Many Many thanks! My elderly Mum has just got a stoma and I am her carer and will do most of the emptying and changing. Much Kindness to you for your help!!
Wonderful info for me! I have a colostomy & urostomy. Constant leakage. Some days I can't leave my home. Even the doctors & other medical support cannot give sensible advice. Thank you!!
Very informative. My issues has always been needing deep convexity. Jo Hoeflok you are missed. She pulled my through a difficult time 3 years ago with an ostomy. Amazing supportive compassionate woman. 2018 meant a permanent ostomy. Jo, you have given me the strength to accept and move forward. My first post op follow up with surgeon Dr B was ‘Jo taught me well’ which we both smiled. Happy retirement.
Very informative. Thank you very much. We've been having leaking issues and never knew there were so many product options. Been using same products for six years with issues, but now I feel confident to explore some of these.
I am a two month old ostomate. Is that the right terminology? Of ALL the videos and websites I've been to yours is BY FAR the most useful and best explained part of this whole process. What the heck each of these items are for AND how to use them. I've pained to find certain pieces of info and they've all been sitting here waiting for me to watch! Thank you for your care and support for us!! Can I admit it's kinda "arts and crafts fun" having all these things to "play" with? Lol. Seriously, thank you more than I can say here in text!!
I have had my ileostomy for 7 years now and have had some horrible days and some ok days and never had anyone to talk to about it, I thank you for posting this video I am going to try your technique. Again thank you and God bless you and your family
@@loricollicott9094 I am 5 months having my ileostomy system due to haven had my colon removed due to disease. I have had much sorrows with leakage until I got Elastic tape half moon's peel offs they are great no more leaks I now have to fix the skin scalded from output getting on my skin I am learning how to protect the skin around my flat under the skin stoma it does not protrude with the knob that sticks out I have the 2 piece bag convex back due to the weight loss from vomiting and diarrhea for 3 whole months before my emergency surgery being done I truly want to get back to normal and feel better about this new addition to my world and not have to concentrate solely on my bag. Take Care Marguerite
@Marguerite Lewis im on the same boat. I had an Ileostomy bag due to a major blockage in my colon and very close to dying. Its going to be reversed. I lost so much weight. How did you gain weight?
WISH WE KNEW ALL OF THIS BEFORE Thank you for the information. I've had a few issues with the supplies we were prescribed by our stoma therapist: - the actual site/stoma is very concave...we were told that when a patient is obese this sometimes happens during surgery. I would say it is about .5 inch below the level of the rest of the abdomen - I was using the paste/tube as glue 🤦🏽♀️ spreading it literally all over the barrier in hopes of preventing the numerous leaks 😢 - we were also prescribed the oval rings. I put them in a ziplock bag to keep them dry, then soak in hot water to make them pliable. But realized that they do not hold the shape i wanted. Now I understand that they have a memory and want to return to original shape - the paste does burn ❤️🔥 - I spray the skin surface with a skin barrier spray. Allow to dry and then apply the ring. But for some reason the ring does not stick. Hence, me using the paste as a glue to get et the ring to stick 🤦🏽♀️🤦🏽♀️ We are new stomates and quite discouraged at times because the supplies are expensive and we keep getting leaks and have to throw away the soiled products 😭😭😭
we are new to it too and have had many wasted supplies. I AM NOT a nurse but I do change my husbands ostomy. Make sure that who are is clean. The ring is not stickig because that area has not dried. I have done the same. Have him hold a warm cloth on the stoma or gauze pads until you are ready to ut down the barrier. Don't stretch it out too far or it will snap (I have wasted two) Get it close enough to the stoma but not too close (Think of the barrier as caulking around a sink) Before putting te barrier on the skin (in addition to ALL of the above) Wipe around the stoma with alcohol pads or skin prep pads. Also make sure that the bag and wafer are the same size. If it does not snap on properly....it WILL leak. I know.... 9 months late with this info but it may help someone else. I am surprised that you were not referred to a ostomy clinic. Every hospital should have one.
Thank you for your very informative (Canadian) video. I found it very helpful. You have answered some questions I had about the products and the terms used. I am scheduled for my ileostomy on Aril 25th.
Watching it right now at 4am ,wish to have the sample things you've used for tutorial coz it's this things is quite expensive .ty for the tutorial maam
this was very informative. My husband is 82 with dementia and just had a colostomy done. I am the caretaker and I have to say its been a bit overwhelming understanding what is available and how to utilize it. Thank you.
