Great episode again. Indeed, we can't treat pathophysiological issues with mental health support. Very true that we need to learn to listen to our bodies, as opposed to learning to ignore symptoms. Ignoring symptoms is often the 1st thing we do. Pretending isn't helpful (neither with mental health by the way). It leads to worsening.
I wanted to say both of you are really inspiring. I really liked what Oonagh said about sticking to convictions being a value. I have recently finished work in a UK chronic pain service due to LC and ME. I have lots of clinical experience and most of a Pain Science MSc but I have been vulnerable to the gaslighting of colleagues. While what we offered should be more orthodox than the lightning process, some of what clinicians did was not wildly different. It is hard to have the strength to stand up for yourself and others and be true to your convictions when you are so ill. But the way you have stood up and come across so well and credible in the media has been amazing and you have inspired me to stick to my convictions and stand up for others when I have the strength.
Thanks Oonagh and Dan! Great to hear Oonagh’s story and so much thoughtfulness and insight throughout. And lots of important themes all coming together here-acceptance/tolerance of one’s illness, respect for the reality and people’s experiences of long covid and ME, medical gaslighting/ “recovery” gaslighting, fuckery of toxic positivity, chronic illness grief, trying to find/create meaning moments or kinds of joy when possible…💜💜💜
I remember looking at LP years ago (maybe 2015/16) and there was a big red flag (which led my to look deeper than their website reviews). I had to believe in it before I could be accepted in the program. How could I since I didn't really know what it was? If you don't believe, it's not gonna work. That was the idea. Aye right...
It makes me wonder who the lightning process has been helpful for. Perhaps good if you’re training as a healthy able bodied athlete for example so the NLP Positive Mental Attitude works there perhaps. I still have videos of myself doing this when I was so so desperate to get better. Yes I relapsed a month or two later 😢
@@Post-ExertionalMayonnaise THIS is exactly what is missing from the narrative! I hope you all at Mayonnaise folks can eventually feel well enough to do interviews with compassionate mainstream journalists. You elevate the discourse.
I'm sorry about your relapse. It's a testament to your courage that you tried, even though LP turns out to be "problematic" to say the least. It's ironic that we ME/CFS people are so desperate that we try anything while simultaneously being blamed for not trying 🤬
I also think that if someone does 'brain retraining' at a time when they just naturally happen to be going through a period of improvement, they ascribe that improvement to the programme. So people can genuinely believe it has helped them when really it was just coincidence. (The whole reason that proper research methodologies are required)
Amazing to me how all the ME and LC patients you interview are such intelligent, thoughtful, kind folks. This disease really targets the best of us.
Great episode again. Indeed, we can't treat pathophysiological issues with mental health support.
Very true that we need to learn to listen to our bodies, as opposed to learning to ignore symptoms. Ignoring symptoms is often the 1st thing we do. Pretending isn't helpful (neither with mental health by the way). It leads to worsening.
I wanted to say both of you are really inspiring.
I really liked what Oonagh said about sticking to convictions being a value.
I have recently finished work in a UK chronic pain service due to LC and ME. I have lots of clinical experience and most of a Pain Science MSc but I have been vulnerable to the gaslighting of colleagues.
While what we offered should be more orthodox than the lightning process, some of what clinicians did was not wildly different.
It is hard to have the strength to stand up for yourself and others and be true to your convictions when you are so ill. But the way you have stood up and come across so well and credible in the media has been amazing and you have inspired me to stick to my convictions and stand up for others when I have the strength.
Thanks Oonagh and Dan! Great to hear Oonagh’s story and so much thoughtfulness and insight throughout. And lots of important themes all coming together here-acceptance/tolerance of one’s illness, respect for the reality and people’s experiences of long covid and ME, medical gaslighting/ “recovery” gaslighting, fuckery of toxic positivity, chronic illness grief, trying to find/create meaning moments or kinds of joy when possible…💜💜💜
Thank you for this! These interviews give me hope, not the false hope of psychologisation.
That's what we're aiming for! Thanks for your feedback!
Thank you for these conversations! 🤗
Great interview. Lovely woman, so sad what happened but glad she is slightly better now.
I remember looking at LP years ago (maybe 2015/16) and there was a big red flag (which led my to look deeper than their website reviews). I had to believe in it before I could be accepted in the program. How could I since I didn't really know what it was? If you don't believe, it's not gonna work. That was the idea. Aye right...
The lightning process made me crash, so did Mickel therapy
It makes me wonder who the lightning process has been helpful for. Perhaps good if you’re training as a healthy able bodied athlete for example so the NLP Positive Mental Attitude works there perhaps. I still have videos of myself doing this when I was so so desperate to get better. Yes I relapsed a month or two later 😢
It seems some people claim to be helped by it when actually they've just minimised their life and re-framed what they can do.
@@Post-ExertionalMayonnaise THIS is exactly what is missing from the narrative! I hope you all at Mayonnaise folks can eventually feel well enough to do interviews with compassionate mainstream journalists. You elevate the discourse.
I'm sorry about your relapse. It's a testament to your courage that you tried, even though LP turns out to be "problematic" to say the least. It's ironic that we ME/CFS people are so desperate that we try anything while simultaneously being blamed for not trying 🤬
I also think that if someone does 'brain retraining' at a time when they just naturally happen to be going through a period of improvement, they ascribe that improvement to the programme. So people can genuinely believe it has helped them when really it was just coincidence. (The whole reason that proper research methodologies are required)
Thank you both.