Thank you, I'm 1.5 years in, and to hear you talk about the exact same symptoms, anxiety, and depression has been a big help for me, appreciate a lot thank you!
@@bethanymarie80 thank you, I hope and wish you well ♥️... It looks as though I'm getting botox injections around November, to help the synkinesis and alignment 🤞
5 DAYS AGO I WAS DIANOOSED WITH BELL´S PALSY AND IT WAS HARD FOR ME .BUT WATCHING SOME VIDEOS LIKE YOURS MAKE ME BE MORE POSITIVE .THANKS FOR YOUR TESTIMONY JESUS CHRIST BLESS YOU SO MUCH .
You’re an absolute rock star. You’ve inspired me so much. I’m at week 7. I couldn’t have survived without your video here!!! I’m your Bell’s palsy twin. lol! A thousand thank you’s to you!!!!
Uggh. In 2 days it’ll be 8 weeks. Super duper slow. I just keep thinking your recovery took long. I’ll just try to be patient and wait and wait. Going to neurologist in 2 weeks. Not really sure why. They’ll probably just tell me to be patient. Thank you!!!
@@BarbaraDeJesse-u7q please also see Ear nose and throat doctor. Neurologists sometimes can be frustrating with a lack of answers. ENT will be able to track your progress and help you to know where you are in your healing. ❤️🩹
Thank you so much for this video! I just got diagnosed with Bells Palsy 5 days ago and every recovery video that i come across always gives me hope! Its indeed scary how suddenly for no reason you wake up and suddenly your life has changed. Although tho Bells Palsy is temporary it can really affect your day to day life. I hope you get to be fully recovered this year ♥️♥️♥️ sending lots of love
Thank you so much. Yes it’s such a difficult and unexpected thing to happen and does change your life in so many ways. I hope that you recover fully, and soon. ❤❤❤
Thank you for sharing your story. I got diagnosed today after experiencing symptoms for almost a week and it’s been a struggle. I look in the mirror and I just hate how everything is changing so fast. I have to keep reminding myself to find happiness in other things because I don’t know how long my condition is going to last.
I can relate and I’m so sorry. I know it’s utterly frustrating. Things will get better- they may not get to 100 percent but they do get better. ❤️🩹 I wish there was more info out there regarding Bell’s palsy!
One great resource that I used is Butheaus Physical therapy on UA-cam there is also a UK UA-cam channel that has a lot of exercises for synkinesis and Bell’s palsy… I will see if I can find the name of it.
As with most folks this hit my wife out of nowhere Tuesday. We watched this video on our way home from the hospital. She's really going through it as I know you are well aware. She just tried your Glade Press and Seal idea and she 10 minutes later said "Please find that ladies video and talk her for the press and seal ideal. I've bought her an $80 moisture retention mask it won't stay on. Eye patches apply too much pressure. Silk/skin tape is an avenue we are not even going to try noticing how it scarred you. This video is a true inspiration and we can't thank you enough
@@JCWEST oh wow, this means so much to me!! ❤️❤️❤️I was hoping that my video would help others who went through what I did. There’s so much trial and error that I’d love to help save people the effort of going through. One other thing that will definitely help with her eye is Erithromycin. It was the ONLY thing that would keep my eye from drying out when I was unable to blink for months. It was a lifesaver. You have get it prescribed by an opthamologist but it’s worth it! She needs to see one anyway as well as an ear nose throat doctor if possible. And some resources that helped me were Pierre Butheaus physiology UA-cam channel and the Bell’s palsy and facial paralysis group on Facebook. So many wonderful people there with a lot of experience and knowledge. ❤️❤️I hope your wife makes a full recovery!❤️🩹
Thank you I’m going through the same with depression with the bells Pasly I’m sad looked in my room I feel like a monster but I feel much better hearing your story❤😊
I felt the same and I still have my moments- I’m about 80 percent recovered and miss the face I used to have. Things do improve but it’s very slow and this condition teaches patience very well. You don’t look as bad to others that you look to yourself, though. I have also looked back ar my old videos and realized I didn’t look as monstrous as I felt at the time. ❤I hope you recover quickly!
This is the first time I am watching your story First of all you are absolutely gorgeous and beautiful I just diagnosed with the Bell’s palsy Started last Saturday morning I ended up in the hospital Sunday night. They released me. They did the x-ray on me scan everything so it was grateful for me too. See your video. I learned a lot of course honey. I can be your grandmother. Oh your mom is kind of a little different, but I got it little early, I don’t know I hope so. The doctor told me it takes about 3 to 6 months but right now I am under the medication Cortizone so I feel much better after I saw your video honey. Thank you so much. God bless you, my dear.❤❤❤❤❤❤❤🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🌹🌹🌹☘️🌹☘️🌹☘️🌹☘️🌹
I've been dealing with this 5 months on the 26th not as bad as it was but still there . My eye is a pain from drying out and can't blink it much . Thanks fir sharing this and hoping that we all have a speedy recovery speedy recovery
Thank you for your message I'm so glad you're progressing keep up the hard work: for me every time I'm in the car I'm doing the exercises your face looks great😍
Diagnosed on 10/6/24. Started prednisone next day. Using Gen Teal severe dry eye drops which are helping tremendously. Struggled through the taping, eye patch, taping gauze the first three nights. Found putting Gen Teal on when lying on bed, holding eyelid down as i closed the other eye helped with keeping eyelid in place. I am keeping a pot of warmed water on the stove, once an hour dip a wash cloth in the water and place on the left side for 15 minutes. Found videos from reputable medical sites on self-massage therapy. This is my second go round which is unusual, but at least i found much more helpful info using Mayo Clinic and other resources. Hang in there everyone! Told my GP that Mr. Bell can gladly have his palsy back. Humor helps me from going to a dark place which isn't healthy.
