What If Your Concussion Symptoms Don’t Go Away? | Concussion Game Plan Podcast | Episode 8
Вставка
- Опубліковано 28 сер 2024
- In the final episode of Concussion Game Plan, CLF co-founder and medical director Dr. Robert Cantu rejoins the show to answer one of the hardest questions in the recovery process: what if the concussion symptoms just won’t go away? Dr. Cantu gives his advice for tackling the realities of Post-Concussion Syndrome (PCS) and provides hope for brighter days ahead. Esther Lovett lives with PCS and shares her wisdom for adjusting to life in ways that allow her and her brain to be at their best.
Concussion Game Plan, an official podcast from the Concussion Legacy Foundation, is designed to help patients and caregivers navigate acute concussion recovery. The top experts in the field lend their expertise to help guide you through the concussion symptoms you can expect, how long they may last, and how to best manage them. Each episode also features advice from someone who has suffered a concussion and handled the ups and downs of recovery. Concussion can be an isolating, confusing injury. Concussion Game Plan is here to help, and remind you, you are not alone.
Concussion Game Plan is hosted by CLF CEO Dr. Chris Nowinski and produced by Julia Manning and Brandon Boyd. Subscribe to Concussion Game Plan wherever you get your podcasts!
Spotify: open.spotify.c...
Apple Podcasts: podcasts.apple...
Google Podcasts: podcasts.googl...
Amazon Music: music.amazon.c...
3:48 - What do you do if you notice your concussion symptoms are not improving after a month?
4:00 - What is the criteria to be diagnosed with post-concussion syndrome?
4:38 - What are some conditions that may predict a concussion might last longer than expected?
7:08 - What are the most common symptoms for post-concussion syndrome?
7:31- What therapy is the best for symptoms more cognitively-based?
8:03 - What treatment is best if your sleep is predominately being affected?
8:30 - What treatment is best for symptoms more in the emotional category?
8:59 - What treatment is best for symptoms affecting the vestibular ocular area?
13:02 - What if the treatment effects are not showing right away?
13:34 - What if the vestibular ocular symptoms worsen while doing the treatment exercises?
14:52 - How can I get help finding a concussion specialist?
15:59 - What if I have been told PCS is not a real condition?
18:43 - What to understand being a family member of an individual with PCS.
19:14 - Why it is important to be supportive as a caregiver of someone with PCS.
19:40 - Why is it important to stay social during PCS recovery?
22:53 - When will I be free of symptoms?
Thanks for that, I have been dealing with PCS for over 2 years now, not being understood by others is one of my biggest sources of stress.
Most people will not understand unless they have been through it. Hang in there
Added to 'them not understanding', is the difficulty of thinking and making words about specific parts of mental function/disfunction. It is not easy.
The information shared is valuable.
what if your symptoms are significant in more than one area listed
Concussion symptoms and severity can vary from person to person and experience to experience. Many don't believe they are facing the same recovery journey as others. Just know you are not alone! If you are interested CLF offers Zoom Support groups for those recovering from a concussion, and for caregivers as well. CLF also offers a 1:1 mentorship program where you can be matched with someone who has lived a concussion recovery experience. If you are interested, please use this link to book a call with our Peer Support Coordinator: calendly.com/clf_tambrose/peer-support-placement-call?month=2023-09
What do you do if after being diagnosed with PCS, and you still have those symptoms and they have worsened even with cognitive therapy and exercise (which did help me get my BA), but you then develop dementia symptoms 10 years later from the last concussion and you're almost 40? My concern is that it's from my lengthy history of concussions (sports and military) and it's CTE, which can only be diagnosed post mortem. I have read recently DTI along with a biomarker, similar to those used to diagnose Alzheimer's, it might be the how it's diagnosed in living patients. So what questions do I ask my doctors, what tests can be done that might help diagnose the dementia related to CTE if it can't be diagnosed? We have just received the Tesla-MRI for DTI imaging here in 2023 through my university, but access is limited typically to professional sports players.
Thanks for your question. We are sorry to hear your symptoms have worsened. Know that there are many possible causes for your symptoms and CTE is only one possibility. Additionally, there are many treatment options available for symptoms of suspected CTE. Don't lose hope!
Our team can help you find medical providers in your area and provide other resources. Please fill out a request at CLFHelpLine.org so they can reach out.