Hi Aditya! Are you enrolled in CMTA's Patients As Partners in Research? The goal of our Patients as Partners in Research initiative is to involve you and other members of the patient community in furthering the development of treatments as well as advancing our knowledge of the impact of CMT on daily life and how we can help meet the needs of everyone with CMT. Quite simply, the more we know about your type of CMT and how it affects your family, the better we can help advance research into all aspects of CMT, and, at the same time, provide you with important information specifically about your type of CMT. Some examples of ways you may be able to get involved in the CMTA’s Patients as Partners in Research include: - Completing surveys about your symptoms and experiences with CMT - Participating in focus groups with the CMTA and our Strategic Partners in the Biotechnology and Pharmaceutical fields - Enrolling in CMTA funded research studies with our clinical and scientific partners - Joining clinical trials for which you may be eligible You can enroll here: www.cmtausa.org/our-research/for-patients-and-families/patients-as-partners/patients-as-partners-profile/
Thanks for the Video, very informative. CMT was recommended by my VA clinician for my PTSD, think I'll f***ing pass on this BS.
hey. i am from india .. member of cmta ..i am suffering from CMT type 2
Hi Aditya! Are you enrolled in CMTA's Patients As Partners in Research?
The goal of our Patients as Partners in Research initiative is to involve you and other members of the patient community in furthering the development of treatments as well as advancing our knowledge of the impact of CMT on daily life and how we can help meet the needs of everyone with CMT.
Quite simply, the more we know about your type of CMT and how it affects your family, the better we can help advance research into all aspects of CMT, and, at the same time, provide you with important information specifically about your type of CMT.
Some examples of ways you may be able to get involved in the CMTA’s Patients as Partners in Research include:
- Completing surveys about your symptoms and experiences with CMT
- Participating in focus groups with the CMTA and our Strategic Partners in the Biotechnology and Pharmaceutical fields
- Enrolling in CMTA funded research studies with our clinical and scientific partners
- Joining clinical trials for which you may be eligible
You can enroll here: www.cmtausa.org/our-research/for-patients-and-families/patients-as-partners/patients-as-partners-profile/
What is the current research trial on cmta type 2 ?please share details