No doctor has EVER explained or even mentioned this data. Just “bring your machine in” and we will download it. I now have a Resmed which transmits data but never been told anything. So upset because other than asking for my pressure to be reduced there have never been any changes made. I have started to wonder if this is just another way for them to make money, not to really help anyone.
When it comes to your own health, you have to take control. It's ultimately up to you. Thank you for this. Doctor was saying things were fine, but I didn't feel fine at all.
@@chazzthaspazz4475 Pins and needles? Please explain cuz for like two years i experienced pins and needles in my skin mostly in the feet, legs and hands. Even in the face sometimes. Was just diagnosed with severe sleep apnea and got a cpap 1 week ago.
I was wearing a CPAP machine for 7 years without which I would have died. I started an intermittent fasting regiment along with eating no bread, rice, or sugar. I don't have to wear one anymore. Diet Diet Diet Diet and generalized inflammation!
Since I've been watching your videos, I have awoke and am being aware of much more of what is going on with my CPAP machine and myself. The doctor never told me anything. Basically he just told me I had severe apnea and let me loose. Didn't even tell me where to go to get a machine. Believe me, you have opened my eyes. I have learned so much and have so much more to learn. Thank you so much.
"Since I've been watching your videos, I have awoke and am being aware of much more of what is going on with my CPAP machine and myself." Same here. I go to see my VA doctor tomorrow and hopefully things go ok and I'll be able to get a newer ResMed CPAP. But if not, I can now maximize the usage of my current AirSense 10.
Just got my machine yesterday after a 4week trial. Your vids are invaluable and in fact people at the cpap clinic said they watch your vids too! Have now signed up to sleephq and checking it out. Cheers mate
You're doing such an important job, and doing it very good. You helped me a lot in the past few weeks - before and after I started cpap therapy. Thank you so much !!!
Great video mate. As an interesting follow up I would look at a WatchPat, or other sleep study auto report. I have found that these studies over report AHI (mark each event multiple times), so that it makes you look worse than you really are. Then they get you on CPAP and give you artificially low readings.
Brother! Great to hear from you. I don't think we have the WatchPAT down under but i had a look at it. I think if i venture down the diagnostic rabbit hole i might never come back up . It's a great point you make though. So many businesses doing home sleep studies, it's really not hard to artificially report a high AHI during the study and then sell them a pap. Keep up the fantastic work with the youtube channel. Nicko
Nice to see you around Dr. Veer! Wanted to mention that I've actually been told, and experienced first-hand, WatchPAT underreporting AHI rather than overreporting. Perhaps this is due to the nature of my AHI being mainly hypopneas with microarousal but very little oxygen desaturation. My recent in-lab picked these up giving 11 AHI overall and 17 during REM, while WatchPAT AHI was around 0.
I can't begin to tell you how much I've enjoyed your videos! They've Really helped me in my quest to get my AHI's within a reasonable range. I currently use a Dreamstation 2 and don't currently have any access to reports other than what is provided by Phillips. Even so, This video(Along your other videos) have been a HUGE benefit to me! THANKS !
Thank you for telling me about OSCAR. I have download OSCAR to my computer and it works fantastic. I use a ResMed S9 ACS-A Pacewave and my AHI 7 day average is 0,15. I use the machine 8 hours a night. I am 74 Years old and I am a CPAP user since 2005. Starting with ResMed S8. I got the S9 ACS-A cheap a Year ago and it is 100 times better than the regular S9 CPAP I used before.
Outstanding content! I have learned soooo much from you. Pressure adjustments, the menu behind the menu and so much more. Thank you, keep up the good work! I may be able to get used to this machine after all
I'm a rpsgt and I really appreciate this video. My hubby is still exhausted after 5 yrs on cpap. I will check his data. I recently got dx'd with osa and I will start checking mine, too.
Wow. I’m barely 3 weeks into my therapy and my Resmed 11 is telling me I’m consistently having AHI of less than 1 while my pre-therapy score was 53. I still feel like crap and now I’m totally skeptical!!!
G'day brother. Well now you know how to validate your AHI . For many, the ahi number provided will be an accurate representation of their breathing quality however for many it will be way off. For those still feeling tired, it's worth doing a thorough check once in while just to see what your breathing quality is like. All the best mate
Plus, you haven't gotten used to it yet and may not be sleeping much. If you're not sleeping, then you're not snoring. Still doesn't make you feel any better though.
It takes a while for your sleep to resume the flow of sleep architecture that you have not had due to apnea interruption. Getting apnea treated is not just solely for helping you feel better, it is to increase your quality of life by regulating your sleep, which in turn, decreases all of the apnea risk factors.
I just signed up for a SleepHQ account have yet to upload any data yet. I have been using a CPAP machine for 15 years and am now very curious as to how my flow rates look. Thanks for the tutorial. Cheers.
Thank you Nicko! You opened my eyes!!! I didn't know that was possible for me to monitor and evaluate the quality of my sleep. Indeed I think that having this opportunity will my sleep get better!
Grate video, recently I had some problems with my therapy. as i lost weight i slowly dropped my pressures to stop some bad side effects i.e. wanting to throw up some mornings ect with a API of about 1.5. It was going grate until I got COVID. my API was still low at 7 but this video makes a lot more sense to me on why
Awesome mate, yeah absolutely! Certainly lots of cpap users on the platform checkout their therapy performance. Should also see lots of cool new features in the near future. Cheers bro. Nicko
Makes sense. My dream station is set at 10 but it will drop some times and raise no higher than a 10 other times. Sometimes I am tired and other times I am ok. I am a back and side sleeper, no perminate position
Thanks for the great videos. I’ve been in sleep medicine for about 13yrs and did my Masters in Sydney. I have mostly been scoring but have started back in CPAP consulting so finding your videos great. I did use ASV years ago for centrals but managed to treats the underlying cause but know how important patient based feedback info is. If there is anyway I can help contribute or learn from you I would love to help and learn. I’m RPSGT (used to also be RST) and ANZSSA member. Keep up the great work!
Does SleepHQ software automatically detect and highlight (flag on chart and dashboard) every single apnea or hypoapnea event in addition to the flags already displayed by Resmed? Thanks
I had a CPAP and everything was good at first. I cleaned it once a week as demonstrated in the company videos. My machine got sick there buy making me sick and the company only said "buy another one" I learned to sleep in my recliner which ended my snoring problem.
Add to that concern that the measurement is taken though multiple feet of hose and a potentially leaky mask. I wonder just how accurate the measure is (which might go into why it flags at only 50% because perhaps they don't fully trust the data). I mean some don't like the APAP mode since they think the measurement isn't good enough to drive control. The other thing that concerns me with AHI is that all events are treated the same. 10 sec with low is treates the same as an OSA that wakes me up for an hour. That being said... the pattern watching seems to be a good insight.
G'day John, MyAir is really designed for patient compliance. It's not really a useful tool for analysing treatment efficacy which is why the AHI only contributes 5/100 points. Cheers brother. Nicko
Is there a way to either: 1) increase the cpap machine's sensitivity to flag more hypopnea events, or 2) us the sleep HQ software to provide an alternative estimate of hypopnea events?
I am super impressed with your videos, so helpful, so much significant information presented in such an easy way to understand. I'd love your comments on this situation. I bought a good quality smart watch (Garmin, over $400) to monitor vital stats since I have health problems ... got it before I started the CPAP therapy. The watch gives info on sleep including a general "rating"; I consistently was in the 30's and 40's (rated poor) when it should be in the 90's. Par for the course since I had 25 events per hour in my sleep study. Although my ResMed stats are much better (2.7 last night), my Garmin watch ratings are still "poor" every night. I've been thinking that they must be off since I started the CPAP, but now you've given me another vantage point ... maybe the watch is correct and my ResMed data is off, not reporting numerous events. Hmmm ... what do you think?
