LIVE - Living Well With Schizophrenia Q&A
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- Опубліковано 28 тра 2024
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#schizophrenia #schizoaffective #schizoaffectivedisorder #mentalhealth #mentalillness #livingwellwithschizophrenia
Mad respect for you and your courage to openly talk about your illness.
talking about being schizophrenic or even being transgender is not courage.
keyboard warriors online talking and starting fights, is that courage. online talking about anything is the same thing
I am age 45 in March and I have had it most of my life that I do not ‘look’ like someone with schizoaffective disorder! I have a university degree, have been happily married to my husband for over 12 years now, own my own home and have always had a job. When I have an episode of psychosis however only then might I look like someone with the illness. The thing is ‘We’ are not our illness. Thank you for these videos which are so helpful and useful. Love you Lauren 💕💕💕
You are a remarkable woman and I hope you never doubt how much strength you are giving others by being so open, so raw, so real. Thank you.
When I met my now husband and he shared his diagnosis with me I wanted to find others whose partners have schizophrenia/schizoaffective. It was hard to find any, even through organization like nami. Someone took me aside and explained that there are 2 types of people who suffer from schizophrenia - those that can’t hide their illness and those who can. It is unlikely you will ever meet someone who can. Because they are hiding in plain sight. I was open about his illness and regretted it and had to pull it all back, it hurt me professionally. Since then more people in the limelight have come out about their mental illness and I have hope things will change. The younger generations don’t seem so hung up on it. There is a great book, my lovely wife in the psych ward, which I highly recommend. Your courage is amazing and so right time right place with you academic background. You are fantastic and I believe you will help many people.
This makes me so happy that I found your Channel! My son just got diagnosed he is 18 and I am doing my best to support him in every way possible! 😘❤️ Thank you 🙏🏼 wishing you many blessings
I wish you and your son the very best, I too am a sufferer of this condition for almost 20 years, never give up
Well let's say he could well b cured and with no medicine at all.... intrested
@@DK-sg3oe Ik you're probably trolling, but yh, I'm definitely interested. How?
You are managing so well! RESPECT
Hi! I work with people who are working towards living well with schizophrenia, bipolar, or other disorders in the community (PRP). I show your videos to my clients because I want them to see someone who has schizophrenia that displays wellness
I have only recently discovered Lauren your videos; I must watch all of your videos, I appreciate your honesty and sincerity in tackling the subject of mental disorders.
Although there are other UA-cam Videos on the Spectrum of Schizophrenia Disorders, I find your videos to be incredibly insightful!
Do NOT second guess yourself on the positive value of your videos; Lauren you really positively contribute to furthering understanding into the Spectrum of Schizophrenia.
Yes Lauren Your Videos are in fact newsworthy, so do NOT let anyone tell you different!
Once again I marvel at your ability to be so helpful, concise and analytical in the advice you give. I think it is ironic that a person who suffers from a fairly severe mental illness can be so good at this - probably just my ignorance. Well done and keep up the great work. I have learnt a lot from you. I have just finished watching "Spinning Out" on Netflix. A TV drama series looking at the impact of bi-polar disorder on a young skater. Good to see more focus on mental disorder by mainstream media.
Hi Lauren I just wanted to say thank you so much for your channel. I’ve just recently discovered it and find it so helpful. My son has just been diagnosed with schizoaffective disorder/ schizophrenia( medics aren’t quite sure which one yet). I just want to support my son and trying to educate myself. I think you’re amazing and so insightful of your illness. Keep up the good work. I wish you all the best xxx❤️
I Think that “you’re having an episode“ versus using the word delusional is a better option. Frankly it may be delusional but it’s very real to the person going through it. I use the word episode when I see something off with my daughter and she seems to accept that well.
Secondly, I know a lady in the publishing business that does a great Q&A on Fridays for authors and what she has them do is submit their questions prior to her going live and recording a video. It makes the whole program flow much better and she can work through the questions. That would also be good for your channel on Instagram and people would know what questions they would be looking at or you could create a separate email just for questions to come to you.
If a "normal person" freaks out about something, are they considered delusional? Shakespeare said; "There is nothing wrong nor right. Only thinking makes it so…". As tough as this condition can be, it IS our perception of how things are.💕🎶🐱👤
I opted for oral delivery for my neuroleptics too, right away, when I was given a choice. It gives power back to me. I don't feel powerless, if there are horrible side-effects (a chemical torture). I know they will stop if I stop taking the neuroleptic. The fact I'm able to not take the medicine (I do, though!) grows positively in this aspect. My mental health greatly improved since I switched to oral medication. It gives power back to me.🍄🌸🌈👩🏻🦰💊🦄
I love your channel! Thank you so much for sharing!
