What Is Cystic Fibrosis?

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  • Опубліковано 16 лис 2024

КОМЕНТАРІ • 289

  • @suesheification
    @suesheification 8 років тому +602

    if I could get through the day with as much grace as you

    • @teremertz
      @teremertz 7 років тому

      sue she FYI: She has a new channel called Claire Wineland. This channel (The Clarity Project) has been highjacked by her former publishing company. She can no longer post here as she has no longer has access to this channel. She explains in a video on her new channel. ❤️

  • @bennethnnadi8417
    @bennethnnadi8417 8 років тому +208

    and she's so positive about it. You're a star miss!

  • @Snugglypatchvids
    @Snugglypatchvids 8 років тому +425

    I wonder, are amazing people prone to deadly illnesses or does having a deadly illness make you awesome?

    • @LunaDay_
      @LunaDay_ 8 років тому +21

      Omg that's the question that just needed to be asked

    • @s731s
      @s731s 8 років тому +64

      I've been asking myself this for most of my life. I came to the conclusion that it's 50/50. some are naturally awesome like her, and others become awesome because being sick teaches you gratitude and appreciation. makes me hate my healthy lazy selfish bratty self.

    • @ninabe9644
      @ninabe9644 8 років тому +3

      Snugglypatchvids Exactly what I was wondering since I discovered this lovely girl❤

    • @denisenova7494
      @denisenova7494 7 років тому +4

      I believe only awesome people get the cool diseases. I used to pray for death and for getting a serious disease etc *a lot* and here I am only having a cold or a flu or depression now and then and that's it. But cool disease where you stay in hospital, get all the cool drugs and almost die? Unfortunately no. I believe only the cool people die young :(

    • @teremertz
      @teremertz 7 років тому +1

      Snugglypatchvids FYI: She has a new channel called Claire Wineland. This channel (The Clarity Project) has been highjacked by her former publishing company. She can no longer post here as she has no longer has access to this channel. She explains in a video on her new channel. ❤️

  • @safaaj4722
    @safaaj4722 8 років тому +226

    i feel like im so ungrateful after watching your videos:( you are a really strong girl!!!!

    • @teremertz
      @teremertz 7 років тому +4

      Safa aj FYI: She has a new channel called Claire Wineland. This channel (The Clarity Project) has been highjacked by her former publishing company. She can no longer post here as she has no longer has access to this channel. She explains in a video on her new channel. ❤️

  • @tamararose8538
    @tamararose8538 8 років тому +242

    She's cute. I liked the last line.

    • @teremertz
      @teremertz 7 років тому +1

      Tamara Rose FYI: She has a new channel called Claire Wineland. This channel (The Clarity Project) has been highjacked by her former publishing company. She can no longer post here as she has no longer has access to this channel. She explains in a video on her new channel. ❤️

  • @victoriarosewait6300
    @victoriarosewait6300 8 років тому +144

    Your voice is so lovely! Feel like I need to pull some Ursula-style voice thievery...

  • @MrOdeezie585
    @MrOdeezie585 9 років тому +24

    Normally watching a video about cf would be sad but you sure know how to put a smile on people's face! Thank you for teaching us!

  • @WahWeeWooWah
    @WahWeeWooWah 8 років тому +102

    You're an amazing soul.

  • @TheNishaKataria
    @TheNishaKataria 8 років тому +47

    You are such a character! I am doing research on this disease and have just come across your videos. You have inspired me more than you can imagine. What a true beautiful little hero you are!

  • @roxxannefritz6596
    @roxxannefritz6596 6 років тому +11

    I’m pregnant and just recently found out that I am a carrier of cystic fibrosis and that my baby could potentially have it so I think it’s incredible that she’s so positive about it

  • @tuesdayjanae3676
    @tuesdayjanae3676 8 років тому +176

    don't know why but you remind me of Miley Cyrus when she was a teenager

    • @TaliaLynette
      @TaliaLynette 7 років тому +23

      It's her voice! She just gives off old Miley vibes :)

