DO NOT USE That DNA Test You Got For Christmas!
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- Опубліковано 26 гру 2019
- All sources can be found through these links:
www.vice.com/en_us/article/vb...
www.consumerreports.org/healt...
mediacenter.23andme.com/press...
www.technologyreview.com/s/61...
www.nbcwashington.com/news/lo...
amp.charlotteobserver.com/new...
www.nytimes.com/2019/11/05/bu...
www.thetelegraph.com/news/art...
www.jdsupra.com/legalnews/con...
www.zdnet.com/article/dna-fir...
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I think some of these companies “accidentally” leak their data on purpose. It’s easier to ask for forgiveness, then ask for permission.
I think they take the DNA and test it against drugs and viruses
It's like when companies purposely break the law and pay the fine because the profit they made was much greater. Fines are just a business expense.
I've been trying to tell my friends this for a while now... unfortunately they all shrug it off "I have nothing to hide" - now I can send them this video. I really wish there were more people like you, spreading the message that privacy is something EVERYONE needs to be concerned about, not just criminals. Keep up the great work, Snubs!
Thanks for the info Shanon, today I was talking with some friends who took the test and when I asked about the privacy issues of giving away their DNA info they just disregarded them. Now I understand much better the risk involved
Love this video & your links to valuable references.
👍🏼Good info!
Wow Shannon, thanks for sharing this! 👍🏾
Thank you very much for putting together this video!
Wow I had no idea! Thank you for making this video
I totally agree with you Shannon. Great video
Great points. Thanks for doing a video on this topic.
Glad it was helpful!
Excellent video! Privacy is important. Relying on these companies to keep your data secure is like installing an open window. It doesn’t work to keep others from peaking
If you have a testing package you can't return, swab your cat or dog and send it in.
lol good one
Better yet, yourself and a lizard. You'd be registered as a lizard person. Conspiracy gold mine!
or your goldfish
I was adopted and my adoption file was very sparse. But I managed to connect with a nephew who also submitted a DNA test and through him my half sister. Without DNA testing that would not have happened. I understand the risk but the reward was totally worth it.
Also, I love your Luna plush in the background!
Thanks Shannon I actually shared this on my FB page this is invaluable information..
I totally agree Shannon. I knew that doing those tests were definitely not privacy friendly but I didn’t realize it was this bad. Especially about how the data sharing is governed only by the ToS agreement, since they can just change it whenever they need to. I guess I just assumed there was some kind of overarching framework in place to prevent that. We need some kind of basic privacy protection in the US on a national level, with teeth.
you could even wake up one day and realise you have a clone...
Excellent presentation; informative, interesting and accurate. It is shocking that there is v little legislation about DNA security. Think about how vulnerable this vital piece of data seems to be. Def gonna swab my little dog, She should be safe enough!
Our family already took ours, using 23 & Me and learned lots of interesting & cool stuff about our family & no we don’t care about the privacy stuff
hope that naivety works out for you...
@Dancing Diva good luck with that!
I heard Google was storing DNA with the 23 and Me kit and that ruined them for me... these kits you can find really easily too.
The woman who owns 23 and me is married to owner of Google and her sister is the CEO of Yahoo.
Great video. Unfortunately I think many of the users of these kits do not take the threat seriously. I have an acquaintance who has become obsessed with genealogy in her retirement and pushes this testing on friends and family. She is not dumb. She is a veterinarian with additional training in microbiology so she has a deep understanding about how these kits work. Her understanding of security though...
I did IT for a genetic testing company (which is now out of business, jumped ship before that) and I can say that security was the last thing on anyones' mind at the company. I would give in depth reasons why we needed to tighten up security on X, Y, and Z but no one ever cared. most time was geared toward break/fix and ignore problems unless they get in the way of tests running. The only qualm I have with your video is that if you take insurance payment for a genetic test or work through a hospital (my company did) then you are subject to HIPAA
Right, hospitals are regulated with HIPAA. But if you buy one of these from Target, there's no law regulating it.
@@ShannonMorse when I was working I was under the direct impression that if you took in a sample or blood/saliva/other (at least in Massachusetts) that you fell under the HIPAA umbrella. Although it is possible that the company that processes it is different than company that is porting the results. It's also possible that I'm 100% wrong because I'm an IT guy not a lawyer lol
@@briandunn9722 check out the links in the description of my video for more information
23 and Me disliked this video.
You didn't even mention the military warning! They don't want our troops to use these.
That news was announced after I recorded this.
May not seem like much, but it could affect your insurance premiums if DNA data was bought by a third party and you have markers for potential health risks through inheritance. Most of these firms aren't HIPPA compliant or have any policies for CCPA which goes into effect next year.
In Israel we have a DNA information protection law basically not allowing sales of home kits since 2000 (we can use mail forwarding services form other countries if we wish to).
So MyHeritage is an Israeli company that doesn't sell in Israel 🙈
i had a couple friends do one of these tests and found out that there were some lies in their family. ruined a good chunk of their lives.. why would you even risk that?
Oof yikes. Good point.
Shannon, I agree with everything you said. Additionally those companies make some dubious claims that based on your DNA they're able to say something like "You are 70% American, 20% German, 10% French". But in order to determine that, they'd have to know what a 100% American, German etc DNA looks like - for a reference. But how would they do it when pretty much all of us are more or less some kind of international combination of genes. So this entire process is flawed.
The best example was when some identical twins (youtubers) submitted they DNA to one of those companies and they got completely different results. They made a video about it (if I find it I'll put a link here).