I love that…. Humor does help!! 😂 Thank you for all The tips. I hope someone reading can get some use out of what you shared! I hope you make a full recovery!
My dearest this is the fifth weeks after my bill partly I understand exactly what you talking about sweetheart and I’m beginning to see improvement but not the way I want it still I have to do a lot of exercise and practice practice but I know I’m going to be OK, just like you did, sweetheartyou give me a lot of hope thank you my dear and I’m watching you time to see you every day. I do that every day to give me a comfort. God bless you, darling. You’re the wonderful person and I’m sorry that happened to you young beautiful girl that you finished with it and you’re back to normal beauty that you have.❤❤
I'm sorry you have had to go through that. I have had 2 eye retina surgeries. it's been really miserable. I can't even imagine going through what you are. Stay strong 💪 ❤
I was diagnosed on October 27 but tbh was feeling some symptoms a few day's before, likemy smile was off. The day before my kids said i looked sad. Then on Sunday i had problems with my eye snd trouble drinking from cup. Its been a week now snd im having trouble with my speech now. I just want to thank you so much for documenting your experience. Im gaving such a hard time mentally. I have a feeling now of what to expect. Thank you and god bless you.
I’m so sorry for what you are going through. If you need support, I highly recommend the Bell’s palsy and facial paralysis support group on Facebook. Also Pierre butheaus page on UA-cam. Very helpful!! Hang in there - you are not alone, and you are going to get better! ❤ ❤️🩹
Thanks for the video . I got Bell’s palsy two years ago. My recovery took about as long as yours. I still have a little synkinesis and may also try the Botox. It’s definitely hard to deal with mentally.
Thank you for sharing your experience. You shine brightly 💓 I am two weeks in, and it was very helpful hearing about the depression, feeling isolated and everything else you mentioned. It makes me feel less alone and gives me hope for future. Best wishes to you and your lovely family ❤
Thank you so much for your kind words. This is a confusing and isolating journey for everyone who has it! I surely hope that your healing is quick and that you make a good recovery! ❤️🩹
Are you on Prednisone and a antiviral medicine? I hope you are, if you get on them within the first 48 hours the chances of recovery is better from what I was told by my doctor. I had this last year and it was extremely scary, but thank God it cleared up after about a month. The only thing now after almost a year is my smile is a little off but only I notice it. Hope you recover quickly.
Yes, I took both the steroid and the antiviral medication… I should’ve mentioned that in this video, but thank you so much for letting me know about that. And thank you for your kind words and well wishes!
hi im 21 days in of haveing bells palsy and getting better slowiy fank god you are a gorgeous women happy to see you got better an every one on here god bless you all
I’m 2 weeks in and my eye is what bothers me the most, so uncomfortable. Some days I’m really positive and know it’s not forever and another day I’m in bits, I can’t even cry properly!
@@MariaPratley that’s the worst and yeah it affects everything, even the tear ducts. Trust that your body knows how to heal and give it time, because a nerve grows only about 1 mm per day and that’s very slow. It will take time but even though you don’t feel it, your body is working hard to heal itself. Have you had steroids and antiviral yet? If not, please try to see a doctor and get those as soon as you can , (and make sure they wean you off the steroids rather than cutting it off cold turkey, cause doing that can cause pain).
Hello Bethany, I've had Bell's palsy for one week and your video is great. I'm so glad you made such a great recovery. My question is now that it's been six months. Do you feel like you even guilt more after your video journey? Do you feel like you've made a 100% recovery? If not what percentage out of 100 do you feel you are at? Also, I've heard that you can continue to heal up to one year… Thanks just curious if you continued healing even more after your video thanks.🙏🏼✌🏼 -Jake
I am 18 months in and I am maybe 80 percent improved. I wish I could say it’s 100 percent but I am thankful to have this much. I realized just a couple of weeks ago I can whistle so I am still progressing in healing!
I just got it 4 days ago, so i have no idea how long I'm going to be affected. Fortunately i can still move my eyebrow a little, and my cheek. But you are totally right - not being able to close the eye, is the most debilitating. I have made some thin strips og kinesiotape, that i can tape to both the upper and lower eyelid, and cross the over the corner of the eye with a mild stretch, which puts my eye into a kinda permanent squint, and with that, i can actually close my eye fully without using my hands. I was so excited to see the moisture protection glasses, but living in Sweden (EU), unfortunately they are not available. So i guess i will give swimming glasses a go, which - though looking weirder, might do the same thing, and would enable me to do chores outside. I'm a little scared, and it is hard to not think of dire outcomes, but maybe i'm in the statistical majority, that actually recover after a month. Thank you very much for sharing, and i wish you all the best
Got bit by a tick and a couple weeks later had to go to the emergency room. Thought it was a stroke but was dionoised as Bells Palsy. So now I try to get information abd learn to deal with this unexpected part of my life.