    • @J91Y
      @J91Y 7 років тому +9

      Tuesday Janae she does sOUND LIKE MILEY CYRUS

    • @sanaafreenshaikh9611
      @sanaafreenshaikh9611 7 років тому +1

      Tuesday Janae exacccctttllllllllllllllyyyy

    • @AlsharezzLabungan
      @AlsharezzLabungan 7 років тому +1

      Thats what i thought

    • @arshiyakapil4711
      @arshiyakapil4711 6 років тому

      But now she's wrecking balls😢😢😢

  • @JeLLoH1000
    @JeLLoH1000 8 років тому +29

    As a nurse people who have chronic illnesses and their ability to just love life is inspiring. Being apart of your journey and just making your day a little better when things are sucking is what it's about

  • @skylarchumley3532
    @skylarchumley3532 9 років тому +135

    My school does a fundraiser called super-dance every year. We dance for 12 hours to raise money for cystic fibrosis. We raise over 100,000 every year all donated to the CFF. Good luck to you :) and we WILL find the cure one day.

    • @alvinrubik
      @alvinrubik 8 років тому

      um the cure is genetic therapy

    • @zoeh9718
      @zoeh9718 8 років тому +1

      +Alvin Rubik therapy is a treatment. A cure is something that is definitely cures you.

    • @sielsm3743
      @sielsm3743 8 років тому

      Cystic fibrosis is a chronic disease

    • @maisielavery6885
      @maisielavery6885 8 років тому +6

      I have CF too.Life is hard being on IVs in school and having to leave class for a dose of medicine.... But thanks for donating to this charity!!!Ur a very very very nice person!!!😉😉😉

    • @violettaschmieder2096
      @violettaschmieder2096 8 років тому +2

      a dance fundraiser is awesome!!

  • @YunGG49r
    @YunGG49r 10 років тому +6

    I teared up when you started talking about the problems this illness gives you and wanted to say that you are very strong, most people couldnt handle what you go through, you have very strong shoulders to carry this weight you are dealing with, God bless.

  • @JohnSmith-ve8pd
    @JohnSmith-ve8pd 9 років тому +8

    Thanks for the awareness. Individuals like myself are unaware on this disease. I'm deeply sorry you have to go through this and I wish you all the best.

  • @gene_mosley
    @gene_mosley 7 років тому +1

    It takes a lot to bring tears out my eyes! You definitely changed my perspective and made me see how small things I at times complain about truly are! Thank You!!!!

  • @SaltCysters
    @SaltCysters 9 років тому +15

    Hey, we have CF too! We have an older sister who also has it. It can be really tough sometimes but we fight this battle together & it feels good to have the people you love around you that can relate to how you feel, ya know? But anyways, keep up the great work & don't let CF get you down! We will fight & conquer this battle together 😊💪✊

  • @Ameera1D
    @Ameera1D 8 років тому +41

    I fucking love her

  • @averyflatford3496
    @averyflatford3496 7 років тому +2

    Having CF is hard (yes I have CF) but after watching all her vids it seems like her postive energy spreads outside of her videos

  • @darinalitvina
    @darinalitvina 8 років тому +53

    "and tied off with an oxygen tube" hahaha😆

  • @parrisclips
    @parrisclips 9 років тому +1

    Wow Claire, you really are an inspiration. As a father of two girls, it is a parents worst nightmare to be told your child has a life threatening or shortening illness. It is inconceivably difficult as a parent to understand what a child would be going through under these circumstances. You are a smart, beautiful grounded young lady who exudes joy and happiness. Your father and mother, I am sure are so very proud of you. My heart and prayers go out to them as well as yourself in that we find a cure one day. Keep up the excellent, positive videos, well done. Wishing you all well.

  • @Michael_KN
    @Michael_KN 8 років тому +3

    i really feel sorry and bad for you such beautiful young lady , i hope you will get better .... i have midterm exam in pediatric and i was studying this disease and i came by i really hope you will get better soon

  • @jamesdein454
    @jamesdein454 9 років тому +3

    Thanks for sharing! It was great to hear first hand what it is like to have CF rather than hear a doctor describe the pathology. You rock

  • @Spikestrip55
    @Spikestrip55 9 років тому +5

    Love your positive attitude and bubbly personality!
    Carry on!

