I'm damned if I tic, damned if I don't
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- Опубліковано 4 лют 2024
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This is the official UA-cam channel of Sweet Anita, a girl with Tourette's who loves animals and video games. - Розваги
Do - damned
Don't - damned
Dayuuuummm
So she's normal person. We are damned either way
Damned - god damn it
basically the formula of not fitting the mold in human society
do = damned
don’t = damned
We also read the title kiddo
All i’m getting from this is that some adults never grew out of their playground bullying phase
Ain't that the truth! I remember being a young, naive lad and thinking that I couldn't wait to get out in the real world and have intelligent conversations with adults. Then I found out that that does not happen and most "adults" are just as immature as the teenage punks in high school.
Because they peaked in High School
A brutal truth we all have to suffer the consequences of, especially those in situations like Anita.
First day on the internet?
Absolutely.
I mean look at it a different way ... if you just don't care because its basically none of your business, you are treating people with tics like everybody else, and on days they are good, you do the same.
And people wo ACTUALLY just seek attention, don't get any.
The ones affected most times don't want special attention, and those who want might stop pretending.
its a win win situation or is it not? :D
"They aren't performing their disability for me, so they don't have it!"
It happens just like that to so many people, and I'm sorry it's happening to you.
"You say that you have epilepsy but I've never seen you have a seizure. Hmmm suspicious"
"Well if you give me a strobe light and put 911 on speed dial, I can prove it to you AND traumatize you!"
yes! exactly one time someone said to me oh but you don't look autistic... 💀like bro what
Im 33 but look like a fit bodied 15-19 year old... I have inappropriate sinus tachycardia. I have to carry my papers on me to the ER or the staff think I'm faking my symptoms for attention or just have anxiety. 🙄
I'm sorry I don't look like your typical heart patient, I'm 30 years ahead of the game and have taken care of my body and health up until now so I still look good for the time being but I'll probably deteriorate and look the part soon enough, nurse Karen, would that garner some basic human decency from you? I don't want to be in the ER _again_ either but my resting heart rate is 157bpm and I don't know how to fix it at home!🤦♀️
@@snakeAAAHHHH as a low support needs autistic person when I am having a good day I get the ol' " how can you be autistic if you can manage this well? why would you want to put that label on yourself, just to be quirky?" and
then on the bad days the argument is "you really like to be a drama
queen huh? you just have to put effort into it like everyone else stop
using autism as an excuse" you literally can never win with these people
@@exhaustedpunk1477 yes! it's so annoying
If you were faking it, then you deserve a fucking Oscar.
Seriously though, fuck em. You’ve shown people a lot about Tourette’s Syndrome and given a lot more insight to it.
She's not faking it but it this point she is milking it
@@Everyone_Dies
Might as well make something good out of something bad.
@@Everyone_Dies the fuck she supposed to do not talk about it.
@@IIQuackAttackII it's like, we get it you have tourettes, you don't have to make 10,000 youtube shorts about it
@@Everyone_DiesI dunno, maybe she had to make 10,000 shorts and videos to this day because there are literally billions of people out there who don't have a single fucking idea about Tourette? And some of them ready to mistreat and discredit people who have it, in case no adults are there telling them to stop?
Personally, I haven't had an experience of someone outright claiming I'm faking my Tourette's, but I've definitely been afraid of it happening.
On good days, I won't tic at all.
On bad days, I'll end up curled up in a ball on the floor, unable to control my body.
People with other disabilities experience the same fluctuations from day to day.
I don’t have Tourette’s but I am autistic, which our newest hire had claimed that I am faking my autism a few months ago. She didn’t say it to my face but behind my back to a fellow coworker, who then told our boss what she said to him about me. He said that she (our boss) was furious about it and had her come in on her day off and she reprimanded her for it. It’s nice to know that I have people who have my back but it was the first time that I heard of someone verbally claiming that I was faking my disability. It sucks, especially when I do have days where *_I_* think I am faking despite being legitimately diagnosed due to imposter syndrome.
Same here 😭
See, I was accused of faking it, but all I have is ADHD, and autism and I just happen to copy the girl who actually had Tourette’s she knew it was happening and like knew what was going on but people didn’t give a flying fuck
@@elisabethheiman2104not a disability
As someone with a chronic illness it's always so fuckin infuriating that ppl expect you to be sick 24/7 365 that u can't have good days n bad days. Some ppl with tourettes tic more than others some have episodes some do it every other impulse sent thru their body. EVERY SINGLE PERSON IS DIFFERENT
„Yeah, you laughed the other day, so you are just faking your depression“
It is like people have to proof or convince others that they suffer under something and don’t you dare to have better days and not show symptoms 24/7!
People who know what the condition is like usually understand the ups and downs more than people who just have superficial knowledge but act like professionals. And than there are these experts with „well, this person I know has this to and they never had ____, so this can’t be connected to your issue“
People who think like that are f-ing dumb. Just ignore them.
