One year post TONGUE CANCER TREATMENT: What to expect for young survivors- update October 25, 2012
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- Опубліковано 12 вер 2024
- Here's the "detailed" video if you want pictures of tongue cancer at diagnosis:
• Tongue Cancer, Squamou...
My Post Operation Remarks in November 2011.
• Speaking after tongue ...
NEWS: I just got the PET-CT scan results and the cancer is no where to be found in this body. Thanks for all of your thoughts, prayers, and positive energy.
Hi all, I forgot to mention that I buy nearly all organic food and almost nothing processed. I also try to get more out of my nuts and legumes by sprouting them and tossing them on my daily salad. I have become a vegetarian and it feels so good!
Here are the links I talked about in the video. Educate yourself and you will learn that there is more to health than pills!
Gerson Therapy for all sorts of cancer:
gerson.org/gerp...
www.youtube.com...
A MUST HAVE for cancer patients (daily carrot/apple juices):
Do yourself a favor and get a good juicer from the start rather then buying a few until you find one that works well. Here is the best:
Omega VRT 350 juicer! Don't get the cheap centrifugal juicers that allow oxygen to kill the juice quickly.
Use the 20% off coupon and get it at Bed Bath and Beyond...it's the cheapest place to get it, trust me, I spent days looking.
www.omegajuicer...
Stop drinking any beverage stored in plastic...even bottled water.
www.kleankantee...
Get rid of aluminum pots/pans (use stainless steel) and get rid of your deodorant with aluminum in it. Also get rid of products with parabens in them (used to preserve your beauty products)
www.thecrystal....
educate yourself: en.wikipedia.or...
There is some people that purport that when our liver functions below 30% because of all the stress we put it through with our diets with processed foods and the toxins in our lives, we have a higher chance of getting cancers.
Here is a way to get your liver function back. I do daily organic coffee enema's.....yes DAILY! It's not nearly as bad as it sounds. It's the most refreshing thing I do on any given day. I haven't been sick since I started doing them on April 22. I never get dehydrated, burned (don't put hot coffee in there, duh), or malnutritioned like all the "negative talk" you will see on various enema bashing websites. Trust me, I did a mountain bike tour from Barcelona to Madrid over 2 weeks this summer (yes, I was less than 10 months from my first surgery that I went on this tour and I gained so much power.)
Just try the enema once and thank me later when you go back to do it a second and third time, etc. I think the enema, vegetarian/organic eating, and daily carrot/apple juices are the reason I have strength, energy and overall health back to normal (I'm probably better than before).
www.raw-wisdom....
Get inspired by a true winner:
• Video
Injections with Mistletoe Extract (Brand name is Iscador):
www.cancer.gov/...
What do you think?
I am so happy that you are cancer free now, well done .
As for me I just got diagnosed with tung cancer and I still got my fight to do, it's 3 am in the morning and I am glad I found your clip on UA-cam. I really feel that I need to talk with like people who have went through this and how it effected there lives and habits.
Thank you for your video....
how are u buddy?
Hope you are well and happy 😃
Alharith Aldelphi I’m getting my lymphs removed in 10 days I’m happy to talk with ya man
