t imagine what it would feel like to be diagnosed in middle age. The worst part about it (for me) was waiting and hoping that one day I would grow out of meltdowns. Each meltdown I thought it would be the last and I would finally grow up and control them! But no, I’m 24 and still have meltdowns. At least I know why!
Thanks for sharing - it's really interesting to hear younger folks experiences and perspectives too 🧡
What do you do with an autism diagnosis? I suspect my 32 year old daughter has autism. But what can she do with an official diagnosis?
I think there's various reasons why someone would want to seek a diagnosis. For instance, in the UK being autistic is a protected characteristic in law so it would help with difficulties around employment, etc.
@@CreativeAutistic ah that would be helpful if that is protected in the US as well. Thankfully she is in a job that she enjoys and excels in and gets positive feedback. But she has had difficulties at jobs in the past.
I suspect I'm autistic. I'm not sure, but when I hear others, like you, explaining what it's like fir them, all I can think is "That's me... I'm like that, I do that..."
I can't stand loud sounds to the point of feeling nauseous and angry when they go on for a long time. If I'm buying clothes or yarn (I do crochet) or fabric, I always have to touch them and see what they feel like and some textures make me shudder and feel repulse. Smells are another thing that I don't do well with, if a neighbour is smoking in their garden 10 yards away from me and my window is open, I'll go out and try to see just who is smoking, some perfumes are hard to deal with, dishwashing liquid can't leave any traces of a scent or I'll be annoyed and they have to smell right for me even to buy one. I can't stand flashing lights, Christmas blinking lights are not good, and I can't just sit outside in tge sun. I can't even stand to be outside reading in a well lit area because the reflexion of the light in the pages of the book hurts my eyes.
If I'm talking with a person face to face, I will start by looking them in the eyes because I remember hearing somewhere about how that is important, but I'll soon catch myself looking at their teeth or lips and wondering if they notice if I'm looking at their mouth too much.
I avoid anything that puts some expectations on me, even if it's something I love doing, like crochet, if it turns into something that people are expecting me to do, I'll find a thousand excuses not to do it. I have anxiety/panic attacks just by thinking about something that I have to do. Going to a doctors appointment, to a family member's home, to work, shopping... anything like that, is a nightmare for me. I'll have an anxiety attack just by thinking about it.
There are so many things that happened in my life,, that when I started hearing others talk about how they were diagnosed late in life, all I can think is "So this is why I acted like this..."
Unfortunately, I live in Portugal and here we are dependent on our doctors. If they don't send me to get a diagnosis, I can't ask for one, and I can't suggest it either because they'll just put it down as me wanting to mislead them. I suffered with asthma for years and my doctor told me that I just "wanted to have asthma because my mother also had it."
I was in my 20s when that was finally diagnosed by another doctor who decidedto actually have me do some exams.
Sometimes I despair, because I know that something is wrong with me, it's obvious. I've always been the odd one out. I've always been the one pointed out as weird, cold. I was the wilderbug in my family. The one who always hid away from everyone and hated hugs and to be held...
I think it takes a lot of time to start reframing 'feeling wrong' to just 'being different' from neurotypicals - and there's a whole lot of us 'different' people. I think a lot of onus is put into getting a diagnosis, but it's often impossible in terms of accessibility and cost. Self diagnosis is completely valid as it's all about understanding yourself better. 🧡
Aspergers should just be called autism. Diagnosed at 53, nearly 60. Congrats on your first video.
The later we get diagnosed and the harder our lives were, the more complex our diagnosis can get. Resulted in ASD-2, ADHD at the most severe, GAD, SAD, PTSD, hEDS and a few others. Pots is the other common combeite.
Thank you. And yes, I can certainly see how diagnoses can get more complex (POTS is the most recent one for me) 🧡
@@CreativeAutistic Of Course. I should give you a reason on the Aspergers.
Far too long both Aspergers and "high functioning" has been used to describe people that have an easier time masking symptoms compared to those with a more normal and below IQ. In and Out of the community, this can easily lead to "I do not have to worry about the symptoms since they do not affect me".
But masking is not the same as not having the symptoms.
Thank you for this. I have much to learn about ASD 🧡
I currently identify as "presenting autistic" because I can't seem to get a diagnosis, but it means so much to see these videos and feel supported. I'm 46, all the online screenings say, "yup--you're probably autistic," but actually finding a provider who will do the official testing to get an official diagnosis? I was literally told by someone who I think was trying to be supportive was, "well, most don't do ADULT testing--only child testing--because adult autism testing isn't seen as important."
Ugh, I'm sorry you had to deal with that. I think self diagnosis is completely valid as it's *so* difficult for many people to get an assessment due to accessibility, costs, etc - and ultimately it's all about understanding yourself better 🧡
Here is Australia most adult assessments have to be funded privately, but if you can afford to get it done there are quite a few Psychologists who do assessments that identify as Autistic or Neurodiverse themselves. There is usually a waitlist. I booked an assessment late last year for an appointment in September. Psychologists who are autistic themselves and specialise in doing autism assessments do think testing is valuable.
Get a tryptase test.
My test came back normal which is very common. Thankfully I've now been diagnosed based on my symptoms and positive reaction to cromolyn sodium (I'm really hoping the longer I'm on it, the more it'll reduce symptoms)
AuDHD... People keep talking about ADHD and ASD like they have just ADHD or just ASD, but that is not how it works, having AuDHD is a THIRD separate condition with it's own special set of life situations. It would be like me as a white male European, comparing my life to a black low income american and invalidating their life experience, because my life is so much better.
Thankyou for sharing. So valuable to hear your story.
I've been on the journey now for a while also and am getting closer to seeking a diagnosis so hearing the nuances of different people's experiences is greatly helping guide my own path.
Aww, thank you. I found listening to other people's experiences really helpful too. I previously thought I wouldn't be 'autistic enough' to get a diagnosis (if that makes sense) 👍
Yep. Makes total sense. That's one of my fears also. I tried to get a diagnosis of Aspergers back in 2010 but it did not go well, so I put all those thoughts aside for more than a decade but now after a significant and damaging shut-down late last year, I am back on the trail of a diagnosis. This time I am really trying to get all my due diligence in research done before hand particularly as I'm in Australia and there is no public funding for adult diagnosis, so there is significant risk of spending several thousand dollars for no outcome.
Anyway. Thanks again. I hope things go really well for you now you have the certainty about who you are.
Cheers.
Phil.
I'm sorry to hear that. I hope for a much more positive experience for you this time around (and thank you)