@@larafranke1802 Yea pretty much. It seems in some people's minds you have to constantly be just weeks away from death or something for them to recognize that you might be legitimately struggling. I've had teachers give me worse grades after I mentioned my illness because they thought I was "just faking it for the grade"
I know a kid with down syndrome that ticks every one to three seconds rocking back-and-forth and it's uncontrollable and hes 98% nonverbal and 6'6 feet tall. A sweetheart a giant, and somebody I wish to be well.
@@larafranke1802 exactly! No one would ever have known that I had schizoaffective disorder because I don't talk about it, and I only record on good days both on UA-cam and on TikTok.
only time I ever mentioned to schizoaffective is when I'm mocked people who fake disabilities or with my TED talk in tiktok.
I hate when people say that I'm OK. Overall I'm doing great now that I'm on medication, but I wouldn't say OK. OK means "I'm just fine" when fighting for control on my own brain cells every single day is not fine.
I'd rather say I'm doing great because, well, I'm fighting, and im winning. and "great" doesn't mean that I'm "OK", it means I'm getting better. (English 101 much? Lol)
"They think it's all put on for the camera" *winks* 😂 sometimes those tics don't help ❤
Glad I'm not the only one who noticed 😅
I don't know how accurate this is, but I heard that it's common for tics to manifest as the worst possible thing to do in that moment. which is wild if it's true
One of her tics is that eye twitch. She also makes a popping sound, and the others are mostly swearing out of nowhere. @@ryanmiller8932
I’ve worked with ASD students for the better half of a decade. The ups and downs are just as unpredictable and, at least for the teacher I was working for, we were just trying to figure out the triggers. To say all of it is attention-seeking is ignorant at most. Not unless they know your routine day-in and day-out.
As someone with autism, yeah I have good days and bad days. There's a whole spectrum (pun intended) of ways a day can feel. Plus sometimes it's one specific thing that you're limited in. Like you can only eat safe foods or you need constant music playing in the background to do anything
YES THIS EXACTLY! There’s never any telling how my day is gonna be and it’s always widely different every day. It doesn’t help that I could be bipolar due to my mom possibly being bipolar and being in super big denial over it. (She was diagnosed with it years ago and flipped out on them until they removed it from her diagnosis) So it makes my lows and ups and even worse and vary even more. And the fact even the smallest things can trigger me makes every day so exauhsting.
Oh yeah, basically unless they live/spend their time next to you every single day -- they have zero effin idea about your illness and especially the severity/progress.
That's why I ignore opinions of anyone but my mom who I live with, and even then she sometimes doesn't get it and goes with her assumptions instead of what I even tell her.
In the end only you 100% know your illness/disability, it's a bit of a sad truth, though some people do well with finding community of people with the same problems.
Trust me, it's not unpredictable when you come to understand their sensory or routine upsets.
It's unexpected.
The same way it's unexpected for someone to start ranting about a bad day. Unpredictable sounds more like we're erratic, but the unexpected can become expected, the unpredictable is for diviners. You may not know if their parent got in the way of their routine, or if a fabric is just rubbing or creased in the wrong spot. Once you learn those things, you come to expect the unexpected emotions and behaviours which come with it. Therefore, not unpredictable. Just not your expectation.
I go to the same exact place at roughly the same time every other Saturday with my mother in law.
This most recent time out of nowhere I was highly overstimulated, stomping, rubbing my eyes (something I do when getting worked up), and hitting my temples with my wrists. The staff there that knew me were confused af, because sure, they had seen me nonverbal one time, but they'd never seen me like that.
So I'm severely disabled, I have to walk with a mechanical aid such as a can, walker, or (most of the time) my wheelchair. I'm mostly in my wheelchair when we are out and about doing things like shopping, going to fairs, or long journeys. I meet a lot of amazing people and some have only ever seen me in my wheelchair, because we always go "out" to meet. When I am at home or someone else's house, I use either my cane or my walker (depending on how stable I am that day). Everything is situational. So the first time someone comes to visit or vice versa, they get shocked that I am walking around and sometimes I get the same response. But this mainly occurs if I am out in my very expensive electric wheelchair, and I am helped up to traverse something that my wheelchair can't. I've had people put shitty notes on our car or try to confront me because they saw me getting out of the van and walking to sit in my chair. It's like, people who are paralyzed do use wheelchairs, but not all wheelchair users are paralyzed. And, I have a load of different disabilities that have flare ups. So if my Fibromyalgia is in full swing and I have an inflammatory arthritis flare up at the same time, I can't stand at all and I have to be placed into my wheelchair. But, just like tourettes, my conditions aren't always completely debilitating. People just really need to mind their own business. 😅
Know excatly what you mean. I care for my elderly mum who can walk around the house unaided but cant walk more than 20 metres without a rest due to her lower heart ability. So when she goes out I have to push her in a wheelchair and when she sometimes stands up to use a bathroom I've had people ask why shes faking being disabled!?