5 Years free. My cancer story mirrors yours. Have an update?
Dear Catherine...Many thanks for all you videos...They have been a great help in understanding what i was facing when i was diagnosed with tongue cancer (Squamous Cell Carcinoma).........Even though, it was very frightening at first, this was the first step to find out as much as possible about the disease......I just want add my own experience as maybe it can help others............................................... As soon as i was diagnosed, i cut all sugar straight away (only ate some fruit)....Tumors have insulin receptors on them and can divert this to grow...Furthermore, I ate only raw vegetables for breakfast to lower my acidity in my body as cancer cells thrive in such an environment (sugar also adds acidity).... I took large doses of Turmeric and bitter apricot kernels daily and did two week Hulda Clark parasite cleanse with black walnut tincture, wormwood and cloves (this is more controversial, although cloves and turmeric have proven anticarcinogenic properties)..............Of course, most important was cutting the stress factors which i believed responsible for the cancer in the first place (my job and dealing with my farther alzheimers)...My farther had just died and the tumor developed instantly, almost as a reaction.... I also told all my close friends and family and got a lot of support and love (and also from people i didnt expect) ....................... I cannot say exactly how much all of these things helped but getting informed and being proactive and deciding not to be scared was very empowering and positive and survival is at least 80% in the attitude (i would say without a positive mental attitude you have almost no chance !!!)..... 3 weeks after my diagnose and MRI on the tumor and until the operation the tumor had shrunk in depth by 3mm or 50% in this case.... I still went ahead with the operation of course...My friend who has survived 12 years after getting half his lung removed after having a golf ball sized tumor told me to get the tumor out so at least your immune system don't have to fight this too. His experience was invaluable.... Today is a week after the operation and i have been in a lot of pain but this will pass....I feel very lucky the tumor came out with clear margins and the neck dissection biopsy on the lymph nodes was clean (i had decided i would not do radio or chemo unless there where other tumors) ...I wish everyone facing this horrible disease all the strength and love in the world...As they say in New Zealand - Kia Kaha (be strong)
In summary:
No sugar, no alcohol, only a little lactose, no honey (only fruit is allowed for sugars)
Tumors have insulin receptors on them which tell the tumors to consume excess sugars which the tumors can divert for growth instead of going into muscles
Raw veg for breakfast to lower acidity in body (sugar is also acidity) - potentially take supplements such as calcium to lower acidity
Two week Hulda Clarke parasite cure
Turmeric supplement
Bitter apricot kernels supplement
Activity friends and family network for support (after diagnose I felt very very alone)
Become an expert on your disease even if very frightening and consider different outcomes. Not knowing is worse. The more you know will enable you to decide to face the disease head on
Talk with someone who has survived cancer about how it was facing treatment and the lifestyle changes they made
Make conscious decision to not be frightened and to face your situation, not to be scared and be strong !
Positive mental attitude is at least 80% of survival (I think without it you don’t have a chance !!!)
Most importantly, avoid totally if possible or cut the factors which you believe responsible for your cancer in the first place (stressful job, relationship, trauma, lifestyle, exposure to carcinogens)
Get plenty of sunshine if possible and go for long walks and meditate
And NO SUGAR !!!
Katherine, thank you for your testimonial. I don't have tongue cancer but enjoyed your brave account. Best wishes! John
Hi Catherine,
I watched your post-surgery video from my hospital bed just days after having my semi-glossectomy and neck dissection. You inspired me to video tape my progress and watching you helped me to feel not alone. I'm now approaching my 1 year diagnosis anniversary and was reunited with your youtube station after seeing that you are using Gerson approaches to remain cancer free, as am I! I will post my videos soon and would love to share. Thank you again and I hope you are well!
this video is very helpful 🙏🏼 i was 17 when i got diagnosed with tongue cancer and my lymph nodes one had cancer so i got half my tongue cut out and they got my wrist used a skin graft to reconstruct my tongue and now i’m dealing with healing .. today’s my birthday and i start radiation in 2 days and this really helped me prepare. yes it is a very tough process
same issue here at 29. but for you, you're too young. gosh
Hi, same issue for me at 34, now radiation will start from tomorrow. Are you having taste and food habits back. Even sometimes a beer to enjoy on weekends.
I have had a similar experience at 16 years old. I also had half my tongue cut out and and a skin graft on my wrist. The cancer was not found in my lymph nodes and my doctor did not determine to give me radiation treatment. Recently I've just been seeing my doctor for monthly follow up and keloid scar treatments.
I don't tend to write comments on youtube but yours really stood out to me
I sincerely hope you are doing well and I pray for you.
mam are you fine now please tell
Did you feel pain in the lymph nodes?
hi mrs. elliot.. my name is mitchell and i am just 24 years old. i believe i have cancer on the back of my tongue. i am in the process of finding out for sure i had to leave work today and my father is giving me a ride to the hospital as we speak.. very scared.. not even really sure why im writing this i guess i just find your story very comforting.. anyways, glad to see you are doing better.