The info is really appreciated. When you have a Colostomy it is very frustrating! You would think a Colon Surgeon would make sure his patients were told the necessary things they should know from the Ostomy Nurse? That doesn't seem to be happening!
I've had a Illestomy since 1991....The problem I find with most of these Accessories is that you have to take your Bag off to form the accessory around your Stoma plus you might need to use Paste....And that takes time...Trying to clean yourself up and shave the skin without SHITTING yourself....GOOD LUCK ......I've used the Hollister 8631 one piece bag for years...Once in awhile I use Paste and I apply the Paste to the Bag then put the Bag on...That way I can Clean around the Stoma and skin and Shave, even then it ERUPTS and you have to start over....I usually change the Bag in the Morning, that way I haven't eaten for hour's...I try to change it every 3 Days, if you go longer the Hair under the Bag grows and it hurts to get the old Bag off and you can get skin Irritation or ingrown hairs...This has worked well for me for 28 years....I use Paste once in awhile. No belts
@@lilbritt4403 Go to your urostomy nurse ..You may have indents around the stoma that allows leaks...The urostomy nurse just changed all my equipment and I havent had a leak since...Tell them about the leaks and they will try to figure it out...I know it's so frustrating....Good luck!!!
Hello, I was wondering if the sheets would be used for covering up deep scars such as a belly button that did not heal up correctly after surgery leaving a very large dip that my barrier tape goes down into and seems to leak from that area about 60% of the time. I feel it's b/c it doesn't have a flat surface to stick to. Is this possibly something we could use to alleviate this problem?
* CAN I offer a piece of advice I just came across... I had overfill "accidents" at night a few times when I got home and yet not at the hospital whilst recuperating. I eat a lot and I drink all day so I figured maybe the excessive fluid output was due to that. I actually stayed in the hospital longer because the surgeon was concerned with my output above 1500cc. Coloplast, and I would assume most of them, have a high output bag. So I use their Click line of accessories and I remove the normal bag I wear in the daytime and attach the high output bag at night. I've had nights I woke up at 3am and the bag was probably half full, an amount that woulda burst the normal bag by pulling on the adhesive. In the morning I click off and go back to the normal sized daytime bag. I hope this will help those of you with high liquid output. Also in the daytime I use Par Sorb which turns the liquid into a gel. I figure it's better for my skin and the adhesion for my output to not be able by being so thin to get under the cracks of the adhesive barrier.
my home health care nurse (not an ostomy nurse) told me to get rings that are kinda like concrete, they have some grit to them and paste that is really strong. I am using adapt paste and their rings or brava's but they are all so squishy soft that all the clear fluid, stomach acid and bile eats through everything. Help! I am still new, but want to cry with all the accidents hafe had so much.
Honey, go see your ostomy nurse PRONTO!!! She/he can get you on the right products for you. Every body is different. My body like Stomahesive and Hollister rings with my convex Hollister barrier. Your body will be different. Work with your ostomy nurse NOW and get your ostomy on the products that are best for you. Don't waste any time. Don't dilly dally around. The sooner you get this taken care of, the better for you and your stoma. We've all been where you are, so you're not the first one to have this problem. Get it taken care of RIGHT AWAY. Best wishes! My stoma (Rosebud) is 3 years old and she and I get along marvelously. No problems at all. You'll get there. Become friends with your ostomy nurse and use them as your best resource!!!! Go NOW!!!!!
Yes, I have cried a lot from leaking, it's not fun when you are out and about or even resting and leak. You rest is broken, I pray to one day feel good about having a ostomy.
You should NOT have ANY exposed skin around the stoma from the wafer. You should NOT leave a space around the stoma. Your wafer needs to be EXACTLY cut to fir on the skin right around the stoma.
Cleome Jewell Google "Eakins Seals". They are the best. Eakins carries the 4 inch I know for sure. You might be able to get samples from the different makers like others suggest. But yeah....I just googled it and went from there. I order mine off eBay. The rings can be pricey unless your brand of insurance covers them. You can be creative with them also.
I just had the bag a few months I am not working so I cannot afford these supplies I am living without any of these products What a huge mess The hospital gave me a bed I use at home thanks god I had to throw away my bed It got really nasty
Да это правда у меня Стома 13 лет было все и плачь и слезы и сейчас бывает прорывает но быстро проходит я отгоняю плохое и богу спасибо говорю и молюсь за то что дал мне жизнь и оставил жить дальше но с стомой я купаются в море хоже в баню веду образ жизни как прежде до стомы путешествуем с мужем и в другие страны даже в Тайланд и по России и Белорусии живите как прежде и радуйтесь жизни .