I got the newest machine after a sleep study. No snoring; however, I could not understand why I could sleep so easily after waking in the morning. Sometimes I would sleep several hours; I just could not wake up. It took a cold shower to bring me around. Still.. pm, I would be tired. This really bothers me. The real goal is to understand this, how to monitor it, and what do I do if it is terrible. What corrects it, if anything? I feel like you just hit the nail on the head.
I had dry mouth s lot. I am not sure anybody is reading my report correctly. The Sleep tech said the n20 does at times leak. My chin strap is stretched out and my ins only gives me one every 6 months. Tech told me if not over 5 your good???? I do not know what to think.
I find it very frustrating to get a good number. I have a severe case of sleep apnea, so my max pressure is 18, but I find myself waking up with my cheeks puffed out and usually with air leaks. I've tried tightening my full face mask to lower the amount of leaks, but at one point my bottom lip was numb for half a day due to how tight it had to be. I've tried lowering the pressure so I don't have to have the mask as tight, but my numbers are so random.
It can certainly be a challenge mate, especially at those high pressure levels. Just try and find that good balance where you have reasonably good control of your apnea and the mask isn't causing you too many problems with leakage etc. Good luck. Nicko
@@CPAPReviews That is the goal. Thanks for the reply/kind words. I appreciate the work you put into your videos and the information you bring to light.
I have resvent. I’m so frustrated with all of it. The girl that set it up where I had to get it than I went to the pulmonary Dr and there was a Cpap person and he didn’t do anything for me except give me a full mask
Hi Michelle, here's a video i did on the ResVent clinical settings - ua-cam.com/video/hdIHzu-S6Ks/v-deo.html . Most consultants are pretty hopeless unfortunately so you will have to learn to take control of your own therapy. Best wishes. Nick
I used a machine for over a year because they said it would help. piece of crap was recalled and never made any real difference in my life except added misery.
I monitor my blood oxygen every night using the O2 ring. If my blood oxygen stays up, do I need to care about my breathing graph or AHI's? By the way, I have been experimenting with time of eating, what I eat, and caffeine before bed to get the best blood oxygen reports. It seems that eating early and having one soda pop 2-3 hours before bed, produces the best results. The caffeine prevents me from sleeping so deeply that I stop breathing and then wake up gasping for breath. Resmed 10 set on manual and 18.0 for pressure.
It's a pity that SleepHQ doesn't support BMC machines, I could use that data, as when I sleep for 6 hours, I feel fine, but if I sleep for longer, I feel shit.
Hey Nick, Ben here from Wyoming, USA., what is this sleep HQ report? My Airsense 11 is arriving tommorow. I'm a first time user. How do I get this report? Please help, thank you.
@@joecannon1231 I actually was reading a forum and a guy tested his 11 out with higher capacity SD cards. I believe he successfully went up to 256 GB but never tried anything higher. This is only the 11 that can do this and anything older cannot go over 32. Not that we need more. I just ordered a 16 GB SD card and have read that even an 8GB SD can hold years worth of sleep data. Just saying that knowledge is power and If people have an unused SD card that’s more than 32 GB then they might as well use it.
When I was born on February and I already have sleep apnea when I came into this world when I was born and 2005 somewhere around here that's when they found out I have sleep apnea I don't know why they didn't catch that when I was born because I'm 24/7 tire from sunup to sundown that CPAP machine is not really help me out CPAP machine it makes me more tired and it cuts off my windpipe if I'm not using it that's okay I'm trying to get the hell out of this world
Sorry if my question is lame, but why not just crank up the CPAP flow rate to max? That's what I did when I found myself ripping the mask off my face in the middle of the night because I felt like I wasn't getting enough air.
Max is often WAY too much for people to breathe comfortably and not get any leaks. You have to find your right lower bound and upper bound, the good intersection between comfort and effective apnea management (below 5 AHI).
I just joined SleepHQ. Forgive me as this is probably a moron question but the AHI on my dash is the one that SleepHQ generates from my upload not just the number given to me by Airview?
I hope you see this comment. I really am struggling with my machine. Because of constant sinus infections, I have a full face mask (covering nose and mouth) but when I wake up in the morning I have a red ring around my face, where the mask was at night. This is highly embarrassing and as I see customers most of the time it has caused me to stop using my machine. Is there a mask, or a solution or anything else that I can use to not do that? I need to get better quality sleep, but this is preventing me from achieving that
Hi Rian, there are some low profile full face masks like the ResMed F30i, Philips Dreamwear Full, and Evora Full. On top of this you could also try some cpap mask liners. Good luck my friend. Nicko
Hi Angela, if you've just created an account you'll have access to community.sleephq.com . In the community there is the SleepHQ Academy space that has lessons that will help you get started including how to import your data
I can tell you that CPAP machines very often don't get used. I would estimate that most people really can't get used to them. I worked as a home health nurse with mostly Medicare patients for 30 years. As an RN, my main job was doing the periodic assessments Medicare and other Insurance companies require. I lost count of the patients who pulled that old CPAP machine out of the closet to show me. They would usually say they sometimes use it. But then there would be a family member there saying the patient got it years ago and NEVER uses it. At a point in time these machines started having some sort of noncompliance censor in it. If they were not being used as ordered, they were taken back by the medical supply company. A lot of machines are now being taken back from these non-compliant patients. The tax payer is on the hook for all this.
Just wondering if this is another way to bilk Medicare. Machines may be prescribed for patients then supplies are sent to patients on periodic basis. I was being sent supplies that I never ordered. My doctor never discussed any of the things that are being talked about here. Now I doubt if they ever really cared about my case, just sell someone another machine. Maybe people aren’t using their Cpap because no one really explains the usage and how to make adjustments so that they can use it successfully.
They aren't using their machines because they never got proper support. Pressures weren't correct, masks were uncomfortable, and they were just told to suck it up and stick with it, even if it made them feel worse. No attempt was made to correct pressures, or make sure they had a mask that was comfortable. Not to mention things like mask liners, hose covers, and strap pads. People aren't going to stick with bad therapy that makes them sleep even worse than before.
My wife, who is 30 years younger than me, and no sleep problems, used my mask one night. Guess what? She had 10-15 seconds of very shallow breathing too, followed by deep breaths. I believe its normal breathing during rem sleep, to have a 10-20 second period of shallow breathing. I tried it on her 13 year old daughter, and low and behold, same issue.. a 15 second period of very shallow breathing every 45 minutes or so.. Don't let these fear mongers scare you.
I wonder what to do when I you have no one monitoring your readings. I have no one looking at mine. There is no modem in my machine, no one is asking for a phone reading, I've had my machine since April 25, 2017. I get quarterly supplies, they call and ask what I need, but NO ONE, not my GP, not my c-pap materials supplier, no one looks at compliance, looks at where I am at with my machine, nothing. I have a DreamStation. And yes, I am on the list for replacement, but nothing on that at this point either. I felt at night like I was drowning for air, so the company I was getting supplies from, that had a modem in it at that point, fixed it so that it is variable from 11 up to 17. I usually hover between 12-13. If my FitLife facemask isn't working well, it goes up to the higher range, but it leaks so badly then that it wakens me and I have to shut the machine off to reset it, and pull the straps in tighter. OH, and I hate that they send a new facemask quarterly, but they will only send the head straps every 6 months - so the stretched out straps rub on my ears, and it leaks much more the second quarter than it does the first...When I first started with my c-pap, I got new everything quarterly...I need this machine, but I hate the way I am ignored and have no recourse. Blessings!
