My name is Natalie Solondz! I am 12 years old and I have Russel Silver Syndrome! When I was born I was only 2 pounds. I am now 5 feet but, I might never get to 5 foot 1, but I am staying strong and brave
Hi Natalie I'm 4ft 7 and didn't have growth injections as my consultant said I'd reach 5ft (oops!) The growth drugs they had when I was born in the late 70"s were not as safe as today. I'm not sure if I could go back I would have taken the growth hormone I quite like being my height because people remember me. Although in one way I wish I was taller because then I wouldn't be overweight ☹️xx
Thank you for sharing a light in SRS not many people are educated to understand Russel silver and not many research helps the patients understand their condition.
I have it and I am 4'6 and currently almost 22.When I came to the world, I weighted approximately 2.16lb and was 1'2 tall/small. I'm very conscious about how I'm being looked at from the outside. People often think I'm still a 13y/o or something as many obvious situations had happened before. I also have a complex about my voice, it's very high pitched and doesn't sound mature. Besides all those negative things, I'm doing great at school and my parents support me in every way, which I'm grateful for.
I have it too, and mine is the rarer form. Born at 4 lbs 3 ounces, at 26 rn I'm 5'7 95 lbs. Had a feeding tube implant 9 years, took growth hormone shots 14, took growth plate "slowers" for 4, and another shot (once a month) for 5. I still don't have a drive to eat, no real s@@ drive, and I'm tiny.
@@Nightwalker973 I used to take growth hormone shots until I was 15 I think, every day as well. I never had all of the others you mentioned. I do have no drive to drink much (max 1l a day which is really rare, only in the summer probs. usually it's around 30-60cl) 5'7 is not tiny at all, could've been way worse.
@@razanbarbari2288 yes I did. Dont worry! All it does is trying to make you grow bigger. If there are any problems you have noticed, please go seek a specialist instead! I hope your son is fine!
They said they thought one of my granddaughters was born with it Now her sister may have it too All the symptoms match both of them My granddaughter is now 8 yrs old My youngest is 1 day old Both are beautiful and are just as loved and welsomed as ny other 2 granddaughters 🥰
I have just been told I have this together with h f autism.Most people treat me like a little girl.I was the same size as a 1 kg bag of sugar when I was born.
My name is Marc and I have Russel-silver syndrome and when I was born I was 4.6 pounds than when I got home I was 4.4 pounds and I had a feeding tube when I was 1 till I was 5 because I never eat and when I did I bought it back up every time I eat and i still being food back up and I’m 16 now and I’m 4 foot 9 and I’m 85 pounds and for my 1st birthday I was in the hospital and no one was allowed to come to see me
I have it when I was a baby i weighed 14 ounces, now i'm 14 and 4'9 i am strong and smart :)
Good job kid :)
How to reach the high and weight? Because my daughter has Rss
Nezucochan i have the syndrom too
My name is Natalie Solondz! I am 12 years old and I have Russel Silver Syndrome! When I was born I was only 2 pounds. I am now 5 feet but, I might never get to 5 foot 1, but I am staying strong and brave
I'm 17 and my height is 4.9
I am glad that u are staying strong
Hi Natalie I'm 4ft 7 and didn't have growth injections as my consultant said I'd reach 5ft (oops!) The growth drugs they had when I was born in the late 70"s were not as safe as today. I'm not sure if I could go back I would have taken the growth hormone I quite like being my height because people remember me. Although in one way I wish I was taller because then I wouldn't be overweight ☹️xx
Grade for you? How to reach the high is 5ft? Did you use hormon? Sr, my Enlighs not good, but my daughter has RSS, im very sad and worry about her
@@hoanganh-wf5ls RAT POISON HELPED FOR ME, LOTS OF RAT POISON
I am 27. I have this shit and i hope that everyone will take the easy way out.
Thank you for sharing a light in SRS not many people are educated to understand Russel silver and not many research helps the patients understand their condition.
My friend has it she is really strong and smart
we are still besties she is awesome
You have a really great friend 💜
I have it and I am 4'6 and currently almost 22.When I came to the world, I weighted approximately 2.16lb and was 1'2 tall/small. I'm very conscious about how I'm being looked at from the outside. People often think I'm still a 13y/o or something as many obvious situations had happened before. I also have a complex about my voice, it's very high pitched and doesn't sound mature. Besides all those negative things, I'm doing great at school and my parents support me in every way, which I'm grateful for.
Hi
My son has Russell silver and I'm worry about him.
He takes his injection every day.
Did you take the hormone injection ?
How tall are you now?
@@razanbarbari2288 I took the growth hormone injections for 15 years, I am fully grown so I'm still 4'6 I don't grow anymore
I have it too, and mine is the rarer form. Born at 4 lbs 3 ounces, at 26 rn I'm 5'7 95 lbs. Had a feeding tube implant 9 years, took growth hormone shots 14, took growth plate "slowers" for 4, and another shot (once a month) for 5. I still don't have a drive to eat, no real s@@ drive, and I'm tiny.
@@Nightwalker973 I used to take growth hormone shots until I was 15 I think, every day as well. I never had all of the others you mentioned. I do have no drive to drink much (max 1l a day which is really rare, only in the summer probs. usually it's around 30-60cl) 5'7 is not tiny at all, could've been way worse.
@@razanbarbari2288 yes I did. Dont worry! All it does is trying to make you grow bigger. If there are any problems you have noticed, please go seek a specialist instead! I hope your son is fine!
EXCELLENT explanation of RSS!!!
Hey, great stuff!
They said they thought one of my granddaughters was born with it
Now her sister may have it too
All the symptoms match both of them
My granddaughter is now 8 yrs old
My youngest is 1 day old
Both are beautiful and are just as loved and welsomed as ny other 2 granddaughters 🥰
Thanks for sharing ❤
I have just been told I have this together with h f autism.Most people treat me like a little girl.I was the same size as a 1 kg bag of sugar when I was born.
thank you!
I am Indonesian male with 5,1 feet. I have normal life, normal job, normal wife and normal kids...
السلام عليكم
انا عمرو من مصر ولدي ولد تم تشخيصه بمتلازمه سيبفر راسل وللاسف لا نعلم هل لهذه المتلازمه علاج محدد . ارجو المساعده
@@amrsabre5594 السلام عليكم ممكن نتواصل حتى أنا مغربية وعند إبني هذا المرض نتواصل فايسبوك
I just been told my 5 day old daughter has this 😢
... Liebe Grüße aus Österreich. Kennt jemand Informationen das Erwachsenen Alter betreffend? Denise , 46 a, SRS
Hey It's me.
My older brother has this but hes just short pretty smart tho
really, i have tunner syndrome
I was diagnosed with this at birth
I have RSS Syndrome and my mathematics degree is 90% so you are totally right!
@@samuel-olivierguay1029 how tf does a syndrome make people smart omg i wanna have this
Intruder Alert believe me, you don’t want this syndrome
My name is Marc and I have Russel-silver syndrome and when I was born I was 4.6 pounds than when I got home I was 4.4 pounds and I had a feeding tube when I was 1 till I was 5 because I never eat and when I did I bought it back up every time I eat and i still being food back up and I’m 16 now and I’m 4 foot 9 and I’m 85 pounds and for my 1st birthday I was in the hospital and no one was allowed to come to see me
Also I have a lot of phlegm in my lungs and My lungs are small
@@northernmutt1573 my baby might have this, do you feel ok?, does it effect you emotionally?
Ai video ta kew bangla te kre deben
Thank you!