What's In My Bag: Chronic Illness Edition Part 1
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- Опубліковано 16 вер 2024
- A what's in my bag video geared toward the chronic illness / spoonie community.
#rheumatoidarthritis #fibromyalgia #spoonsandpaws
Part 2: • What's In My Bag: Chro...
Etsy: www.etsy.com/s...
Instagram: / spoonsandpaws
Facebook: / spoons-and-paws-928176...
Twitter: @spoonsandpaws
Items from Amazon:
Tenba Bag: amzn.to/2H16Kf9
Extra Strap: amzn.to/2VEREPK
Jacket/Blanket Strap: amzn.to/2EFV2TD
Clipa: amzn.to/2Hg3oEk
Vera Keychain: amzn.to/2HgkqlM
Airpods Case: amzn.to/2TgZBxy
Wallet: amzn.to/2XEURQX
Detox Tea: amzn.to/2UoeZoi
Vera Keychain Loop: amzn.to/2EOw3OW
PurpleTreat Bag: amzn.to/2UqYoR6
Black Treat Bag: amzn.to/2SMUv7c
Vera Pill box: amzn.to/2TvVpt5
Revlon Lip Stain: amzn.to/2EQI1rG
Macaron Container: amzn.to/2EQqUGq
Black Onyx Gear: / blackonyxgear737
Missed you Summer!
So helpful. Thank you. ❤️😊💐
Good Morning, I loved watching this because I carry alot of the similar things you do. I have a small sloth heating pad that I use also. I have RA as well as fibro and added gout. I am relieved though that I am not the only one who is always really cold or really hot. My husband says my thermostat is broke in my body. :)
Hi! Thank you for sharing! How long have you had your Rheumatoid arthritis diagnosis?
@@SummerzSpoonz my dad had it for years and when he passed away he had already three separate broken bones. I have for years been tested every 6 months so first it was fibromyalgia and then about 2.5 years ago now I found out I had RA. I moved from GA (my home) to ND 13 years ago so my pain every year is horrible. I go to a new rheumatologist in March for different medication because I am at the top of what I can take through my general dr.
Hey Summer 😀, what's your current bag/purse look like today for your chronic illness? I carry a Pink Backpack. Would love to see a new one 😁
I should totally do a new video! Thanks for the idea!
@@SummerzSpoonz Yw and ya as my grandma always said
"Time changes everything"
I've been in an RA knee flare for days now and if there's anything different out there to use I'm all ears 😁👍
Where did you get.that what helped you dog. This is is neatest setup I’ve seen. I don’t know what I am doing. Please help me. I was one of the one who was convinced to buy a 10s. I can’t see your.
Bag really great. Please help me. People think my sweating is in my head. I don’t know what to do anymor
Which item for my dog are you asking about? I would suggest a neck fan and a water bottle with ice water for the sweating.
Thank you so much for answering me. I am all alone. I honestly have no idea what I was talking about. I tried to get a service dog and couldn’t hear. I do have my animals that keep me unbelievable companions. I am going to go to and try to figure out what I was asking about the dogs things. Sometimes the posted videos are so short and basic that I just watch. But with your part 1 & 2 I just love it. I can identify with everything you say and it makes me feel like I’m not alone. It has affected all my teeth now and they all have to be removed on the 20th. 5 months without anything while I (hopefully) heal and then full top and bottom dentures. I am so afraid. I found your videos and it made me feel a little better. You are a fantastic crafter. I love your painting. I don’t suppose you might make me one of those blankets if I were to pay? I am so tired of the continued sweating and sticking to the sheets constantly when I try to turn. As you know, sleep does not come easy anyway. I would love if you could paint those mint times for me for payment too. They are beautiful. It would mean so much to me if it was done by a fellow spoonie. People just don’t understand. I started in my 20s with reynauds. And then kept on going and going with more and more. Thanks you for sharing. I really appreciate it.
Would it work for a person with CP, Kidney disease, asthma, diabetes, and mental illness
kris novotny would what work?
A bag like that you have
kris novotny It all depends on how much stuff you need to bring with you when you leave the house. I have to admit that the double straps I use as a backpack don’t stay on my shoulders well when I’m both holding onto my service dogs harness and walking around. If you body can handle using one strap and doing the cross body method then it would work. The next bad I’m going to try is the Vera Bradley campus backpack. Look into that one as well.
kris novotny Watch this video: ua-cam.com/video/MdGNq568Qec/v-deo.html
@@SummerzSpoonz ok
I cannot find your things. I was wondering if you would be so kind as to make me a double glaze blanket. I have autoimmune diseases that bebagan when I was 20. I would as a RN and had to add what it was. As time when on I developed more and more getting to the point the surgeon had to tell me no more working as advanced peace RN. It was time for me to try to keep myself as healthy as possible. I was hospitalized twice 2 weeks at a time with no visitors except my great docs and steroids raising through my vein. I would be so happy to receive one of these blankets from you. I trust you. I would also just love if someone could make me a bunch of spoons to hang from my purse. This is so very real and so many do believe you. Or don’t care. I am always trying to find ‘my people’ who truly understand. We are here. I advanced practice RN for 30 years. My best friend has it in Pitt. No one knows how to help. She no longer can communicate and I miss her so, so very much. They destroy friendships and rip apart families. Any help I can find here I will be eternally grateful.
@melanieswartz9231 I’m so sorry to hear about the struggles you have endured and friendship you have lost. I will definitely keep you in my thoughts and prayers 🙏🏽. Unfortunately, I no longer make the double gauze blankets, the cost of the fabric was just too high. However, you can easily find them on Amazon now! I’ll leave a link here. Please also email me your mailing address and I would love to make you a spoon charm to attach to your purse! summerzspoonz@gmail.com
a.co/d/0geA8xHq