And I could not find in my machine where this kind of data is kept. Could you help me on that please, Nick? I am ALWAYS tired, so tired, if I sit for even a few minutes (often under 5), I am asleep. The rings aren't available in the USA according to the ad, don't know where I might find them. Thank you!
Hi Christine, i can highly recommend Jason @TheLankeyLefty27 . Check out his website www.axgsleepdiagnostics.com and book in for a cpap consultation with him. He's an absolute pro! Cheers
Just diagnosed. Waiting for a resmed 10 auto to arrive. Felt confident in the choice till I saw this video. Is this 50% breath algorithm on All machines or just the resmed?
It is obvious the manufacturers want to make their machines look good rather than help patients the most possible. Thank you for your videos. I am very glad I found your channel.
Just watched this last night. I opened an account at sleep hq. I started cpap in june of this year. I am still not sleeping, and it's taking a toll on my life. I was diagnosed as mild sleep apnea of 14. I have been consistently under 5 ahi, really since starting cpap. Yet i can't sleep through the night and wake up exhausted. I made some adjustments last night after watching this, and i tried using some mouth tape. It's hard because i have a goatee. But i managed to get it on, and it stayed most of the night. My ahi was 0.47 and went down .19 My leak rate was 4.8 down 3.6 My pressure is set from 7 to 11. Humidity 4 and epr on 2. I use airsense 11 and nasal pillows. It seems from the data i should be sleeping like a baby. But looking at the saw tooth breathing says a different story after rewatching this video. I will not give up! I do hope i have a breakthrough soon brefore a breakdown!
@@vibes..585 Tried mouth strap didn't work. Mouth taping helps and not dangerous. It is a light glue easily removed. My brain would wake me up if I were suffocating just like it did before I started using cpap. Thanks for your suggestion!
@vicaccino I've actually lowered it. I looked at sleep hq and oscar data and adjusted in a tight range of where the pressure is 95% of the time. Much better, but even better with mouth tape.
As a programmer & mathematician with experience coding signal processing algorithms, I would say it should be easy to write the code to correctly identify the hypopnea events in the examples you showed, without missing so many.
Exactly. Its not that its a human problem, its that the criteria is way too strict. Pattern recognition is within our ability to program for this kinda stuff
Hello, I’m also a programmer , Data Scientist with a Math degree. I agree , since there are degrees, Perhaps they should not be counting each breath as yes or no. They could rate them on a scale of 1-5, or 1-10, Then compute a score. But I am guessing this how they have always done it!!!
@pgerschibm precisely! I am NOT a programmer with a degree, and even I know that this can easily be done and should be flagging by category... 0-20%, 20-30%, 30-40%, 40-50%, 50+%. They only giving HALF of the data with this all or nothing approach. How UNscientific.
@@pgerschibmfor a world that now runs on data, this oversight is ridiculous. Also very disappointing is the medical community and their disinterest in digging into these issues, and educating their patients properly.
Someone should create an open source Github repo to do this. I'm going to make a note to myself to create on and I'll come back to this video to post it.
Key point is 10:44 "So unless your airflow drops by a massive 50% for 10 seconds or more, RESMED doesn't feel there's a problem. They won't flag the events". It is very important to learn the Sleep HQ data, we need to take control of our own data cause it looks like no one else will.
Is the 50% drop in airflow for 10 seconds or more a ResMed-specific standard, or is it the general medical standard for defining hypopneas? I've seen similar criteria mentioned in various medical sources unrelated to any specific company.
try.sleephq.com/ is my online cpap support community & cpap reporting platform. Master your therapy and improve your sleep with our powerful cloud-based platform. Create a FREE account and download your detailed therapy report today! Features Include - 1. High-resolution 'breath-by-breath' analysis - View every apnea and every breath in full detail. 2. Sleep Journal - Track how changes to device settings influence your sleep & therapy results. 3. Custom PDF reports - Detailed therapy reports complete with journal entries. 4. Therapy Trends - Monitor changes to your apnea control over time. 5. Support - Access to the SleepHQ Community Forum 6. Education - From CPAP novice to therapy PRO. Master your device and settings with the SleepHQ Academy course 7. Blood Oxygen, Heart Rate & Movement Data - Connect a SleepHQ O2 Ring to your account to view additional data sources and take your therapy to the next level. 8. Access to exclusive, member-only discounts on the latest and greatest CPAP gear And much more! SleepHQ O2 Ring - www.sleephq.com/o2-ring/ SleepHQ Magic Uploader - www.sleephq.com/magic-uploader/ Join My Facebook Community - cpap.review/facebook My Monthly Newsletter - cpap.review/newsletter Thanks for all the love & support! Uncle Nicko
@@CPAPReviews Messed up tho, because by the CPAP reports coming out like that, it falsely shows higher effectiveness for therapy. They can then show their machines are doing a great job, when in fact, they are not.
After 6 months using a machine this is what I’ve found. After countless masks and adjustments I can report that I am now sleeping far worse than I ever did before. I am just as tired as I’ve ever been. It takes me eons to fall asleep even when I’m dog tired. I feel like I’ve been sold a very expensive and worthless waste of time.
As a Lowenstein CPAP user so curious to know how this data analysis works out. But the Lowenstein Prisma data cant be read by Oscar and SleepHQ. Currently there is a way to read the datacard by the companies own (cloud) software to analyse it (but it reaches by far not to the level that you show in your video). Any suggestions?
@10:20 This is a misguidance of the capabilities of software. Software can perfectly detect these patterns with any variance of threshold in this one-dimensional graph. Software doesn't treat data as black and white, it can treat analog data such as this graph to any required fractional precision. This obviously requires competence to implement, just like any other software. If CPAPs were an open platform, you'd have satisfactory software. But because they aren't, and this market is heavily regulated, you only get what the developers that these companies hired can and are tasked to produce. Anyway, if SleepHQ wanted to, it could read the graph and produce flags based on any pattern that you can imagine.
G'day ben, i have a lot of respect for software developers mate and was more trying to make the point that current cpap firmware isn't up to the complex challenge of providing accurate reports. Cheers
@@CPAPReviews But you still haven't validated that the data you are looking at is accurate. You are relying on a basic machine to record this data. Your opening statements don't validate the data accuracy only that other people see data. What is the accuracy of the data?
Thank you for such an informative video! I have learned more from your videos online than I have from my present and past sleep doctors. Quick question...how commonplace is it in the CPAP world that supplemental oxygen at night is added in addition to using your CPAP...when you are continually waking up not being able to breathe on the machine? Would this be mainly because your CPAP pressure is incorrectly set by the professionals? After listening to this video of yours, I find myself questioning the use of nighttime oxygen vs. tinkering with the pressure to fine-tune it. Any thoughts on pressure vs. supplemental oxygen? Thanks so much!
I would have thought the manufacturers would have exaggerated the number of AHIs being recorded to foster a sense of dependence upon the product. But is it likely a reason to undercount incidents around the machines capacity to function effectively enough? Five is the golden number to be below and as long as the machine is recording the majority of users below five then the punters are happy and so is the company's sales figures.
