All About POTS
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- Опубліковано 27 сер 2019
- In this video, I explain what POTS is, how it is diagnosed, and some of the treatment options available. POTS (Postural Orthostatic Tachycardia Syndrome) is a form of Dysautonomia which is a malfunction of the autonomic nervous system. To learn more about POTS and other forms of Dysautonomia check out the link below:
www.dysautonomiainternational....
Check out my other UA-cam Channel:
/ 101rabbits
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SOCIAL MEDIA:
Instagram: @Haleyslifethroughalens
I commented on one of your previous videos but I have 4 bunnies and also POTS. I wanted to thank you for spreading awareness for our condition ❤.
Thank you! ❤️
Her camera quality is stunning😯
She is stunning.
I have to watch her in 480k not to fall in love. But I' m afraid I must lower it to 240k. 🤭
You explained POTs really well, thank you. I'm going to be sharing this. I always get asked about what's wrong with me and POTs is a bit more tricky to explain clearly than gastroparesis is. Even though I HAVE POTs even I learned something from this! I knew with the temperature that it can cause extreme cold but I didn't know about the heat although it makes sense. I always get really sick from heat, which is irony since I live in Florida. Thank you again for making this video 💜
Thank you! I’m glad you enjoyed it and even learned something new! And yes Florida is crazy hot! I was there in June and about died from the heat. 😅
I have POTS and gastroparesis too, which are caused by my hypermobile type Ehlers Danlos syndrome.
Thankfully Mayo Clinic and Vanderbilt have pioneered Mestinon (Pyridostigmine) to treat both POTS and gastroparesis. It's been a miracle for me. Are you on that one as well?
This video is so helpful! I've been experiencing all of these symptoms and its got worse over the last couple of years. I find that I struggle most with my feet burning all the time and especially when they're warm. I come out in hives after standing and am finally getting a doctors appointment next week. Hopefully they're aware of what pots is because I'm pretty certain that's what it is. Thank you!
Very nice overview of POTS. Thank you
This was very helpful! I was just diagnosed with POTS :)
Amazingly informative video!!! POTS is a really rough thing to deal with!
I have POTS and other health issues from hypermobile type Ehlers Danlos syndrome. I take the emerging repurposed POTS medication Pyridostigmine, which also treats my gastroparesis; and I take a nightly dose of Guanfacine to further treat my POTS and to improve my sleep and to prevent migraines.
Other good POTS medications include Ivabradine, Atenolol, Propranolol, or Clonidine.
I have a lot of empathy for you. Life can already be though when everything is fine with your health. Thank you for all your videos. I just bought a bunny for my daughter and learned a lot from you. You are amazing.
Found this channel by complete mistake. Was looking at a few of your bunny videos and saw a pop up for this channel. Came over to see what it was all about, and was shocked to see that you are another POTSy. Wanted to say thank you for putting out this video and others. The more people that know about POTS and other dysautonomia's the better. And hopefully can get more answers with further research. I'm lucky to be considered now a higher functioning pots patient in that I can ride my bicycle for extensive miles with limited symptoms. But ask me to stand in a line at the grocery store and I have to refuse every time LOL, it is a sure way for me to be on the floor within minutes. Look forward to watching your other videos. And keep up the good work of spreading the word.
Thank you for doing this Haley! You are one amazing young lady and we are so happy to have you as a volunteer!
Thank you!
Bless you for bringing POTS to the forefront. I really applaud you for doing your rabbit videos, regular channel and balance everything else in your life while living with this. Keep up your wonderful work. I love both channels! ♥️🐇
Thank you! ❤️❤️❤️
Thank you for the video
Awesome video, Haley! Super educational for those who don’t know about POTS! Keep up the awareness :) Grateful we met because of POTS 💜
Thank you! I’m so glad we met too!
Thank you for your explanation ♥
Thank you for making this video it was very infomative. I am in nursing school and i dont believe we will be learning about POTS, it will be nice to know if i ever have a patient with this condition🙂
Great video.
