My Breast Cancer Diagnosis | Triple Negative, BRCA1 | Getting Wiggy With It
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- Опубліковано 4 сер 2024
- My name is Nikki and I was diagnosed with triple negative breast cancer (BRCA1) at the age of 34.
After having a suspicious dent in my breast investigated at my local hospital, I was told that I had triple negative breast cancer (BRCA1). Here's my story of the first few weeks following my diagnosis.
#gettingwiggywithit
I'm so in awe of you right now. You are an amazingly brave, strong and inspirational person. Awareness is always key xx
Completely in love with you for these videos Nikki. So happy people can look up to such a positive influence like you. Xxxx
Nic, you are an incredibly positive and strong woman. Your insight is touching, educational and a reminder to us all to check ourselves regularly. And you continue to look stunning! Looking forward to the part 2........ x
Well done Nic, awareness is crucial. Keep up the great videos!
Wishing you a speedy recovery. Thanks for sharing your experience. God bless you and heal you!🙏💕
Nikki you are such a Strong Woman. You are beautiful inside and Out.Thank you for sharing your journey.Keep kicking cancer Butt !! Love ya xx
Thank you so much for all the info . Very helpful xx
An upbeat, positive video about a difficult subject. This kind of video is so very helpful for those of us beginning the confusing maze of a cancer diagnosis.
I'm really glad you liked it. I hope people find some comfort in my videos, and realise cancer isn't as scary as it's portrayed. Best of luck with your treatment xx
Thank you for sharing your story! I was diagnosed with HER2+ INVASIVE DUCTAL CARCINOMA in 2017
Listening to your story reminded me so much of my own experience. I was diagnosed with triple negative breast cancer on march 23, 2013 (at 2:35 pm - I too remember it exactly) just 2 months after my 31st birthday. My surgeon told my mom that she thought I had the BRCA1 gene because I was so young. As it turns out, she was correct. We didn't have a history of cancer in our family so we were a bit shocked but as it turns out, my dads aunt died of ovarian cancer in the early 70's before I was even been.
I too had 6 rounds of chemo, then a bilateral mastectomy with instant reconstruction and then 34 round of radiation. My doctors thought since I was young I should just have a lumpectomy but I disagreed and went for the mastectomy. It's a decision I don't regret at all. I also have a sister and she had to be tested as well. Sadly, it turns out she has the gene too ☹️. Cancer stinks but thankfully we both caught ours early. Sending 🙏🏼 Prayers and well wishes!
Hi
Lost my dad at 13 to cancer. I hate cancer so much. I hate breast cancer even more with it being genetic and going through women in a family. It makes me so mad. It’s always great people. Thank you for sharing your story. It pisses me off they denied you genetic testing because you could have had a mastectomy for prevention. They should be sued! Damn insurance companies and logistics. So annoying. I’m so glad you’re fighting hard and kicking cancers ass! Fighting like a girl! You got this!!!
Don’t worry beautiful you going to this cancer fight for it stay strong and stay positive 💪
My wife was just diagnosed Monday with triple negative breast cancer we are both confused your video has helped us thank you hopefully we find out what stage she is at soon
Jon smith happy to have helped a little. I’m now almost 2 years clear!! So there IS hope! 😘😘 good luck to both of you xx
Washing you the best of Luck for your surgery on Tuesday and hoping for Clean margins , négative nodes and a full recouvery XX
Best wishes from Canada XX
Thank you so much....I love Canada. My mom is from Toronto and my aunt lives in Calgary. It's my favourite country! xx
Nikki Kimbell i'm Sorry to ask so many questions but i'm very nervous . On monday i have a Ct scan followed by MRI on Tuesday and waiting for résultés of bone scan which i had l'astuce week . I need to have all thèse stressful tests before my surgery . I gués my doctor is just bring through but all this waiting is killing me . Just waiting for the biopsy results was dreadful enough
The absolute worst bit of my whole journey was that initial month, following diagnosis, when you have a thousand questions but the professionals have no answers. However, I promise, once all these tests are done, and your team know what they are dealing with, and you have your treatment plan, you will feel much better. The only advice i can give you...and it's very hard to do...is to try not to worry about things you can't change. Worrying about the results is not going to change the outcome. "Don't meet trouble half way " was my momma's advice - and shes a 4 year TNBC thriver xxxx
Thank you for doing these videos. I just found out I have breast cancer on Friday. Was looking on UA-cam to find people’s journeys and was happy to find you. 😀
So Sorry to hear about your diagnosis....you must still be in shock about it all. The cancer journey, although a long and difficult one, is doable. Positive mental attitude helps...a lot.