OMG! THIS IS IT! I´ve been using my CPAP for a month (Resmed S10) now and i am still so tired feeling like bull**** (not as like when i was not using my CPAP). My doctor changed the pressure many times in this month, from 14 to 12, then to 11 and back to 14 because my AHI goes from 1-2 to 30 depending on the day. 14 is the spot where i maintain the AIH below 5 ALWAYS, but i can´t sleep well because i have only a couple of hours of it thanks to the uncomfotrtness i feel when i wake up wearing my mask and feeling like i am chocking. I´ve been on licence for 2 months now and the doctor said i will be able to get back to work asap because the therapy is going well in general and the only thing that left is me to get used to it.... I´m still feeling pretty bad :/
That's a tricky one mate. When you're just starting out i recommend you focus more on comfort and compliance. Just try and get to a point where you're using it 4+ hours a night. After a couple of months, your breathing will adapt to the pressure and then you can shift your focus to better apnea control. Good luck!
Just went through my data. My recorded AHI is consistently below 2 and often below 1 but now I can see that it isn't entirely accurate! My real AHI is not too bad and still way below 5 but still I feel tired a lot. A lot of my events are clear air events and I was wondering if there is any breathing training that we can do to help normalise our breathing. I used to think that clear air events weren't anything to worry about but, after looking at my breathing, I can see that I actually stop breating for no obvious reason, like a mask leak. I remember talking to a D..K Head "specialist" a few years ago who just ignored me when I said I was certainly feeling better than before CPAP but I still didn't feel great and I was still constantly tired. He even said that, based on the F&P machine data I had at the time, I didn't need to use a machine at all. My husband was with me and was shocked at his arrogant attitude and said that I didn't snore on CPAP so I wasn't going to stop using it. The doctor just ignored that as well and rabbited on about his training with a CPAP pioneer and that he knew what was best for me - as if I was just an inanimate object he was studying. But he didn't miss with his fee.
This happens a lot. I know I'm still not sleeping well, but as far as my doc is concerned, I'm fine, because my machine says so. Nevermind that I'm still waking up a lot, and I'm still tired. I'm better, yeah, but my sleep is still shit. Just not quite as bad as it was.
This is the best explanation of flow rate and what I need to be looking for in Oscar. It's no wonder that I'm consistently way under 5 AHI but not sleeping well every night. Thanks mate!!
Why the hell would they not code in different hypopnea levels and rate how many with 50+% drops, how many with 40% drops, how many with 30%, 20%, etc. Seems like that is critical data and the simplified count without the % is only 1/2 of the info.
@CPAPReviews So tired of being pandered to with oversimplification. I thought it was just politics, but it's really everything. We're dumbed down to constantly and it's infuriating!
haha, i think you summed it up pretty well . In all honesty Joe must have very severe apnea without CPAP therapy so i imagine he does notice an improvement. It's just it could be a whole lot better!
Hi Nick, great video, scary to think its underestimating it. I hope they updated their software. I’m trying to understand my own flow rate. Can you narrow the data range from -150/+150 on the graph so it’s easier to read?
My tongue drops back in my throat so often I am going to tie the tip of it to my junk so at least I can enjoy my dreams more with so much unconscious movement.
Is there a way to go through my data on the Sleep HQ and edit it by adding in a H or CA line for the noticed changes, and Do the RESMED 10 or others machines update on their own?
G'day Andrew, that's a really cool idea mate! I'll chat it over with Adam. We're pretty busy working on machine compatibility right now but in the future we want to provide analysis tools on the platform that will provide a more accurate report. Cheers
@@CPAPReviews I did insert the data card from the DS1 into the data slot for the DS2. The encryption is ridiculous (or it just doesn’t even write data on the card) Thx for your reply.
Thank you for you for what you're doing. I find your platform SleepHQ very informative and helpful. This video too. I was not aware that my Dreamstation keeps records of every my single breathe and could be viewed as timeline graphic. Really nice job! I firstly tried a china cpap machine Reswell which reported AHI about 15 or so, while Philips Dreamstation reports always below 5. Now I have a logical explanation of this discrepancy.
No doctor has EVER explained or even mentioned this data. Just “bring your machine in” and we will download it. I now have a Resmed which transmits data but never been told anything. So upset because other than asking for my pressure to be reduced there have never been any changes made. I have started to wonder if this is just another way for them to make money, not to really help anyone.
When it comes to your own health, you have to take control. It's ultimately up to you. Thank you for this. Doctor was saying things were fine, but I didn't feel fine at all.
G'day, great comment. I think that phrase 'trust but verify' can be applied to all aspects of health (and life!). Cheers
hoping my doc can fix me not breathing and my shallow breathing. along with the pins and needles
@@chazzthaspazz4475 Pins and needles? Please explain cuz for like two years i experienced pins and needles in my skin mostly in the feet, legs and hands. Even in the face sometimes. Was just diagnosed with severe sleep apnea and got a cpap 1 week ago.
I was wearing a CPAP machine for 7 years without which I would have died. I started an intermittent fasting regiment along with eating no bread, rice, or sugar. I don't have to wear one anymore. Diet Diet Diet Diet and generalized inflammation!
No sugar at all? Not even fruit?
@@Hsteel no fruit
And no sugar at all. You won’t miss them after a few days.
@@gondishapur just veggies and chicken ok
What foods would you recommend for this diet?
Since I've been watching your videos, I have awoke and am being aware of much more of what is going on with my CPAP machine and myself. The doctor never told me anything. Basically he just told me I had severe apnea and let me loose. Didn't even tell me where to go to get a machine. Believe me, you have opened my eyes. I have learned so much and have so much more to learn. Thank you so much.
"Since I've been watching your videos, I have awoke and am being aware of much more of what is going on with my CPAP machine and myself."
Same here. I go to see my VA doctor tomorrow and hopefully things go ok and I'll be able to get a newer ResMed CPAP. But if not, I can now maximize the usage of my current AirSense 10.
Just got my machine yesterday after a 4week trial. Your vids are invaluable and in fact people at the cpap clinic said they watch your vids too! Have now signed up to sleephq and checking it out. Cheers mate
You're doing such an important job, and doing it very good. You helped me a lot in the past few weeks - before and after I started cpap therapy. Thank you so much !!!
Awesome mate! Thanks for the great feedback Good luck with your therapy. Nicko
I love the way he flipped off his buddy with the O2 sensor ring 😂
Great video mate. As an interesting follow up I would look at a WatchPat, or other sleep study auto report. I have found that these studies over report AHI (mark each event multiple times), so that it makes you look worse than you really are. Then they get you on CPAP and give you artificially low readings.
Brother! Great to hear from you. I don't think we have the WatchPAT down under but i had a look at it. I think if i venture down the diagnostic rabbit hole i might never come back up . It's a great point you make though. So many businesses doing home sleep studies, it's really not hard to artificially report a high AHI during the study and then sell them a pap. Keep up the fantastic work with the youtube channel. Nicko
Nice to see you around Dr. Veer! Wanted to mention that I've actually been told, and experienced first-hand, WatchPAT underreporting AHI rather than overreporting. Perhaps this is due to the nature of my AHI being mainly hypopneas with microarousal but very little oxygen desaturation. My recent in-lab picked these up giving 11 AHI overall and 17 during REM, while WatchPAT AHI was around 0.
This was so informative. I look and my data and don’t have a clue what it means. Hope you continue to make the explanatory videos.
Hi Doreen, glad you liked it my friend. I certainly will!
I can't begin to tell you how much I've enjoyed your videos! They've Really helped me in my quest to get my AHI's within a reasonable range. I currently use a Dreamstation 2 and don't currently have any access to reports other than what is provided by Phillips. Even so, This video(Along your other videos) have been a HUGE benefit to me!
