I dont understand how parents of kids with rare incurable diseases want to keep.them alive or want to have them in the first place when they find out in the first stages of pregnancy. What is the point?? Just suffering, the kid and the family.
Maybe they don't want to abort their child, it should be the parent's decision to decide whether or not we bring a child like this into the world. Maybe they want him to live a life even if it is short lived, chances are he's dead now so I wouldn't be on time posting this. All of you should show compassion!
RaikouisAwesome I would prefer compassion for the suffering child. Bringing children like this into the world when you know how they are is pure selfishness. Compassion from them to the unborn child would mean it would not have to suffer, but they are more interested in their wants and desires.
@@raikouisawesome4074 yes and the child is so severely disabled that can't even make one choise. Also, no to mention how much it costs to them, moneywise
Theres many disorders rarer then this: ribose-5 phosphate isomerase deficiency (1 diagnosed in 1999), EAST syndrome (5 cases from four families since 1959), PELVIS syndrome ( 11 diagnosed since the first in 1956), AICA-ribosiduria (single patient in 1978),ALG12-CDG (6 children were diagnosed since the first in 1948).And much much more.
Older parents and teenage parents tend to have genetic abnormalities in babies because teenage sperm and egg is not yet fully developed and the older the sperm and egg is it gets genetic abnormalities.
What a nightmare. How can this kids life be anything but miserable. Poor kid.
When his body is ready to give up it will
For the moment he has the will to live
@@deethom5902 A will to live? He has no brain, his skull is empty.
he’s just
constantly seizing
Bless his adorable heart!
Sometimes death is a blessing.
Makes me so sad I’m hoping his life went too hard I hope he didn’t go through too much pain 😢
"Hes a warrior" well he can't do anything else poor honey :(
Looked like a seisure near the end of this video.
It did didn't it
Gail Magee it was, probably seizes a lot, poor little chap.
My baby girl has bproblem with micolipidosis 2 .
If anybody has inform this problem plz contact me
Mico or muco ??
Hey my daughter has this disease pls help me
I dont understand how parents of kids with rare incurable diseases want to keep.them alive or want to have them in the first place when they find out in the first stages of pregnancy. What is the point?? Just suffering, the kid and the family.
Maybe they don't want to abort their child, it should be the parent's decision to decide whether or not we bring a child like this into the world. Maybe they want him to live a life even if it is short lived, chances are he's dead now so I wouldn't be on time posting this. All of you should show compassion!
RaikouisAwesome I would prefer compassion for the suffering child. Bringing children like this into the world when you know how they are is pure selfishness. Compassion from them to the unborn child would mean it would not have to suffer, but they are more interested in their wants and desires.
@@raikouisawesome4074 yeah abortion isnt a easy choise, but death and a horrible life are the same. No wait, the latter is worse
Fra Bre You know, I have to agree somewhat. I think it should be the parents choice though because it’s their child.
@@raikouisawesome4074 yes and the child is so severely disabled that can't even make one choise. Also, no to mention how much it costs to them, moneywise
It's so sad they have no life
Actually, he does have a life. He is living until he is not.
Carol DeLorenzo pfft lol. No, his brain is underdeveloped.. He doesn't know anything
I am glad. It would have been no life for him and parents.
They said he had seizure activity every 10 minutes. He died just a few months after this came out. Should have been aborted initially.
Very sad born baby
Theres many disorders rarer then this: ribose-5 phosphate isomerase deficiency (1 diagnosed in 1999), EAST syndrome (5 cases from four families since 1959), PELVIS syndrome ( 11 diagnosed since the first in 1956), AICA-ribosiduria (single patient in 1978),ALG12-CDG (6 children were diagnosed since the first in 1948).And much much more.
And worse ones too. You're correct.
Yes & syndromes so rare theres no name SWAN
Older parents and teenage parents tend to have genetic abnormalities in babies because teenage sperm and egg is not yet fully developed and the older the sperm and egg is it gets genetic abnormalities.
God also created this child.glad the parents choose not to have an abortion.wish them all the best
Wouldn’t be their choice now. So no glory in it anymore.
His parents created him.