So its working! That gives me so much hope to life healthiest life. Im only 22 years old and I thank you from the bottom of my heart for giving us all a chance.
Hey...i wanted to ask you are you doing any kind of exercise? Because i saw your channel..you look healthy , i am 17 years old and i am also fshd patient
@@Meet_singh_22 Hello my friend, I'll be glad to share with you some tips and encourage my community to do it as well. I like to stretch with yoga and then do some cardio exercise such as walking, jogging, eliptical machine, riding a bicycle, are all great and safe exercices that will not destoy the muscle fibers we have and make them stronger as they are very low impact exercises. Stay away from heavy weights and very intense routines than could do more harm than good to your muscle fibers. Keep a good nutrition with a good protein consumtion so your muscles stay healthier. Any extras such as protein shakes, vitamins, and good rest will do great for your health. I sincerely hope you live your best life, good luck and lets keep on going.
@@MrRastaman457 it's getting harder for me to do any kind of exercise now, because of the lordosis, my back is getting weaker day by day , are you going to any physiotherapist? i used to go there but i stopped for some reason ( can we share our social media accounts?)
@@Meet_singh_22 I stopped going to physiotherapist as well but doing any yoga exercises that involve your core are great for for the lower core weakness lordosis gives us. I personally do some 30 sec planks while doing yoga and it works well.
@@MrRastaman457 ohh okay i will try doing some yoga. Btw i have a question does your lower back hurts? My lower back hurts a lot sometimes when i stand up for too long it feels like that my lower back's muscles getting shrink..
Nice that's a little bit exciting! I'm a 35 year old plumber with fshd a cure would be the dream but ill would take a stop or slow of progression so I can stay in the trade longer. I'm not exactly a rocket scientist so hard labour is the only way I can provide for my kids lol
Incredible boring presentation meant for boring board meetings. Us with FSHD know quite well what the disease is and what it does. We don't want boring med/investor slide shows. We want quick facts. What is it (drug)? What do you want it to do? What are the early results of the trial? What are the known side affects? In other words, hire a social media person to help you scale this med boredom 😴 into some nuggets us non-med professionals can digest. Don't misunderstand my comment. We appreciate the work very much. But it took 14 min just to discuss results. This format is probably great for researchers but completely sucks for those of us with the actual disease.
So its working! That gives me so much hope to life healthiest life. Im only 22 years old and I thank you from the bottom of my heart for giving us all a chance.
Hey...i wanted to ask you are you doing any kind of exercise? Because i saw your channel..you look healthy , i am 17 years old and i am also fshd patient
@@Meet_singh_22 Hello my friend, I'll be glad to share with you some tips and encourage my community to do it as well. I like to stretch with yoga and then do some cardio exercise such as walking, jogging, eliptical machine, riding a bicycle, are all great and safe exercices that will not destoy the muscle fibers we have and make them stronger as they are very low impact exercises. Stay away from heavy weights and very intense routines than could do more harm than good to your muscle fibers. Keep a good nutrition with a good protein consumtion so your muscles stay healthier. Any extras such as protein shakes, vitamins, and good rest will do great for your health. I sincerely hope you live your best life, good luck and lets keep on going.
@@MrRastaman457 it's getting harder for me to do any kind of exercise now, because of the lordosis, my back is getting weaker day by day , are you going to any physiotherapist? i used to go there but i stopped for some reason ( can we share our social media accounts?)
@@Meet_singh_22 I stopped going to physiotherapist as well but doing any yoga exercises that involve your core are great for for the lower core weakness lordosis gives us. I personally do some 30 sec planks while doing yoga and it works well.
@@MrRastaman457 ohh okay i will try doing some yoga. Btw i have a question does your lower back hurts? My lower back hurts a lot sometimes when i stand up for too long it feels like that my lower back's muscles getting shrink..
Thank you for the update. I do hope that the result will be available for commercial soon, and can be available for iverseas market in Asia region
Nice that's a little bit exciting! I'm a 35 year old plumber with fshd a cure would be the dream but ill would take a stop or slow of progression so I can stay in the trade longer. I'm not exactly a rocket scientist so hard labour is the only way I can provide for my kids lol
Thanks everyone for the update.
Selam ben fshd kas hastasıyım 31 yaşındayım bu tedavi nezaman cikacak
Brasil. Hpe
Incredible boring presentation meant for boring board meetings. Us with FSHD know quite well what the disease is and what it does. We don't want boring med/investor slide shows. We want quick facts. What is it (drug)? What do you want it to do? What are the early results of the trial? What are the known side affects? In other words, hire a social media person to help you scale this med boredom 😴 into some nuggets us non-med professionals can digest. Don't misunderstand my comment. We appreciate the work very much. But it took 14 min just to discuss results. This format is probably great for researchers but completely sucks for those of us with the actual disease.
Can the drug be 9f benefit to a wasting diaghram?