Where can we access the Documentary? This was BRILLIANT!! I’m in the UK and really struggling, ‘diagnosed’ a few years ago at 60! 😐Hearing all your life stories was so helpful, THANKYOU 🤗🙏✨
Unfortunately, my adult Son's CVID was not discovered until after he was diagnosed with NHL follicular at age 30 years. His IgG, IgA, and IgM were very low , and had he received treatment for lymphoma, the low IGs would have most certainly been attributed to the treatment and not investigated as a primary immunodeficiency. He has just commenced IVIG and we are hoping to see some positive results.
Everyone gets fatigue. People with immune deficiencies can get tired a lot more easily than others. As for playing sports, that has nothing to do with the immune system. That choice is up to you.
![Wolfram Physics Project: Working Session Wednesday, Apr. 29, 2020 [Finding Black Hole Structures]](/img/n.gif)
Where can we access the Documentary? This was BRILLIANT!! I’m in the UK and really struggling, ‘diagnosed’ a few years ago at 60! 😐Hearing all your life stories was so helpful, THANKYOU 🤗🙏✨
You can find screening info at primaryimmune.org/compromised!
Unfortunately, my adult Son's CVID was not discovered until after he was diagnosed with NHL follicular at age 30 years. His IgG, IgA, and IgM were very low , and had he received treatment for lymphoma, the low IGs would have most certainly been attributed to the treatment and not investigated as a primary immunodeficiency. He has just commenced IVIG and we are hoping to see some positive results.
We're sorry to hear how difficult it's been, but hopefully treatment will help!
How about fatigue? No mention as if I can play sports!
Everyone gets fatigue. People with immune deficiencies can get tired a lot more easily than others. As for playing sports, that has nothing to do with the immune system. That choice is up to you.
I really hate when drs act like you can live your normal life! Not true and just got celiac.
You can live a normal life, you have to take a different approach.
@@lisaverachtert Exactly - it's never going to be a normal life. Just a different life :)