  • @jessicaascencio6206
    @jessicaascencio6206 7 років тому

    I'm blown away by how you break down this complicated illness with a wave of your hand, I work with CF patients. You are an inspiration to me. I have a lot of illnesses and hope that when I get diagnosed with my next illness (a new one every few years, all genetic as well) I'll have the poise you have. Thank you for being you.

  • @3ns1nj
    @3ns1nj 10 років тому +2

    I was watching interviews for the red band society and up popped your page I absolutely love you! You have such an amazing spirit and your so good at talking and connecting to the people watching you! I hope your channel gets much bigger, I just subscribed. Right after I watched your reviews on RBS I was like you know what I don't even really know what CF is and then pops up a video of you telling me what it is. So thank you for informing me. Keep up the videos love watching you.

  • @imjustakid516
    @imjustakid516 10 років тому

    i got ur back girl. for those times of high anxiety, meditate, look into it. use ur senses to be in the moment. lmk

  • @hannahashley2882
    @hannahashley2882 7 років тому +3

    Hey guys! Her new channel is Claire Wineland. She explained why she changed channels on the other page (some company that helped her edit when she started took control of her channel)

  • @trashcanman9357
    @trashcanman9357 8 років тому

    I just discovered your channel and I gasped when I saw the title of this video. My dad's cousin had cystic fibrosis and after he passed away (I sadly never got to meet him since he and my dad were only twelve) his father created a charity called the Joey Fund. I haven't heard of many other people who have cystic fibrosis but I like what videos I've seen of yours so you've earned a new sub. :)

  • @JohnDoe-du8by
    @JohnDoe-du8by 9 років тому +95

    hottest girl with Cystic Fibrosis ;)

    • @luv2sing172
      @luv2sing172 7 років тому

      John Doe woah I remember we had a fight in another comment section I changed my name and profile pic but that's just funny lol my name was angel Moore that my moms name that I changed it from

    • @marianenatheresar.carredo131
      @marianenatheresar.carredo131 7 років тому +1

      Luv2sing 1 what the reason you had fight?

    • @luv2sing172
      @luv2sing172 7 років тому

      I forgot 😂😂😂😂😂

    • @JohnDoe-du8by
      @JohnDoe-du8by 7 років тому

      damn it, I forgot too -.-

    • @marianenatheresar.carredo131
      @marianenatheresar.carredo131 7 років тому +1

      Luv2sing 1 lol better be friendly next time 😂😂😂

  • @oussamamasri5515
    @oussamamasri5515 10 років тому +6

    wow..... you are amazing.... keep that positive attitude

  • @youmaycallmecath
    @youmaycallmecath 9 років тому

    I've heard of cystic fibrosis at school but I never met anyone who actually had the illness. It's nice to have videos about what it's like to live with it, your videos are very interesting, informative and I love how you seem very positive about it. Thanks a lot for sharing your experience with us!
    P.S. You really do have a contagious smile! :) xx

  • @bz1mm
    @bz1mm 9 років тому

    My class is doing research on genetic disorders, and I was the first person to pick and I picked Cystic Fibrosis. Your videos really helped me figure out what it is! Thanks to you, I got an A.

  • @franziscapost387
    @franziscapost387 7 років тому

    I have cystic fibrosis and it's a horrible decease but I'm so used to explaining what it is to other people in a way that makes it sound like it's nothing that hearing it told is almost like it's worse than what I tell myself loved your video stay strong I know exactly what you're going through

  • @alanagee6043
    @alanagee6043 7 років тому

    Where my diabetics at?! Love from one diabetic to another. You're excellent to listen to bc so many people are out there that you can relate to

  • @katherinefay9321
    @katherinefay9321 8 років тому

    You r probably the prettiest person I have like ever seen like gurlllll u slaying

  • @1besieged
    @1besieged 7 років тому

    You are a beautiful soul, I pray for a cure for your illness, you deserve to be healed..

