I relate to your story so much. I have cervical dystonia, my jaw subluxes and dislocates, i have shoulder instability, slipping rib syndrome, bladder and stomach issues. I was diagnosed with hEDS a year ago. However, my previous GP didn't believe me and gaslit me. I changed GPs as i was so traumatised. And haven't seen a GP since as im so scared of the same thing happening. Thankfully i go private for my physio, so i have some help, otherwise i would have no clue that the chest, abdominal snd back pain i get is from SRS. Thank you for sharing your story, as it helps me feel less alone. X
That all sounds so familar! I definitely struggle with trusting doctors now, despite seeing so many of them, but yes GPs are a challenge "If I've never heard of it, it doesn't exist". You're so welcome,wanting people to feel less alone is why I did this :)
Thanks for sharing your journey!
I believe it is important info for many people.
I relate to your story so much. I have cervical dystonia, my jaw subluxes and dislocates, i have shoulder instability, slipping rib syndrome, bladder and stomach issues. I was diagnosed with hEDS a year ago. However, my previous GP didn't believe me and gaslit me. I changed GPs as i was so traumatised. And haven't seen a GP since as im so scared of the same thing happening. Thankfully i go private for my physio, so i have some help, otherwise i would have no clue that the chest, abdominal snd back pain i get is from SRS. Thank you for sharing your story, as it helps me feel less alone. X
That all sounds so familar! I definitely struggle with trusting doctors now, despite seeing so many of them, but yes GPs are a challenge "If I've never heard of it, it doesn't exist". You're so welcome,wanting people to feel less alone is why I did this :)