I'm Officially A POTSIE - Testing For Dysautonomia Postural Othostatic Tachycardia Syndrome POTS
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- Опубліковано 3 жов 2024
- PO Box 756 Moody, Al. 35004
Dominique or Max Graffeo
I have POTS and PTSD
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Max is a border terrier lab mix.
Max was a shelter rescue and I have been training him myself.
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It sucks that you have it but I'm glad that you finally got a diagnosis. It took me 15 years to get my diagnosis. Stay strong!
So glad that you finally got your diagnosis! I know it has to be a sigh of relief! It definitely helps, I'm sure, to finally know & be able to get treatment. I'm happy for ya girl! Thanks for the update. Much love 💜
I don't know how you did that treadmill. That had my hr going just watching you, knowing what you are going through. Kudos! Cool of them to let you film and that the Dr did that at the end.
What a nice lady. She is good at her job and has a lot of energy.
Shout out to Glasses Lady, hope she’s had a good 3 years and hope she has a good x years.
Wow what a day that was for you! I'm beyond thrilled that you finally have your answers! Hopefully you're feeling a bit better today!
I’m so glad to hear everything went great I love your content and can’t wait for your next live stream!
Amazing video, I like how your doctor spoke about your condition and encouraged others to seek help if they had the symptoms
Just wanted to say happy birthday love ya Dom ❤️. I'm so happy that you got a diagnosis
Potsie.... lol I love that term.
I'm so happy you finally have answers. This must be a huge relief. :)
On the other hand this video makes me so sad. I completely understand why you HAD to film every aspect of your journey to a diagnosis. If you hadn't, people still would have tried saying you are faking etc. I really am sorry for all the crap you have had to put up with.
Hope you start to get some relief as you start treatment.
I'm going in for my TTT soon and I'm scared to death. thank you for this
I’m really glad I found your channel. I’ve suffered symptoms like this for many years and I am going to go in soon (hopefully) and ask about POTS and see if I can maybe get some answers.
Thanks for uploading this video. My doctor is 99% sure I have POTS but she wants me to get a TTT to get diagnosed. This makes me feel more prepared because it shows what goes on during the testing. This is the best POTS video on UA-cam!
Oh and how long did you have to do the treadmill?
I just gotback from doing my treadmill stress test and I'm very upset about it. I reacted the same way you did. I had the super fast hr (well over 100bpm. Possibly as high as 150bpm) I could only do 6 minutes before I had to stop. My heart was beating super fast and hard. My breathing was very heavy. It hurt to breath. I tried to tell the Dr this and he said im just not used to exercise (despite walking his recommended 30 minutes daily) I had to literally fall down to the exam table from how bad I felt. I laid down after a minute or 2 from getting lightheaded and dizzy. The Dr came back in (he was in and out of the room during the test the whole time) and asked why I was laying down (as if my high hr that stayed in the 100s and hyperventilating after only a 6 minute brisk walk wasn't any clue!) I told him I got dizzy and lightheaded. He chuckled and said your just not used to working out. He said it looks normal and see you in 3 months.
Given that I don't know much about how a normal person would manage a stress test like that I don't know for sure if what I went through was actually normal but I truly don't think feeling like I was would be normal after a 6 minute brisk walk. Any information would be greatly appreciated.
Also the dr said I don't need a tilt table test. And laughed when saying that.
I hope your going to be fine.
so sorry you found out, well at least you know, and know the facts about it, doctor was really good explaining the situation and helping you, love the blue cross near walking machine. Do you keep a journal about what happens every day? Be a great idea then you can keep track bout your daily life.
I think I might have this I faint a lot especially when I am standing for a while. After running I get really a really faint feeling. I also feel like this when I stand up after sitting or laying down for a while. I did a lot of research and have a lot of the symptoms so I asked my mom to take me to the doctor. I am very anxious.i’m sorry for the long comment.
I get this way sometimes too, I will also get really lightheaded and dazed and shoulder check walls or hit my knee into a wall or corners of the wall because I lose that sense of space
Hope your ok! 😀
She has POTS (Postural Othostatic Tachycardia Syndrome).