Here's wishing you well. I am a former mental health patient. I was treated for excessive anxiety at age 14. I think it was about a late onset puberty together with unrealistic athletic expectations on the part of coaches at the time. The psychiatrist was a committed Freudian who asked me loads of questions about sex that I could not answer because at that point I didn't know much about sex. He got me released from PE requirements over the objections of school officials and prescribed medications that allowed me to relax and get through puberty. He also told my parents to tell me some facts about sex because the back of the bleachers curriculum wasn't making it to me. I have lived a perfect life ever since. (Not really.) Hang in there and best wishes.
Thank you for the Q and A! You’re an amazing and inspiring person.
I really appreciate what you're doing! thanks for putting yourself out there! Much respect!!! and Happy New Year! May it bring you health, wealth and prosperity! CHEERS!
Just got suggested your channel and just wanted to say you are such a good speaker, so elegant and thought out answers, could listen to you all day
I have schizophrenia and I definitely love the honest and open conversation!! Feels less isolating to have someone be so open and to hear there are others that are on a similar journey
Thanks for the sound and great advice x Davey
Thank you for your openness, insight and information you’ve given of yourself. I watch your videos to help understand and learn more how I can help my son.
Thank you so much for your continued work and empathy for all that rely on your videos. ❤️❤️❤️❤️❤️❤️❤️
Thanks for sharing your life this helps me understand more the persons that i know..
Damn, I missed this as I live in the UK and it's broadcast late in the night.
Thank you so much Lauren, it was so helpful.
I wonder if you could do a follow up video after the 'live' ones just answering some of the questions that were posted, because I appreciate how hard it must be to read, and reply making sense when so many questions are being thrown at you so quickly, but I feel there were some really good questions that got missed and wondered if you might answer them in another video afterwards.
I also agree with you that it might be better to have a 'topic' for these Q&A's as the questions were rather random at times and having a topic would help to keep it more focussed and also for people to watch at a later date.
You and Rob are amazing. You are really making a difference in helping us all understand more and how to help our loved ones. Keep up the good work.
so honest and present to life ..
I'm so glad to view this channel really helps
Omg you are smiling and looking great 😭😄 It’s so nice to see that you are thriving so well.
Also, it's easy to get bogged down with labels and medical jargon, you are not an illness, don't lose your identity to a itits or affect, or disorder... you are a unique person with a chemical imbalance of the brain, but you are also YOU. Don't forget you are you, not a diagnosis. Having thoughts and emotions however irrational or illogical are not symptoms of being sick. I use to think in this way, and it's also unhealthy to think of intangible thoughts and emotions as a symptom of a disease. We are all human no matter what difference we have physically or mentally, your thoughts and emotions are valid no matter how disordered they are. You are amazing and unique. Don't place your uniquness in a testing tube. Yes take your medicine, but don't become a textbook description of a condition. Reacquaint yourself with the world around you and CREATE a new identity beyond a diagnosis, as a fellow UA-camr who also has schizoaffective disorder, I know the pressure of explaining and excusing behavior as a symptom. I'm almost 40, but had I created a channel about schizoaffective disorder, I'd not have been seen as who I am absent of the label and typecast description of a series of similar symptoms, instead of who I am. BUT NOW, you have a different perspective of me once I typed and revealed my diagnosis, but did you know that I am also a writer. I am also a musician, a cook, a poet, a brother, a democrat, a Christian, a volunteer, a spn, an uncle, a public speaker, I am the sum of all my parts, BUT... I am not an illness. For your peace and happiness, don't become yours. 🤗😄❤️
Poor Man's Food Reviews jesus, there are people who still believe in bullshit chemical inbalance?!
Sometimes I wonder if being Labeled isn't detrimental to our psyche…
Sometimes yes, sometimes no.
The wise man said; "Placed no label, where no label is needed"
I so appreciate how you mentioned hypomania! I couldn't remember what it was called; I get these really weird episodes where I say very strange, sometimes inappropriate things without fully realizing what I'm saying, and I'll feel really uncomfortably hyper as if I've just inhaled a whole bag of sugar. But I certainly can't say if I've ever experienced full-blown mania. Having the correct names for these things are very important to me.