I can't stand the way these people use their scientific terminology, people come to watch these videos because they have no clue about what they need and these people using words that most people don't understand doesn't help.
Many Many thanks! My elderly Mum has just got a stoma and I am her carer and will do most of the emptying and changing. Much Kindness to you for your help!!
Wonderful info for me! I have a colostomy & urostomy. Constant leakage.
Some days I can't leave my home. Even the doctors & other medical support
cannot give sensible advice. Thank you!!
You are an angel...never knew so many options were available, thanks for making this detailed video. It solves lot of my problems.
Very informative. My issues has always been needing deep convexity. Jo Hoeflok you are missed. She pulled my through a difficult time 3 years ago with an ostomy. Amazing supportive compassionate woman. 2018 meant a permanent ostomy. Jo, you have given me the strength to accept and move forward. My first post op follow up with surgeon Dr B was ‘Jo taught me well’ which we both smiled. Happy retirement.
Very informative. Thank you very much. We've been having leaking issues and never knew there were so many product options. Been using same products for six years with issues, but now I feel confident to explore some of these.
I am a two month old ostomate. Is that the right terminology? Of ALL the videos and websites I've been to yours is BY FAR the most useful and best explained part of this whole process. What the heck each of these items are for AND how to use them. I've pained to find certain pieces of info and they've all been sitting here waiting for me to watch! Thank you for your care and support for us!! Can I admit it's kinda "arts and crafts fun" having all these things to "play" with? Lol. Seriously, thank you more than I can say here in text!!
I have had my ileostomy for 7 years now and have had some horrible days and some ok days and never had anyone to talk to about it, I thank you for posting this video I am going to try your technique. Again thank you and God bless you and your family
I'm going through the same. Contact me if you like? I'd appreciate having someone to talk with also. Hugs
@@loricollicott9094 I am 5 months having my ileostomy system due to haven had my colon removed due to disease. I have had much sorrows with leakage until I got Elastic tape half moon's peel offs they are great no more leaks I now have to fix the skin scalded from output getting on my skin I am learning how to protect the skin around my flat under the skin stoma it does not protrude with the knob that sticks out I have the 2 piece bag convex back due to the weight loss from vomiting and diarrhea for 3 whole months before my emergency surgery being done I truly want to get back to normal and feel better about this new addition to my world and not have to concentrate solely on my bag. Take Care Marguerite
@Marguerite Lewis im on the same boat. I had an Ileostomy bag due to a major blockage in my colon and very close to dying. Its going to be reversed. I lost so much weight. How did you gain weight?
Thank you,thank you,thank you! Very informative!
WISH WE KNEW ALL OF THIS BEFORE Thank you for the information. I've had a few issues with the supplies we were prescribed by our stoma therapist:
- the actual site/stoma is very concave...we were told that when a patient is obese this sometimes happens during surgery. I would say it is about .5 inch below the level of the rest of the abdomen
- I was using the paste/tube as glue 🤦🏽♀️ spreading it literally all over the barrier in hopes of preventing the numerous leaks 😢
- we were also prescribed the oval rings. I put them in a ziplock bag to keep them dry, then soak in hot water to make them pliable. But realized that they do not hold the shape i wanted. Now I understand that they have a memory and want to return to original shape
- the paste does burn ❤️🔥
- I spray the skin surface with a skin barrier spray. Allow to dry and then apply the ring. But for some reason the ring does not stick. Hence, me using the paste as a glue to get et the ring to stick 🤦🏽♀️🤦🏽♀️
We are new stomates and quite discouraged at times because the supplies are expensive and we keep getting leaks and have to throw away the soiled products 😭😭😭
we are new to it too and have had many wasted supplies. I AM NOT a nurse but I do change my husbands ostomy. Make sure that who are is clean. The ring is not stickig because that area has not dried. I have done the same. Have him hold a warm cloth on the stoma or gauze pads until you are ready to ut down the barrier. Don't stretch it out too far or it will snap (I have wasted two) Get it close enough to the stoma but not too close (Think of the barrier as caulking around a sink) Before putting te barrier on the skin (in addition to ALL of the above) Wipe around the stoma with alcohol pads or skin prep pads. Also make sure that the bag and wafer are the same size. If it does not snap on properly....it WILL leak. I know.... 9 months late with this info but it may help someone else. I am surprised that you were not referred to a ostomy clinic. Every hospital should have one.
