ME/CFS Alert, Episode 133: Interview with Ryan Prior
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- Опубліковано 14 жов 2022
- In this episode, Llewellyn King discusses the similarities between Long Covid and ME/CFS with Ryan Prior, author of "The Long Haul: Solving the Puzzle of the Pandemic's Long Haulers and How They Are Changing Healthcare Forever."
Prior, a longtime ME sufferer, has pursued a successful career in journalism. He also has been a prominent ME activist. He and King agreed that new large studies on Long Covid's lasting impact will draw in researchers with new ideas to ME.
If you found this or previous episodes informative, please consider donating to support our efforts to bring more ME/CFS-related interviews to UA-cam: www.gofundme.com/MECFSAlert
My me/CFS started with Epstein Barr Virus 1980, then CMV 1986….so have suffered for many years, either bed ridden, chair / house bound
Some days can go out for a sort time…Many doctor visits…but they offer very little help here in Australia…So get quite upset about the exposure and rhetoric around so called long Covid..and the help they are getting..I would not call it long Covid yet…I had to wait several years to be diagnosed with Me/CFS …
I Hope this book will be audio due to this/my illness! I can’t concentrate enough to READ BOOKS ANYMORE except short reads!
I will buy this book
why? Is it free?
@@MP-uo6qd I wish
We can hope that long covid finally changes the health care system so it pays proper attention to post viral conditions, ME/CFS, chronic lyme etc. We shouldn’t underestimate the obtuseness of medical eminences though - I suspect we will have to wait for more retirements because it will be difficult for many established medical authority figures to change their minds and admit that they were wrong to dismiss the seriousness of such conditions and fail to devote proper resources to their study.
Good interview,
Would be nice to include Mold and ME in this conversation
i think ME is cytokine storm like long haul. Dextromethorphan, diphenhydramine, zinc, glucocorticoids, chorophyll supplements helped me
Post CMV, since 1996