THANKS !
Hi Dwight, thanks for the lovely comment mate. Great to hear you're enjoying the channel. All the best. Nicko
Phillips RECALLED due to patients inhaling particles breaking off of the machine. UNETHICAL!!
Thank you for telling me about OSCAR. I have download OSCAR to my computer and it works
fantastic.
I use a ResMed S9 ACS-A Pacewave and my AHI 7 day average is 0,15. I use the machine 8 hours a night.
I am 74 Years old and I am a CPAP user since 2005. Starting with ResMed S8.
I got the S9 ACS-A cheap a Year ago and it is 100 times better than the regular S9 CPAP I used before.
You're welcome mate
I'm a new cpap user thankyou for the great information you have explained alot about the cpap machine that should be explained but not
Hi Diane, glad you enjoyed the video. Thanks for watching
Outstanding content! I have learned soooo much from you. Pressure adjustments, the menu behind the menu and so much more. Thank you, keep up the good work! I may be able to get used to this machine after all
I'm a rpsgt and I really appreciate this video. My hubby is still exhausted after 5 yrs on cpap. I will check his data. I recently got dx'd with osa and I will start checking mine, too.
Awesome! Glad you enjoyed the vid
Wow you are amazing. The NHS sent me home with a CPAP 3 years ago. Apart from a couple of phone calls I’ve had no other support.
Hi Luke, that's very kind of you to say. Glad it helped. Best wishes. Nicko
@@CPAPReviews you
Sounds exactly like my story and many others… Absolutely horrible…
Wow. I’m barely 3 weeks into my therapy and my Resmed 11 is telling me I’m consistently having AHI of less than 1 while my pre-therapy score was 53. I still feel like crap and now I’m totally skeptical!!!
G'day brother. Well now you know how to validate your AHI . For many, the ahi number provided will be an accurate representation of their breathing quality however for many it will be way off. For those still feeling tired, it's worth doing a thorough check once in while just to see what your breathing quality is like. All the best mate
Plus, you haven't gotten used to it yet and may not be sleeping much. If you're not sleeping, then you're not snoring. Still doesn't make you feel any better though.
It took about 6 weeks to kick in for me. Stick with it.
It takes a while for your sleep to resume the flow of sleep architecture that you have not had due to apnea interruption. Getting apnea treated is not just solely for helping you feel better, it is to increase your quality of life by regulating your sleep, which in turn, decreases all of the apnea risk factors.
Excellent video! Thanks for sharing the Sleephq link - I din't know I could access such valuable information from my home PC!
HI David, you're welcome mate! Best wishes my friend
I just signed up for a SleepHQ account have yet to upload any data yet. I have been using a CPAP machine for 15 years and am now very curious as to how my flow rates look. Thanks for the tutorial. Cheers.
Hi Peter, awesome mate! Welcome to the party let me know how you go
Thank you Nicko!
You opened my eyes!!! I didn't know that was possible for me to monitor and evaluate the quality of my sleep. Indeed I think that having this opportunity will my sleep get better!
Fantastic information as always. Off to check the flow rate.
Great stuff Bernie, Glad you enjoyed it brother
Grate video, recently I had some problems with my therapy. as i lost weight i slowly dropped my pressures to stop some bad side effects i.e. wanting to throw up some mornings ect with a API of about 1.5. It was going grate until I got COVID. my API was still low at 7 but this video makes a lot more sense to me on why
Glad you liked it Dan. Thanks brother
That’s so grate mate!
How can I get a graph like that for my BMC machine. And nice info
G'day mate, you won't be able to at the moment however we are doing a full API integration with BMC which will be very special. Stay tuned
I am so looking forward to that. I have a BMC G3 too
Thanks, Nick. Superb information. I have to give Sleep HQ a try.
Awesome mate, yeah absolutely! Certainly lots of cpap users on the platform checkout their therapy performance. Should also see lots of cool new features in the near future. Cheers bro. Nicko
Awesome video! Thank you from the States
Glad you enjoyed it!
Makes sense. My dream station is set at 10 but it will drop some times and raise no higher than a 10 other times. Sometimes I am tired and other times I am ok. I am a back and side sleeper, no perminate position
Thanks for the amazing video!
You're welcome brother. Thanks for your support
Thanks for the great videos. I’ve been in sleep medicine for about 13yrs and did my Masters in Sydney. I have mostly been scoring but have started back in CPAP consulting so finding your videos great. I did use ASV years ago for centrals but managed to treats the underlying cause but know how important patient based feedback info is. If there is anyway I can help contribute or learn from you I would love to help and learn. I’m RPSGT (used to also be RST) and ANZSSA member.
Keep up the great work!
Good morning,
You mentioned Central Apnea.
How did you find the cause?
Many thanks,
Robert
One feature that might be nice with this respect then is a split screen mode or overlay mode to compare hours or nights.
G'day mate, yeah that's a very cool idea! I like it I'll add it to our big list of features we're currently developing.
Does SleepHQ software automatically detect and highlight (flag on chart and dashboard) every single apnea or hypoapnea event in addition to the flags already displayed by Resmed? Thanks
Not at this stage mate but we will be adding that feature in 2023
Will SleepHQ ever be able to reevaluate the data to properly analyze the data?
Yes we are building in this functionality and adding new tools to provide more accurate analysis.
@@CPAPReviews that would be awesome and very helpful😃
When I switched from my Phillips machine, because of their shite foam, and bought a Resmed machine. I haven’t felt as good since.
I had a CPAP and everything was good at first. I cleaned it once a week as demonstrated in the company videos. My machine got sick there buy making me sick and the company only said "buy another one" I learned to sleep in my recliner which ended my snoring problem.
A very informative review which has opened my eyes further.
Hi Michael, glad you enjoyed it mate.
Add to that concern that the measurement is taken though multiple feet of hose and a potentially leaky mask. I wonder just how accurate the measure is (which might go into why it flags at only 50% because perhaps they don't fully trust the data). I mean some don't like the APAP mode since they think the measurement isn't good enough to drive control. The other thing that concerns me with AHI is that all events are treated the same. 10 sec with low is treates the same as an OSA that wakes me up for an hour. That being said... the pattern watching seems to be a good insight.
All very relevant points my friend! Thank you
I scored a ResMed 100/100 score last night. What was it really? I feel no more rested or alert, and by the way, I HATE when corporations lie to me.
G'day John, MyAir is really designed for patient compliance. It's not really a useful tool for analysing treatment efficacy which is why the AHI only contributes 5/100 points. Cheers brother. Nicko
Is there a way to either: 1) increase the cpap machine's sensitivity to flag more hypopnea events, or 2) us the sleep HQ software to provide an alternative estimate of hypopnea events?
Your the greatest Nick, thanks
I can't see Phillips DreamStation on the site🤔
Hi there, it will work with DreamStation
I am super impressed with your videos, so helpful, so much significant information presented in such an easy way to understand. I'd love your comments on this situation. I bought a good quality smart watch (Garmin, over $400) to monitor vital stats since I have health problems ... got it before I started the CPAP therapy. The watch gives info on sleep including a general "rating"; I consistently was in the 30's and 40's (rated poor) when it should be in the 90's. Par for the course since I had 25 events per hour in my sleep study. Although my ResMed stats are much better (2.7 last night), my Garmin watch ratings are still "poor" every night. I've been thinking that they must be off since I started the CPAP, but now you've given me another vantage point ... maybe the watch is correct and my ResMed data is off, not reporting numerous events. Hmmm ... what do you think?