I get brain fog and extreme fatigue through my respiratory condition, until you’ve experienced extreme fatigue you have no idea what it’s like. It’s like an out of body experience and I start saying the silliest of things or doing the most bizarre things. I once made my wife a coffee sandwich out of filter coffee graduals. A neuropathy is closing my lungs down from the bottom up because my brain says 'I’m not using that part of the lungs it’s too painful', that means my heartbeat is usually around 125 at rest to keep my sats up. I also have 'extreme persistent atopic asthma and use a nebuliser up to 8 times daily though usually I mix both meds together and use it 4 times. This again increases my heartbeat, small doses of salbutamol slows it down but large doses along with my ipatropium speeds it up.
I work as the service lead for an information and advice service at a Disabled Peoples Organisation (DPO). Thank you very much for this video, the more understanding I have of other people’s conditions the better I can help them. The video is really well laid out and very informative.
THANK YOU SO VERY MUCH ❤
You are such a role model.
I have ADHD and ashama and a few other things. I have 3 bunnies.
Thank you! This was very insightful. I had no idea that brain fog wasn't something that everyone experienced every so often. I've just been writing off my daily brain fog as being tired while having Inattentive ADHD. Now, I'm wondering if there's more to it than that. 🤔
Anyways, thanks for the info!
just found out i most likely have pots waiting to be offically diagnosed so i can start treatments :)
I have multiple sclerosis..I noticed when I was walking my pulse rate I seen a cardiologist he put me on a beta blocker..neurologist dont think its multiple sclerosis related..but cardiologist put it on paperwork on January 7th 2021. Multiple sclerosis related symptoms
I have a service dog for pots and it’s amazing what they can do
How does your dog help?
J L She does DPT (deep pressure therapy) and it helps my dizziness. Lightheadedness, and high HR slow does.
When I’m extremely lightheaded and it’s hard to see she’ll guid me and I’ll use the guid handle, when super dizzy/lightheaded and I start to fall back I’ll use the CB handle (counter balance) that way I won’t fall.
She’ll also do forward momentum, I use that handle when I need a little help with pulling me forward.
When I faint she will get under my legs and put them up or she’ll do DPT to help me come out of it faster.
My dog doesn’t have a natural alert which means I can’t help her get any alert, but some service dogs will alert to high HR, alerting before someone faints/passed out, alerting before someone gets dizzy/lightheaded.
Etc, my dog will do mobility, psychiatric, and medical work, which is multi-purpose. And the mobility tasks will help a LOT with what’s wrong with me.
But if you have anymore questions about what my dog does feel free to ask!
@@Luka_rose that's amazing! What is deep pressure therapy ?
J L (DPT)-or just pressure therapy-involves a dog using its weight and sometimes warmth to mitigate a psychiatric symptom, often either as a calming strategy or to minimize disengagement from the world.
I hope I said that correctly😂
@@Luka_rose thank you so much for ur info! Wish I could get one but I already have one dog to take care of. 😣
I have a quick question, im gonna start home infusions for pots and I wanna know if all pediatric patients get a portable pump? just wanna ask because I know you get saline infusions too :p I only see younger ppl with pumps rather than gravity drips so I just wanted to know since im 15 and getting them twice a week, needing to go out is gonna be a pain in the butt if I don't have a pump😂im asking you because you know more than me for sure🙃
With the temperature thing… could water temperature be involved? I used to be able to take HOT showers and baths but now they have to be borderline cold
I have pots too, I am only 13 and I rlly suffer
Sorry if this is a dumb question lol, but to test for pots, is it just if your heart rate increases by 30 bpm period, or increases by 30 and stays that way over 10 minutes?
