Brain Tumor Awarenesss | Jaycee's Story

Jaycee, a brain tumor warrior, was described as a bright ball of sunshine who loved babies, dolls, and the colors pink, purple, and yellow. Her initial symptoms included vomiting and difficulty eating, but it took several weeks and multiple doctor visits before she was diagnosed with a brain tumor. The delay in diagnosis led to feelings of frustration and being dismissed by medical professionals. Jaycee underwent multiple surgeries, including a 10-hour surgery to remove the tumor, and experienced hair loss from radiation and chemotherapy. Despite the challenges, Jaycee remained resilient and focused on being a kid. The lack of understanding and treatment options for her rare tumor added to the difficulties faced by her parents. The conversation covers the challenges faced by the family in treating their daughter's brain cancer and the importance of support and advocacy for pediatric cancer. They discuss the limitations of treatment options and the frustration of not being able to try certain treatments due to previous decisions. They emphasize the importance of being there for the child and creating a safe and comforting environment. The conversation also highlights the guilt and burden felt by the Jaycee and the need for understanding and support from others. The family started a nonprofit organization called Battlecorn to send packages and create smiles for children with cancer. They are also advocating for more funding and research for pediatric brain cancer, including the establishment of a tissue database. The conversation ends with advice for newly diagnosed families to seek multiple opinions, ask for help, and lean on others for support.

[@sherrymcclure1049]

You’re so right about hospice. They are angels in human form. Truly sorry for your loss

[@nancyruvalcaba1520]

I lost my son Emilio to this exact tumor year ago. He passed away on St. Patrick’s Day. One month before his birthday. To hear you guys speak and how similar things spiraled for us. Broke me yet gave me a peace of mind because there is much guilt we go through blaming ourselves. My son was so full of life always dancing and after his chemo 2 months after the cancer returned and took my sons light away. He couldn’t speak or walk 11 days in the hospital two days at home and just like that he was gone 💔 thank you for sharing these stories and spreading awareness. #EmilioForeverStrong ♥️🙏🏼🦖

[@River9900]

Hello Coral! I´d love to hear also the story about your Luna, in the way your doing this interviews, big hugs