Thank you for this! :)
I'm so glad I found you! My sister just got diagnosed and I'm trying to understand what she is experiencing while she is in her first hospitalization so I can provide more understanding and help when she is back to society. Thank you so much for your honesty!
You’re a great young lady and you’re working very hard to deal with your disease and explain to other people what is right keep up the good work and continue to feel better
I love how you're so open about having schizophrenia, literally only 2 people in my life know about it. People in my family wouldn't want me around them if I told them
Hey girl. I love your channel. It’s been so helpful in this season of my life as I’m trying to figure out what’s going on with me, so thank you, thank you, thank you. You’re a blessing even when you don’t see it or know how much you’re helping people! This morning I was having quiet time with the Lord and I wrote this poem and I really had you on my heart!! I know you’ve shared that you had a short time looking into religion and trying a couple churches, with a bad experience(!!), but I still wanted to share it, because you’re precious to the Lord and it’s the best way I could bless you back.
I give you props for all y'all do keep it up sister i give Rob my respect and all my best nothing but good vibes y'all's way
HI I love your videos its very helpful for me
That's good advice for ppl dealing with no reliable support system...great last question. Also, I feel ya on the lactation issue. I worry about how if ever I had to switch to risperdone if I would grow breasts. Very disturbing. But I commend u on speaking up about it, b/c I do worry about that, and it does take courage to open up about that misfortune. Happy healthy holidays!
Thankyou for your content. I’ve found it really helpful to learn and to see how wellness looks to someone with the illness. I do have a few questions and was wondering if you’re doing another Q and A soon. I live overseas so I missed your last one. I have a difficult question and hoping you might have some insight
I sincerely hope you live a good life. I believe you will. Mental illness shouldn't be stigmatized at all. I have suffered from mental disorders too(depression) and I know how hard it could be.
💕thank you
I admire and respect you so so much for doing what you're doing. You're so vulnerable and have helped so many people by doing what you're doing. The world is a much better place because of you. How can I ask you questions?
You put it very healthy Pretty intelligent face on Scizoeffective disorder, Thanks. ☮
People are amazing!
Hi from the UK
I think this is just a blessing to be managed.
All I can say is your probably the absolute bravest person I've seen on you tube. At least the first ive run across to be able to talk about such a closet disorder. You have helped me in a major way to put my pride on the side to confront my fears of an Schizophrenic diagnoses. I'm still very concerned about being attacked on every level but seeing you on this platform make me hopeful that maybe it wont be so bad.🤞🏾
One word re lactation: bromocriptine. Not only does it stop the lactation/lower your prolactin, but it totally smooths out the mood issues in many cases including when any PMS is involved. This could be a Godsend for stabilizing your mood if you have even mildly elevated prolactin. Most people feel their best when their prolactin is close or at zero. Mention it to your Psychiatrist. Many Psychiatrists prescribe it, 5mg per day
Thank you for this. Not heard of it before.
Ty
Yes
A good topic for a future Q&A would be different meds and peoples experiences of them.
I know you do not want to say what drugs you are currently on, but I think it would be helpful if you and subscribers could talk about your experiences of different medications in a general way, both good and bad, as there are so many different drugs out there it is so hard to know which ones to agree to or to try.
A general discussion about them would be educational.
Lauren , if you can tell me when the next live chat is I'd appreciate it.
Watching Lauren is therapy
Yeah I can hear uou
You can be well. I went through this for 8 years, and have been set free for 35 years, but not by drugs, or Doctors thos never worked for me. I even had shock therapy, and psychiatrists... you can be free of this.
Are you going to share the secret to your supposed wellness?
Total pro
I see and here you
How do you get Help from the State ! I have no Insurance at all !!!! 😕
I'm on my sixth year waiting for a diagnosis. I'm on 14 different prescription meds. Before I was on the meds I had terrible cognitive dysfunction, I still do, it goes through stages where it gets really bad. I don't like to be around other people as I can't keep up with them, it was the same in my school days. I was in the lowest level of class, they used to call it Remidial class. I was self harming at 5 years old by cutting my arms with my dad's razor. I tried to commit suicide at boarding school, I was 6.
I had a twenty years heroin addiction, and eventually I was on methadone for 21 years.
I've never had a steady girlfriend longer than a few months, I've never even had a valantine card, I have no children, I've lived alone at my home for over 17 years. I am obsessed with the occult. I think I'm possessed or have a demonic attachment. I've been slapped, messed with sexualy repeatedly for a couple of years. Just a couple of nights ago I was strangled, my legs upon waking were almost fully hoisted straight up.