Hi Mitchell. Sorry to hear about your situation.my son Brandon is only 21yrs old and he has just had his tounge surgery done successfully, and is preparing for Radiation coming up soon. they had no explanation why a young man would develope this cancer. Any update on your situation would be helpful, thanks.
shinta201
Team Green Illinois sorry to ask but.. how did it turn out? were you clean?
ikr myself got it as well -__- Bit my tongue i believe and thats how i found out i had tongue cancer lol. Not too scared but kinda worried bout the tubes and such xD Any who if i never bit it i would of never knew i had it so someone is looking over me and made myself sneezed just so i can bite it and go in to get it check lol. Weird crap but thats life for ya :) Had surgurys for other things so thats no big deal but i never had a feeding tube before or anything like that so thats the top thing that spooks me smfh... Well wish yall well and hope everything went great and let me know what i should be worried bout and what i should be prepared for XD I go in this 31st to see whats gonna go down.. Its all on my left side of my tongue by the way. Back left wisdom tooth to like my 4th left tooth or such. Gnarly looking cut and so but glad they caught it on time before it reached other areas but i still dont know if it did hit other parts... so praying its just my tongue
@@shinta201 hello mam hows ur son now is treatment gone well
Thanks Catherine for the gift of you sharing your very scary story and your tips for healing. God bless you Catherine.
U r perfectly alright now.. No noticeable changes i saw during watching this video. I also suffered from the sane last month got operated. Really inspired by u. Thnxx a lot. I will be bold. ✌✌
hi Catherine, i have cup syndrome cancer. I had a neck dissection but refused to have chemo and radiation. I was given 1-9 months if i done chemo...i am still here 5 years 7 months on.. your videos touched me and i send you much love and light. Kim
Hi Catherine. A few days ago I underwent a similar surgery as you had. They found cancer on the left side of my tongue approximately the same size and shape and cut the lymph nodes as you described. For me the pathology results on the nodes have been good - no signs of cancer there. I'm scheduled to get the drain tube removed tomorrow thankfully! Before surgery, and again 4 days later, I'm watching your video. I can't tell you how much I appreciate your honest assessment and review of this process. It's helped me understand, appreciate and plan for a good recovery and most important to stay strong for myself and my family. Hope all is well for you - you're my hero. Thanks for sharing your story and making this video.
Thank you for your video Catherine, it has really helped me understand Tongue Cancer more. My father recently has been diagnosed, we are just waiting on more test for him to determine when they will for sure do the surgery. Thank you again I will put you in my prayers to continually recover.. God Bless you!!
jcnm
Good to see you doing well. I am going into my second year for the samething. 40% of my Tongue removed lymph nodes etc..... I have been talking to everyone i can. Like you wanting to share and help prevent such things in others by telling them what to eat and do to prevent this stuff.
Carlton Watkins happy to see your still putting up videos man! I’m about to get the lymphs out and since you’ve already went through that and lived 6 years after I’d love to talk to you!
@@ravensrefuge5199 Does your lymp nodes get swollen when it has reached to that point?
thanks so much for this vid.i am a throat cancer survivor. now i'm quite sure i have tongue can cer. i'll be 68yrs. old this month don't think i could handle all i would have to go through , bare ly survived last time.your vid. is encouriging.thank you cathy.
Hi Catherine I love your videos they are the most helpful on youtube one can find, you are a very strong talented young girl. I wish you the best, thank you so much!
Bravo Catherine - for your courage, perseverance and curiosity to also explore alternative methods! We found the same juicer here (Lausanne) but the mark is "Hurom". I have been given to understand that rincing one's mouth with olive oil (cold pressed) can help alot with gum problems etc. I hope that the results from your 1 year scan were good and I wish you ALL THE BEST! :-)
I am coming up on my 1 year anniversary of completing radiation & chemo for tongue cancer.
Didn’t you have speech, physical & occupational therapy? I had sessions starting 2 weeks before my therapy began & then 20 sessions for each in 2017. If you didn’t, that should have been communicated to you by your treatment team & ordered. It helped me sooooo much. I had a much more radical neck dissection. I had 54 staples, cut ear to ear, 52 lymph-nodes removed & 6 lymph-nodes had cancer. I had horrible lymphedema since my scar tissue cut off all fluid draining & removal of lymphnodes. Lymphatic massage by OT & then continued by me at home cleared up my Herman monster neck & scar tissue. The speech, PT & OT is extremely important. I tested positive for HPV & why I got the same cancer as you. Not chemicals, not food, not skin lotion or drinks but HPV. Did your surgeon test you for HPV? My surgeon, who was Celine Dion’s Husband surgeon told me that my cancer when caused by HPV, 90% of the time does not come back.
