I reply to Questions (so far) - Nutcracker Syndrome, Chores. self advocacy
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- Опубліковано 31 січ 2021
- My laptop died and is at the local menders (hopefully getting fixed) - I can only use Si's laptop for super quick things like. Sorry if it felt rushed, or a bit all over the place. But thought I'd keep busy and try to use the time without my laptop somewhat wisely/usefully x
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Sophie is a freelance journalist and presenter covering Music, Art, Fashion, Beauty, Travel, Films, Lifestyle and Health.
She graduated with a First in Fine Art,but went on to explore her love of fashion gaining experience at the likes of Vogue, Elle, Glamour, Easy Living and more. She then went on to Alexander McQueen as an artwork assistent, one of her illustrations gracing a gown worn by Cate Blanchett at the Cannes Film Festival. After that she went on to work as a stylist and stylist assistent working on shoots for NME, 125 and Easy Living. Alongside this she worked as a freelance journalist contributing work to Stylebible,The Guardian, Gunpowder, Disappear Here, Sketchbook, Elmbridge Magazine, and Bring the Noise where she was Reviews Editor. Her love of music has seen her work with Hit The Floor and Ticketmaster where she has contributed numerous interviews. She has also presented for Relentless Energy Drink at Reading and Leeds Festival, and currently hosts art videos for Canvas.
Alongside this worked with and consulted for various brands including Dead Heroes Clothing and Cheer Up Clothing.
She used her channel as an excuse to talk and create about the things she's passionate about as well as trying to spread awareness for health issues and taboo issues.
Yes a cordless hoover is fab for us with chronic illnesses I agree love the five minutes idea to clean and then relax 👏💖
One room a day for cleaning. I also find that since I started using Epsom salts in the bath, you don’t get any soap scum build up so you just need to give it a quick rinse!
Epsom Salts are a must for me for pain so yeah double use lol!x
Hi Sophie, thank you for answering my question. I really appreciate all the info. Happy February to you! God bless. ❤️
Lovely to see another video Sophie, I managed to sign up on Instagram so let's hope I'll get the hang of it ❤️
I saw! Hope to see you more on there. It’ll be second nature before you know it ( not sure if that’s a good or bad thing) x
I have been missing your videos so much, catch up chats are great, whatever you can do, I would be interested in your daily routine, how you are managing mental health, also food and exercise, positive and negative parts of the current situation, and if you have any plans/ideas going ahead. I saw you had done the mental first aid course and your ideas for Patreon are fab, I have EDS including neck issues and CFS so I dont use insta much I try to reduce text neck issues lol and admit to lying down to watch you tube lolx
Also would love to know if you have taken up any new hobbies I saw you have a degree in fine art?? I would love to see some of your art, a first wow you must be amazing, i am trying to do art but its finding the time and prioritising it...
Hi Irene. It’s ehlers Danlos syndrome - a connective tissue disorder which can impact every part of the body , but every is impacted differently. Like Emily I have the neck issues ( and back), gastro issues, hyper mobility/joint issues, bladder problems ( list goes on). I suspect a lot of people diagnosed with ME/chronic fatigue have this to be honest. It definitely isn’t as rare as experts have always professed it to be x
Ooh ok! Lots of ideas for next video! Thank you! So nice to hear from you! And glad to hear your prioritise your neck health over an app! Good call! Xx
@Irene S There are different types of EDS but the most common is hypermobility type which I think we both have, I do anyway, its manageable but I can only do part time bits and pieces from home, some ebay selling and did so some writing in previous years but now cant do that due to neck issues and also have back issues so doing more arts and crafts, it is genetic, women apparently have more symptoms. I only realised as I have as son with autism who is very hypermobile and the consultant asked about me and my relatives, my dad etc, when I said my dad and brothers have stretchy skin he basically said there and then the family has EDS, i then went back to GP etc...There may be a link to autism, very many mums of autistic kids I know, also have EDS, but I have one son with, one without and there is no confirmed link at all, so I don't want to scare Sophie about that as I know she mentioned possibility of having kids, majority of people's kids do not have autism, I think taking high vit D during pregnancy protects against this but at that time it wasnt known about. A lot of the wider family are 'eccentric' and many are professors etc but also hypermobile so the genetic aspect is very complex I thinkx
@Irene S Hi yes, I am not as severe as some people at all, but i have subluxxed my hip and I generally have a lot of chrronic pain caused by overusing muscles/ligaments etc, we have higher than average issues such as prolapsed discs etc, and beacuse we are quite bendy we accidentally injure ourselves a lot, I used to be a gymnast (not prfessional lol) but was very bendy now quite stiff in some joints, but there is a test you have to pass to get a dignosis to check, but it causes loads of other issues eg anxiety is causing by nervous system always trying to keep itself in equilibrium we can have digestive issues, menstrual issues, issues with childbrirth etc, I had chronic back pain in my forties and stil suffer, it gets worse in menopause but improved on HRT as low oestrogen affects pain perceptionx
Hi, I just got diagnosed with Nutcracker Syndrome in the ER, the doctor told me not to worry about it and it wasn't a big deal, but after tons of research it seems it is a big deal. I've had 3 CT scans this week and only one showed the NCS, I wonder if it's wrong? Should I be concerned, im so worried.
How are you doing now? I was just diagnosed this week.
@@ashleywilder11 I'm okay, I dont think mine is a severe case, if it does become bad ill just have my kidney removed. There's a FB group, it seems people have most success with removing their kidney and donating it