Do you know if you need chemo yet?
Nikki Kimbell I don’t know yet but I’m assuming. I did one biopsy last Wednesday that came back positive for cancer both inside and outside the tumor. This Tuesday I go in for a second biopsy for calcifications that around the breast. I meet with one surgeon Tuesday afternoon and another one on Wednesday. (I live in Houston and we have a cancer hospital here called MD Anderson and that’s were I am going on Wednesday) Neither will have the results from the second biopsy so I’m interested to hear what they say for treatment. My biggest concern is if it will show up 10 years later in the other breast because if it does I’d rather just have them both taken and do chemo once lol.
Well i wish you the best of luck tomorrow afternoon. Once you know the results of the hormone receptors you will be much more informed for your choices. The worst bit of the whole process is that first month, when you know you have cancer but have so little information...once you have your treatment plan it gets SO much easier.
Be careful to do your research regarding surgery and not allow fear to dictate...I know here in the UK they wont take healthy tissue unnecessarily. I certainly wouldn't be opting for a double mastectomy were it not for my BRCA1 positive status (which means i have an 85% chance of recurrence). Indeed, there is a lot of research to prove there is no difference in survival rates for women who opt for mastectomy as opposed to lumpectomy.
That is so crap that they didn’t do the test! Stay strong 💪 xx
I know.... but at least my two sisters can be tested now. Got to look at the positives x
Nikki Kimbell exactly!
Love I was just diagnosed with breast cancer 3days ago and the sad thing us they met my core biopsy samples sit for three weeks before they even tested it! My lump is huge and for months they told me this lump was simply a liquid cysts back in February 2020 and here it is November so now they say it’s solid and it’s cancer 😔 I’m terrified and I’m going to need all the info I can get about dealing with cancer. I go next week to get a second biopsy, ultrasound and blood work at a cancer center about 2hrs away from me so please keep me in your all’s prayers.
Oh sweetheart, my heart breaks for you. Good luck with all your medical tests. I’ll be thinking of you xx
I will pray for you, starting now .
My niece was just diagnosed. She turned 37 (Nov. 1, 2020) days after finding out. She also has TNBC I think stage 3c. I may be wrong on this as it’s been a lot to take in. She had a port put in 4 days later and chemo the next day. It’s all been so fast. She has her own webpage so we can all stay updated. I’ll keep watching your videos as I have just seen you on the page as I opened UA-cam. Hope you’re doing better each day!
It's always such a terrible shock, and the fact they got her in so fast must have been hard for you all. I wish you, and her, all the luck in the world during treatment. xx
Thank you for sharing your story and info. It sure helps us that are new to this. She is struggling with sores after chemo and I’m thinking we need to contact her doctor as I don’t think she should have them.
@@hlewis6881 anything like that - contact your oncologist. It’s always better to nip things in the bud before bacteria can have an effect xx
Thank you, I’ll have her call her oncologist.
Thank you for sharing your story. I was diagnosed with stage 2b TNBC at age 29 in February of 2017. My paternal aunt passed from ER+ breast cancer at age 57. I tested positive for the chek2 mutation. Wishing you love, healing, and positive vibes.
Yuliya Babayan, I hope your doing well now, and I hope you know there is hope in Jesus He is the Great healer and can heal you, Romans 10:13, God bless you
Hi, may I ask what were your symptoms?
Hi…where did you get the first pink wig please? The link has expired. I started chemo 3 weeks ago. Thank you!
Hello, did you have any lymph nodes affected?? My mom has the same as you Nikki. Tks for sharing!! Hope u are doing well!!!
Torrente hi 👋🏻 luckily no I didn’t have any node involvement. I was stage 3 because my tumour spread into my chest wall. However I had a complete pathological response to chemo 🙌🏼 and clear margins in my surgery.
Very best of luck to your momma. My momma is 6 years clear this month, and I’m 18 months clear - so there is life after cancer 💋❤️
Your such a Beautiful Lady ! I absolutely love your hair color ! I was wondering if anyone could share with me the color of her hair or color if it’s a wig or clip in extensions. I hope all in yalls family are doing much , much better .
MeMe Sissy Dollar hi darling. This was a wig - it was a very cheap one, with an awful hair line (hence the silly hat!!) so I wouldn’t really recommend it! But I got all my wigs off Amazon - next day delivery and free returns. So you can try out the wigs and send back those that look awful!