@@paulgwor836 that's so considerate and kind of you, your mum is very lucky to have you in her life. 🥰 I can completely relate to having a heart condition, I have Ventricular Tachycardia myself, so I'm on two separate heart medications. I'm just a hot mess, medically speaking. 😅 But yeah, people can be so amazingly helpful and sweet most of the time, but total asshats the moment you don't live up to the image they have built of you in their brains. 😂 Like I even have a foldable cane in one of the pouches on the back of my wheelchair. The handle is always visible because it's sticking out enough for me to easily grab it if I need it. But heaven forbid if I ever grab it to help me stand up!! 🤣🤣🤣 But keep shining that bright light of yours, caregivers are the best and deserve all the respect! 🫰🏻🤩
@@chellebethel Awww thanks Chelle that's really nice of you. My mums got excatly the same kind of cane and yeah gets stares if she starts using it but to be honest she hates being in the chair and would skip everywhere if she could. Hope you're having a good day and ignore the idiots they've no idea what you're dealing with xx
I've seen a few wheelchair bound people stand before at the store and let me just say that they aren't springing out of that thing to grab something off the top shelf. Whether it's bones, joints, muscles, or something else, it's clearly painful for them to try and stand just because the green beans are a shelf too high.
I’m similar and I’ve mostly stopped using mobility aids other than my wheelchair because people get really weird about it when I *do* have a good day and go out with my rollator or crutches.
Most often it’s people I sorta know congratulating me on “getting better” which is super awkward, but more negative reactions too.
Kinda like how most wheelchair users can still walk and stand and they're not all paralyzed, but some people see a wheelchair user standing or walking and have the audacity to call them on it.
Education and awareness is super important, thanks for talking about this :)
SiR, yOu ArE nOt DiSaBeLd EnOuGh!
This is so validating for me… I have quiet days where I don’t tic and I’m my own worst critic when I notice that
As someone who deals with chronic pain I felt this in my soul! The pain isn't full blown every single day, there are good days and bad days, and I'm always so anxious on my good days because I'm scared people won't believe me when I'm having bad days and think I'm faking (which has happened) it's why people with chronic pain can have a wheelchair placard, and get attacked by bystanders claiming they are faking or using someone else's placard when they are walking into a store.
Invisible illnesses are terrifying!
I used to know a guy who also had tourrete syndrome. And yes, he also didn't have tics all the time. Honestly if he wouldn't tell us I would think he is just anxious or something (he wasn't saying strange things or making sounds, but he used to stutter and his tics looked like he was trying to hide a sudden pain in his head or something).
This sort of thing was explained to me (and other kids) when I was little about another kid at camp that needed a wheelchair but could walk and stand just a little sometimes. Very important to learn that these things don't always show the same all the time. Some days can be more manageable where other can be rough
Literally, preach. I don’t even have my ticks fully diagnosed yet so I can’t even reply with that I gave (insert a condition that causes ticks) because I haven’t been diagnosed and when I don’t tick people just tell me I’m lying or im crazy or that they haven’t seen it so im lying
I'm so sorry people have been shitty enough to conspire and create such narratives. People that jump to spreading and entertaining the most negative possible conclusions about people to drag them down are insecure shithouses, or fucking daft. They have to suffer that shit karmically through dragging that hate and lack of empathy into their lives. internally and externally, poisoning their relations with others and policing their own minds and others' in assumptive thoughts. That is no healthy way to live, creates anxiety around perceiving others to be projections of their own recognition of their shortcomings as a person, and if it doesn't consciously, it has costs subconsciously which distance them from real genuine experiences of connection and understanding with others. That real understanding and acceptance of self and others is something which offers a lot of peace and security from existential anxieties and woes.
This reeeaaks of UK social climate and general quality of people. Anxious and insecure to the maximum, and the issues of being surrounded by conceited and naïve kids in schooling years. Luckily some adults are more wholly formed people, even if they begin like this. Sheep that conform uniformly to social norms and revel in being shitty within the confines of feeling vindicated are just shit people often enough. Know that likely comes from seeing others treat them that way during developmental processes psychologically generally and internalizing that. Its so shit being confined to proximity of lacklustre and fake people like that. Be thankful that you're not so shallow and simple minded with streaks lacking understanding and consideration for others, and by extent themselves. They will drag that forth in their life and pay the price, try to not let their problems get duped onto you and your thoughts and mental health. Don't let them beckon that forth onto you, and potentially ruin finding people of a better quality and who can hold space to consider and be genuinely kind to others and themselves. I really wish that such lowly qualities weren't so widely reinforced. Misery loves company. But its something a good few people do outgrow and flourish into being positive and sweet people. Those that don't just aren't hardly worth it or content behind that social mask, if not suffering then are often hollow. That lack of being in touch spiritually with yourself or others means that they try and drag others into the purview of their understanding and drag them down to their level. Why value the input of such people over real validating and genuine ones that wouldn't think and say such conceited shit.
Its normal to feel shitty when people put that shit on you for a second, but try and find an outlet which allows you to dispel that negative energy they put onto you. Also hold the understanding that they pay the price for that, and you can disengage from people like that, they can't disengage from it internally nearly as easy, live with that and are deep in it socially too most of the time. They are suffering those shortcomings of character, and its their issue, not yours, that they think that way. Try and hold that space to frame it that way and not let it get to your perception of yourself. Having a real issue in life which others can see, or that they can't but is personally impactful, is a burden and challenge which hurts, but also forges a real potential for understanding and genuine care and support for others which fosters much more genuine and supportive connections when you find people actually worth it. Find someone, or people, you can cultivate that with and feel unconditional and real love and support, its so liberating and worth it when you do find people who operate on good faith and real care and understanding.