  • @joeyt3092
    @joeyt3092 8 років тому +1

    I can tell that your a wonderful person and I feel horrible that you have that illness

  • @jeoung0325
    @jeoung0325 10 років тому +1

    keep fighting! you're amazing

  • @greensky01
    @greensky01 6 років тому

    Sorry to hear about your condition. Wish you well.
    Just fyi to those interested: CFTR is basically caused by chloride ion channels being defective in cells. These cells then have a defective secretion capability. Therefore, it causes dysfunction of various organs.

  • @edilbertoluzano6583
    @edilbertoluzano6583 9 років тому +1

    i admire your courage, be strong always...

  • @bustermike4295
    @bustermike4295 7 років тому

    I used this information for a test on lung disease, this helped. Btw great last line

  • @hugoreyes7863
    @hugoreyes7863 7 років тому

    i was looking for videos that can make me learn something about medical stuff and this video showed up in the list .
    after watching it made me feel sad cuz i cant help you :( hope u get better ur an amazing person

  • @danielle4312
    @danielle4312 9 років тому +9

    Wow.. For my class project, we're doing a research project on Cystic Fibrosis, and i'm so glad I came across this. I love how you're so positive when you have to cough up crap all day! I guess you don't have a choice, though.. You're definitely going to be included in my report♥ SUBSCRIBE.

  • @padwicin01
    @padwicin01 10 років тому

    Your enthusiasm is infectious! Keep up the good spirits :)

  • @ryanftw98
    @ryanftw98 8 років тому +3

    she's so pretty :,)

  • @clairedavis7039
    @clairedavis7039 8 років тому +8

    you are an inspiration

  • @maddiemoiselle9998
    @maddiemoiselle9998 8 років тому +1

    I have (type 1) diabetes too! Although I was just born with a faulty pancreas, I don't have CF. It honestly made me more excited than it probably should have to hear that another UA-camr knows what it's like to have the 'betes.

    • @lenahorton4767
      @lenahorton4767 8 років тому

      There is also madeyewlook and she's a wonderful fx makeup artist and she has diabetes as well

    • @bradleymolloy8332
      @bradleymolloy8332 8 років тому

      your amazing ❤

  • @rosalindaargueta8041
    @rosalindaargueta8041 7 років тому +1

    You're such an amazing person and such a great inspiration.

  • @morfeas1000
    @morfeas1000 8 років тому +2

    keep strong you... Treatment will come out some day. Enjoy life till then like i see you do :)

  • @shaelinrollman3131
    @shaelinrollman3131 7 років тому +4

    I have CF and so does my brother, and we are actually really lucky to be healthy and everything, but right now I have a lung infection and stuff. I'm pretty young now but I've always had a lot of anxiety about getting older and having too much on my plate. I've always wanted to be a UA-camr because it's an easy schedule to work around so that I can have time to do everything else, and I just like to make people laugh and I just think it would be a really fun thing to do, but I've never really had the money or equipment to do it yet. I want to do so many things in my life, but I've always been afraid that I would die before I got to do those, so I'm the kind of person that wants to do everything at once and just cram it all into one day. I really love how even people with CF or something make these videos because even though we have limitations, doesn't mean we can't do things that normal people can, like make videos or make yourself known to others. I don't know why I'm talking about this, but I just wanted to say that I think it's really awesome that you're making videos...

  • @haroldgar12
    @haroldgar12 6 років тому

    May God bless you and your family. you are truly an inspiration to me and everyone on here. Keep fighting the good fight, and don't worry, there will be advancements in technology that will help people who have cystic fibrosis live a better and LONGER LIFE!

    • @robertlee3563
      @robertlee3563 6 років тому

      This channel was stolen from her unsubscribe

  • @avamcdonald515
    @avamcdonald515 7 років тому

    Stay strong. U seem like an amazing person. Ily

  • @unknown-kq4wc
    @unknown-kq4wc 9 років тому

    U are an inspiration to others be proud of yourself

  • @aurorapassenger00fu40
    @aurorapassenger00fu40 7 років тому

    I feel like such an ass for ever complaining about my life now.. Wow your an Inspiration and with such a beautiful smile through all the Unfairness. Just wow..