MY AHi scores are good but my Clear Airways are not. Please link a video that can help me.
Please send me the link to check my setings
www.sleephq.com i always put all the links in the vid description brother
I got the newest machine after a sleep study. No snoring; however, I could not understand why I could sleep so easily after waking in the morning. Sometimes I would sleep several hours; I just could not wake up. It took a cold shower to bring me around. Still.. pm, I would be tired. This really bothers me. The real goal is to understand this, how to monitor it, and what do I do if it is terrible. What corrects it, if anything? I feel like you just hit the nail on the head.
Thanks Bill, good luck brother. Nicko
You're Awesome Dude!! That's all I have to say :)
You rock! Thanks
Where can I buy one of those oxygen rings bud?
Hi Travis, if you're in Australia www.sleephq.com if you're in the U.S - sleeplay.com/products/o2-ring-oxigen-ha?_pos=1&_sid=2ebb64926&_ss=r
Great analysis this is so helpful
I had dry mouth s lot. I am not sure anybody is reading my report correctly. The Sleep tech said the n20 does at times leak. My chin strap is stretched out and my ins only gives me one every 6 months. Tech told me if not over 5 your good???? I do not know what to think.
Hi Mary, don't let me confuse you mate. Here's a little vid on dry mouth - ua-cam.com/video/GQQsFuPYk6Y/v-deo.html
Hiya. Just wondering when/if the BMC auto machine will be added to sleep hq?
Hi Cherie, BMC will be a special integration that requires a little more work but it will be worth it
Hi recently diagnosed with sleep apnea feeling really lost not managing the mask on my face throughout the night - do you consult at all?
I find it very frustrating to get a good number. I have a severe case of sleep apnea, so my max pressure is 18, but I find myself waking up with my cheeks puffed out and usually with air leaks.
I've tried tightening my full face mask to lower the amount of leaks, but at one point my bottom lip was numb for half a day due to how tight it had to be. I've tried lowering the pressure so I don't have to have the mask as tight, but my numbers are so random.
It can certainly be a challenge mate, especially at those high pressure levels. Just try and find that good balance where you have reasonably good control of your apnea and the mask isn't causing you too many problems with leakage etc. Good luck. Nicko
@@CPAPReviews That is the goal. Thanks for the reply/kind words. I appreciate the work you put into your videos and the information you bring to light.
I have resvent. I’m so frustrated with all of it. The girl that set it up where I had to get it than I went to the pulmonary Dr and there was a Cpap person and he didn’t do anything for me except give me a full mask
Hi Michelle, here's a video i did on the ResVent clinical settings - ua-cam.com/video/hdIHzu-S6Ks/v-deo.html . Most consultants are pretty hopeless unfortunately so you will have to learn to take control of your own therapy. Best wishes. Nick
I have the latest Resmed 10 machine and I don't seem to have this info available.
I used a machine for over a year because they said it would help. piece of crap was recalled and never made any real difference in my life except added misery.
I’m just doing a trial with a resmed airsence 10 are these any good .? I really enjoy your videos 😁
I'm having the same issues with my Dreamstation. My AHI is under 1 but im still feeling terrible during the day
So, if we identify this in our readouts on SleepHQ and Oscar, is the only way to treat it to raise the pressure?
I monitor my blood oxygen every night using the O2 ring. If my blood oxygen stays up, do I need to care about my breathing graph or AHI's? By the way, I have been experimenting with time of eating, what I eat, and caffeine before bed to get the best blood oxygen reports. It seems that eating early and having one soda pop 2-3 hours before bed, produces the best results. The caffeine prevents me from sleeping so deeply that I stop breathing and then wake up gasping for breath. Resmed 10 set on manual and 18.0 for pressure.
It's a pity that SleepHQ doesn't support BMC machines, I could use that data, as when I sleep for 6 hours, I feel fine, but if I sleep for longer, I feel shit.
What no bipap?
Hey Nick, Ben here from Wyoming, USA., what is this sleep HQ report? My Airsense 11 is arriving tommorow. I'm a first time user. How do I get this report? Please help, thank you.
I have my airsense 11 and don't know how to get the sleep hq report
@@af1966 I have a airsence 11 that I been using for almost 2 months and I was told that it doesn’t have a sd card. 🤷🏻♂️
@@dannytorres1110 yep AS 11 does NOT come with an SD card you have to buy 1 up to 32 GB and use that
@@joecannon1231 I actually was reading a forum and a guy tested his 11 out with higher capacity SD cards. I believe he successfully went up to 256 GB but never tried anything higher. This is only the 11 that can do this and anything older cannot go over 32. Not that we need more. I just ordered a 16 GB SD card and have read that even an 8GB SD can hold years worth of sleep data. Just saying that knowledge is power and If people have an unused SD card that’s more than 32 GB then they might as well use it.
When I was born on February and I already have sleep apnea when I came into this world when I was born and 2005 somewhere around here that's when they found out I have sleep apnea I don't know why they didn't catch that when I was born because I'm 24/7 tire from sunup to sundown that CPAP machine is not really help me out CPAP machine it makes me more tired and it cuts off my windpipe if I'm not using it that's okay I'm trying to get the hell out of this world
Is this bad reporting the same for Dream stations?
So just out of curiousity...my AHI on average is 1.94/hr. i have a ResMed airsense 10
Sorry if my question is lame, but why not just crank up the CPAP flow rate to max? That's what I did when I found myself ripping the mask off my face in the middle of the night because I felt like I wasn't getting enough air.
Max is often WAY too much for people to breathe comfortably and not get any leaks. You have to find your right lower bound and upper bound, the good intersection between comfort and effective apnea management (below 5 AHI).
Unfortunately delivery charge for O2 ring to Canada $100 is extreme in my opinion.
Hi there, it's free international shipping with coupon RING. Many thanks
@@CPAPReviews thankyou. looking forward to seeing what it detects. much appreciated.
I just joined SleepHQ. Forgive me as this is probably a moron question but the AHI on my dash is the one that SleepHQ generates from my upload not just the number given to me by Airview?
matrix fan lol. My number 1 movie since I was 14.
I hope you see this comment. I really am struggling with my machine. Because of constant sinus infections, I have a full face mask (covering nose and mouth) but when I wake up in the morning I have a red ring around my face, where the mask was at night. This is highly embarrassing and as I see customers most of the time it has caused me to stop using my machine. Is there a mask, or a solution or anything else that I can use to not do that? I need to get better quality sleep, but this is preventing me from achieving that
Hi Rian, there are some low profile full face masks like the ResMed F30i, Philips Dreamwear Full, and Evora Full. On top of this you could also try some cpap mask liners. Good luck my friend. Nicko
Hi,
How do i send my data from myair resmed machine please. i've create an account on SleepHQ
Hi Angela, if you've just created an account you'll have access to community.sleephq.com . In the community there is the SleepHQ Academy space that has lessons that will help you get started including how to import your data
@@CPAPReviews thank you so much, I’m going to order an SD card reader Tuesday next week and get it all added info from 14 august 2019 - present
I can tell you that CPAP machines very often don't get used. I would estimate that most people really can't get used to them. I worked as a home health nurse with mostly Medicare patients for 30 years. As an RN, my main job was doing the periodic assessments Medicare and other Insurance companies require. I lost count of the patients who pulled that old CPAP machine out of the closet to show me. They would usually say they sometimes use it. But then there would be a family member there saying the patient got it years ago and NEVER uses it. At a point in time these machines started having some sort of noncompliance censor in it. If they were not being used as ordered, they were taken back by the medical supply company. A lot of machines are now being taken back from these non-compliant patients. The tax payer is on the hook for all this.