It can feel a losing battle, and some will disappoint and undercut that effort sadly, but its only a losing battle to hold out hope and resolve to foster a circle of real support and care if you give up on it. Stay strong and try and see you are always more resilient and strong in your wealth of experience of hardship. The best people are all a little odd, but genuine and kind hearted, and don't live their life aligning always to what is the path of least social resistance and conformity above authenticity. They find a balance of yes, fitting in some, but not holding such fabricated judgement and needless social pressures above compassion for others. You have much more chance of garnering that kind of environment around you with some self acceptance, discipline to aim and follow through with self improvement, than any of those people who judge and put you down do. Reciprocity is only genuine with those real enough to have an identity beyond an image they police to align with the socially accepted norms all the time. Affluence and looking the part of being content, but acting like that doesn't mean they are internally experiencing anything of meaning or a sense of acceptance and contentless. Its likely all an image and marred by insecurity, like someone blasé and jaded, incapable of truly appreciating the good since its all optic and out of reach to authentically feel validated and secure in for these sorts. It can help to remind there's often a completely different and invisible layer of internal framing and concept of the world at play, and such behaviours really reflect much more on them than others.
Stay strong and mentally kind to yourself mate. You deserve better and should hold out on finding better and fostering true connection based in acceptance of people and being able to meet them where they are and valuing what they have to offer. We almost all do, but some are so far and lost from that in life. Sadly too many I feel, its even the norm at a good few points in life. There are always pockets of real solid people to find out there who are worth it fully when you find them. If you wish to find butterflies and beautiful things in life, it is much more constructive to cultivate a pretty garden than chase butterflies. And if it doesn't attract the butterflies you want, at least you're left a pretty garden to enjoy yourself, rather than exhausted and defeated with nothing to show, or confined and captive butterflies deprived of a nourishing environment. Good luck and take care x
I hope you know the cause of your tics soon 🫶
That is the ignorance of the people to you, it happens with everything, i have a friend that has depression ans anxiety and is told constantly that all her panic attacks and typical symptoms of depression like the constant tiredness and lack of motivation are all just for show and attention, even i myself have been told that my anxiety was just "overreacting" and that everything is all in my mind and to just ignore it, i mean it kinda is but its not that simple, it happens to anyone with a condition that everyona doesnt suffer, they dont know what it feels like so to them everyting is show, it infuriates me everytime i see it, its usual for people to just be stupid.
@@juanangelninogomez2800 Congrat You’ve officially made yourself look like a dumbass.
@@iMaePlay Thanks 💜
I grew up with a friend who had tourettes. He'd scream out things and randomly scrunch his face. But, it was really bad when he'd get stuck in a loop of scrunching his face. He'd be in pain from it, but there's literally nothing anyone can do to alleviate it. I can only imagine the amount of inconvenience, pain, injury, etc. that people with tourrettes have to go through on a daily basis.
I coprolalia aka cussing/swearing tics. Not everyone with Tourette's has these knd of tics. I can tell you it feels like from my perspective. for example (daily walk down the street, grocery shopping I've experianced some pretty nasty tics, racial slurs randomally yelling your a cunt in a public place and been in arguments from some of my tics.) some tics are fun/cute others are painful. from my experience a whistle, clicking, randomly say a few slurs. they can be covered or ignored and they are harmless. some tics are really painful. Hit the side of a bench. kicked a brick wall, thrown and smacked phones, controllers, PC Mouse that has issues with scrolling. People with tourettes have been injured on a daily basis from their tics... This one hsrm less complex tic has almost killed me 1 time in the past. I was on my way home from Tafe. I was listening to music waiting for the train to arrive so I can get home. This one harmless superman tic " I'm superman I can fly watch me go weeee!! a jump happens at the end. became my most dangerous tics since this day. 'll never forget it. people around helped me up onto the platform.
I have Tourette's. Mine are located mostly in my neck. Which is usually great, I don't hit people or myself. But god it can hurt when you've been twisting your head to the side for a half hour and your muscles are all extremely tense. I'm grateful that my tics are mostly cause by anxiety, so I can "sleep them off" so to speak. If I take a nap or whatever, I'll wake up "reset" without ticking right off the bat. But it can be a PAIN to get to sleep in he first place when you've hurt your neck straining all day and can't get comfortable _to_ sleep 😭
Good lord - I imagine this must be so exhausting on top of having a condition that is likely also exhausting at times. To be constantly accused of faking a condition is such a brutal experience - im so sorry people are so insecure that they feel the need to tear you (and others with Tourette’s) down just to fill whatever void is in their own souls. ❤
Dearest Anita. I am so sorry for the ignorance and stupidity of people. You are a lovely human being. You are beautiful, you are fun, you are kind. I wish people could be fixed, but just remember no matter what you do or how "normal" someone might be, people will still find a reason to hate them.❤ Love you hon. Sending good vibes.
I've barely ticced at all today but so much stuff was going on at work. Two weeks ago and I was ticcing like crazy, and all my tics have been coming out in a Scottish accent since. Tourette's Syndrome in this way is just like a chronic pain condition like arthritis; you have good days, then you have bad days with flare ups. I don't know why people find this so hard to understand!
