Dealing with MECFS flare ups at a bad time. How to manage events with a chronic illness.
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- Опубліковано 15 вер 2024
- Tips and advice for managing a chronic illness like chronic fatigue at important events, like Weddings, Christenings, Birthdays, Christmas and other Celebrations that you want to enjoy and take part in as much as possible. This is what I've learned from making loads of mistakes at family events and how i combat having flare ups, crashes and running out of energy. I discuss planning ahead, explaining your condition to family and friends, finding a good place to rest, renting mobility aids and being prepared to crash afterwards.
Watch Christmas Advice video for more tips! • CHRISTMAS ADVICE with ...
Thank you so much for watching!! Make sure to like, comment, and subscribe to see more videos from me every SUNDAY! About Me:
My name is Elinor, I am a 22-year-old sociology student who has been living with ME/CFS for 6 years. I also have anxiety and depression as co-morbid conditions! I started making UA-cam Videos consistently about my experience with chronic illness and mental health struggles in June 2020 and I am aiming to hit 1,000 subscribers this year! I also love fashion, connecting with people in the community and being creative!!
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Social Media:
Follow me on Instagram / ellellell_brown
Follow me on TikTok / elinorbrown3
Contact Me:
Direct Message me on Instagram / ellellell_brown
For Business enquiries elinorbrownbusiness@gmail.com
Chapters:
0.00 Introduction
2.04 Prepare in Advance
2.39 Make sure people understand
3.51 Take things you need
5.29 A place to Rest
7.27 Mobility Aids
9.18 Schedule Rest
11.20 You will Crash
12.41 Bloopers
#Chronicfatiguesyndrome
#Myalgicencephalomeylitis
#MECFS
This is such a helpful video! Spent too many events sitting through feeling horrific because I felt like I needed to be polite and a good guest. Will deffo use your tips for future events!
Glad it was helpful! I've definitely done the same thing!!
Lovely video! Side note: people have underfloor heating in their bathrooms?!?
thank you! Yes, its amazing, the best type of floor to lie down on if you ask me!! I've tested a lot!
We do, it's theee best!
Thank you SO MUCH for your videos. I have only recently been diagnosed with CFS after a year ish of being super poorly, dizzy, in pain, nauseous etc as well as tired (but I'm a tired human so that's been the least of my problems tbh) and was still doubting whether it was that or not due to my symptoms involving dizziness/nausea etc like you've described in your videos. I have been really struggling to find other people with similar experiences so thank you again for posting the day-to-day, practical experiences and also some really helpful tips etc. I feel seen - haha! Thank you for being real but also offering hope that we can adapt (and sometimes we just need to rest!). I am very grateful, yours is the first account I've really related to at all and it makes me feel like maybe I am on the right track with diagnosis etc.
I've also got my first compulsory work conference on Thurs so am writing down all these tips! :)
I'm so glad you like my channel! I hope the conference went ok !!
Hi Elinor. Thank you for another great video. Im going to an event at the end of the month. It's the first time I will be going to an event since I have been diagnosed. I am nervous but exited. I am going to email the organisers to explain my situation and also ask them if the speakers at the event are videos so I can re watch or catch up on what was said later if I miss anything. I will have a hotel room and I will be going with a friend who is really understanding. I hope your having a lovely day. Looking forward to your next video. 🌟💖🙂
That's great! I hope it goes really well!! Sounds like you have a good plan!
@@ElinorBrown thank you. ❤️
Hair looks amazing!! 💜💜
awww thankyou 💖💖
This was a very helpful video! Quick question, how long did it take for you to get diagnosed with me/cfs? I have been having me/cfs-like symptoms and I have a strong feeling it’s cfs. Very good video overall!!!
I'm so glad it was helpful!! I think it took around 6 months to get my official diagnosis but we were pretty sure it was ME/CFS before that!