I wrote a lot here because I don't speak to anyone, and so I'm getting things off my chest, not that I will even get a reply.
Your videos are excellent, and if I haven't got schizophrenia I still thank you for your kind help. Your video on cognitive problems was bang on. x
Hello Lauren! New sub here. You’re better looking and more stable than the president of the United States. Have you considered politics after you become a UA-cam ⭐️ Or you could do both. I have known schizophrenia and bipolarism. Is that a word? It is now. My wife was bipolar and a mensa. My best male friend is schizophrenic. But he stopped talking to me recently over trump’s conspiracy theories. I wouldn’t listen. My wife passed away after a sixteen year battle with multiple sclerosis. She had a tough life. Fascinating subject mental health. Science does not know what a thought is made of. How they’re processed or how they’re stored. So understanding rogue thoughts like voices is still a total mystery. I have tinnitus. That’s where I hear noises that don’t exist. Van Gogh cut his ear off to stop his tinnitus. Didn’t work. Good luck to you Lauren. Greetings from New Jersey USA 🇺🇸 ~Bomba
So exactly what does it look like to look after your mental health? How do you remain mentally healthy? :-) Thanks!
Here's one that non one asks, how is love life with someone with your disorder? Do the meds temper the desires?
My daughter has recently been diagnosed with schizophrenia. Should I get a second opinion because she has suffered depression for several years, that went untreated.
Can you talk about side effects of meds and how to handle them. My mom has been diagnosed paranoid schizophrenia and she's 63
@@operoverlord try not going off cold turkey. If I go off asenapine cold turkey I go to the ER for high blood pressure! Take your time and taper off.
@@alaididnalid7660 Believe me, I learned my lesson. I can't even taper down now, or I'll suffer withdrawals.
@Joe Tulberg thanks for telling about the book...can you telk about the book a little bit what's it's about?
@@alaididnalid7660 Did you watch this Lauren video,even she said,"She hasn't got dcxophetnia" but she has sczoefective disorder"..She should tell about her medications and about side effects and about her real SCHZOPHERNIA's symptoms....because when first time in this end of May my daughter has severe breakdown first time,then she get hospitalized on 15th of July first time,then she got diagonsed proper sczophernia...I asked from the doctor the difference between about sczophernia and between sczoefective disorder....then doctor told me sczoefective is totally different thing and sczophernia is totally different thing....sczoefective disorder is not dangerous mental illness .....
@@aaymathebest4705 they give the same meds though. Plus, schizo affective disorder can be dangerous as well.
Yep
Do not deny him anymore
Yeah
I have a question, Lauren. Do you ever have pleasant/enjoyable hallucinations? e.g. kind/encouraging voices or friendly hallucinations (say, beautiful butterflies instead of spiders)?
What made you decide to start communicating about your health issues on you tube ?
What do believe about reality tv like housewives or the likes effecting those with mental health issues?
I can't believe you have schizophrenia and are in your right mind ! My son is schizo and he will not stay on his meds. He is out of his mind !
I know you are not faking it I believe in you and what you are about with your channel.
Understanding Nutrition
My daughter is currently held against her will. I am afraid they are going to force her by court order, she is an adult and does not consent. Really want the natural, not pharma way. And Peter B definately the best.
@@lizasintic6926 read here aminoacidsguide.com/ ua-cam.com/video/shM19vvmhWE/v-deo.html
@@lizasintic6926 ua-cam.com/video/cyh6mo2AeaU/v-deo.html
Thank you..
I hate respiradone because it gives me really awful thoughts.
I quit last night. You're on your own
Quit what?
My daughter has psychosis
I am looking for a good psychiatrist can you please recommend me the doctor?
hey lauren .
What kind of medication do you take for your schizophrenia?
have you researched a spiritual awakening?
It must require a lot of courage to live with something like this. I hope this message could be useful to some. In one of your videos you mentioned the relief of being labeled and diagnosed. I think this is quite important, however, the label could be much gentler too. In the primitive cultures, the label for schizophrenia is spiritual awakening. It implies the torment and agony caused by the spirits wrestling with you and within you. You will be guided to meditate and contemplate on the voices and the affected moods you get. You get used to the images and the voices and learn to distinguish "reality" from delusions.
Finally, you will manage your life better and appreciate what you have. You may develop abilities to heal others and very deep understanding of life and its many realities.
In the conventional viewpoint, a significant part of the problem is the label itself and you putting yourself down because you do not conform to the norm. Other cultures do not see it this way, learn from their ways and fortify your life...