@@talister106 I’m so sorry you are going theory this. Please do some research on Ramsay hunt syndrome. If it was started by a tick bite, you may have that and knowing the difference can change how you are treated. I hope that you recover quickly.
je reviens vers vous , j'espère que vous allez mieux. Alors moi cela va faire bientôt 6 mois (commencer en mai 2024) que j'ai eu cette paralysie :( j'ai commencer la kiné très tôt la semaine qui a suivie . Aujourd'hui j'ai récupérer l'asymétrie de mon visage, mais j'ai toujours une gêne au niveau de l'oeil et aussi de la joue qui elle est douloureuse quand on y touche, je n'ai pas tout récupérer au niveau de ma lèvre au niveau sourire :( .je faisais deux séances par semaine mais mon kiné m'a fait passer a une par semaine car cela peu faire l'effet inverse de trop travailler et il y a eu amélioration . Mon médecin ma donner des séances de kiné pour 6 mois j'arrive a la fin bientôt :( je me pose beaucoup de questions sur la guérison complète malgré que mon kiné me dis que c'est pas parce que vous aller arrêter la kiné que vous allez pas continuer a progressé . je vous comprends toutes et tous c'est très déstabilisant, parfois je me dis ca va aller et parfois en pleurs , les gens nous dise ohhh mais ca va on voit pas grand chose , ben si !!! et on y ressens aussi et ca vous ne le voyait pas !!! enfin voila j'espère que vous tous aller aller mieux .Dommage je ne parle pas anglais :(. jE ME PERMET DE VOUS FAIRE DES BISOUS 😘
@@marie-clairemc9238 Je suis vraiment désolé pour la douleur dans vos yeux et vos joues et j'espère que vous pourrez arriver à un endroit où cette douleur s'atténuera très bientôt ! merci pour tous ces mots d'encouragement!
Hi, you must exercise all these "sagging muscles" on the effected side [entire left side]. The eye must be protected and rinsed with DI water. It may be completely gone in six or more months.
@@bethanybrown9986 D. I. water is Distilled water [100 percent pure]. It is a mild stroke to the body. Better go see a doctor -- you are too young to be having this problem.
Dommage je ne comprends pas ce que vous dites je suis de tout cœur avec vous . Je suis actuel comme cela depuis le 18 mai 😒. Cela a commencer par un œil qui couler puis pas de goût du coter gauche . Je suis aller au urgence car je penser que c’était un avc mais après examens on me dit que c’est une paralysie faciale du à un virus . 😒. J’espère que sa ira mieux pour vous on la dit que c’est très long à revenir donc séance de kiné . Bises à vous
Merci à vous . J’espère que tout va rentrer dans l’ordre pour vous aussi . Oui nous avons pas beaucoup de réponse à ce virus 😔. Je me permet de vous embrasser bon rétablissement à vous 🙏🥰
It really is. Erithromycin was the ONLY thing that truly gave me the ability to keep my eye from being in constant pain. I had it prescribed by my opthamologist, and highly recommend!!
@@bethanymarie80 pretty much the same, funny thing is a alkaline taste in my mouth,and just feel half of flavor of everything it's awful,God bless you!!
Hi there, were you put on Prednisone or any other type of steroids, and a antiviral medicine, oral? Those are extremely crucial for a quicker recovery from what my doctor told me when i got this last July. I recovered within about a month, i think the only thing that's different after almost a year is my smile is a little off but only i notice it.
Hello! I also had Bell's palsy and now I have the same thing as you. Will you have selective neurolysis surgery to improve facial movement and reduce tightness?
I’m at the stage right now. I’ve had it for at least. Two weeks. And I noticed that late so I’m very nervous. I won’t get some motor function back. I just got off my antibiotics. Yesterday. I’m very nervous and very scared.
It’s very scary. I’m so sorry you are going through it. There’s a book called “fix my face” that is has a lot of good and helpful info. I hope you recover quickly!
I had an accident, fell off the bike. The nerves on the left side of the face were not working. How much time will it take to recover. Please suggest me properly...
I’m so sorry this happened to you. There’s no way for me to know how severe the damage is, but I suggest seeing an ear, nose, and throat doctor and also you need to go to a regular doctor as well, so they can hopefully give you steroids to reduce inflammation! I hope you recover very quickly! ❤
Ive had it almost 10 years ago when i was just 16 years old so it didn't effect me physiologically but within 1 or 2 months of regular physiotherapy it had gone away as regular medicines had worked for me. However after 2 years I've started loosing my hair as male pattern hairloss, now im 26 with such hairloss which had effected me mentally and after trying various remedies i didn't any improvement in hairloss but not sure if it had caused because of Bell's palcy or not as till now whatever information ive seen or heard shows no proof of hairloss because of it and doc's say it isn't genetic or any underlying body condition so if any of you know that it may have triggered my hairloss and knows anyway to cure please do help me❤
@@reetuthakur7065 I also have experienced hair loss but it happened before I got Bell’s palsy. I actually got mine due to stress and type 1 diabetes and that is also what contributed to my Bell’s palsy. Have you had your thyroid and other hormones checked and also iron? Sometimes it can be a deficiency there. I hope you find answers. I use boldify to cover my thinning top. ❤️
I have had bells for 6 years. I have a doctor who does who does facial surgery who has hoped me alot. You should look into that. She gave me my smile back!
I am 44, and its almost 2 months past since bells palsy, even for daily electric stimulation but there is no significant improvements. What should I do to stop being it permanent?
Do what you can to reduce inflammation but you can’t hurry the nerves unfortunately, they take a long time to heal. You will still help your body by eating healthy and trying to reduce inflammation. Try to stay away from the tens unit at this time because it can cause synkenesis later on. It won’t stimulate the nerves to move because they have to grow back and that takes time. Hugs to you!