Super helpful! Thanks so this video! Learned so much!
Super informational, thanks!
that thumbnail surely was the best frame you ccould have gotten out of that video
Thank you for your very informative (Canadian) video. I found it very helpful. You have answered some questions I had about the products and the terms used. I am scheduled for my ileostomy on Aril 25th.
How are you these days?
very informative and well explained. Thanks
Thank you so very much. I am new to this. So helpful ❤
DANKJE VOOR DE INFO, DAT GEEFT EEN GOED GEVOEL, ALS IK DIE AL NIET HAD. BEN ZEER TEVREDEN OVER MEDIREVA.
Watching it right now at 4am ,wish to have the sample things you've used for tutorial coz it's this things is quite expensive .ty for the tutorial maam
this was very informative. My husband is 82 with dementia and just had a colostomy done. I am the caretaker and I have to say its been a bit overwhelming understanding what is available and how to utilize it. Thank you.
+Moe Banshee God bless you for taking care of him.
+R Shipman Hh
I’m in a similar situation now. My mom just had the surgery, she is 79 with dementia. Still in hospital.
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very informative - recently will be needing this knowledge for myself..for 6moths - then reversed..... appreciate the info
The info is really appreciated. When you have a Colostomy it is very frustrating! You would think a Colon Surgeon would make sure his patients were told the necessary things they should know from the Ostomy Nurse? That doesn't seem to be happening!
thank you for this video
I've had a Illestomy since 1991....The problem I find with most of these Accessories is that you have to take your Bag off to form the accessory around your Stoma plus you might need to use Paste....And that takes time...Trying to clean yourself up and shave the skin without SHITTING yourself....GOOD LUCK ......I've used the Hollister 8631 one piece bag for years...Once in awhile I use Paste and I apply the Paste to the Bag then put the Bag on...That way I can Clean around the Stoma and skin and Shave, even then it ERUPTS and you have to start over....I usually change the Bag in the Morning, that way I haven't eaten for hour's...I try to change it every 3 Days, if you go longer the Hair under the Bag grows and it hurts to get the old Bag off and you can get skin Irritation or ingrown hairs...This has worked well for me for 28 years....I use Paste once in awhile. No belts
You put the rings on BEFORE you put your bag on. Please read my comment re the Adapt CERARING......they are absolutely SUPERB.....no residue either!!
thank u for the informative video..actually the educational models are great, how can I find them?
Thank you!!! Im new at this and just learning ...Not as frustrated as I go along..
Bratty Young I’m six months into having a urostomy and still get very frustrated with leaks. 😢
@@lilbritt4403 Go to your urostomy nurse ..You may have indents around the stoma that allows leaks...The urostomy nurse just changed all my equipment and I havent had a leak since...Tell them about the leaks and they will try to figure it out...I know it's so frustrating....Good luck!!!
Hello, I was wondering if the sheets would be used for covering up deep scars such as a belly button that did not heal up correctly after surgery leaving a very large dip that my barrier tape goes down into and seems to leak from that area about 60% of the time. I feel it's b/c it doesn't have a flat surface to stick to. Is this possibly something we could use to alleviate this problem?
I have a flush urostomy and use eakin seals with my barriers. It flexes well with my rounded belly but keeps a good seal
Can you use the convex barrier rings with coloplast convex barrier
I have sore granulomas around my stoma get them cautorized but keep coming back
Can you remove Eakin paste easily and without residue to prepare the skin for new appliance?
* CAN I offer a piece of advice I just came across... I had overfill "accidents" at night a few times when I got home and yet not at the hospital whilst recuperating.
I eat a lot and I drink all day so I figured maybe the excessive fluid output was due to that. I actually stayed in the hospital longer because the surgeon was concerned with my output above 1500cc.
Coloplast, and I would assume most of them, have a high output bag. So I use their Click line of accessories and I remove the normal bag I wear in the daytime and attach the high output bag at night. I've had nights I woke up at 3am and the bag was probably half full, an amount that woulda burst the normal bag by pulling on the adhesive. In the morning I click off and go back to the normal sized daytime bag.
I hope this will help those of you with high liquid output. Also in the daytime I use Par Sorb which turns the liquid into a gel. I figure it's better for my skin and the adhesion for my output to not be able by being so thin to get under the cracks of the adhesive barrier.