I feel this, I have tourettes and it’s mostly eye twitch’s, side of my mouth pulls down and noises, but I’ll have days where I’m good then I’ll have bad flares and people have legit tried to argue with me that I’m faking,
Isometimes when my tics calm down for a while. I also only have eye twitch's dont know why buta few years ago I noticed it's only the 1 side of my mouth that also pulls down. I been told that I was faking, been in a white padded room with rage tics. been through arguments. just try not to let them get to you. just think they're nt expencing them and don't know how much pain the tics can put you through, stress they can give you, really annoy you sometime. it's a big relief with they do calm down. True friends are by your side, There's always a brighter future on the other side. Don't let negative people bring you down.
@@johnuren515 ya I try to just ignore, but sometimes it’s really hard
I have chronic tick disorder and I feel this so so so so so much especially the "it never occurred to me to explain it to them" part
Oh yeah! Reality is really bizarre! "Having a tick sometimes makes it easier than not having" it's something that shouldn't exist, but it does...
One of my best friends has Tourette’s when she was undiagnosed for it we all thought it was a joke she was doing by swearing a bit and jolting her neck till we realised it was hurting her and she didn’t mean to do it. When she was diagnosed the doctor recommended a service dog because when she had her tics it was mainly swearing but when it got physical it could hurt her really badly.
She didn’t have enough money to buy a service dog or a new puppy so all our friends helped her train her current dog who is quite old to help her even a little with her tics.
On the street we would meet a lot of people who said that she was faking it and me (who has a service dog for anxiety) was also faking the need for it.
All of this ended in both of us having a medical episode me more than her.
Moral of the story just because some people seem normal on some days it doesn’t mean that they are fine medically. Like diabetes for example or a heart condition. You don’t know what’s happening in their body.
I don’t have Tourette’s but I do have tics & they’re really unpredictable EXCEPT I have trauma from hospitals so I ALWAYS tic in any medical location, which unfortunately leads to me screaming at nurses “I HAVE TICS!!!!!!”
For me and many others, they're so closely tied to stress that it you're actually having a decent day or even a decent few weeks or months (for that matter) they might almost disappear completely.
But sure enough if circumstances change, they are a very annoying but effective early warning system that whatever is going on for you is not sustainable.
The WORST parts are when you're having a good day, Notice you're having a good day, And then Immediately start ticking because you're anxious people will think you're faking 😭
i have infrequent anxiety twitches and it's a constant worry that someone'll think i'm faking it even when it's caused my neck to crack in a painful way before and is disruptive
I know people with tics and damn, having lots of tics is so exhausting for that person and especially if sm is able to have a calm day or have meds that help then ppl should be happy for them, not make them feel bad for not having any tics at that moment. How about people just mind their own fucking business. Nobody is asking them to pity them or whatever, just don't make a big deal of it and ask in advance if it's ok to laugh about (harmless) tics or if that makes them uncomfortable because not everyone feels the same about how they'd prefer people to respond to their tics (for example ignoring it, laughing if it's funny, answering if it's words, etc depending on the type ofc)
Thank you for sharing, genuinely!
Yeah, that’s that “You don’t have depression, I saw you smiling yesterday” energy.
Makes me remember this one time when i knew this kid named dylan in an earlier grade of school, he came in on the first day and was introduced to the class with and said he had tics, then after he became a popular student. Me him and a couple of the dudes noticed these girls immitating him and it frustrated us so much, these girls we knew for years now said they had tics seriously!. Disrespectful af!
this is one if the reasons fake claiming is so harmful, especially when you don’t know the person or situation. internet, stop accusing people you don’t even know of faking their tourrettes, autism, DID or anything else just because they don’t fit your perception of people with that disability at a given moment!!!
I had people say to me that my chronic depression must not be that bad since I don't look sad all the time and because I'm having fun with friends on movie night. Like... Dude that's not how that works 😂 Also same person different occasions asked if my anxiety is really that bad because I can take public transportation now. Yeah i still feel uncomfortable and can't do it alone unless i use headphones so i at least don't hear the other people 😂 took years to be able to take the tram or the bus again. Year's of hard work in therapy. Oh and don't get me started when they know about my fibromyalgia and they see me at a very good day, where the pain is easily managed. They like yap she/they is/are faking it at any other day 😂
For some reason, some people think it's their duty in life to not mind their own business about things they know nothing about, and crusade against anything that doesn't fit their biased little worldview of how everything should be, and do.
Solution is to just start saying ridiculous stuff even when you are having a quiet day. Meet someone new? "Nice to meet you, can I fist your grandma? By the way I have tourettes"... At least that way they can get over being insulted at the start 😂
I do not have tourettes but deal with other neurodiverse-struggles. Thankfully mine are "quiet" struggles and just result in people thinking I'm weird. I cannot imagine how much fear and uncertainty it would cause. Your "stuck in the stall yelling the N word" story is literally a nightmare of mine. Offending someone when I don't intend to is the worst so I can't imagine how it feels to have such outwardly "offensive" ticks.