@@bethanymarie80 Thank you for the response. Understand. I take tens, electric stimulation , ultra sound, light daily , i need to stop tens. Thanks for the details and being kind
You are welcome. I know how distressing it is not to see progress for months. It was 4 months for me before I had my first very tiny movement; and it still took months for it to progress after that. Don’t give up hope- even though you can’t see it, your body is working to repair itself behind the scenes. ❤️❤️
@@bethanymarie80 Thank you so much. These words are lots to me ! I heard some are healed in some weeks and i am not so i was worried but your words keeps me motivated and being hope. ❤️
I also experienced bells Palsy just like you 2 months ago, now my condition has recovered 90%, my feelings were destroyed because of this disease but with Terapy drugs and hot sunbathing can recover normally.
@stx_01 are you talking about the tens unit? I started using it early on but discovered it can actually cause synkenesis when used early on, so I stopped. When I did get past the year point, I was told by the ENT that I could use it on my forehead to stimulate movement but no where else like my cheek - and it actually did result in helping my forehead begin to have movement. I hope that helps- if I didn’t answer the question correctly, let me know!
Today is exactly the 60th day and my condition has recovered 95%, for treatment I do acupuncture and to maintain my emotional stability, I do 2 hours of mediation every day.
Hey ! Im in my 8th month of bells , i have similar symptoms as like synkinesis and dropping of corner of my mouth …. I wanted to know about your botox treatment how has it been & is it worth it ?
It was definitely worth it because it was such a relief to relax my face!! It had gotten so tight and pulled like crazy. after the wore off, some tightening did come back. Not as bad though! And because of the Botox, my eye learned to blink without the synkenesis (well, almost completely got rid of it… it’s still a little bit there but not as noticeable).
I still have the muscle pulling my mouth down on the affected side. I am going to ask my ENT about a possible DAO excision because I read it might be able to help. I hope it could help you also.
I’m so so sorry you are still going through this. Please look for a good ENT in your area and a facial paralysis specialist if you can find one. There are surgeries and procedures that can be done to restore some symmetry. ❤
I hope you recover quickly! Be sure to give yourself as much rest as you can - if you haven’t gone on steroids yet or an antiviral, make sure you do that as soon as you can. Make sure to go to an ophthalmologist for your eye.
Thank you, I'm 1.5 years in, and to hear you talk about the exact same symptoms, anxiety, and depression has been a big help for me, appreciate a lot thank you!
You are welcome. ❤I hope your symptoms continue to improve and that we both eventually find a way to make a full recovery!
@@bethanymarie80 thank you, I hope and wish you well ♥️... It looks as though I'm getting botox injections around November, to help the synkinesis and alignment 🤞
5 DAYS AGO I WAS DIANOOSED WITH BELL´S PALSY AND IT WAS HARD FOR ME .BUT WATCHING SOME VIDEOS LIKE YOURS MAKE ME BE MORE POSITIVE .THANKS FOR YOUR TESTIMONY JESUS CHRIST BLESS YOU SO MUCH .
This means a lot to me and I hope you heal fully very soon!! Im sorry for what you are going through.
You’re an absolute rock star. You’ve inspired me so much. I’m at week 7. I couldn’t have survived without your video here!!! I’m your Bell’s palsy twin. lol! A thousand thank you’s to you!!!!
This means so much to me! I hope your recovery is much quicker and more full than mine! ❤❤
Uggh. In 2 days it’ll be 8 weeks. Super duper slow. I just keep thinking your recovery took long. I’ll just try to be patient and wait and wait. Going to neurologist in 2 weeks. Not really sure why. They’ll probably just tell me to be patient. Thank you!!!
@@BarbaraDeJesse-u7q please also see Ear nose and throat doctor. Neurologists sometimes can be frustrating with a lack of answers. ENT will be able to track your progress and help you to know where you are in your healing. ❤️🩹
So happy for you that you recovered and look lovely now, and you are a wonderful person inside out to help and show your journey..stay blessed.
Thank you so much! I appreciate your kind words! ❤
Thank you so much for this video! I just got diagnosed with Bells Palsy 5 days ago and every recovery video that i come across always gives me hope! Its indeed scary how suddenly for no reason you wake up and suddenly your life has changed. Although tho Bells Palsy is temporary it can really affect your day to day life. I hope you get to be fully recovered this year ♥️♥️♥️ sending lots of love
Thank you so much. Yes it’s such a difficult and unexpected thing to happen and does change your life in so many ways. I hope that you recover fully, and soon. ❤❤❤
Thank you for sharing your story. I got diagnosed today after experiencing symptoms for almost a week and it’s been a struggle. I look in the mirror and I just hate how everything is changing so fast. I have to keep reminding myself to find happiness in other things because I don’t know how long my condition is going to last.
I can relate and I’m so sorry. I know it’s utterly frustrating. Things will get better- they may not get to 100 percent but they do get better. ❤️🩹 I wish there was more info out there regarding Bell’s palsy!
❤
Thank you so much Sister. Me too i was half face paralysis they before yesterday, and now watching your video for the exercises. God bless you.❤🙏
One great resource that I used is Butheaus Physical therapy on UA-cam there is also a UK UA-cam channel that has a lot of exercises for synkinesis and Bell’s palsy… I will see if I can find the name of it.