Can you still use this if you Peristomal reddening ?
Very informative
How do you change an ostomy bag if you cannot stand?
my home health care nurse (not an ostomy nurse) told me to get rings that are kinda like concrete, they have some grit to them and paste that is really strong. I am using adapt paste and their rings or brava's but they are all so squishy soft that all the clear fluid, stomach acid and bile eats through everything. Help! I am still new, but want to cry with all the accidents hafe had so much.
Honey, go see your ostomy nurse PRONTO!!! She/he can get you on the right products for you. Every body is different. My body like Stomahesive and Hollister rings with my convex Hollister barrier. Your body will be different. Work with your ostomy nurse NOW and get your ostomy on the products that are best for you. Don't waste any time. Don't dilly dally around. The sooner you get this taken care of, the better for you and your stoma. We've all been where you are, so you're not the first one to have this problem. Get it taken care of RIGHT AWAY. Best wishes! My stoma (Rosebud) is 3 years old and she and I get along marvelously. No problems at all. You'll get there. Become friends with your ostomy nurse and use them as your best resource!!!! Go NOW!!!!!
@@annmallory7562 .
Yes, I have cried a lot from leaking, it's not fun when you are out and about or even resting and leak. You rest is broken, I pray to one day feel good about having a ostomy.
Where I buy these products???
Very helpful
thank you ✔👍💥
Great. Information
Thank you so much.
You should NOT have ANY exposed skin around the stoma from the wafer. You should NOT leave a space around the stoma. Your wafer needs to be EXACTLY cut to fir on the skin right around the stoma.
There is no skin showing around stoma but after some time the stoma gets smaller and skin is showing. Now what?
Thank you. That is helpful I'm order soon
I have trouble making the paste and the barrier stick to my skin
How many Pris ?
What is the name of the tube they put in the bladder during a operation
FOLEY CATHETER.
I find it very difficult with my bag ,as the opening is at the bottom instead of the middle ,so it not easy to get the bag on .
Perhaps try a different bag?
Самый лучший Конватек и мешки и пластины
Where can I get the large circle barrier with the center hole.?
Good question. I need those too.
I know Eakin has one. But I would guess other brands have them as well. Maybe ask your stoma nurse?
Call the companies and ask for samples. That’s what I did so I could figure out what works best for me.
Cleome Jewell
Google "Eakins Seals". They are the best. Eakins carries the 4 inch I know for sure. You might be able to get samples from the different makers like others suggest.
But yeah....I just googled it and went from there. I order mine off eBay. The rings can be pricey unless your brand of insurance covers them. You can be creative with them also.
the sheets seems like the best value for money
IL ET DOMAGE QUE CETTE BELLE L'ANGUE NE SOIS PAS TRADUITE EN FRANÇAIS 💐💐💐
I just had the bag a few months
I am not working so I cannot afford these supplies
I am living without any of these products
What a huge mess
The hospital gave me a bed I use at home thanks god
I had to throw away my bed It got really nasty
We are very onlocky for this bag 😢from nepal
ممكن شرح بالعربية مهتمة بالموضوع
Teenager with an ileo for 10 + years with a need for firm convexity with a tiny stoma 13mm - it’s challenging
Hate the ring it melts down
Hai
Estaria bueno que fuese en castellano
тоо
Only someone with the real deal really understands. This woman is just regurgitating what is in text books. Life is actually different.
Да это правда у меня Стома 13 лет было все и плачь и слезы и сейчас бывает прорывает но быстро проходит я отгоняю плохое и богу спасибо говорю и молюсь за то что дал мне жизнь и оставил жить дальше но с стомой я купаются в море хоже в баню веду образ жизни как прежде до стомы путешествуем с мужем и в другие страны даже в Тайланд и по России и Белорусии живите как прежде и радуйтесь жизни .
Paste is an appropriate name. Paste does not imply glue. I don't know where you got that from. Paste is paste.
WHY IS THE TALKING SO FAST. ITS IMPOSSIBLE TO FPLLOW
Bla bla blA
I can’t stand it-uh, ah, uh, ah,
I can't stand the way these people use their scientific terminology, people come to watch these videos because they have no clue about what they need and these people using words that most people don't understand doesn't help.
What didn't you understand?
I’ve never heard someone say “uhm” so much. My ears are annoyed.
thank u for the informative video..actually the educational models are great, how can I find them?
Silver Sun b