Love your content and please know that you bring joy to my life. Thank you.
insulted? you ask me if you can fist my grandma as the second thing you do after meeting me i'm gonna lose my shit laughing
eh people would be able to tell that you're faking it
This is how I feel about the fact that it’s very rare for me to have complex verbal tics but sometimes I’ll have them and then people don’t understand I can also have complex verbal tics so they think I’m making it up.
I had a girl in my school. We were both in the same grade, but she started having issues with her medications, (she didn't seem to want to talk about it, so I didn't push it) so in our last year of high school, she had so many ticks. At first we were all concern, because she never showed signs before. That's when she told everyone she was fine, just had troubles with medications. Soon we all got used to it, and didn't bring attention to it. (Since she seemed a little uncomfortable when we did.)
I would be quite upset if someone saw me smiling and said I was faking my major depressive disorder.
I'm sure the stress caused from people accusing you of not really having it could cause the tics to come on and then they'll say that you're just doing it to make it seem like you do xD
What a vicious cycle :/
Its similar with things like seizures, the amount of people who have told me i dont look disabled is incredible
I have autism and have small tics. The hard part is explaining it cause by my emotions but the one good thing is my wife thinks it's cute because she knows if I'm ticing that really genuinely enjoy what ever she did as my tic are hard to control when I'm happy excited or anticipating something
Don't think about all this people, Anita! )
You're cool person 😎
This is like me, as a type one diabetic, being called a faker because my sugars didn't go low/high on a certain day. Its a good day, guys, even we have them!
The fact that some people don’t know that symptoms of conditions can fluctuate or be inconsistent is wild, Its one of the reasons I’m hesitant about telling anyone about my ADHD cause if I’m not “acting like it” on a mellow day they might make assumptions or spread rumors, thank you for talking about this ❤
This reminds me of a quote someone said to me, "You can't have epilepsy, you are doing so well in life." Or close second, "you don't look like you have epilepsy." Then they look at you. Either to fess up to your lie, or say thank them to their compliment.
When i watch you tic in your videos it causes me to tic. So if i ever run into you i got your back, i'll tic first to get yours going.
Stop trying to make everyone understand you.
The people that understand will, those who don't, don't care about what they think.
I get what you mean, but I feel the problem is much more than just her being annoyed that people don't understand. It's that people who make uninformed decisions on the condition or actively try to disprove her constantly put her (and other people they may encounter with the condition) in danger for something that they can't change whether they believe it or not.
@@glizzygobbler78 Your never going to get everyone to understand or like who you are.
Stop trying.
Real people won't care about your plight.
Dont stop.
Am ok with getting some education about ignorance and arseholery.
@@Petz420Sure, you won't make _everyone_ be kinder. But many people will. We've seen that happen a lot recently. Where just talking about conditions more
1. Makes people with those conditions less embarrassed
2. More people get eyes on the condition and learn about it, and thus will be less likely to mock it.
My friend has Tourette’s and she’s usually fine. She gets an occasional tic but that’s it unless someone starts something. She used to go to a private school and one day in class, someone twitched and her hand crashed on the table bruising it pretty badly. Everyone thought she was faking it for attention while tears streamed down her face. I don’t understand people.
I think an important thing to note with over-active nervous system stuff is that it's often very often a stimulus response of some kind - so being completely blank/calm/understimulated will absolutely correlate in some way with the manifestation of tics, especially as opposed to when directly engaging with another person/chat😂. But some people seem to reduce it to something you either _have_ or _don't have_ radiating from you at every second equally.
as someone with crohns and arthritis, having ups and downs is so annoying to explain to people. i’ll have a week of bad days then suddenly i’m on top of the fucking world and people have treated me as if i had a choice, that i’m choosing to feel shitty, that i make no effort to make my life better. sometimes even accused of lying about my issues. just because someone has a good day doesn’t mean they’ve lied to you about everything. you shouldn’t need proof to believe someone about medical shit. to those of us with issues: we don’t owe them shit, and even though it’s hard to get the brain to believe it, their opinion does not matter
For me, having a quiet day sucks cuz I start to get this feeling of building dread like "where are they? What's gonna happen? Help?" I also had one day where I didnt tic all day and then almost abruptly passed out on the stairs. Dunno if that was related but it wasnt a great omen
You can have tics or involuntary movements and not have turrets. Occasionally my neck has uncontrollable movements and I have adhd and autism. Like it will just quickly tilt kinda like bobbing, or force me to look in a specific direction for a second.
People without neurological problems have no idea how this stuff works. I’m on the autism spectrum. Some days I feel great and I can do anything I want, doesn’t matter what else is going on. Some days I’m even able to socialize like a somewhat normal person. Other days, just hearing people moving around the house makes me so tense I can’t leave my bedroom.
