Nani, I’m so sad to hear you’ve been having a rough time. I want to say I can totally relate, but as you know, no one with MS can relate with anyone else with MS because it’s never the same for any of us. And then to be someone without MS it’s even harder. No one will ever completely know the challenges you or any of us face. All I can say is hang in there, and hopefully things will get better soon. I’m sending you a virtual hug and thank you for sharing your feelings with us all💗.
"This one was hard to create, but I had to. And since I've finished editing, I haven't cried one day." From the UA-cam notes. Turned out it was important to do this vlog because it helped a lot. It didn't fix all my trouble, but it made me strong enough to be angry and not falling apart when I'm facing them. And I do agree, that it's never the same for any of us with MS. I found that my agency aides ask about the disease and what exactly I need them to do. My MS neurologist and his whole team understands that it's different for everybody and they ask lots of questions and offer the support you would expect them to. My PCP is awesome and she studies things about her MS patients and asks us questions so she can be the absolute best she can be. (I think that's because she's a CNP and not an MD or even a DO. Like the mug I gave her says "nurse practitioner - Brains of a doctor and heart of a nurse." The other supposed medical professionals that don't bother to know anything about the disease or care about my doctors requests, and well, others are just not happy about the choices they made - that's what makes it the worst for me, personally. It may also just be the fact that I haven't been out of the house for a year. LOL Big virtual hug back! 💗
Please ignore comments that just have a link and nothing else. But, hey I'm moving forward if I'm getting attacked by spammers, right? They are pathetic, but LOL anyway.
Nani, I’m so sad to hear you’ve been having a rough time. I want to say I can totally relate, but as you know, no one with MS can relate with anyone else with MS because it’s never the same for any of us. And then to be someone without MS it’s even harder. No one will ever completely know the challenges you or any of us face. All I can say is hang in there, and hopefully things will get better soon. I’m sending you a virtual hug and thank you for sharing your feelings with us all💗.
"This one was hard to create, but I had to. And since I've finished editing, I haven't cried one day." From the UA-cam notes. Turned out it was important to do this vlog because it helped a lot. It didn't fix all my trouble, but it made me strong enough to be angry and not falling apart when I'm facing them.
And I do agree, that it's never the same for any of us with MS. I found that my agency aides ask about the disease and what exactly I need them to do. My MS neurologist and his whole team understands that it's different for everybody and they ask lots of questions and offer the support you would expect them to. My PCP is awesome and she studies things about her MS patients and asks us questions so she can be the absolute best she can be. (I think that's because she's a CNP and not an MD or even a DO. Like the mug I gave her says "nurse practitioner - Brains of a doctor and heart of a nurse."
The other supposed medical professionals that don't bother to know anything about the disease or care about my doctors requests, and well, others are just not happy about the choices they made - that's what makes it the worst for me, personally. It may also just be the fact that I haven't been out of the house for a year. LOL
Big virtual hug back! 💗
Please ignore comments that just have a link and nothing else.
But, hey I'm moving forward if I'm getting attacked by spammers, right? They are pathetic, but LOL anyway.
😡😡😡😡 #@!%$#@!!!! That's all I gotta say! Oh and 😤😡🤬😠
{{hugs}} and I understood what everyone of those punctuation marks meant!