@@bethanybrown9986 ow k.. if you find it, share us too.❤️
I have Guillian Barre Syndrome and half my face is paralyzed. It’s been almost 4 months I can smirk. I wish all of us a full recovery!
I wish you a full recovery as well! ❤
Thank you for being so brave to share your story. I am on week 2 of my diagnosis. Thanks again to you and all the othets who commented.
I hope you recover fully and that it will be quick! ❤❤
As with most folks this hit my wife out of nowhere Tuesday. We watched this video on our way home from the hospital. She's really going through it as I know you are well aware. She just tried your Glade Press and Seal idea and she 10 minutes later said "Please find that ladies video and talk her for the press and seal ideal. I've bought her an $80 moisture retention mask it won't stay on. Eye patches apply too much pressure. Silk/skin tape is an avenue we are not even going to try noticing how it scarred you. This video is a true inspiration and we can't thank you enough
@@JCWEST oh wow, this means so much to me!! ❤️❤️❤️I was hoping that my video would help others who went through what I did. There’s so much trial and error that I’d love to help save people the effort of going through. One other thing that will definitely help with her eye is Erithromycin. It was the ONLY thing that would keep my eye from drying out when I was unable to blink for months. It was a lifesaver. You have get it prescribed by an opthamologist but it’s worth it! She needs to see one anyway as well as an ear nose throat doctor if possible. And some resources that helped me were Pierre Butheaus physiology UA-cam channel and the Bell’s palsy and facial paralysis group on Facebook. So many wonderful people there with a lot of experience and knowledge. ❤️❤️I hope your wife makes a full recovery!❤️🩹
I wish you a full recovery. I will pray for you and every person with this condition in thevworld
@@hermes389 thank you so much! I pray the same!
Thank you for being transparent
We are strong 💪🏽
Yes we are!!! 💪
Thank you I’m going through the same with depression with the bells Pasly I’m sad looked in my room I feel like a monster but I feel much better hearing your story❤😊
I felt the same and I still have my moments- I’m about 80 percent recovered and miss the face I used to have. Things do improve but it’s very slow and this condition teaches patience very well.
You don’t look as bad to others that you look to yourself, though. I have also looked back ar my old videos and realized I didn’t look as monstrous as I felt at the time. ❤I hope you recover quickly!
I'm still not totally healed after 16 months, I'm in my early 60's, and hoping to be totally healed. I'm complicated due to many health issues.
This is the first time I am watching your story First of all you are absolutely gorgeous and beautiful I just diagnosed with the Bell’s palsy Started last Saturday morning I ended up in the hospital Sunday night. They released me. They did the x-ray on me scan everything so it was grateful for me too. See your video. I learned a lot of course honey. I can be your grandmother. Oh your mom is kind of a little different, but I got it little early, I don’t know I hope so. The doctor told me it takes about 3 to 6 months but right now I am under the medication Cortizone so I feel much better after I saw your video honey. Thank you so much. God bless you, my dear.❤❤❤❤❤❤❤🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🌹🌹🌹☘️🌹☘️🌹☘️🌹☘️🌹
Thank you so much for the kind words! ❤❤❤ I hope you recover very quickly and without any side effects! Glad you caught it early! ❤️🩹
I've been dealing with this 5 months on the 26th not as bad as it was but still there . My eye is a pain from drying out and can't blink it much . Thanks fir sharing this and hoping that we all have a speedy recovery speedy recovery
I hope the same for you! ❤️❤️❤️❤️ I’m so sorry about the eye pain. Erithromycin was the only thing that gave me
Relief and I highly recommend!
Thank you for your message I'm so glad you're progressing keep up the hard work: for me every time I'm in the car I'm doing the exercises
your face looks great😍
I love to hear that! Keep it up, and I am so sorry you are going through it. I hope you make a full recovery!❤️🩹
And thanks for the kind words!
Diagnosed on 10/6/24. Started prednisone next day. Using Gen Teal severe dry eye drops which are helping tremendously. Struggled through the taping, eye patch, taping gauze the first three nights. Found putting Gen Teal on when lying on bed, holding eyelid down as i closed the other eye helped with keeping eyelid in place. I am keeping a pot of warmed water on the stove, once an hour dip a wash cloth in the water and place on the left side for 15 minutes. Found videos from reputable medical sites on self-massage therapy. This is my second go round which is unusual, but at least i found much more helpful info using Mayo Clinic and other resources. Hang in there everyone! Told my GP that Mr. Bell can gladly have his palsy back. Humor helps me from going to a dark place which isn't healthy.
I love that…. Humor does help!! 😂
Thank you for all
The tips. I hope someone reading can get some use out of what you shared! I hope you make a full recovery!
Thank you so much for sharing. It’s been 4 months since I have been diagnosed. It’s been very difficult
I’m so sorry - it’s very hard and Bell’s palsy just is so different and personalized for each person. I hope you recover quickly as possible!
My dearest this is the fifth weeks after my bill partly I understand exactly what you talking about sweetheart and I’m beginning to see improvement but not the way I want it still I have to do a lot of exercise and practice practice but I know I’m going to be OK, just like you did, sweetheartyou give me a lot of hope thank you my dear and I’m watching you time to see you every day. I do that every day to give me a comfort. God bless you, darling. You’re the wonderful person and I’m sorry that happened to you young beautiful girl that you finished with it and you’re back to normal beauty that you have.❤❤
Thank you so much for your kind words! I hope you have a full ❤️🩹 recovery ❤️❤️❤️
You have helped me tremendously and I want to thank you so much...