I have the same problem but with autism, not tics. The moment I’m not having a meltdown or stimming constantly people think I’m normal and I’m just faking shit. The moment I have a meltdown or start stimming constantly I get treated like a fucking child. It’s stupid
Some ppl only want to tear others down, to make themself feel better
This is random, but I have to share. I had tourettes for three years. It was not like yours where I spoke randomly, but it was particularly in my arms, thigh, and eyelid. The worst were my arms. They would fly out in front of me as if I was attempting to hit or punch something. This lead to a lot of pain and even intense craps in my forearms due to all the activity. Last year I was prayed over during a prayer meeting to be healed from this. Immediately I ws healed. I was able to test this even because of a trigger word. I've been completely free from it for almost a year. God gets all the glory. I hope the creator of the video sees this, I doubt she will, but she's able to actually understand what I went through and know how amazing it is that I'm healed.
I'm sure she's heard it plenty of times, but the pop sound tic she has is actually pretty adorable.
i find it annoying how people decide it's there job to accuse people of faking when they know nothing likeee if you don't have proper proof then it's really harmful also it's always the people who don't struggle with these kinds of things who decide to call out people for "faking"
I wasn’t listening to closely, and thought you were talking about the bug, until you said tourette’s 😂
Don't overthink it its okay it's just another thing that makes you yourself don't worry what people think about you or you'll never stop worrying you have to just be yourself and if someone doesn't like it then let them go ♥️
Yea this is really common in genera, like with my mental health issues I have good and bad days. So when I can go into a store I'm happy I can and do want to go, but then when I tell them on another dat that I cant they can get annoyed and say I'm just lazy and just don't feel like going because I didn't say anything on another day. Or one time when my emotions will make me dissociate, they remember that and suddenly when I dont dissociate and fully feel the emotions they'll think I miraculously got cured or its just fake... with or without, you will always somehow make people think you just want attention. Anyone out there thinking tbe same, you're not alone and your struggles are valid. ❤
This is so real like i tell people even when I’m not having them that day
I’ve had similar experiences as well although I think my Tourettes was pretty mild. Maybe I grew out of it a bit or I developed new sort of tics. Perhaps they just blended with my stimming. Autism/ADHD is my main diagnosis though so… 😅❤
So fuckin real. Found out a bunch of my friends in college talked shit behind my back bc they'd see me by myself not ticking up a storm, but when I'm around them I'm way more stimulated so it goes absolutely hogwild sometimes. Also, for the first time in my life made some friends with tourettes, can't be around eachother too long cuz we've started picking up some of eachother's ticks. Idk if that's just a thing for everyone with it or if I've just like... gaslit myself into having more. In which case maybe I can gaslight myself into not having the new ones? Idk, probably not how that works
One person with Tourette explained it like this to me: "its like a sneeze and some Tourette people have allergies and some don't"
Big freaking mood 😭😭
Oh ya this is ver relatable that why i just dont meet ppl anymore and stay in my room and yea its takin a toll on me mentally and mt life aux but i know i can trust the 3 ppl i know
my experience isn’t like yours, but when i finally got my autism diagnosis i had so many people either ask to prove it, ask to see it, ask to describe my “symptoms” and would tell me that they didn’t think i was autistic and sometimes even “that the system is lying to you to control you”. it’s fricken frustrating. just let me be autistic even if you aren’t convinced.
This helps me understand you better. I have level 1 autism and it 'leaks out' sometimes but because of masking, people dont understand the cause and think im just weird. It takes quite some effort to mask in public 24/7
I had no idea there were quiet days. Thanks for spreading awareness.
Told by my parents for years my ticks were just bad habits. Turns out they were caused by the medication I was fed as a child. Now I'm 35 and I rotate through 10 or 12 dominant ticks on a semi-regular basis. Some are subtle and people question if I'm faking. A couple will directly interfere with my ability to eat, talk or breath normally. They get REALLY bad when I'm excited or nervous, but then they all but disappear when I'm angry. Thankfully I never developed a verbal tick. Honestly I don't know how people function with those. I couldn't.
Side note: Don't medicate your kids. But if you have to, do your research. Don't let your doctor use adult medications or dosages on them.
For what it's worth, I hope you will be allowed to have peace even if that doesn't come in the form of quiet moments.
I'm so sorry that you're going through this. You've got a lot of support. Stay strong!
As a (mentally) disabled veteran, I get that. My disability is Major Depressive Disorder, so when I'm not well, nobody sees me because I stay indoors. Then people give me sh*t for going fishing or bowling. They think I'm just trying to avoid working for a living. Which, of course, I am because being around others triggers my depression.
So frustrating but so true! 😭 I think this is similar to people who are ambulatory wheelchair users or full time users who still can move their legs a bit. They can be scared to not sit super still for fear that people accuse them of “faking” needing a wheelchair.
I have relatively infrequent tics (usually 5-10 a day on average), so there are a decent number of people who just don’t notice them. I usually only have one or two that actually make any noise. Then all of a sudden I’ll have a more severe tic attack and have to explain myself lol
I have a similar fear with my eating disorder. I never “looked like” i had an ED even though I have do. And i’m constantly afraid of someone claiming i’m faking it or that I never had it (i even doubt it myself despite being diagnosed and in treatment). Mainly because of how media portrayed it all.
Hate that so muchhh had it happen with my autism with my neurologist. Since I was having a better day and not melting down or freaking out in front of him I didn’t have ASD but then the next time when I was having an episode in his office in front of him he said I was faking it for attention or to prove a point because of my last appointment. So now my mom doesn’t believe any of my nonverbal episodes are real or that my meltdowns are real but thank god my dad stands up for me
I have the same thing with my panic atacks. Its the calm bevor the storm.