  • @zeynjenkins2073
    @zeynjenkins2073 6 років тому +2

    You're so brave and amazing... God bless you

  • @barneysmithful
    @barneysmithful 8 років тому +1

    Keep strong and thanks for the very informative video!

  • @nicolefernandez9164
    @nicolefernandez9164 9 років тому +2

    YOU ARE HILARIOUS!!! I WISH YOU WERE MY PATIENT!!!

  • @ThePointlessBox_
    @ThePointlessBox_ 8 років тому +12

    For shits and giggles id just wear a darth vader helmet with a voicechanger everywhere

    • @KM-wp3ju
      @KM-wp3ju 7 років тому +2

      You don't need to have a chronic illness to do that
      GO live your life!
      Follow your dream of being Darth Vader!

  • @sameritaco
    @sameritaco 8 років тому +3

    As she says with a smile :)

  • @shawnblaney6297
    @shawnblaney6297 7 років тому

    God bless you. Your upbeat out look on life and death is refreshing and inspirational.

  • @jesussavedme3in1
    @jesussavedme3in1 10 років тому +1

    Claire! ;) I have a daughter Klare :) Gotta remark to you, I'm very encouraged by your wit. God bless you, thanks for the help you give others and I agree wholeheartedly with you that hospital stays are great, the perks are cool, and I'm a socialite who loves to make connections with people of all sorts. Go girl, have fun! I had bad kidneys growing up so had some stays, plus, Klare was a preemie at birth. I'm the gal that will play that lonely piano they put down the hall, lol

  • @taylorm6797
    @taylorm6797 10 років тому

    You've got a lot of good and positive energy love your videos. Sharing with my friends.

  • @ianbear7533
    @ianbear7533 8 років тому +35

    oxygen fetishes hahaha

  • @lillsjul
    @lillsjul 10 років тому

    OMG ! you have a channel! I'm so glad I found it. :)

  • @lmp324
    @lmp324 6 років тому +2

    Search "Claire Wineland" on youtube for her new Channel.

  • @ruthwilliams5434
    @ruthwilliams5434 9 років тому

    I will be praying for you. You are so brave.

  • @bdyprcr
    @bdyprcr 9 років тому

    Love this! My daughter has CF and this is so to the point and real!

    • @tippingpoint9993
      @tippingpoint9993 9 років тому

      +Mary Coughlan Hi, Try Hemp Oil... cure almost all diseases. Tjek Mr Rick Simpsons

    • @saurora2869
      @saurora2869 8 років тому

      +Tipping Point
      There is no cure for CF Yet

    • @tippingpoint9993
      @tippingpoint9993 8 років тому

      ninjasigrid There is no cure, There is no cure, There is no cure... Shot the cake hole. No one can trust Rockefeller Medicine Mafia!! ON ONE! The people must do everything you can to save their lives. The pharmaceutical systems are roten to the core.

  • @veronicablanco8457
    @veronicablanco8457 9 років тому

    I have seen some of your videos and I like your personality. you really are a youtuber

  • @kimberlymunoz4535
    @kimberlymunoz4535 6 років тому

    She is so happy nothing keeps ner from doing anything

  • @chantellebrennis3484
    @chantellebrennis3484 7 років тому

    My name is Chantelle, im 24 (25 ina month!) I have CF & had CF related diabetes for 10 years (Type 1 "technically") & now i am into terrible kidney problems. I just wanted to say i liked this video & it made me not feel so alone with my shitty health problems. So thanks girl

  • @queenjamie9634
    @queenjamie9634 7 років тому

    You are amazing... I'm 19 year old with cystic fibrosis

  • @Mandy3141
    @Mandy3141 8 років тому +7

    You are beautiful

  • @SlowButSleeping
    @SlowButSleeping 10 років тому

    You're absolutely fantastic! Love your spirit!

  • @anapatrao1333
    @anapatrao1333 7 років тому

    Very intelligent young lady. What a sweetheart eh? Binge watching her episodes.