@@torycarlone6311 that means a lot to me! I wish I could do more to help! ❤️🩹
I'm sorry you have had to go through that. I have had 2 eye retina surgeries. it's been really miserable. I can't even imagine going through what you are. Stay strong 💪 ❤
Thank you so much for your kind words. ❤️
I was diagnosed on October 27 but tbh was feeling some symptoms a few day's before, likemy smile was off. The day before my kids said i looked sad. Then on Sunday i had problems with my eye snd trouble drinking from cup. Its been a week now snd im having trouble with my speech now. I just want to thank you so much for documenting your experience. Im gaving such a hard time mentally. I have a feeling now of what to expect. Thank you and god bless you.
I’m so sorry for what you are going through. If you need support, I highly recommend the Bell’s palsy and facial paralysis support group on Facebook. Also Pierre butheaus page on UA-cam. Very helpful!! Hang in there - you are not alone, and you are going to get better! ❤ ❤️🩹
Thanks for the video . I got Bell’s palsy two years ago.
My recovery took about as long as yours. I still have a little synkinesis and may also try the Botox. It’s definitely hard to deal with mentally.
Thank you for sharing your experience. You shine brightly 💓 I am two weeks in, and it was very helpful hearing about the depression, feeling isolated and everything else you mentioned. It makes me feel less alone and gives me hope for future. Best wishes to you and your lovely family ❤
Thank you so much for your kind words. This is a confusing and isolating journey for everyone who has it! I surely hope that your healing is quick and that you make a good recovery! ❤️🩹
Are you on Prednisone and a antiviral medicine? I hope you are, if you get on them within the first 48 hours the chances of recovery is better from what I was told by my doctor. I had this last year and it was extremely scary, but thank God it cleared up after about a month. The only thing now after almost a year is my smile is a little off but only I notice it.
Hope you recover quickly.
Yes, I took both the steroid and the antiviral medication… I should’ve mentioned that in this video, but thank you so much for letting me know about that. And thank you for your kind words and well wishes!
I agree no advice from the Doctors, I had to Google and get advice from the internet.
Bless your heart. I am now 6 months in. Its still a healing journey. I still have speech, smile and eyebrow dysfunction
I’m sorry you are going through it! I hope your symptoms resolve very soon!❤️🩹
hi im 21 days in of haveing bells palsy and getting better slowiy fank god you are a gorgeous women happy to see you got better an every one on here god bless you all
Thank you so much!! I am so glad you are improving in the first month! That’s a very good sign!
Good luck on your journey.
Thank you so much! ❤
... and 3 years later here we are. Synkinesis set in at 8 months. NO changes. Wishing you the best
I’m so sorry. Yeah, same here with the synkenesis.
@@bethanymarie80❤❤❤❤❤
I’m 2 weeks in and my eye is what bothers me the most, so uncomfortable. Some days I’m really positive and know it’s not forever and another day I’m in bits, I can’t even cry properly!
@@MariaPratley that’s the worst and yeah it affects everything, even the tear ducts. Trust that your body knows how to heal and give it time, because a nerve grows only about 1 mm per day and that’s very slow. It will take time but even though you don’t feel it, your body is working hard to heal itself. Have you had steroids and antiviral yet? If not, please try to see a doctor and get those as soon as you can , (and make sure they wean you off the steroids rather than cutting it off cold turkey, cause doing that can cause pain).
Hello Bethany, I've had Bell's palsy for one week and your video is great. I'm so glad you made such a great recovery. My question is now that it's been six months. Do you feel like you even guilt more after your video journey? Do you feel like you've made a 100% recovery? If not what percentage out of 100 do you feel you are at? Also, I've heard that you can continue to heal up to one year… Thanks just curious if you continued healing even more after your video thanks.🙏🏼✌🏼 -Jake
I am 18 months in and I am maybe 80 percent improved. I wish I could say it’s 100 percent but I am thankful to have this much. I realized just a couple of weeks ago I can whistle so I am still progressing in healing!
I was just diagnosed with Bell’s palsy 8/24 right side weakness. Hoping for full recovery 😢
I hope you have a full recovery!!❤️🩹
@@bethanymarie80 thank you. Are you doing any exercises that you can recommend. I have right side weakness.
I came down with this last week. Thanks for the video
@@TrinetteDavis-j3z I’m so sorry! I wish you a speedy recovery! ❤️🩹
How are you doing now? I am 5 days in and just wondered how other people are doing. Thank you.
Thanks for sharing im experiencing the ame now and im really struggling. This is so emotional its too much for me and this is my 3rd month 😢
I’m so so sorry that you are having to go through this. I know how you feel, and wish I could speed up your healing! ❤️🩹
Hang in there ...I'm on 3rd month...it was the most humbling experience in my life ...🙏❤️🌹
Thank You🙏
❤
I just got it 4 days ago, so i have no idea how long I'm going to be affected. Fortunately i can still move my eyebrow a little, and my cheek.
But you are totally right - not being able to close the eye, is the most debilitating.
I have made some thin strips og kinesiotape, that i can tape to both the upper and lower eyelid, and cross the over the corner of the eye with a mild stretch, which puts my eye into a kinda permanent squint, and with that, i can actually close my eye fully without using my hands.
I was so excited to see the moisture protection glasses, but living in Sweden (EU), unfortunately they are not available. So i guess i will give swimming glasses a go, which - though looking weirder, might do the same thing, and would enable me to do chores outside.