It has to stay that way. Everyone’s heart rate increases when they first stand up. POTS patients’ heart rate stays up
I personally don’t tolerate plain water all that well, I hold onto fluids better if I drink soda or sports drinks as main source of fluid instead of regular water. Granted I drink plain water as well, but it’s not my main source of hydration as water just goes straight through me and makes me pee a lot more and sooner, than if I drink the same amount of Coca Cola. The sugar and caffeine in the Coca Cola also personally helps me with some of my headaches and fatigue related to other issues I have, and as I tend to have very poor appetite and struggle to eat enough, the sugar also helps me keep my blood glucose at a decent level or bring it back up if I have gone a bit low (lowest I’ve measured myself is 3,1mmol/l without being on medicines that affects blood glucose levels) I don’t drink massive amounts of Coca Cola, it’s a few gulps when I’m thirsty or feel I need it, so spread out over the day it’s maybe 0,5L-1L of Cola in a day along with maybe about 0,5L of water and/or other fluids. I also eat salty snacks, and salt a bit extra on some foods. Another fluid that works better for me than plain water but is more healthy than Coca Cola is flavored, carbonated mineral water as it tends to have a higher sodium content than tap water, and the flavor and bubbles makes it easier to drink. I also drink carbonated better than plain, something about the texture
This was so helpful to read! I recently got diagnosed with POTS and I was put on a salt and water treatment. But of my main symptoms is headaches, and I feel like they’re lasting longer now. Because I have Orthostatic hypertension and the water is probably making it worse. I’ve always drank coke because I also have a low appetite and caffeine helps my headaches. I’m gonna be consulting him next time about this. Really interesting to read someone with the same experience as me!
Emma McKee I’ve heard of some others who don’t tolerate plain water as much as other beverages, but people are always in the belief that we should drink water all the time. I just listen to my body... Lately I’ve switched from Coca Cola to Pepsi Max and try to snack more often to avoid hypoglycemia. I do drink water as well, it’s just not my main source of hydration because of what it can do to me. Water just really goes straight through me, while with the same amount of cola or Pepsi Max (or even flavored fizzy mineral water) it generally takes a lot longer before I need to go pee. Just feels like I hold onto other beverages better than I do with plain water, and since I hold onto it better it also means it’s not flushing the system as much. But that’s just me, I can’t really recommend anything other than listening to your body and find ways that works for you, we’re all different
I also have hypoglycemia and snacking was the worst advice my dr has given me. I’m now on keto-carnivore diet and I feel like I’m getting my health back . U can check out dr kenberry and dr Fung ..
I HATE plain water as well. (Undiagnosed pots. Getting tested) for me I mix up the drinks I use. Ive used 711 brand replenish (united states) they have good flavors, large bottles, tasty inexpensive and get me the fluids I need. I also recently bought one of those cirkul bottles. It is or was trending on social media. They work really well. They have hydration flavors, electrolyte flavors, energy flavors, coffee flavors and you can change the flavors whenever you want. I usually keep a energy, a hydration and an electrolyte flavor with me for when I need any of those. They come in a lot of flavors. Walmart and Sam's club sells the bottles and some flavors. I highly recommend.
You should make a recording of your heart!
what?
Do you have EDS
Multiple sclerosis related
Please be careful to note that they must know their PoTs type.
Salt can be very dangerous for some types.
There are different types of PoTs
Hey Hayley, I’m a chronically ill bun mum as well 💜 POTS people- has anyone had issues with BP going up when standing, not down? It’s become a huge issue for me and causing a lot of fainting/dizzy spells.
Bridget Parker I don’t personally have this but it’s called Hyperpots! I don’t know a ton about it but I know a few people who have that!
Haley's Life Through A Lens thank you! I’ve tried looking for info and haven’t found anything. My doctors said I just have to live with the dizziness but it’s become dangerous. I’m off to google now.
Haley's Life Through A Lens Haley- I could cry. Just looking at it, it explains SO much that I’m experiencing! Thank you so much.
It means that you have Hyperadrenergic POTS. This is a term used to describe POTS associated with elevated levels of the stress hormone norepinephrine. Try Propranolol because that blocks the norepinephrine receptors and reduces symptoms.
@@JohnBedson thank you so much for your reply! It turned out my medications were a big contributor to it, so with an adjustment I’m not having as bad of symptoms.
I just discovered your channel last night and I absolutely love your videos and already find you to be such an inspiration! I’m a spoonie as well it would mean so much to me if you could subscribe to my channel! Sending hugs and lots of spoons!❤️
It's possaboe that I have POTS but uh I don't think I do
Not to through shade or hate ( actually I love lots of the UA-camrs I'm talking about ) but for some reason lots of UA-camrs I watch ( maybe that is just what I happen to watch ) have some type of condition, yet all of my school ( most ) are completely fine so maybe I only know the healthy ones but I just found that weird, that most of the time UA-camrs I've seen have some type of condition, but maybe I'm just super healthy, I don't know
Help😰🐰🐇