Just wondering if this is another way to bilk Medicare. Machines may be prescribed for patients then supplies are sent to patients on periodic basis. I was being sent supplies that I never ordered. My doctor never discussed any of the things that are being talked about here. Now I doubt if they ever really cared about my case, just sell someone another machine. Maybe people aren’t using their Cpap because no one really explains the usage and how to make adjustments so that they can use it successfully.
They aren't using their machines because they never got proper support. Pressures weren't correct, masks were uncomfortable, and they were just told to suck it up and stick with it, even if it made them feel worse.
No attempt was made to correct pressures, or make sure they had a mask that was comfortable. Not to mention things like mask liners, hose covers, and strap pads.
People aren't going to stick with bad therapy that makes them sleep even worse than before.
If I close my eyes you sound like Thor (CHRIS HEMSWORTH).
Haha, thanks! If only i looked like him too
My wife, who is 30 years younger than me, and no sleep problems, used my mask one night. Guess what? She had 10-15 seconds of very shallow breathing too, followed by deep breaths. I believe its normal breathing during rem sleep, to have a 10-20 second period of shallow breathing. I tried it on her 13 year old daughter, and low and behold, same issue.. a 15 second period of very shallow breathing every 45 minutes or so..
Don't let these fear mongers scare you.
You made your 13 your old daughter wear a cpap to check for shallow breathing. What is wrong with you!
@@CPAPReviews she wanted to.. I monitored her. Stop making a big deal about NOTHING!!! You just don't want the truth out there.
I wonder what to do when I you have no one monitoring your readings. I have no one looking at mine. There is no modem in my machine, no one is asking for a phone reading, I've had my machine since April 25, 2017. I get quarterly supplies, they call and ask what I need, but NO ONE, not my GP, not my c-pap materials supplier, no one looks at compliance, looks at where I am at with my machine, nothing. I have a DreamStation. And yes, I am on the list for replacement, but nothing on that at this point either. I felt at night like I was drowning for air, so the company I was getting supplies from, that had a modem in it at that point, fixed it so that it is variable from 11 up to 17. I usually hover between 12-13. If my FitLife facemask isn't working well, it goes up to the higher range, but it leaks so badly then that it wakens me and I have to shut the machine off to reset it, and pull the straps in tighter. OH, and I hate that they send a new facemask quarterly, but they will only send the head straps every 6 months - so the stretched out straps rub on my ears, and it leaks much more the second quarter than it does the first...When I first started with my c-pap, I got new everything quarterly...I need this machine, but I hate the way I am ignored and have no recourse. Blessings!
And I could not find in my machine where this kind of data is kept. Could you help me on that please, Nick? I am ALWAYS tired, so tired, if I sit for even a few minutes (often under 5), I am asleep. The rings aren't available in the USA according to the ad, don't know where I might find them. Thank you!
Hi Christine, i can highly recommend Jason @TheLankeyLefty27 . Check out his website www.axgsleepdiagnostics.com and book in for a cpap consultation with him. He's an absolute pro! Cheers
how do I get this data
Just diagnosed. Waiting for a resmed 10 auto to arrive. Felt confident in the choice till I saw this video. Is this 50% breath algorithm on All machines or just the resmed?
It is obvious the manufacturers want to make their machines look good rather than help patients the most possible. Thank you for your videos. I am very glad I found your channel.
I think that's probably part of it also. Thanks for your comment my friend. Nicko
Probably the hard truth keeps people awake too .. 😂
Just watched this last night. I opened an account at sleep hq. I started cpap in june of this year. I am still not sleeping, and it's taking a toll on my life. I was diagnosed as mild sleep apnea of 14. I have been consistently under 5 ahi, really since starting cpap. Yet i can't sleep through the night and wake up exhausted. I made some adjustments last night after watching this, and i tried using some mouth tape. It's hard because i have a goatee. But i managed to get it on, and it stayed most of the night. My ahi was 0.47 and went down .19
My leak rate was 4.8 down 3.6
My pressure is set from 7 to 11. Humidity 4 and epr on 2. I use airsense 11 and nasal pillows.
It seems from the data i should be sleeping like a baby. But looking at the saw tooth breathing says a different story after rewatching this video. I will not give up! I do hope i have a breakthrough soon brefore a breakdown!
Ware a mouth strap
.taping mouth is dangerous I believe..
@@vibes..585 Tried mouth strap didn't work. Mouth taping helps and not dangerous. It is a light glue easily removed. My brain would wake me up if I were suffocating just like it did before I started using cpap. Thanks for your suggestion!
Praying for your brother, you'll solve this. I'm also fighting sleep apnea but yeah I'll solve it soon 😁
Btw have you tried upping the pressure setting till you feel you're sleeping better?
@vicaccino I've actually lowered it. I looked at sleep hq and oscar data and adjusted in a tight range of where the pressure is 95% of the time. Much better, but even better with mouth tape.
As a programmer & mathematician with experience coding signal processing algorithms, I would say it should be easy to write the code to correctly identify the hypopnea events in the examples you showed, without missing so many.
Exactly. Its not that its a human problem, its that the criteria is way too strict. Pattern recognition is within our ability to program for this kinda stuff
Hello, I’m also a programmer , Data Scientist with a Math degree. I agree , since there are degrees, Perhaps they should not be counting each breath as yes or no. They could rate them on a scale of 1-5, or 1-10, Then compute a score. But I am guessing this how they have always done it!!!
@pgerschibm precisely! I am NOT a programmer with a degree, and even I know that this can easily be done and should be flagging by category... 0-20%, 20-30%, 30-40%, 40-50%, 50+%. They only giving HALF of the data with this all or nothing approach. How UNscientific.
@@pgerschibmfor a world that now runs on data, this oversight is ridiculous.
Also very disappointing is the medical community and their disinterest in digging into these issues, and educating their patients properly.
Someone should create an open source Github repo to do this. I'm going to make a note to myself to create on and I'll come back to this video to post it.
Key point is 10:44 "So unless your airflow drops by a massive 50% for 10 seconds or more, RESMED doesn't feel there's a problem. They won't flag the events". It is very important to learn the Sleep HQ data, we need to take control of our own data cause it looks like no one else will.
Certainly one of the key points mate. Cheers
Is the 50% drop in airflow for 10 seconds or more a ResMed-specific standard, or is it the general medical standard for defining hypopneas? I've seen similar criteria mentioned in various medical sources unrelated to any specific company.
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Uncle Nicko
Mr. Bean? 🤷😅
Pappy McPapface: Take Red Pill profile at 0:24 ?
Cursor at about 3:13
0:54 Nicks face in the glass's reflection. hehe
@@andrewgraafmans3093 congratulations brother 🥳. You truely are the Oracle! Please email me cpapreviewsaus@gmail.com
incredibly informative !!!!
This needs some more views...
Hi Jake, i'm glad you enjoyed the vid
@@CPAPReviews Messed up tho, because by the CPAP reports coming out like that, it falsely shows higher effectiveness for therapy. They can then show their machines are doing a great job, when in fact, they are not.
After 6 months using a machine this is what I’ve found. After countless masks and adjustments I can report that I am now sleeping far worse than I ever did before. I am just as tired as I’ve ever been. It takes me eons to fall asleep even when I’m dog tired. I feel like I’ve been sold a very expensive and worthless waste of time.