I'm a little scared, and it is hard to not think of dire outcomes, but maybe i'm in the statistical majority, that actually recover after a month.
Thank you very much for sharing, and i wish you all the best
I’m so sorry you have just come down with it so recently. That is a great idea with the kT tape- I wish I had thought of that in the first month!
Can you please guide about facial exercises ?
There’s a UA-cam channel I recommend for facial
Exercises: butheaus physiology ❤️🩹
Got bit by a tick and a couple weeks later had to go to the emergency room. Thought it was a stroke but was dionoised as Bells Palsy. So now I try to get information abd learn to deal with this unexpected part of my life.
@@talister106 I’m so sorry you are going theory this. Please do some research on Ramsay hunt syndrome. If it was started by a tick bite, you may have that and knowing the difference can change how you are treated. I hope that you recover quickly.
je reviens vers vous , j'espère que vous allez mieux. Alors moi cela va faire bientôt 6 mois (commencer en mai 2024) que j'ai eu cette paralysie :( j'ai commencer la kiné très tôt la semaine qui a suivie . Aujourd'hui j'ai récupérer l'asymétrie de mon visage, mais j'ai toujours une gêne au niveau de l'oeil et aussi de la joue qui elle est douloureuse quand on y touche, je n'ai pas tout récupérer au niveau de ma lèvre au niveau sourire :( .je faisais deux séances par semaine mais mon kiné m'a fait passer a une par semaine car cela peu faire l'effet inverse de trop travailler et il y a eu amélioration . Mon médecin ma donner des séances de kiné pour 6 mois j'arrive a la fin bientôt :( je me pose beaucoup de questions sur la guérison complète malgré que mon kiné me dis que c'est pas parce que vous aller arrêter la kiné que vous allez pas continuer a progressé . je vous comprends toutes et tous c'est très déstabilisant, parfois je me dis ca va aller et parfois en pleurs , les gens nous dise ohhh mais ca va on voit pas grand chose , ben si !!! et on y ressens aussi et ca vous ne le voyait pas !!! enfin voila j'espère que vous tous aller aller mieux .Dommage je ne parle pas anglais :(. jE ME PERMET DE VOUS FAIRE DES BISOUS 😘
@@marie-clairemc9238 Je suis vraiment désolé pour la douleur dans vos yeux et vos joues et j'espère que vous pourrez arriver à un endroit où cette douleur s'atténuera très bientôt ! merci pour tous ces mots d'encouragement!
I am going thru this right now.
Im so sorry. how long has it been?
@@bethanybrown9986 8 days.
Hi, you must exercise all these "sagging muscles" on the effected side [entire left side]. The eye must be protected and rinsed with DI water. It may be completely gone in six or more months.
Im about 15 months in now, and about 80 percent healed. ❤️ thanks for the info, what is DI water?
@@bethanybrown9986 D. I. water is Distilled water [100 percent pure]. It is a mild stroke to the body. Better go see a doctor -- you are too young to be having this problem.
Dommage je ne comprends pas ce que vous dites je suis de tout cœur avec vous . Je suis actuel comme cela depuis le 18 mai 😒. Cela a commencer par un œil qui couler puis pas de goût du coter gauche . Je suis aller au urgence car je penser que c’était un avc mais après examens on me dit que c’est une paralysie faciale du à un virus . 😒. J’espère que sa ira mieux pour vous on la dit que c’est très long à revenir donc séance de kiné . Bises à vous
I pray you make a full recovery! This is such a bizarre illness and not many answers out there!
Merci à vous . J’espère que tout va
rentrer dans l’ordre pour vous aussi . Oui nous avons pas beaucoup de réponse à ce virus 😔. Je me permet de vous embrasser bon rétablissement à vous 🙏🥰
Its been 2month i got it and im healed
Very happy for you!
I have already 6 months with the same like you, still my ear sensitive, my half face still hurts, but hard thing is my eye too. Its so frustrating.
It really is. Erithromycin was the ONLY thing that truly gave me the ability to keep my eye from being in constant pain. I had it prescribed by my opthamologist, and highly recommend!!
I've been dealing with this for almost 4 months
I’m so sorry! How are you progressing so far? I hope you recover quickly! ❤
@@bethanymarie80 pretty much the same, funny thing is a alkaline taste in my mouth,and just feel half of flavor of everything it's awful,God bless you!!
I'm two months in. Absolutely no signs of healing. Its awful.
And now is putting my career at risk
I am so sorry. 😞
Hey mam this happened to and im fast recover face to and hot water only to your face every morning that is my therapy and 2 weeks only im already ok
I’m thankful too we’re one of the lucky ones with a mild case. For the severe cases like mine, that treatment wouldn’t be effective, unfortunately.
Hi there, were you put on Prednisone or any other type of steroids, and a antiviral medicine, oral? Those are extremely crucial for a quicker recovery from what my doctor told me when i got this last July.
I recovered within about a month, i think the only thing that's different after almost a year is my smile is a little off but only i notice it.
Yes I was on both the steroids and the antiviral for 12 days
Hello!
I also had Bell's palsy and now I have the same thing as you.
Will you have selective neurolysis surgery to improve facial movement and reduce tightness?
I’m at the stage right now. I’ve had it for at least. Two weeks. And I noticed that late so I’m very nervous. I won’t get some motor function back. I just got off my antibiotics. Yesterday. I’m very nervous and very scared.
