Medical Stories - SMS: Aaron's Story

Smith-Magenis syndrome (SMS) is a genetic disorder that affects just 1 in 25,000 children per year, with the SMS Research Foundation listing symptoms including autism, speech problems, and an inability to sleep.
In this episode of Medical Stories, Jennifer and Brian share the story of their second child, Aaron, who was diagnosed with SMS. They explain how they’re navigating the challenges of raising their son, including shedding light on the significant role played by his older sister, Abigail, in his progress.
Featuring renowned experts:
Kevin A. Kaplan, pediatric pulmonologist, Texas Children’s Hospital; Diane E. Treadwell-Deering, pediatric psychiatrist, Texas Children’s Hospital; and Lorraine Potocki, director of the Smith-Magenis Syndrome Multidisciplinary Clinic, Texas Children’s Hospital.
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[@DanyelleWood-bd2py]

Wow, what a beautiful story. I share a similar story with you as well. My brother was diagnosed with SMS at a very young age. Multiple specialists didn't know what he had for a long time. It has been a journey. From multiple major spinal surgeries, surgeries on his ears, a shunt installed to drain excessive fluid from his brain, and many many trials.. this story is beautiful and touching. It is
very nice to relate to your family in many ways. The melatonin and the early stages were extremely tough! My brother is also non-verbal as well! Your family has so much patience, and its incredible to witness. It doesn't get easier, but believe me when I say... your son has an incredible big sister and the responsibility of caring for him would NEVER be a burden to her! (THE LOVE SHOWS) She is going to grow up and see the care you have demonstrated so well.. he will never go without! He will live many more beautiful years, even after your death, because he has an amazing family behind him!

[@bonniebarton3843]

I love Aaron! He is such a joy!

[@kidbd7]

Wonderful, informative, beautiful. Thank you for sharing and informing. From a grandma of a super perfect sms 10 year old.SMS girl

[@anamargaridacoelho751]

Hi, Im from Portugal and Iam mother of a 16 years old girl. Im also Family Doctor in OPorto, portugal. What is the name of the medication you talked in the video? Thanks for sharing your story, Loved Ana.