I think you amazing!!! I Was just diagnosed with triple negative breast cancer in may 2018 and had a lumpsectomy and about to get a port and start chemo. How long did you do chemo after? Did you get a port? They told me treatment for 4 months.
Crazy Funny Hi xx I was diagnosed in aug 2017. I decided to have chemo first so I could have my brca gene mutation testing done. I had chemo September to January and then a prophylactic double mastectomy and reconstruction done in March as I tested positive for BRCA1.
Good luck with your chemo. It’s vile but it’s doable. Xx
Nikki Kimbell hi what stage was your canser
May Allah swt keep you healthy always inshallah lots of Ameen ❤
Pls help me recently my mother has tnbc she will be fully recover i m in depression
I’m so mad they denied you testing. My mom has the gene and finished her chemo. My brothers are both positive. I am negative and the only girl.
Sadly, there always has to be someone in the family who has cancer to trigger the testing. In our family it was me (should have happened after moms diagnosis but there's no point getting cross over something i can't change). I'm just happy that now my sisters have been tested and have risk reducing options before they have to face cancer themselves.
That's great news that you are negative xx I feel for you watching your mom go through it. I found it harder to watch my moms treatment than to go through it myself. Fingers crossed that she makes a full recovery xx
How are you now??
How big was your lump and were lymphnodes involved in initial biopsy because i have triple négative with very small lump 17mm and i asked about chemo first but dr said not recommended for my type of cancer . Hé says surgery first and Then chemo . Thanks
My lump was about 25mm by 17mm. I was offered the option to choose when i wanted my chemo - pre or post surgery. Breast cancer directly related to BRCA1 gene mutation often presents as TN, and because of my family history (mom diagnosed at 58, maternal grandmother diagnosed at 34, died at 42) and my age at diagnosis (34) they offered my genetic testing. I decided on neo adjuvant chemo - i wanted to wait for the genetic testing results before i decided on a surgery - My cancer was small-medium size, small enough for a lumpectomy.
However, having found out i am BRCA1 positive, my treatment plan has changed slightly in that I am now having a double mastectomy and reconstruction, as my oncologist put my rate of recurrence at 85%. I have surgery on march 13th - they will stage my cancer (thought to be stage 3b) and i'll have a sentiniel node bioposy removing 2-4 lymph nodes. They dont think it has spread, but we'll see.
TNBC does respond very very well to chemo. If you are unsure, ask for second opinion. Best of luck with your treatment xx
Why stage 3b if it does not appear to have spread to lymphnodes . Have you undergone scan and MRI priori to chemo to vérifie it had not spread ?
It's spread to my chest wall. Nope no MRI - joys of the nhs postcode lottery. We'll know more after surgery this week.
@@gettingwiggywithit3500 Ductal or lobular?
chele10580 mine was invasive
Can't hear you :'(
Look up Andreas Moritz he has many books that Im shure that can help you out.
my mom got mamogram result today and ultrasound
they ordered biopsy... i feel overwhelmed our family has no history of cancer 😖please i need comfort what can we expect?????
today 10/19/2018 7pm. they term they used today is asymestry supicious malignancy 10oclock 2.3cm??
The best advice I can give is to wait for the results. The waiting is the hard bit. F she is diagnosed they should start treatment within 6 weeks with any luck. 2.3cm is still reasonably small tumour size, so fingers crossed it’ll be early stages.
Good luck with the results. I pray that it turns out to be benign. X
im very thankful i never though u reply back.. ur very impowering and thank u for the prayers i take her in tommarow biospy yes finger crossed and i leave everyrhing to god thsnk u so much
Tnbc Google make me scared my mom has it treatment is about get over u r very beautiful mam
Rahul Singh thank you. Good luck to your mom. I’m still alive and kicking 2 years on!! Hopefully her treatment will be a success xx
Mam don't count ur years u live healthy life I pray to god.
Shaving causes small cuts on skin allowing chlorinated water and chemicals from deodorants to enter body.
Your eyebrows though
Your talking very low why? Oh well....next
Frankie Kohl sorry. That’s just my voice
I hear you fine..😊
Stay strong beautiful stay positive fight for this cancer ♋️ 💪
To everyone reading this please turn to Jesus He loves you and wants to save you from what you are going through, Only Jesus can truly heal you, He is the God of miracles, The bible tells us in Romans 10:13 For whosoever shall call upon the name of the Lord shall be saved, I seen God do amazing things in my life and in the lifes of people I know, God saved someone I love from illness leading to death, There is nothing impossible to God, Its as simple as asking Him to show you He is there and if you really want to know Jesus will answer you, I know this because it happened to me when I called out to God