They get DNA from all over the world and then they compare it to your DNA to get the percentages and the breakdown. So, if you ever see something like, "This person is 100% German", it doesn't literally mean 100 percent, the websites just create a limit for it, it means that your DNA just has very little variation, or the percent is so little they just don't include it at all. It doesn't mean they have a person who is literally 100% German that they found.
How would you divide up the data? Humans came up with this stuff in the first place, so they make the rules, we decided what counts as "German" DNA based on gathering DNA samples from that region, which is literally just a bordering other countries, we just made it up. Using your logic, why does race even exist if we all have those combinations of genes, it's for labeling purposes, not because it's an actual universal rule or whatever.
Im former army. My DNA is long since analyzed and documented. Good news is my son is mine! Hahahaha
Well that sucks I wish I'd seen this when it was new I have a profile on both 23andMe and ancestry frack me
I just did my DNA test, aware of the risks but I have no regrets. I am adopted and was able to connect with my birth family this way 💜
The movie "Gattaca" comes to mind... a path to dystopia centered around your 'code'... not YOU. i'll take a pass...
OMG! Yes, I forgot about that movie! Loved it! Still do!
I think this is a great video. I have one question tho....I noticed that the majority of these companies have their legal entity in Israel...I don’t understand why. Laboratories are in USA.
Dunno, but I'm not comfortable giving any company in any country a copy of my DNA
@@ShannonMorse I understand you....their Privacy policies are not displayed anywhere.
A year ago I purchased a kit for my partner. Thank you for putting the info about asking to have the data removed via phone number. With the scary stuff being put on the side for a moment. He was able to find out information about his father's side of the family. His father was adopted, and he was able to find his father's siblings/half-siblings. Really interesting stuff. It was a closed adoption, and his lost aunt had tried to find him a couple of times but it just wasn't possible. I am fully aware that asking for them to remove your information doesn't mean squat once they've already used it for other purposes. I just hope we can get to the point where we can have better policies about the handling of this material. Especially since the fascination with this subject matter will never go away.
No, of course you're not just being paranoid. Any ppl who think that are just ill informed. Thank you for shedding light on these issues. Now, to somehow get you millions of views lol
Just don't register the code on the card
The results are in. The DNA test says, you are NOT the father!
Maury is the only free DNA test I'd use
BrysNightWorld
Maury Powich ?????
That TV show where people swear yell and scream and cuss about questionable fatherhood ?????
Yeah, the DNA tests are the hooks for services that are quite pricey. MyHeritage and Ancestry ARE trying to hook DNA testers into the research subscriptions.
This might be unavoidable. I just got hired at a new job and they gave me a mouth swab for the Drug test, instead of the icky pee test. That I was kind of grateful for BUT guess what they got... My DNA. and it was an Insurance company for a pharmaceutical company. Now... I am officially freaked out. I didn't even think about it till this video. I really needed the job while I am in school. There really seems to be no way to avoid this if it becomes the norm for ALL workplace jobs. oooh boy :( What do you think?
Legally they shouldn't use it for anything other than the drug test but yes, that is super icky.
Nice
I got 2% North African on 23andme and 2.5% African sub and on my ancestry dna I got 4% African sub and no North African
i'll seriously buy any unwanted kits off of anyone
The ppl behind 23 and me make it not trust worthy
yup where do Bio-weapons start from too
creepy
thankyou
:-)
My issue on these DNA tests, once out there, ALWAYS OUT THERE! Gov't will somehow, someway have access to it. Also, I was looking into it (years ago), and found information on how they can take parent DNA, some sibling DNA and they can come up with your DNA or a very close replicant of it. Also, if they do have your DNA info on file, they can replicate a synthetic DNA sample. Not good enough for cloning, but good enough for genetics testing. If it is good enough for genetics testing, then it can be used in other ways. I have (for fun and curiosity) made duplicate finger prints. (Was also covered in a Myth Busters episode. That's where I got the idea from). So since I could do that, I could use it for illegal activities. Same for the synthetic DNA. Way too much trouble and expensive. At least it is ... today!
So bottom line....DO NOT DO IT, DISCOURAGE OTHERS! Our privacy and rights are already infringed upon.
I'll be curious to learn how the CCPA affects our right to delete the data
Yes I'm going to email after I've got my results to see if they'd delete my data...
Oops I've already sent it off....
damn alittle to late my parents did it in 2014
They could make a clone of you, and steal your identity.
Chances are a close family member will have already tested. Nobody can extrapolate exactly what your genes will be, unless your parents have four identical alleles. A more immediate result is that if you have a kid out there and somebody close to you have tested, chances are excellent that the kid will find you. Now, that might be the best thing that could ever happen to the both of you, unless you lose other family because of evidence of infidelity. The cat is by now probably in the bag, though, waiting to be opened.
Until the day they can replicate physical DNA we can consider our virtual profile safe as encrypted. And as stated in the disclaimer from 23andMe and the pharmaceutical company all these DNA profiling are mainly for medical purpose for developing more genetic targeted treatments. The worst case scenario would be if for some reason your own DNA change and don't match anymore with the former in the virtual archive which could serve as the only form of authentication and you lost your identity.
Couldn't you just use a fake name?
MyHeritage is actually extremely private, they don't do 3rd party DNA testing, they actually have their own labs, unlike Ancestry and the others. The others not so much. People need to read the ToS and Privacy policies.
And yet MyHeritage got hacked...🙄
@@ShannonMorse Yes it did just like every other web site has at some point or will be. But the hack did not compromise the DNA database, nor is it a big deal as long as you keep changing your passwords like you should be constantly for every single thing you do on any form of technology. If you're gonna stop using a technology just cause it was hacked you may as well go back to cave paintings at this point.
a little bit paranoid. .
^ A little bit slow...its not paranoia if all of this has already happened to users..