If you didn’t have any therapy, I would get another Dr because that’s is a definite requirement & extremely beneficial. During my 1 four hour surgery of 54 staples, I also had a feeding tube inserted since 4 weeks in to treatment, I could no longer swallow. 4 months later it was removed. I was lucky to also receive a stage 2 of a trial drug that helps lessen the side effects of radiation on the neck. 30 days after my treatment ended 11-30-16, I was barely able to eat lasagna Christmas Eve. The first time I was able to taste & enjoy sweets was cake on my birthday 1-21-17. My tastebuds are about 80% & still improving. It’s an awful treatment to go through but my surgeon told me this cancer is one of the easiest to cure & extremely low reoccurrence when HPV positive.
That’s some of my experiences. Best of luck to you!!
I first want to say Thank you for making this very informative video. My Bf was just diagnosed with mouth cancer and is scheduled for surgery on the 23rd of January. I'm sorry you've had to go through this. This has been very helpful. I hope you're exam comes back clear.
Heather Decoskey hello.
my name is alexis, 28 year old male and i have been diagnosed with tongue cancer and waiting for my surgery. has your boydriend undergone surgery yet? if so, how is his recovery going? i hope u both are doing well. im just looking for as much information as i can so i can knw what to expect. thank u and god bless.
Hi Catherine, thank you very much for your testimony.
At the beginning of 2016 I was diagnosed with a tongue cancer (left side). It was also a shock since I don't smoke, drink only occasionally, i was physically in good shape (working out 3 to 4 times a week) and I was trying to eat healthy (but I had to eat frequently in restaurants). I first tried a natural/holistic treatment (with fasting, diet, juicing, enzymes, enema, visualization, meditation...), which seems to be working for a few months (the tumor did not grow) but finally 6 months later i got and "upgrade" from stage 2 to stage 4! So finally I went through a chemo and radiation treatment during the Summer of 2016 (I was 48 at that time). It was too late for the surgery.
My chemo treatment was local (intra-arterial infusion). I had 2 catheters running from the front and back of my left ear to my tongue. The treatment was harsh. The mucositis was terrible. Even with the morphine it was really painful. After 3 weeks in the treatment I could not eat anymore and I had to get a G-tube in my stomach.
More than one year has past since the end of the treatment. I am still suffering from adverse side effects: dry and very sensitive mouth (hot, spicy and acidic food are painful) but the worst is a severe dysphagia (my esophagus has been closed since the treatment due to the radiations) and I am still using the G-tube to feed myself. Do you know of any similar cases with a blocked esophagus?
May god heal u brother ..amen
Wow how are you now?
@@ErickGarcia-cj2uf I'm doing great! In summer 2018 i met a great ENT doctor here in Switzerland who could help me recover my swallowing capability. I'm so greatful! My quality of life has changed completely! I can eat anything.
Catherine,
Thanks so much for posting your videos. It's good to know that you are doing so much better. I watched your initial post surgery video. God Bless you and I wish you continue health and happiness.
Thank you for sharing. My sister is about to undergo radiation for same condition. Very best wishes. Hope all good news in future tests.
Watching your video was like looking in a mirror. I was diagnosed when I was thirty; I had the surgery, the chemo, the radiation, and the rehabilitation. Unfortunately the cancer returned this year and the rest of my tongue was removed four months ago. I have my good days and my bad days. I hope you fair better than I did. Bona fortuna.
hello sir, how did it got returned please share. My father is also a tongue cancer patient and recently had surgery. What are the chances that he will get cancer again.
@@laveshjagwani5139 sorry for the very late response; I haven't come by this channel in a long time.
Depending on his age, the size of the tumour, and the treatment, there's a window of about five to seven years of probability that it could recur. This is something that the surgeon should be able to explain more accurately.
@@Azizopolis can i get your Email id please🙏
@@Azizopolis or whatsapp number 🙏
@@Azizopolis How are you now?
Hey Catherine, you are wonderful to share your experiences with tongue cancer. I had it pretty much where you did, and it looks like I had the same amount removed. The surgery was awful, but I am thankful it was caught in time. I had no lymph node involvement, so my Dr. didn't want to put me through radiation/chemo, although it has been the opinion of many others that I should have had it anyway.
It's been about a year and a half, and I still have problems with "S" sound! Can so relate! My interest in food is way down, but it had been for awhile before the cancer was diagnosed.
I am not that young (52), but never smoked. I am positive for HPV which may be a factor, but the biopsies were tested for it's presence with the results being "inconclusive." (??!?)
