Dementia At 38: One Family’s Story Facing The Early Onset Of Frontotemporal Dementia
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- Опубліковано 26 вер 2024
- Dr. Tiffany Chow, dementia expert and VP, Clinical Development, Neurology at Alector along with Deb Scharper who is a caregiver of her husband living with Frontotemporal Dementia is speaking to Noah about how genetic testing can help families along with hopes in finding the right treatment for the disease. Deb also shares how her husband got diagnosed. Dr. Chow explains signs and symptoms to look out for when possibly developing Frontotemporal Dementia. Learn more by visiting, www.LearnFTD.com
#dementia #frontotemporaldementia #alzheimer #health
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My dad had dementia from his age of 63 til he was 79. His personality dissappeard in front of us but we were greatful for every single day with him. He loved walking even when he could not speak. Loved kisses and holding hands. 😊 My mom cared for him. He was at home.
My dad was diagnosed with FTD 😢 at 72 and passed 12/2019 eight days after his 76 birthday!
Why do they keep calling it " all timers disease?". That's not how you pronounce it
For people to have to think about. I think there is something to the idea to die with dignity while you’re still fully conscious as yourself. Just my feeling on it.
I agree 😊
@Rose-SingingWolf •Yes personally I would way rather be put down -I don’t want this illness I am so depressed i knew I was unwell falling over exhausted depressed and forgetting to eat even the key in the door dropping money ?Forgetting names (Every idiot telling me it was menopause?)Drove me demented but this is like a sucker punch 🥊 that I never expected?I had a brain injury and now I have this ?I was in bad shock like even getting dressed etc ?I was calling my brother “Dad?”If this was a dog or cat you would do the kind thing ..
My dad felt love until the end. He smiled when we kissed him and loved walking. So, no, a big no to your idea.
The financial problems is USA problem. We in Europe get a free decent help for demo with dementia as well as for the family, particularly caregiver. So, you have to work with US health and social security sistem.
@Noella65 Some people don't wish to put their family through what FTD puts them through. Some don't want to die that way. It is their choice and we should respect that.
It is an awful disease and I support anyone who makes this decision
Care is actually cheaper in a NF. Home care is very expensive and you have to rely on the staff showing up for work. Most people, low income and middle income, end up on Medicaid..
Home care it's not LOVE
They don’t want to find cures!
So scarey fo