It will definitely going to fine 100 percent u will get better but do not take tension
It’s very scary. I’m so sorry you are going through it. There’s a book called “fix my face” that is has a lot of good and helpful info. I hope you recover quickly!
I had an accident, fell off the bike. The nerves on the left side of the face were not working. How much time will it take to recover. Please suggest me properly...
I’m so sorry this happened to you. There’s no way for me to know how severe the damage is, but I suggest seeing an ear, nose, and throat doctor and also you need to go to a regular doctor as well, so they can hopefully give you steroids to reduce inflammation! I hope you recover very quickly! ❤
Ive had it almost 10 years ago when i was just 16 years old so it didn't effect me physiologically but within 1 or 2 months of regular physiotherapy it had gone away as regular medicines had worked for me. However after 2 years I've started loosing my hair as male pattern hairloss, now im 26 with such hairloss which had effected me mentally and after trying various remedies i didn't any improvement in hairloss but not sure if it had caused because of Bell's palcy or not as till now whatever information ive seen or heard shows no proof of hairloss because of it and doc's say it isn't genetic or any underlying body condition so if any of you know that it may have triggered my hairloss and knows anyway to cure please do help me❤
@@reetuthakur7065 I also have experienced hair loss but it happened before I got Bell’s palsy. I actually got mine due to stress and type 1 diabetes and that is also what contributed to my Bell’s palsy.
Have you had your thyroid and other hormones checked and also iron? Sometimes it can be a deficiency there. I hope you find answers. I use boldify to cover my thinning top. ❤️
how long did it take you to recover
I am about 80 percent healed and am about 16 months in now. ❤
I have been living with synkinesis since 14 years now, it still pains me seen my face half paralyzed 😭😭😭
@@OnwuegbuzieChinonso I’m so, so sorry. I wish there were more answers for those of us affected with this crazy affliction. ❤️🩹❤️🩹
I have had bells for 6 years. I have a doctor who does who does facial surgery who has hoped me alot. You should look into that. She gave me my smile back!
Since when you were having bells palsy?
May 5, 2023
I am 44, and its almost 2 months past since bells palsy, even for daily electric stimulation but there is no significant improvements. What should I do to stop being it permanent?
Do what you can to reduce inflammation but you can’t hurry the nerves unfortunately, they take a long time to heal. You will still help your body by eating healthy and trying to reduce inflammation. Try to stay away from the tens unit at this time because it can cause synkenesis later on. It won’t stimulate the nerves to move because they have to grow back and that takes time. Hugs to you!
@@bethanymarie80 Thank you for the response. Understand. I take tens, electric stimulation , ultra sound, light daily , i need to stop tens. Thanks for the details and being kind
You are welcome. I know how distressing it is not to see progress for months. It was 4 months for me before I had my first very tiny movement; and it still took months for it to progress after that. Don’t give up hope- even though you can’t see it, your body is working to repair itself behind the scenes. ❤️❤️
@@bethanymarie80 Thank you so much. These words are lots to me ! I heard some are healed in some weeks and i am not so i was worried but your words keeps me motivated and being hope. ❤️
❤
I also experienced bells Palsy just like you 2 months ago, now my condition has recovered 90%, my feelings were destroyed because of this disease but with Terapy drugs and hot sunbathing can recover normally.
Do you still taking stimulator?
@stx_01 are you talking about the tens unit? I started using it early on but discovered it can actually cause synkenesis when used early on, so I stopped. When I did get past the year point, I was told by the ENT that I could use it on my forehead to stimulate movement but no where else like my cheek - and it actually did result in helping my forehead begin to have movement. I hope that helps- if I didn’t answer the question correctly, let me know!
I’m so glad that you have recovered to 90 percent. It really does take a toll on us emotionally. ❤️🩹
Today is exactly the 60th day and my condition has recovered 95%, for treatment I do acupuncture and to maintain my emotional stability, I do 2 hours of mediation every day.
USING TAPES TO MOTIVATE THE FACE MUSCLES LIFTING THEM UP FOR 24 HOURS LIKE EYELIDS AND CHEECKS
Hey ! Im in my 8th month of bells , i have similar symptoms as like synkinesis and dropping of corner of my mouth …. I wanted to know about your botox treatment how has it been & is it worth it ?
It was definitely worth it because it was such a relief to relax my face!! It had gotten so tight and pulled like crazy. after the wore off, some tightening did come back. Not as bad though! And because of the Botox, my eye learned to blink without the synkenesis (well, almost completely got rid of it… it’s still a little bit there but not as noticeable).
I sure hope it works good for you if you do it! Please let me know.
What about the muscle pulling the corner of your mouth ??? Did it help over there coz not being able to smile is one of my main concern
Also please post a update video of post botox
I still have the muscle pulling my mouth down on the affected side. I am going to ask my ENT about a possible DAO excision because I read it might be able to help. I hope it could help you also.
I've also been through this for 4 years now,,is it going to be permanent
I’m so so sorry you are still going through this. Please look for a good ENT in your area and a facial paralysis specialist if you can find one. There are surgeries and procedures that can be done to restore some symmetry. ❤
Ihave ha s itfor 1mo now
I hope you recover quickly! Be sure to give yourself as much rest as you can - if you haven’t gone on steroids yet or an antiviral, make sure you do that as soon as you can. Make sure to go to an ophthalmologist for your eye.
I have bell pasly and I have my face coming back to normal on it own and I can blink and talk also eat just working on my smile
I’m so glad it is coming back!! I hope you make a full recovery!
How Long did you deal with it?