How are you doing now? You have made me so much more aware of my need to get a little more pro-active about my diet…
I am a professional photographer, and it has definitely helped me tremendously to get (lost) in my photos! My energy level is way down, even now, which has made it difficult to do many long shoots (like weddings).
Thanks again for speaking out and educating the public that this kind of cancer has no age preference and smoking may or may not be a factor as it use to be in the past.
With the discovery of HPV/cervical cancer comes the discovery of more mouth cancers than ever before.
Thanks again!
Tina
hi friend i am shafeer frm qatar my surgery finis almost 55 days i hope kw abut more ur experience so plz mail me this mail id..shafeermali@yahoo.com
Thank you for a glimpse into your life. I have just had my partial glossectomy last month and was trying to find out just how long I can expect the swelling to remain. Stay strong and you are in my prayers.
I had squamous cell carcinoma in 2010. My lymph node swelled up overnight. I had an MRI and PET scan which confirmed cancer on the base of my tongue. I had a port put under my shoulder skin for chemo treatments. I then moved to Wisconsin for treatment at the UW. 4 weekly chemo sessions with Cistoplatin and my creatine level rose to 1.64 so I stopped one week and level went down a little, continued one more and stopped when it rose again. This will damage your kidney. I had 33 radiations. The pain really doesn't start until the treatments are done. No surgery done and I don't know why some people are getting that done. I lasted 6 years cancer free and now I again have cancer in my throat just above my collar bone. Same type so I know what to expect and it's not something to look forward too. It affected my taste and lost my teeth from radiation.
hello sorry to hear , but did they give you radiation only, or chemo also? Is the the chemo need to be done or just for just in case?
I had 23 radiations along with Chemo. I have heard the chemo only increases cure rate by 3-5%. It all depends if it has spread from the original site. Mine was stage 4 but in each cancer, stage 4 has a different meaning. I had another esophageal cancer in 2016 and just finished treatment again. Due for final PET scan to confirm it's all gone in Jan. 2017. I see many people getting surgery and don't understand how they put up with that radical treatment these days. It's very curable. I will not ever have chemo again. The side affects aren't worth it. I am just now beginning to eat but still have a tube feeder in place. My throat was dilated 3 times this time. It closed back up after the first attempt after 3 days. Two weeks later it was redone and the again after 3 more weeks. Now I can swallow well. Still scratchy with most foods but that will go away.
Good luck Beth. God bless you on your journey!
very brave in deed. i started Gerson Sept 2012. i used to drink my juices right now too, but Charlotte advocates sipping juice because of the digestive enzymes in your saliva. i need to make a video to show support for others who need to know we are out here. thanks for posting your experience.
Catherine, thank you for sharing. I found a bump on my tongue last night (4/8/2016) and I have an appointment with an oral surgeon on Monday. I hope you are doing well.
Hi Ryan,
Thanks for the message. I am sorry to hear about the return. Geesh. Sounds like you are going through some tough times. My prayers are coming your way to be strong and keep your head high. It's not easy is it? Quick question for you. If you were too look at the website I'm creating about tongue cancer, what other information would you like to see there? I'm doing a bit of market research to get content that viewers want! Thanks in advance!
You go girl. This is so valuable
Your story is the same as mine. I was just told last week that I have this cancer. Thank you much for sharing, I'm scared and didn't know what to expect. I'm going to have the surgery in the next week or two. Thank thank thank you
how did it go? ( i hope it went well!!! )
May God give you big his healing 🙏
catherine thanks for info i had the same operation and radiation a month .thanks alote and god bless you catherine
Well done Catherine you really are an inspiration
Thank you for sharing, just diagnosed with tongue cancer. You look fabulous and thanks for sharing.
My family notices a difference in my S and in my voice, but people I don't know can't tell. It's just difficult to remember that no one knows because I think about it a lot in uncomfortable situations meeting new people. It has changed.
It would be great to see you on your bike in one of your videos! It would be inspiring! Thank you for sharing.
Hi Carlton,
Thanks for the message. Glad to hear you are surviving 2 years out. Nice work with a 60% tongue! Quick question for you. If you were too look at the website I'm creating about tongue cancer, what other information would you like to see there? I'm doing a bit of market research to get content that viewers want! Thanks in advance!
You’ve certainly been through it, I’m just about to begin my rollercoaster. I had my primary tumor removed, and they found perineural invasion, did you have any of that? I’m about to get 40 lymph nodes out in like 10 days and then get radiation and it’s a lil spooky. This video has been really informative, thank you so much, and I’m so glad your cancer free now!
