Could you do some like nutshell videos of three to four minutes that sum things like these up. It's impossible for many ME patients to listen to this video. I would like to know what it informs us about but I am totally unable to get it through a format like this one.
The Health Rising ME/CFS Blog has a good written summary of the findings. www.healthrising.org/blog/2019/06/02/gene-mutations-energy-production-chronic-fatigue-syndrome/
@@KidCity1985 ME/CFS isn't caused by this virus or that. Humans are SURROUNDED by viruses, bacteria, etc.. It's more likely a combination of factors -- which affect EPIGENETIC expression -- including what stressors/traumas/pressures were happening before and when you got sick, and how one is addressing those now that they are sick.
@@DDumbrille it's caused by stress, trauma, exhaustion, and then a virus to ignite the storm. Studying it for 27 years it's pretty clear. That's why they call it post viral syndrome.
Dr. Camille Birch, I was searching on types of GSD in EDS 3 with CFS diagnosis I noticed a Family with 2 types combined GSD VIII & GSD IX combined I think VIII is now a type of IX but they all had EDS3 with CFS I saw this on the Coriell Medical Research Group USA site of Family Histories they have there so thought I would mention this as well most of them were symptomatic but not all of them who tested Positive to both GSD's combined it was in children & Adults
It's not about genetics -- it's about genetic EXPRESSION and EPIGENETICS. Your environment, the stressors in your life before and after you got sick. As you yourself point out -- 'not all who tested positive' were symptomatic.
Also she did mention a family member had a GSD rare type after testing & also now Tulane University has published in gene mutations in Folate & are on Facebook Tulane hypermobility Cinic, in 1989 the FDA-modified food with folic acid a synthetic form @@DDumbrille & other vitamins minerals
Habba Syndrome? Dr. Habba Gastroenterologist New Jersey USA Gal Bladder not properly functioning with bile they use same medicne in Gal Bladder removals one with no sucrose the Light one in powder form 4 mg pouch. He does gal bladder Scan
The Health Rising ME/CFS Blog has a good written summary of the findings. www.healthrising.org/blog/2019/06/02/gene-mutations-energy-production-chronic-fatigue-syndrome/
Could you do some like nutshell videos of three to four minutes that sum things like these up. It's impossible for many ME patients to listen to this video. I would like to know what it informs us about but I am totally unable to get it through a format like this one.
Frühlings Frisch I agree. I actually become nauseous trying to listen so I fast forwarded. The good part starts around thirty minutes in.
Yes, could we get a summary of botton line findings?
The Health Rising ME/CFS Blog has a good written summary of the findings.
www.healthrising.org/blog/2019/06/02/gene-mutations-energy-production-chronic-fatigue-syndrome/
Amazing work! Thank you so much for pursuing this subject. It's immensely important to some.
Very interesting presentation, with findings and concepts that offer new avenues of research challenge focusing on our disease. Many thanks!
Please keep fighting for us!
Mine was CMV in 1996. I still have hope. Would love to volunteer, I'm in Seattle area.
OMG...my condition originally started with EBV infection 1983 but it got drastically worse with CMV infection in 1996 too! (Los Angeles area)
@@かんぐちあき I had ebv in 76, but healed from that . Several other viruses in that category too.
@@かんぐちあき
What has worked best for you? Thank you.
@@KidCity1985 ME/CFS isn't caused by this virus or that. Humans are SURROUNDED by viruses, bacteria, etc.. It's more likely a combination of factors -- which affect EPIGENETIC expression -- including what stressors/traumas/pressures were happening before and when you got sick, and how one is addressing those now that they are sick.
@@DDumbrille it's caused by stress, trauma, exhaustion, and then a virus to ignite the storm. Studying it for 27 years it's pretty clear. That's why they call it post viral syndrome.
I am moderate to severe for 16 years. I really wanna participate in the study and I’m willing to travel to Alabama.
I have, and most of my kids have pots or me/ cfs suffering sucks.. no one has really been able to help us
Any follow up on this research?
How can I get tested would you run my DNA Please?
They should be also tested for 'Familial Vibratory Urticaria' they have bad allergies & bizarre skin reactions including food
Also what comes up is Protein from Meat Genetics LCHAD/HADH Fatty Acid oxidation genetics
2021 : any update ?
No replies at all
Dr. Camille Birch, I was searching on types of GSD in EDS 3 with CFS diagnosis I noticed a Family with 2 types combined GSD VIII & GSD IX combined I think VIII is now a type of IX but they all had EDS3 with CFS I saw this on the Coriell Medical Research Group USA site of Family Histories they have there so thought I would mention this as well most of them were symptomatic but not all of them who tested Positive to both GSD's combined it was in children & Adults
It's not about genetics -- it's about genetic EXPRESSION and EPIGENETICS. Your environment, the stressors in your life before and after you got sick. As you yourself point out -- 'not all who tested positive' were symptomatic.
Also she did mention a family member had a GSD rare type after testing & also now Tulane University has published in gene mutations in Folate & are on Facebook Tulane hypermobility Cinic, in 1989 the FDA-modified food with folic acid a synthetic form @@DDumbrille & other vitamins minerals
Could thalamus and hypothalamus dysregulation be the hub of ME/CFS?
Habba Syndrome? Dr. Habba Gastroenterologist New Jersey USA Gal Bladder not properly functioning with bile they use same medicne in Gal Bladder removals one with no sucrose the Light one in powder form 4 mg pouch. He does gal bladder Scan
Will there be a transcript available of this please? I can learn and retain much better reading thatn listening.
The Health Rising ME/CFS Blog has a good written summary of the findings.
www.healthrising.org/blog/2019/06/02/gene-mutations-energy-production-chronic-fatigue-syndrome/
Info at 34 minutes
Loci is the plural of locus.
This is really good news.