  • @jasminebaker3480
    @jasminebaker3480 9 років тому

    there is a article about you i read in class and im in fifth grade and on the article it sid you have a youtube channel so i was like ill look her up and you seem really happy and it amazzes me

  • @AbsoluteMAL
    @AbsoluteMAL 6 років тому +1

    Everyone should go check out NoelCFvlogs channel. She actually passed away a little over a year ago but her videos deserve more views.

  • @rafaelortiz6564
    @rafaelortiz6564 7 років тому

    Ive never seen an illness be described so beautifully 😂💙

  • @CinderellAspergerSapiophile
    @CinderellAspergerSapiophile 8 років тому

    with all those antibiotics I'll pray you take a good probiotic regularly too xox so nice to see you Sep 2016 too :)

  • @geralynll
    @geralynll 8 років тому

    your so beautiful and postive

  • @bananaboo7558
    @bananaboo7558 7 років тому

    I feel like you have the voice of a super hero

  • @krae5641
    @krae5641 10 років тому +2

    I love your voice

  • @usewindex
    @usewindex 7 років тому +1

    guys, this channel back stabbed her!
    check out her new channel where she explains it!
    Search bellow
    I stopped doing the Clairity Project because
    I got screwed over

  • @shuhadabasheer
    @shuhadabasheer 7 років тому

    I watched 3 of your videos and I already felt like we are good friends hahahahaha. Love from Malaysia xoxo

  • @NormalLifeGaming
    @NormalLifeGaming 6 років тому

    Great video! Hopefully it gives a strong impression to everyone the awareness of cystic fibrosis. I've just started my UA-cam channel. I'm looking to send out the awareness of cf and other cf issues. I will do a video about other UA-camrs that talk about cf and il mention your video. Iv subscribed to your channel so keep up the good work.

  • @ZachiHD
    @ZachiHD 10 років тому +3

    Oxygen Fetish haha that made me weak !

  • @vanessaschapley9387
    @vanessaschapley9387 7 років тому

    I have cystic fibrosis too I wear oxygen at night only and I'm in and out of the hospital life is hard but I have my family by my side so thats all that matters

  • @cammymarks5745
    @cammymarks5745 9 років тому +1

    cute dog! i love your videos. I have cancer but i can relate

  • @WhatTechShow
    @WhatTechShow 9 років тому

    Oh dear, I hope you're from Canada.. I can't even begin to imagine the costs of all the medical treatments in the US...

  • @judasweet
    @judasweet 8 років тому +2

    I'm praying for you

    • @adn642
      @adn642 8 років тому

      me to

  • @fredyh357
    @fredyh357 6 років тому

    I just have to love your sprit!! May GOD bless you! Your very beautiful and funny!

  • @TruthHasSpoken
    @TruthHasSpoken 8 років тому

    God Bless you Claire. You are in my prayers.

  • @jamieshelley6079
    @jamieshelley6079 6 років тому

    Thanks for the info!
    I've had really bad asthma etc from early childhood.
    From a DNA test I discovered that I carry a tonne of genetic diseases, cystic fibrosis in the 95% percentile. This info helps, I hope you're copying ok!

  • @elahtuchshnieder2052
    @elahtuchshnieder2052 8 років тому

    I love your channel you should
    Do a day in the
    Life video

  • @suelollipoof4239
    @suelollipoof4239 6 років тому

    So adorable she reminds me of me. I pray you. Get well. 🍂🌲🌴🌲🌴🌲

  • @rebeccapowers209
    @rebeccapowers209 6 років тому +7

    Don’t subscribe to this channel. They screwed this poor girl over. She has he own channel now

  • @alvinrubik
    @alvinrubik 8 років тому

    I knew what is was but I feel bad for you and what you go through daily and how much it must hurt I hope that they can change the few letters that causes the disease

  • @arantxaflores1037
    @arantxaflores1037 7 років тому

    I love your attitude and you are really beautiful. hi from Mexico

  • @gryffindorlife9446
    @gryffindorlife9446 8 років тому +1

    Stay strong. Your inspiring. Xx

  • @alecmcdowell814
    @alecmcdowell814 7 років тому

    The dude from bates motel Dylan, Normans brother. He's in a movie called Forever Land. He has cystic fibrosis in there.