Thank you for sharing your experience and for making suggestions.
so happy your doing your best to stay healthy as you can. Big step in eating organically..not easy but you are so blessed. Love you like a sister! I am a HSUT for The Gerson Institute.
I just had my surgery last week but unfortunately they had to take out more of my tounge since the tumor was bigger than yours. Hopefully I can talk at least as close as you can.
Where are you now in treatment and/or life?
Thank you for the video i had my surgery on jan 4 th 2o19 still in the hospital i was told a couple more days i would not wish this on anyone feeding tube and trec in my neck not looking forward to radiation glad you're doing ok
You go girl you are a strong person thank you for sharing your story
I had 60 percent glossectomy and I wish I sounded like you. I hate hearing myself talk. Also with neck dissection and I can't swallow for fear of aspirating. Also if I were able to swallow it would take forever to eat a meal and I would barely taste it. I wish they had more options. This will be my second thanksgiving where I'll be isolated from sitting in dining room with family. I don't want them or myself feeling bad while they pig out in front of me. Constantly full of saliva. Can't sit in movie theater. No more sports bars. I still love cooking gourmet meals for my wife. She deserves it. Thank God I have her.
I never would have known you had an issue by your speech or looking at you! I had 2 cancer surgeries and 33 rounds of radiation 5 years ago. I'm still here! I take IP6 with Inositol evryday. Boosts your immune system by 60 %.
Hi. 3 months past semi glossectomy w/modified neck dissection (nodes ok) & VERY much appreciate your sharing.
Docs were great au UM in Ann Arbor but didn't say much about months down the road recovery which you addressed nicely. THANKS & all the best. Dennis Havlena northern Michigan.
Thank you so much for posting your progress!!!
You are so brave!
You are such a strong person
Your video is the best one I've found. it has helped me a lot and answered some of my questions. I'm very interested in knowing if you are still unable to eat spicy or acidic food. I'm 2 1/2 months here after radiation and I'm getting some taste back but I'm unable to eat salsa or other spicy foods. Have you overcome or had this problem?
Hi Catherine......Tomorrow will be my 1 year surgery anniversary for my tongue cancer...40% removed along with 32 lymph nodes in my left neck....I had radiation but not chemo....You mentioned the Gerson therapy? Could you tell me what that is?
Thank you....very inspiring video....No one hears about oral cancer and it's nice to know that we are not alone in this journey..
Same...thanks that we aren't alone.
thank you my brother is going through this now and doesn't know what to exspect
don't worry! it sounds pretty good! there are a lot of people who didn't have any tongue surgeries but they can't pronounce some sounds properly... I think your speech is excellent!
Hi Valerie, see description for your answers.
I too am a tongue cancer survivor and I have always wondered why/ if it was a normal side effect of certain foods and beverages burned my mouth. I lost over half of my tongue and all the teeth on the bottom. I can only eat soft foods, drink tea, coffee, milk and water. No more coke or Pepsi, which sucks because it was a favorite thing of mine. I can't eat meat. I'm slowly getting better but it took me a long time to get used to my new normal. God bless.
Amazing info. Thank you, I just had this similar surgery..
@Catherine, how are you doing ?
Thanks for sharing. Got my results yesterday
Thanks for doing this.
Squamous. How is everything? I'm in the process of making a website. Is there any other info you would like to see on there? Thanks in advance.
Cancer free so far! Quick question for you. If you were too look at the website I'm creating about tongue cancer, what other information would you like to see there? I'm doing a bit of market research to get content that viewers want! Thanks in advance!
Catherine,
Did you have your one year PET scan?
Also curious what those "injectables" are that you give yourself everyday.
When they removed your tumor did they test it for the HPV virus?
Cancer free so far! Quick question. If you were too look at the website I'm creating about tongue cancer, what other information would you like to see there? I'm doing a bit of market research to get content that viewers want! Thanks in advance!
Wow, you have quite a nice story yourself. How did you do it? Any tips? Also, Quick question for you. If you were too look at the website I'm creating about tongue cancer, what other information would you like to see there? I'm doing a bit of market research to get content that viewers want! Thanks in advance!
radiation was bad great doctors eating solid foods is imposible textures are brutal almost everything i consume is through a straw but i have maintained my weight i am 3 years into this i am still alive ii am due to have tongue flap surgery in a couple of weeks hopefully this will help me eat better also just had ct and pet scan slight hot spot but doctor does nt think its cancer going to do a deep biopsy
you are a great and courageous girl!