Or in other words. When the silence is to loud.
I have tourettes too and for me it goes in cycles so sometimes its not too bad while sometimes its terrible. For example this past week its been non stop. I wont say any of my tics so i dont pass them along but oof. When in public i usually sub conciously supress them in my masking habits so people typically dont realize but when i get home its terrible. Dont hold in your tics yall! Ive done it too much and cant even help it anymore
THIS OMG!! When I first started my job I didn’t have many tics on my first day, and afterwards some of my coworkers literally didn’t believe me when I told them I had Tourette’s which caused my Tics-literally it got mentioned to me at least once a day for like a week straight by the people that sit next to me
Oh the feeling. And when you get them from when someone talks about them and it's suddenly "you're only doing it cause it's being talked about"
I'm adhd, sometimes my brain is completely empty. Most days I hear songs or im thinking about something, but I just go through days where there is literally nothing up there and it's scary for another reason. I'm always worried I'm heading for a break down as that is what that usually means.
well, same with depression.
you tell someone
-ohh but you are always so funny around us, cant be!
you tell them when you feel down
-just pull yourself up and do XY
thanks, good advice
For real. I was just talking my about this the other day. It infuriates me when people take your no-tic days as a sign that you’ve just been faking it the whole time. I find it counterintuitive to continuously accuse people like that cause it stops a lot of people from realizing that what they’re experiencing is tics to begin with cause they think it’s all in their head and that they’re just faking it somehow
As someone with chronic pain, whenever I am not just lying down LOTs of people think I'm just pretending. If I have a good half-day without pain or push down the pain - people also think I'm a fraud. Also the thing about attractiveness making doctors/people assume you're in less pain than you are seems to be real.
thats why i often subconsciously fail my deadlines or don't submit at all even if i'm able to do the task
i just feel so anxious when i understand that im ACTUALLY ABLE to do something perfectly
cuz if i do submit everything at time people can decide that im lying about having adhd and im just making excuses (istg i'm not i hate my life)
Finally, Another Person Who Gets It And Explains It Too.
I Have The Same Problem With My Tourette's.
I don't have tourettes but I do experience tics and for awhile I thought they were just anxiety tics but then I noticed it happening even when I wasn't anxious and the fact that we aren't sure what's causing my tics makes everyone in my family think I'm faking since I also have quiet days and don't tic constantly every second that I'm awake which makes it more of a struggle because then I try to suppress them when I'm around my family just too avoid getting judged for "faking" but when I do suppress them it just sets it more into their belief that I am faking so it's either I tic and I'm faking or I don't tic and I'm faking
People used to go up to my friends and as if I really had tourettes. It bothered me to no end because they were not only harassing my friends, but also accusing me of lying and making it harder for the people who actually do have tourettes to feel free and safe
The amount of people that don't realise that much like most other conditions, there can be good and bad days with tourettes. My housemate has tourettes (she has simple motor tics) and the amount of times we have had to explain that most of the time her tics aren't too obvious but they get worse if she's sick or gets too warm.
I'm a teacher and I had a kid with tourette's in fourh grade some years ago... It's true, there are days with lots of activity and other days with no tics.
As someone whose family is full of people with Tourett's (father, little sister, a cousin, and myself) there are long moments in our lives where nothing really happens. Unless it's a familt reunion. Them shits get exhausting because of it.
Bruh i feel you. I got a weird stupid muscle tightening thing. Some days its bad. Some day it doesn't happen
It's a shame you cant enjoy the quiet times.
And yes, my grandmother said she's up for it.
I don't have tourettes, but I am on the very high-functioning side of the autism spectrum, and I definitely have a few tics that have gotten me in trouble before. It definitely sucks, especially because mine come and go, and are sometimes seasonal, and sometimes they decide to ignore the fact that it's winter and I shouldn't be doing that right now.
Honestly this goes for all dynamic disabilities. When I’m having a “good” day I might seem like I can go out and dance and jump and run around and lift heavy things, and then even I’m questioning myself as to wether I have a disability or not until the next day when I’m laid up in bed and can’t walk.
As someone with ADHD tics, they tend to be more active at home, in cars, and when its cold out. When in punlic I tend to mask them or be focusing/figeting enough to not tic as much or not tic at all (if I do I dont notice). So when meeting new people they'll have no idea I tic. My best friend has hung out with me for over 5 years and only seen me tic like 3 times. It always scares me to come out and say I have them when they previously never saw me tic 💀
I actually wondered about that. Glad she brought it up. I think most people generally know that every one has good days and bad days. Just say yea I am having good day with less tics please don't Jinx it.
Same with my stammer, sometimes I was having a good couple of days and could speak fluently, and I was worried people would think I had been (for some reason) faking the stammer.
I actually felt like I had to intentionally stammer to not be suspicious (though i didn't),
I have very very minor tics. Most physical is a shoulder shrug or overly extra eye blinking. If my family sees that I'm quiet that day "there is something wrong"