Congrats on FINALLY getting answers!!! I'm so glad there's treatments you can try! I know how it feels to be in the dark on what's wrong, but then after years to FINALLY get a diagnosis! Luckily, mine was just ADHD, and BiPD, so I'm lucky it's nothing tougher, but I still know the feeling of frustration you had, and the feeling of utter relief when one finally knows what's wrong. I even cried with you in your first video about POTS where you had read comments and called the place, it reminded me just how I felt when I finally got my diagnosis, and I cried back then too, your video brought it all back. It sucks having something that is disabling, but now you know you're not crazy, f*** the haters you even got video PROOF!, and there's treatment that may help, and when people ask what's wrong with you, one can finally have an answer! Congrats, and I wish you luck and send my prayers that treatment will help you dramatically! :)
I need this testing done soon. Sending love your way.
Wow...I actually go to do the stress test Wednesday. Happy this video is guving me a good insight of what to expect.
I get a lot of the symptoms but I don't have pots
So happy you are finally able to put a name to your illness Hun, even though it breaks my heart to know you have POTS. Keep up with the treatment plan and training Max, I'll be here praying for you and your support system too! Hang in there sweetie!
Did anyone else see Man's face in the back peeking between the seat and wall at 2:22
SO CUTE!!! 🐶🐶
Dominique I have degenerative disc disease after I was assaulted at work, which I was nursing, and hurt my spine and my right knee.. for a long time no one was sure what was wrong with me.. then I had the diagnoses of ddd.. also it triggered arthritis in my body I was 21 at the time now 28 yrs later my spine is worse and my knee pain is worse I have new pains and I have now been to see a orthopaedic specialist to find out exactly what's going on with me so I know what its like to have no diagnosis and wonder what the hecks going on.. also with my assault I get flash backs. so I don't talk about it much..
yes really
U gorge. That nose highlight is poppin
Thank you for sharing so much information about pots testing. What types of treatment is there or a cure? Hope you feel better. I won't be able to mail your birthday until next week hope that's ok. Happy 21st tomorrow!!!
Just medications! I take beta blockers for my heart and my medications for my blood pressure
That is soo good
9:00 That got real intense!!!
Do you get symptoms even when sitting or lying down? Hard to tell if I have POTS or just long Covid. Didn’t have this before Covid so I assume it’s long Covid.
Covid has been linked to pots anyway. I can get symptoms when I change to sitting from laying down, or standing from sitting . I’ve had symptoms when I’ve been sitting for a while. Flare ups will change how things affect me
I noticed they didnt do an EKG (specifically a 24-hr or month-long one). They might be overlooking something. I have heard of a few cases where it appeared to be POTS but was actually something called WPW syndrome. Its great you have ideas to go forward with treatment, but just make sure you're not missing something.
Seth would an echocardiogram show WPW?
“Tilt Table Test”
Yeah I’m sure 😂
If that’s a test what’s the giant laser for?
🤣
I also have POTS, but since I live in Denmark it's almost impossible to get any help.
There's a big media battle going on because of the hpv vaccine, so doctors aren't really willing to help POTS patients... it really sucks... It also took me nearly 8 years to get a diagnosis.
Pot is not a diagnosis it's a symptom. It's what is causi ng you dizziness etc but POTS is always only a portion of the problem. Are they going to find out what's causing it? It's like saying you have a running nose but it's caused by Allergies. This is a good step but you still need a Proper diagnosis
POTS doesn’t always have a cause. It IS a disorder. It’s a medical condition characterized by malfunction of the autonomic nervous system.
POTS has hundreds of symptoms.
By the way nice vid.
Dysua--- Dysu--- DYS--- why
Dis-auto-nome-ee-uh 😉
I also have pots,we can fight it
Hi
:'(sorry
rihmlad
docrihmlad
I thought this channle was about dogs...
Nicholas Angelides it is, but it is also about her, I personally love knowing how she is doing, but don’t always watch some videos, if your new here stick around you’ll get used to it. Sorry if this sounds a bit rude I don’t mean it that way.
Hun, she has a service dog, its a life with what she has and a service dog.
why do you post every day?
What kind of question is that ? I love her videos. If it bothers you, don't watch ?
It's just a question chill
Everyone is different on UA-cam. Some people post once a week, twice a week, daily, etc. Everyone is different.
KD DaGreat she's sharing her story like a lot of people do.
the only way she gets paid is if there are ads on her videos, i have seen almost no ads, learn how youtube works!
rihmlanddoc