I watch you first video and one year after and your speech is completely back and clear to understand. I had also left hemiglossectomy with 22 nymphnode dissection. I did my operation at Bumrungrad hospital in Bangkok on 16 October 2015-already 9 months. I have two concerns and I would like how do you manage this?
1. My speech is still not fully back and some people have difficulty to understand me. How do you recover your speech?
2. My tongue is last two weeks hurt when I eat fiberous food like vegetable, apple, cereals, meat etx. Soup, youghurt, porridge etc no problem. No sign of unusal symptom but my new growth of tongue is very sensitive-specially tongue tips.
Please advise
Bhuwon from Nepal
hello sir, how are you. I am lavesh from india and my father also have tongue cance and recently he had his surgery. Please give some suggestions that if he will be okay or not. and will the cancer comes back again what are the chances please tell. and also please share your experiences..
Hurom is also a good Juicer! Quick question for you. I'm creating a website about tongue cancer and want to know what other information you would like to see there? I'm doing a bit of market research to get content that viewers want! Thanks in advance!
I had 4 stage tongue cancer also. Cant eat by mouth. I have a pegtube. Cant swallow anything. I had pneumonia 3 times from aspirating. Good luck.
Hi Joel. I see you want to know more about Gerson Therapy. Do you think that would be good on the cancer website that I'm creating? What other things would you like to see on there? Thanks.
Aw. Thanks. I am indeed blessed. I hope you are well at TGI!
Quick question for you. If you were too look at the website I'm creating about tongue cancer, what information would you like to see there? I'm doing a bit of market research to get content that viewers want! Thanks in advance!
Hi Catherine, Thanks for your usefull tips and insights you provided in these video's. How do you cope with the advice / instructions from the medical staf to use 3x per week a fluoride teeth application by use of a silicon mouth bite? Did you looked or experimented with theobromine (100% natual ingrediënt won from pure cacao)? Regards JB
Thanks for sharing your video. It been 2 weeks since I bit part of the right side of tongue off. I can barely swallow saliva or eat food. My right ear is hurting and my throat is sore. So I went to the ENT and one look at my tongue he said it could be cancer. Also he let me know since my immune system has been suppressed because I had a kidney transplant, that’s why it hasn’t healed. He wants me to see his colleague who deals in this type of ulcer. I don’t know what to expect. I might lose my new kidney and go back on dialysis if I’m on radiation treatment. So scared now. The medicine that the ENT doctor giving me is not working. I’ll find out more results next week on Sept 20 when I see his colleague. Again. Thanks for sharing your video. .
May be i had also accidently bitten thr right side of my tounge its inflamed from 2 week not healing using medicines gels...seen a doctor it said it normal ulcer...how many days it taken ur ulcer to cure
How are you?
Hi how r u now .how is ur health .i have been diagnosed with squamous cell carcinoma of tongue n doctor has adviced me to get surgery done .was browsing n watched ur videos which gave me little hope .i would appreciate if u could reply me
Thanks for posting! I would say that your S sounds very good!! Personally I can't see any major problem... I think the new people who don't know you would never notice any defect of your S :) What do your parents say (or other people who know you well enough) - has it changed as to what it used to be before the surgery?
Dang, that sounds exactly like me. Diagnosed with Squamus Cell Carcinoma of the tongue..Pretty much the same place as yours. Also had neck dissection to take out lymph nodes, where 1 had cancer in it. Had 5 weeks of radiation m-f but no chemo. Also a flap was takin from my left arm and put on my tongue. It didnt work. Had to have it removed. now nerve damage in my left fore arm. Had PT/Speech and now Lymph therapy to try with my Lymphadema. Non smoke/chew and hardly drank. 6 months free.
In a Preventive meassure i have been keeping up with my Ph levels, I have used the Baking soda mixture for that.. also being aware of what I eat. I do a lot of protein drinks i make with mix nuts peanut butter, I have a commercial blender for this some things do not do well in a house hold blender. Keeping your Protine level up for healing is important, I was taking Colostrum to keep my immune system up.