As a Lowenstein CPAP user so curious to know how this data analysis works out. But the Lowenstein Prisma data cant be read by Oscar and SleepHQ. Currently there is a way to read the datacard by the companies own (cloud) software to analyse it (but it reaches by far not to the level that you show in your video). Any suggestions?
@10:20
This is a misguidance of the capabilities of software. Software can perfectly detect these patterns with any variance of threshold in this one-dimensional graph. Software doesn't treat data as black and white, it can treat analog data such as this graph to any required fractional precision. This obviously requires competence to implement, just like any other software. If CPAPs were an open platform, you'd have satisfactory software. But because they aren't, and this market is heavily regulated, you only get what the developers that these companies hired can and are tasked to produce.
Anyway, if SleepHQ wanted to, it could read the graph and produce flags based on any pattern that you can imagine.
G'day ben, i have a lot of respect for software developers mate and was more trying to make the point that current cpap firmware isn't up to the complex challenge of providing accurate reports. Cheers
@@CPAPReviews But you still haven't validated that the data you are looking at is accurate. You are relying on a basic machine to record this data. Your opening statements don't validate the data accuracy only that other people see data. What is the accuracy of the data?
Thank you for such an informative video! I have learned more from your videos online than I have from my present and past sleep doctors. Quick question...how commonplace is it in the CPAP world that supplemental oxygen at night is added in addition to using your CPAP...when you are continually waking up not being able to breathe on the machine? Would this be mainly because your CPAP pressure is incorrectly set by the professionals? After listening to this video of yours, I find myself questioning the use of nighttime oxygen vs. tinkering with the pressure to fine-tune it. Any thoughts on pressure vs. supplemental oxygen? Thanks so much!
I would have thought the manufacturers would have exaggerated the number of AHIs being recorded to foster a sense of dependence upon the product. But is it likely a reason to undercount incidents around the machines capacity to function effectively enough? Five is the golden number to be below and as long as the machine is recording the majority of users below five then the punters are happy and so is the company's sales figures.
This is spot on mate. I think it's by design. Cheers
OMG! THIS IS IT! I´ve been using my CPAP for a month (Resmed S10) now and i am still so tired feeling like bull**** (not as like when i was not using my CPAP). My doctor changed the pressure many times in this month, from 14 to 12, then to 11 and back to 14 because my AHI goes from 1-2 to 30 depending on the day. 14 is the spot where i maintain the AIH below 5 ALWAYS, but i can´t sleep well because i have only a couple of hours of it thanks to the uncomfotrtness i feel when i wake up wearing my mask and feeling like i am chocking. I´ve been on licence for 2 months now and the doctor said i will be able to get back to work asap because the therapy is going well in general and the only thing that left is me to get used to it.... I´m still feeling pretty bad :/
That's a tricky one mate. When you're just starting out i recommend you focus more on comfort and compliance. Just try and get to a point where you're using it 4+ hours a night. After a couple of months, your breathing will adapt to the pressure and then you can shift your focus to better apnea control. Good luck!
Those large swings could be chin tucking OA clusters, on oscar they look like 1=oa. 1 1 1 11111 111 1 1 1
This was eye opening- thank you for this. My AHI is consistently
Hi Chad, you're welcome. Glad to hear you're enjoying sleephq. Cheers
So did you ever change your settings?
Just went through my data. My recorded AHI is consistently below 2 and often below 1 but now I can see that it isn't entirely accurate! My real AHI is not too bad and still way below 5 but still I feel tired a lot. A lot of my events are clear air events and I was wondering if there is any breathing training that we can do to help normalise our breathing. I used to think that clear air events weren't anything to worry about but, after looking at my breathing, I can see that I actually stop breating for no obvious reason, like a mask leak.
I remember talking to a D..K Head "specialist" a few years ago who just ignored me when I said I was certainly feeling better than before CPAP but I still didn't feel great and I was still constantly tired. He even said that, based on the F&P machine data I had at the time, I didn't need to use a machine at all. My husband was with me and was shocked at his arrogant attitude and said that I didn't snore on CPAP so I wasn't going to stop using it. The doctor just ignored that as well and rabbited on about his training with a CPAP pioneer and that he knew what was best for me - as if I was just an inanimate object he was studying. But he didn't miss with his fee.
This happens a lot. I know I'm still not sleeping well, but as far as my doc is concerned, I'm fine, because my machine says so. Nevermind that I'm still waking up a lot, and I'm still tired. I'm better, yeah, but my sleep is still shit. Just not quite as bad as it was.
This is the best explanation of flow rate and what I need to be looking for in Oscar. It's no wonder that I'm consistently way under 5 AHI but not sleeping well every night. Thanks mate!!
Great stuff brother. Let me know how you go
One of your great videos Nicko! Thanks.
Many thanks brother. Glad you enjoyed it
Why the hell would they not code in different hypopnea levels and rate how many with 50+% drops, how many with 40% drops, how many with 30%, 20%, etc. Seems like that is critical data and the simplified count without the % is only 1/2 of the info.
@johammy the short answer is because doing that would show CPAP therapy is not as effective as stated otherwise. Cheers
@CPAPReviews So tired of being pandered to with oversimplification. I thought it was just politics, but it's really everything. We're dumbed down to constantly and it's infuriating!
ResMed: Your ResMed machine is working great!
SleepHQ: The results show that your AHI, is a lie!
Joe's body: No sh!T Sherlock
haha, i think you summed it up pretty well . In all honesty Joe must have very severe apnea without CPAP therapy so i imagine he does notice an improvement. It's just it could be a whole lot better!
Hi Nick, great video, scary to think its underestimating it. I hope they updated their software. I’m trying to understand my own flow rate. Can you narrow the data range from -150/+150 on the graph so it’s easier to read?
G'day mate, sleephq customisation is something that will be possible in the future but for now that's not an option. Cheers
My tongue drops back in my throat so often I am going to tie the tip of it to my junk so at least I can enjoy my dreams more with so much unconscious movement.
I can’t stand the machine I need it but can’t do it I use a mouth guard it helps a bit
I wake up about 20 times a night every night
I just made my FREE account. Am I able to get my ResMed s9 to work with this?
Is there a way to go through my data on the Sleep HQ and edit it by adding in a H or CA line for the noticed changes, and Do the RESMED 10 or others machines update on their own?
G'day Andrew, that's a really cool idea mate! I'll chat it over with Adam. We're pretty busy working on machine compatibility right now but in the future we want to provide analysis tools on the platform that will provide a more accurate report. Cheers
DS2 does not work with Oscar nor with Sleep HQ…is there another option?
Not at this stage Arlene, we're working on breaking the SD card data encryption (BS)
@@CPAPReviews I did insert the data card from the DS1 into the data slot for the DS2. The encryption is ridiculous (or it just doesn’t even write data on the card) Thx for your reply.
Thank you for you for what you're doing. I find your platform SleepHQ very informative and helpful. This video too. I was not aware that my Dreamstation keeps records of every my single breathe and could be viewed as timeline graphic. Really nice job!
I firstly tried a china cpap machine Reswell which reported AHI about 15 or so, while Philips Dreamstation reports always below 5. Now I have a logical explanation of this discrepancy.
Thanks for sharing your insights mate. Nicko
What’s the best home O2 sleep monitor that imports nicely to align with CPAP data for review? Thanks!
1. International - cpap.review/wellue-02 - Coupon CPAPREVIEWS
2. Aussie - cpap.review/02-ring Coupon CPAPREVIEWS