People with schizophrenia cannot heal others, but this is a common delusion.
Oh, I thought it was at eight. Dang, I forgot Candida. Still, good video.
The one thing that I have noticed because of my illness and the constant misunderstood communication between neurotypicals and people who suffer from psychotic conditions, is that you cannot force neurotypical thinking on to somebody experiencing a psychotic condition. The more you try to force neurotypical thinking the more problems you're causing. Understanding should be the goal not forcing somebody to understand something somebody else's terms. Just like the so-called delusion that your meds are a form of mind control and poison, because I believe they are that's what they are supposed to do and because they are chemicals they are poison and do damage to the brain and body. understanding that as a fact is perfectly understandable, but when they try to tell you no they are not their medicine that contradicts everything you believe just because they want you to think one way instead of working with you to help you understand the actuality of things. neurotypicals tend to believe that only one thing can be true at a time. People with schizophrenia can understand multiple truths at the same time oh, because we see things other people automatically dismiss in the bigger picture. I believe that is our superpower. it only makes us crazy because neurotypicals can't understand and try to force us to their way of thinking.
Sometimes
Hi Lauren does the disease affect you and do you feel like killing anyone?
Ok
Your live
Can you tell please,what were the signs of schizophrenia,when you got diagonosed?
What would your advice be to me,about meeting people and building relationships..Dating and just wanting true live.Un your opinion can a schizophrenic find true love,?
Can Rob maybe pick questions and read them for you?
I gave up meth 3 months ago and still living in paranoia and psychosis. Is this normal? My paranoia is through the roof and I can't shake the feeling of being followed. I'm acting out on delusions and becoming very moody. I need to know this is normal. I need to know if I need serious help. Please answer my question. Please.
Do you have
Any experience with scizzophrinia (me) and autism spectrum disorder?
Omg, you must really trust your partner not to manipulate with you for getting his right in arguments regarding relationship challenges. Even in relationships without struggles of mental illness things get difficult. He must be a real good overall person not to taking advantage of you. And of course respect to your curage. This is in same why pure deep surrender to someone. Hope I didn't offend anyone with my assumptions. Wish I could trust someone so much.
20:30 I watch you closely and you didn't seem to have an overt awareness of where the glass of water was but you grasped and drank while looking in the other direction… Do you have superpowers? :)
I also endure schizo-affective disorder, coupled with bipolar depressive type. Every day is a Struggle, emotional growth spurt and sometimes it just feels quite proper. To those that don't understand I'm simply considered eccentric but it is a real struggle. Thanks for sharing.
Can you please do a video on memory loss from ECT?
As someone who had ect please stay away. I believe she has a video talking about it
Buddy Parrish so have I. I'm curious on memory. Like on a daily basis.
@@allenp303 Its insane. Literally ruined my life.
Feel like it reduced me to a vrgetable
Buddy Parrish let's try not to think of it like that. It sucks but life goes on.
😘
If you were mis diagnosed so many times how did you know that the diagnosis of schizophrenia was correct?
I love your manicure!
Anyone else here know of a injection besides Invega Sustenna for schizoaffective disorder?
I’ve been on a low dose of haldol decanoate for years. Abilify is also injectable.
@Pretzel Boggins I've been on both of these injections, and they work in a similar way for me...I guess the Invega works better, but it's just horrible for my body after awhile. It's hard to maintain a healthy body when it makes you feel hungry and tired all the time. Wish there was something newer that worked for people with schizoaffective disorder.
@@matthowe4458 I couldn't keep my legs from jumping around all over the place on Haldol! lol...felt like a Mexican jumping bean. It's funny now, but back then it was horribly exhausting always moving.
Hi Lauren, there were two things you said yesterday that I didn't quite agree with based on my experience with recovery after a life time of mental illness. I have the same illness as you and I am now 60 years old.
You seemed to not like the idea that there are higher and lower functioning people with this disorder. That's ok but I think it's more like treated and untreated and at the same time the degree of psychological problems that anyone can have.
Related to that is simply how brains work meaning how reality is processed by them. I think the brain has evolved from the inside and added outer layers to deal with more complex things. Mental illness in my case seemed to involve a slow degeneration of these abilities.
I believe degeneration of reality is directly related to the nature of reality itself since the brain has evolved to comprehend that reality.
Hey
Does anyone else in your family live with schizophrenia?
In last QA she said that she doesn't know about anyone
Veronika Vysoudilová thanks! I’ve just discovered her and have been watching videos just haven’t made it that far.