How are you doing now? What stage you were and did you require radial flap ? Thank you
Stay tough! It takes a while, but it slowly comes back. I did a lot of soft scrambled eggs, soups and cheeses / yogurts. There are soft food cookbooks too. If you were too look at the website I'm creating about tongue cancer, what other information would you like to see there? Thanks in advance!
I was diagnosed when I was 29 very similar situation to you but it did spread to my lymph nodes in my neck. How did you overcome the anger if being diagnosed with a cancer you shouldn't have been??
alicia Moore hey I’m 30 and I just recently got diagnosed, and I’m about to lose my lymphs soon. I’d be happy to talk to you about how I’m dealing.
Do your lymp nodes get inflamed?
@@ravensrefuge5199 Hi do your lymp nodes get inflamed when cancee has reached to that point?m
Hurom is basically the same thing, but a bit of a knock off without the 10 year warranty. It's a good one nonetheless. Thanks!
yeah.....I looked into it and not buying it...I guess I will eat better and exercise more to prevent my cancer from coming back...
Thank you.....
great video and sharing your story is nice, but I do think it would serve us all well if you would respond to the comments here. No feedback on this video or the last
The captions get in the way of seeing her mouth area. Can't they put captions on the top of the screen?.?
You are very brave
Im always watching these tounge cancer videos because my dad died of this cancer and they offered surgery and radiation but they said just radiation would be a curative treatment it came back in 3 months and killed him I just think if he did the surgery he might be alive today and cancer free.this sucks so much
you're inspiring!
I know this sound weird but my only child Spunky has been diagnosed with squamous cell carcinmoa under his young it and i found your video
I was wandering if you ever smoked or used smokes tobacco. I ask because I smoked for 25 years and I've chewed now for a year. It seems to me that many people that never smoked or chewed still get oral cancer. And the ones the do use tobacco's still get it to and those people are told the tobacco caused it. But I had a doctor tell me that only smoking causes cancer. Not smokeless tobacco. In just ask you because I'm wandering if you ever used any tobacco. If I was to guess, I'd guess that you never did.
I am feeling sharp feeling in my tounge before i had sharp stabbing feeling in my throat hope its nothing need to visit a doctor
Hi all
Basre of tungh cancer can be cured by cemoradtion without surgery . Please reply if any one has same experience
i am into my 4th month after surgery ,i recently finished my chemo/radiotherapy and have a feed tube fitted ,i am finding it really difficult to start to eat again mainly because of the lack of taste to everything i put in my mouth as well as the sickness i keep feeling ,what kind of foods did you find the best to try to stimulate your taste buds and how long was it before you had your feed tube removed ?ps you look amazing now and thanks for the video"s
SuperMaxibaby
I would like info on how to purchase the Iscador that you were using. I have tongue cancer (only 39 yrs old). just underwent glossectomy (over half my tongue removed). 2 of the lymph nodes they removed had cancer in ONE of them. I need to start some alternative stuff going (awaiting radiation). Thank you,
Brandy
***** I've underwent a horrible surgery, over half my tongue was removed. And radiation . But I'm alive and working again.
@@brandymilles4532 what stage is it? same here. stay strong
Did the gerson treatment work?
Beth how are you feeling now?..Have you found a home trainer near you?
How did you improve your weight and speech
Is there somewhere where we can get answers instead of just asking questions??
@@mikebe4653 huh?
Try some oil pulling! Organic sunflower oil is supposed to be good, and coconut oil too. Swishing that oil in your mouth for 20 minutes, and yes gurggling with it too.
Hello, my name is Yasin from Turkey. Today we received very upset news, doctors told us that my brother in law is to tongue cancer. It is very very very sad for us. We dont know what to do. Doctor said that, they will have surgery and cut his tongues. Is there any one who is going to give us some advise. What should we do? You think if we go to USA for surgery, would it help better?
Hey yasin hows ur brother in law...is treatment goin on
You are awesome
I was on the food tube another month after my last radiation, but I was taking Juven (powder mix) which apparently helped my skin cells heal faster, so who knows. Depend on how hard the radiation was and how many salivary glands they removed if any.
Catherine Elliot thanx elliot i m the patient and same conditions happened to me after radiation one year and a month my mouth dry ness is not going and my skin round the neck is looking older than the face i m in kuwait here is too hot and humidity how i get rid of the mouth dryness and skin around my neck looking fresh .... thanx
Posterior salivari glands remaining mine.after hemiglossectomy